Re: New member with questions

[Guest guest]

Hi !

Looks like you've had a busy time...

When you go back in six weeks they should be seeing how things are doing, if it's spread, if there is additional growth.. they should also be checking how the Hashi's antibodies are doing... they will still be affecting the parts of the gland that are still left.... They can get MOST of the thyroid out but some tissue remains.... if it happens that that remaining tissue is giving problems they may choose to use RAI (radioactive iodine) to kill it....

I had RAI to kill my gland 15 years ago.. so if that does come to pass.. you have me and several others to talk to about that... so don't worry, okay....

Since they've taken so much out.. you'll want to keep a close eye on your levels.. you will need replacement hormone.. so the thing will be to find out how you are doing and getting you started on a dose... You will have to decide if you want synthetic or natural.. personally, as someone without any thyroid function either, I'd suggest natural thyroid...

You'll want to make sure that he tests your Free T4 and Free T3 from now on... you will need to be sure that these levels are good... you will not have much, if any thyroid function (I have none) and you need to make sure that your meds are correct... You wont' have a gland to bail you out if you are under dosed.

Sounds like you can stand your ground... We'll be standing right next to you if you need us!

Topper ()

On Sun, 29 Aug 2004 21:18:45 -0500 " Traversa" writes:

Hi all,

My name is Jenn and I actually joined the list last month, but never posted. I actually gained some valuable information and when I met with my doctor, I had the courage to "speak" up to him. I was diagnosed with hypothyroidism last year as well as Hashis. when i went in for my follow ups, I let him know that the medicine wasn't working, as I still had several symptoms. He ran blood work and my levels came back within normal range. He ordered for an ultrasound which is what alerted him. I had a mass there last year and it wasn't bothering me at the time, and he did a bioposy on it, and it came back fine in 2003. Well, at this session it did show growth, so the decision was made to have surgery. I had surgery just on Thursday and in the end, the mass did show malignancy, and he removed the entire thyroid as well as the goiter that was there and obviously the mass itelf. I'm healing and recovering quite well and have to go back in 6 weeks to make sure that nothing spread.

I'm doing ok with "the words", but if anyone has had any experience with this, I would love to hear your story and things to expect!

[Guest guest]

Hi !

Looks like you've had a busy time...

When you go back in six weeks they should be seeing how things are doing, if it's spread, if there is additional growth.. they should also be checking how the Hashi's antibodies are doing... they will still be affecting the parts of the gland that are still left.... They can get MOST of the thyroid out but some tissue remains.... if it happens that that remaining tissue is giving problems they may choose to use RAI (radioactive iodine) to kill it....

I had RAI to kill my gland 15 years ago.. so if that does come to pass.. you have me and several others to talk to about that... so don't worry, okay....

Since they've taken so much out.. you'll want to keep a close eye on your levels.. you will need replacement hormone.. so the thing will be to find out how you are doing and getting you started on a dose... You will have to decide if you want synthetic or natural.. personally, as someone without any thyroid function either, I'd suggest natural thyroid...

You'll want to make sure that he tests your Free T4 and Free T3 from now on... you will need to be sure that these levels are good... you will not have much, if any thyroid function (I have none) and you need to make sure that your meds are correct... You wont' have a gland to bail you out if you are under dosed.

Sounds like you can stand your ground... We'll be standing right next to you if you need us!

Topper ()

On Sun, 29 Aug 2004 21:18:45 -0500 " Traversa" writes:

Hi all,

My name is Jenn and I actually joined the list last month, but never posted. I actually gained some valuable information and when I met with my doctor, I had the courage to "speak" up to him. I was diagnosed with hypothyroidism last year as well as Hashis. when i went in for my follow ups, I let him know that the medicine wasn't working, as I still had several symptoms. He ran blood work and my levels came back within normal range. He ordered for an ultrasound which is what alerted him. I had a mass there last year and it wasn't bothering me at the time, and he did a bioposy on it, and it came back fine in 2003. Well, at this session it did show growth, so the decision was made to have surgery. I had surgery just on Thursday and in the end, the mass did show malignancy, and he removed the entire thyroid as well as the goiter that was there and obviously the mass itelf. I'm healing and recovering quite well and have to go back in 6 weeks to make sure that nothing spread.

I'm doing ok with "the words", but if anyone has had any experience with this, I would love to hear your story and things to expect!

[Guest guest]

Hi !

Looks like you've had a busy time...

When you go back in six weeks they should be seeing how things are doing, if it's spread, if there is additional growth.. they should also be checking how the Hashi's antibodies are doing... they will still be affecting the parts of the gland that are still left.... They can get MOST of the thyroid out but some tissue remains.... if it happens that that remaining tissue is giving problems they may choose to use RAI (radioactive iodine) to kill it....

I had RAI to kill my gland 15 years ago.. so if that does come to pass.. you have me and several others to talk to about that... so don't worry, okay....

Since they've taken so much out.. you'll want to keep a close eye on your levels.. you will need replacement hormone.. so the thing will be to find out how you are doing and getting you started on a dose... You will have to decide if you want synthetic or natural.. personally, as someone without any thyroid function either, I'd suggest natural thyroid...

You'll want to make sure that he tests your Free T4 and Free T3 from now on... you will need to be sure that these levels are good... you will not have much, if any thyroid function (I have none) and you need to make sure that your meds are correct... You wont' have a gland to bail you out if you are under dosed.

Sounds like you can stand your ground... We'll be standing right next to you if you need us!

Topper ()

On Sun, 29 Aug 2004 21:18:45 -0500 " Traversa" writes:

Hi all,

My name is Jenn and I actually joined the list last month, but never posted. I actually gained some valuable information and when I met with my doctor, I had the courage to "speak" up to him. I was diagnosed with hypothyroidism last year as well as Hashis. when i went in for my follow ups, I let him know that the medicine wasn't working, as I still had several symptoms. He ran blood work and my levels came back within normal range. He ordered for an ultrasound which is what alerted him. I had a mass there last year and it wasn't bothering me at the time, and he did a bioposy on it, and it came back fine in 2003. Well, at this session it did show growth, so the decision was made to have surgery. I had surgery just on Thursday and in the end, the mass did show malignancy, and he removed the entire thyroid as well as the goiter that was there and obviously the mass itelf. I'm healing and recovering quite well and have to go back in 6 weeks to make sure that nothing spread.

I'm doing ok with "the words", but if anyone has had any experience with this, I would love to hear your story and things to expect!

[Guest guest]

You should start wiht a saliva cortils test, Ferritin serum ad Reverse T3

done the same time as a Free T3. These will give the answer you need as to

where to start.

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

[Guest guest]

You should start wiht a saliva cortils test, Ferritin serum ad Reverse T3

done the same time as a Free T3. These will give the answer you need as to

where to start.

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

[Guest guest]

If you mean saliva Cortisol, these are my results from ZRT labs with their norms

in brackets:

Cortisol AM 4.4 (3.7-9.5)

" Noon 1.4 (1.2-3.0)

" Evening 1.3 (0.6-1.9)

" Night 0.6 (0.4-1.0)

The other tests (at the risk of being repetitive)results were:

Free T3 2.8 (2.5-6-5)blood

Free T4 1.5 (0.7-2.5)blood

TSH 0.2 (0.5-3.0)blood

TPO 1416 (1-150 {70-150 borderline})blood

Estradiol 1.2 (0.5-1.7 {optimal 1.3-1.7})

Progesterone 18 (12-100)

Ratio Pg/E2 15 (100-500)

Testosterone 19 (16-55)

DHEAS 7.3 (2-23)

If you mean a different saliva test (cortils), please tell me. I will also look

into serum ferritin and Reverse T3.

I want to add that I am so grateful for your fast response and willingness to

share information.

>

> You should start wiht a saliva cortils test, Ferritin serum ad Reverse T3

> done the same time as a Free T3. These will give the answer you need as to

> where to start.

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

>

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> http://health.groups.yahoo.com/group/RT3_T3/

>

[Guest guest]

If you mean saliva Cortisol, these are my results from ZRT labs with their norms

in brackets:

Cortisol AM 4.4 (3.7-9.5)

" Noon 1.4 (1.2-3.0)

" Evening 1.3 (0.6-1.9)

" Night 0.6 (0.4-1.0)

The other tests (at the risk of being repetitive)results were:

Free T3 2.8 (2.5-6-5)blood

Free T4 1.5 (0.7-2.5)blood

TSH 0.2 (0.5-3.0)blood

TPO 1416 (1-150 {70-150 borderline})blood

Estradiol 1.2 (0.5-1.7 {optimal 1.3-1.7})

Progesterone 18 (12-100)

Ratio Pg/E2 15 (100-500)

Testosterone 19 (16-55)

DHEAS 7.3 (2-23)

If you mean a different saliva test (cortils), please tell me. I will also look

into serum ferritin and Reverse T3.

I want to add that I am so grateful for your fast response and willingness to

share information.

>

> You should start wiht a saliva cortils test, Ferritin serum ad Reverse T3

> done the same time as a Free T3. These will give the answer you need as to

> where to start.

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

>

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> http://health.groups.yahoo.com/group/RT3_T3/

>

[Guest guest]

If you mean saliva Cortisol, these are my results from ZRT labs with their norms

in brackets:

Cortisol AM 4.4 (3.7-9.5)

" Noon 1.4 (1.2-3.0)

" Evening 1.3 (0.6-1.9)

" Night 0.6 (0.4-1.0)

The other tests (at the risk of being repetitive)results were:

Free T3 2.8 (2.5-6-5)blood

Free T4 1.5 (0.7-2.5)blood

TSH 0.2 (0.5-3.0)blood

TPO 1416 (1-150 {70-150 borderline})blood

Estradiol 1.2 (0.5-1.7 {optimal 1.3-1.7})

Progesterone 18 (12-100)

Ratio Pg/E2 15 (100-500)

Testosterone 19 (16-55)

DHEAS 7.3 (2-23)

If you mean a different saliva test (cortils), please tell me. I will also look

into serum ferritin and Reverse T3.

I want to add that I am so grateful for your fast response and willingness to

share information.

>

> You should start wiht a saliva cortils test, Ferritin serum ad Reverse T3

> done the same time as a Free T3. These will give the answer you need as to

> where to start.

> Artistic Grooming- Hurricane WV

>

> http://www.stopthethyroidmadness.com/

>

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> http://health.groups.yahoo.com/group/RT3_T3/

>

[Guest guest]

Cortisol AM 4.4 (3.7-9.5)

" Noon 1.4 (1.2-3.0)

" Evening 1.3 (0.6-1.9)

" Night 0.6 (0.4-1.0)

OK Before you can start treating Reverse T3 you need to support your adnreals.

They are not horrid but they are not healthy either. I would suggest for these

labs trying Isocort and possibly Licorice Root in the AM . While you start ti

you need ot graph your temps per www.drrind.com to knwo when you have strong

enough adrenl support to toleratre thyroid.

Free T3 2.8 (2.5-6-5)blood

Free T4 1.5 (0.7-2.5)blood

From your HIGH T4(I prefer to see no higher than 1.4) and veyr low T3 it is

obvious you are not convertinf properly and DO have an RT3 issue. So you would

need to start with T3 only, Cytomel.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

[Guest guest]

Cortisol AM 4.4 (3.7-9.5)

" Noon 1.4 (1.2-3.0)

" Evening 1.3 (0.6-1.9)

" Night 0.6 (0.4-1.0)

OK Before you can start treating Reverse T3 you need to support your adnreals.

They are not horrid but they are not healthy either. I would suggest for these

labs trying Isocort and possibly Licorice Root in the AM . While you start ti

you need ot graph your temps per www.drrind.com to knwo when you have strong

enough adrenl support to toleratre thyroid.

Free T3 2.8 (2.5-6-5)blood

Free T4 1.5 (0.7-2.5)blood

From your HIGH T4(I prefer to see no higher than 1.4) and veyr low T3 it is

obvious you are not convertinf properly and DO have an RT3 issue. So you would

need to start with T3 only, Cytomel.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

[Guest guest]

Hi, " Mommatoo5 " ,

I just wanted to give you some encouragement! I am also 52 yrs and used to

weigh around 120 and am now hovering at 200, so I feel your pain!

You have come to the right place for advice! That's the strongest encouragement

I can give you! Val, Patty, Birdy, Diane, Bill, Steve and other moderators whom

I forget have saved my life! I am fortunate to have a wonderful alternative MD

who helps me, but she did not know about Aldosterone for which I needed

Florinef, so she agreed to learn together with me and plans to help her other

patients with that knowledge. I copied information from the Stop the Thyroid

Madness website and book and shared it with her. So I would encourage you, as

you feel able, to read the info on that site, as well as, you MUST get the book.

Mine is dog-eared and highlighted throughout and it has gotten me through the

scary times when I wasn't sure what was going on.

Val has over 15 years experience in this, so you can trust her (even tho we have

to decipher her typos sometimes!!! Love ya, Val! LOL).

After 15 years of physical weakness that scared me so badly that sometimes, I

was afraid to go to sleep because I might not wake up, I found out I had

complete adrenal exhaustion. Of course, also, thyroid messed up due to 25 yrs.

on Syncrap. Got my adrenals supported, went on bioidentical hormones, found out

I needed Aldosterone (body made ZERO) and then went into a high RT3 crisis. So

I've experienced it all! Soooo, if you do in fact have a RT3 problem, you

definitely need to stop any T4 meds/armour you are taking right away, then begin

slowly with cytomel or compounded T3.

But please know that you will get your life back as you get this straightened

out. Yes, we take a lot of pills and have to take our temps and do lots of

stuff, but I wouldn't go back for anything!!! I'm not 100% yet, but I'm well on

my way and I lived in misery for 15 years, not being able to do anything and

having weekly violent headaches. (Hint: I set my cell phone with 3 alarms each

day to remember to take my temps.)

If we can help you, please let us know!

Hugs,

>

> I have tried to weed through the posts to find out where to start, but I don't

have the concentration nor time required. I was directed here by a member of

HELPS with the suggestion that I may be T3 resistant. I have Hashimoto's and

started on Levothyroxin in 2000 when I flipped from Hyper to Hypo. I stayed on

that for

[Guest guest]

Hi, " Mommatoo5 " ,

I just wanted to give you some encouragement! I am also 52 yrs and used to

weigh around 120 and am now hovering at 200, so I feel your pain!

You have come to the right place for advice! That's the strongest encouragement

I can give you! Val, Patty, Birdy, Diane, Bill, Steve and other moderators whom

I forget have saved my life! I am fortunate to have a wonderful alternative MD

who helps me, but she did not know about Aldosterone for which I needed

Florinef, so she agreed to learn together with me and plans to help her other

patients with that knowledge. I copied information from the Stop the Thyroid

Madness website and book and shared it with her. So I would encourage you, as

you feel able, to read the info on that site, as well as, you MUST get the book.

Mine is dog-eared and highlighted throughout and it has gotten me through the

scary times when I wasn't sure what was going on.

Val has over 15 years experience in this, so you can trust her (even tho we have

to decipher her typos sometimes!!! Love ya, Val! LOL).

After 15 years of physical weakness that scared me so badly that sometimes, I

was afraid to go to sleep because I might not wake up, I found out I had

complete adrenal exhaustion. Of course, also, thyroid messed up due to 25 yrs.

on Syncrap. Got my adrenals supported, went on bioidentical hormones, found out

I needed Aldosterone (body made ZERO) and then went into a high RT3 crisis. So

I've experienced it all! Soooo, if you do in fact have a RT3 problem, you

definitely need to stop any T4 meds/armour you are taking right away, then begin

slowly with cytomel or compounded T3.

But please know that you will get your life back as you get this straightened

out. Yes, we take a lot of pills and have to take our temps and do lots of

stuff, but I wouldn't go back for anything!!! I'm not 100% yet, but I'm well on

my way and I lived in misery for 15 years, not being able to do anything and

having weekly violent headaches. (Hint: I set my cell phone with 3 alarms each

day to remember to take my temps.)

If we can help you, please let us know!

Hugs,

>

> I have tried to weed through the posts to find out where to start, but I don't

have the concentration nor time required. I was directed here by a member of

HELPS with the suggestion that I may be T3 resistant. I have Hashimoto's and

started on Levothyroxin in 2000 when I flipped from Hyper to Hypo. I stayed on

that for

[Guest guest]

Hi, " Mommatoo5 " ,

I just wanted to give you some encouragement! I am also 52 yrs and used to

weigh around 120 and am now hovering at 200, so I feel your pain!

You have come to the right place for advice! That's the strongest encouragement

I can give you! Val, Patty, Birdy, Diane, Bill, Steve and other moderators whom

I forget have saved my life! I am fortunate to have a wonderful alternative MD

who helps me, but she did not know about Aldosterone for which I needed

Florinef, so she agreed to learn together with me and plans to help her other

patients with that knowledge. I copied information from the Stop the Thyroid

Madness website and book and shared it with her. So I would encourage you, as

you feel able, to read the info on that site, as well as, you MUST get the book.

Mine is dog-eared and highlighted throughout and it has gotten me through the

scary times when I wasn't sure what was going on.

Val has over 15 years experience in this, so you can trust her (even tho we have

to decipher her typos sometimes!!! Love ya, Val! LOL).

After 15 years of physical weakness that scared me so badly that sometimes, I

was afraid to go to sleep because I might not wake up, I found out I had

complete adrenal exhaustion. Of course, also, thyroid messed up due to 25 yrs.

on Syncrap. Got my adrenals supported, went on bioidentical hormones, found out

I needed Aldosterone (body made ZERO) and then went into a high RT3 crisis. So

I've experienced it all! Soooo, if you do in fact have a RT3 problem, you

definitely need to stop any T4 meds/armour you are taking right away, then begin

slowly with cytomel or compounded T3.

But please know that you will get your life back as you get this straightened

out. Yes, we take a lot of pills and have to take our temps and do lots of

stuff, but I wouldn't go back for anything!!! I'm not 100% yet, but I'm well on

my way and I lived in misery for 15 years, not being able to do anything and

having weekly violent headaches. (Hint: I set my cell phone with 3 alarms each

day to remember to take my temps.)

If we can help you, please let us know!

Hugs,

>

> I have tried to weed through the posts to find out where to start, but I don't

have the concentration nor time required. I was directed here by a member of

HELPS with the suggestion that I may be T3 resistant. I have Hashimoto's and

started on Levothyroxin in 2000 when I flipped from Hyper to Hypo. I stayed on

that for

[Guest guest]

Thank you so much ,

I read your post to my husband, (who is a saint, by the way) and he was floored.

He said, " Wow, that sounds like some support group! "

I am trying to back up through posts but have only gotten back to December. I

home school 2 little men, so uninterrupted time on the computer only comes long

after everyone has gone to sleep. Guess there's an upside to chronic insomnia.

I am ordering the labs, Ferritin & RT3, online as soon as I finish this post and

hope the requisitions are emailed right away. I just had T3 drawn on the 14th

and am waiting on those results. We have to travel 90 miles to the closest lab.

Strange thing is I have to order from two different labs, EconoLab and PrivateMD

because of pricing, but I go to the same physical location to have them drawn?

And that happens to be the same lab my doc sends his draws to at extremely

higher prices. I am going to go ahead and see what the RT3 looks like, and then

get Val's input on what to start. I was not able to find Isocort or licorice

root in our small town, so will pick that up in the city when I get the labs

drawn.

I have been treating hypothyroid for 9 years, but now realize that I have had

Hashimoto's for decades. I see it at different stages in my adult daughters.

The eldest is nearing 300#, the middle daughter is 200# and the youngest is

5'10 " and 119#. I have to find some answers for myself and so my girls will be

armed with information to take to their own docs.

I feel like I have found a lifeline by finding this group and learning of RT3.

Especially since I was worried that HE was responsible for the new and not so

wonderful symptoms. I just hope I get some strength back so that I can be a

real Mom to my 5 & 9 year old sons. They deserve better than this and so does

my wonderful husband.

I found the Stop The Thyroid Madness website months ago, and guess I should add

that book to the stack I have purchased in the last 3 months.

Again, thank you and everyone else that have responded to my cry for help. I

knew there had to be something, somewhere that would help.

Shirley

> >

> > I have tried to weed through the posts to find out where to start, but I

don't have the concentration nor time required. I was directed here by a member

of HELPS with the suggestion that I may be T3 resistant. I have Hashimoto's and

started on Levothyroxin in 2000 when I flipped from Hyper to Hypo. I stayed on

that for

>

[Guest guest]

Thank you so much ,

I read your post to my husband, (who is a saint, by the way) and he was floored.

He said, " Wow, that sounds like some support group! "

I am trying to back up through posts but have only gotten back to December. I

home school 2 little men, so uninterrupted time on the computer only comes long

after everyone has gone to sleep. Guess there's an upside to chronic insomnia.

I am ordering the labs, Ferritin & RT3, online as soon as I finish this post and

hope the requisitions are emailed right away. I just had T3 drawn on the 14th

and am waiting on those results. We have to travel 90 miles to the closest lab.

Strange thing is I have to order from two different labs, EconoLab and PrivateMD

because of pricing, but I go to the same physical location to have them drawn?

And that happens to be the same lab my doc sends his draws to at extremely

higher prices. I am going to go ahead and see what the RT3 looks like, and then

get Val's input on what to start. I was not able to find Isocort or licorice

root in our small town, so will pick that up in the city when I get the labs

drawn.

I have been treating hypothyroid for 9 years, but now realize that I have had

Hashimoto's for decades. I see it at different stages in my adult daughters.

The eldest is nearing 300#, the middle daughter is 200# and the youngest is

5'10 " and 119#. I have to find some answers for myself and so my girls will be

armed with information to take to their own docs.

I feel like I have found a lifeline by finding this group and learning of RT3.

Especially since I was worried that HE was responsible for the new and not so

wonderful symptoms. I just hope I get some strength back so that I can be a

real Mom to my 5 & 9 year old sons. They deserve better than this and so does

my wonderful husband.

I found the Stop The Thyroid Madness website months ago, and guess I should add

that book to the stack I have purchased in the last 3 months.

Again, thank you and everyone else that have responded to my cry for help. I

knew there had to be something, somewhere that would help.

Shirley

> >

> > I have tried to weed through the posts to find out where to start, but I

don't have the concentration nor time required. I was directed here by a member

of HELPS with the suggestion that I may be T3 resistant. I have Hashimoto's and

started on Levothyroxin in 2000 when I flipped from Hyper to Hypo. I stayed on

that for

>

[Guest guest]

I assume you go to Private MD because it's cheaper?  Do you know that econolab will beat any price out there.  Even if they don't have the test listed (they don't have all imaginable tests listed).  Just contact them, tell them what you want and that you found it at Private MD for whatever amount and he will beat it and put it online for you to order.  Just an FYI.  Hope it helps.

Thank you so much ,

I read your post to my husband, (who is a saint, by the way) and he was floored. He said, " Wow, that sounds like some support group! "

I am trying to back up through posts but have only gotten back to December. I home school 2 little men, so uninterrupted time on the computer only comes long after everyone has gone to sleep. Guess there's an upside to chronic insomnia.

I am ordering the labs, Ferritin & RT3, online as soon as I finish this post and hope the requisitions are emailed right away. I just had T3 drawn on the 14th and am waiting on those results. We have to travel 90 miles to the closest lab. Strange thing is I have to order from two different labs, EconoLab and PrivateMD because of pricing, but I go to the same physical location to have them drawn?

And that happens to be the same lab my doc sends his draws to at extremely higher prices. I am going to go ahead and see what the RT3 looks like, and then get Val's input on what to start. I was not able to find Isocort or licorice root in our small town, so will pick that up in the city when I get the labs drawn.

I have been treating hypothyroid for 9 years, but now realize that I have had Hashimoto's for decades. I see it at different stages in my adult daughters. The eldest is nearing 300#, the middle daughter is 200# and the youngest is 5'10 " and 119#. I have to find some answers for myself and so my girls will be armed with information to take to their own docs.

I feel like I have found a lifeline by finding this group and learning of RT3. Especially since I was worried that HE was responsible for the new and not so wonderful symptoms. I just hope I get some strength back so that I can be a real Mom to my 5 & 9 year old sons. They deserve better than this and so does my wonderful husband.

I found the Stop The Thyroid Madness website months ago, and guess I should add that book to the stack I have purchased in the last 3 months.

Again, thank you and everyone else that have responded to my cry for help. I knew there had to be something, somewhere that would help.

Shirley

> >

> > I have tried to weed through the posts to find out where to start, but I don't have the concentration nor time required. I was directed here by a member of HELPS with the suggestion that I may be T3 resistant. I have Hashimoto's and started on Levothyroxin in 2000 when I flipped from Hyper to Hypo. I stayed on that for

>

[Guest guest]

I assume you go to Private MD because it's cheaper?  Do you know that econolab will beat any price out there.  Even if they don't have the test listed (they don't have all imaginable tests listed).  Just contact them, tell them what you want and that you found it at Private MD for whatever amount and he will beat it and put it online for you to order.  Just an FYI.  Hope it helps.

Thank you so much ,

I read your post to my husband, (who is a saint, by the way) and he was floored. He said, " Wow, that sounds like some support group! "

I am trying to back up through posts but have only gotten back to December. I home school 2 little men, so uninterrupted time on the computer only comes long after everyone has gone to sleep. Guess there's an upside to chronic insomnia.

I am ordering the labs, Ferritin & RT3, online as soon as I finish this post and hope the requisitions are emailed right away. I just had T3 drawn on the 14th and am waiting on those results. We have to travel 90 miles to the closest lab. Strange thing is I have to order from two different labs, EconoLab and PrivateMD because of pricing, but I go to the same physical location to have them drawn?

And that happens to be the same lab my doc sends his draws to at extremely higher prices. I am going to go ahead and see what the RT3 looks like, and then get Val's input on what to start. I was not able to find Isocort or licorice root in our small town, so will pick that up in the city when I get the labs drawn.

I have been treating hypothyroid for 9 years, but now realize that I have had Hashimoto's for decades. I see it at different stages in my adult daughters. The eldest is nearing 300#, the middle daughter is 200# and the youngest is 5'10 " and 119#. I have to find some answers for myself and so my girls will be armed with information to take to their own docs.

I feel like I have found a lifeline by finding this group and learning of RT3. Especially since I was worried that HE was responsible for the new and not so wonderful symptoms. I just hope I get some strength back so that I can be a real Mom to my 5 & 9 year old sons. They deserve better than this and so does my wonderful husband.

I found the Stop The Thyroid Madness website months ago, and guess I should add that book to the stack I have purchased in the last 3 months.

Again, thank you and everyone else that have responded to my cry for help. I knew there had to be something, somewhere that would help.

Shirley

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> > I have tried to weed through the posts to find out where to start, but I don't have the concentration nor time required. I was directed here by a member of HELPS with the suggestion that I may be T3 resistant. I have Hashimoto's and started on Levothyroxin in 2000 when I flipped from Hyper to Hypo. I stayed on that for

>

[Guest guest]

I wish I had read your post before ordering. I used PrivateMD and EconoLab both

because PMD's prices were: Serum Ferritin $44.49 and Reverse T3 $59.49.

EconoLab's prices were: RT3 $154.00, but Ferritin was only $25.00. Pretty big

price differences, and I go to the same lab to get both drawn. Since I pay for

all health care myself, I have to be cost concious. I will email EconoLab about

the price of RT3 at PMD to see what he says, I know I will need to check it

again soon enough.

Thanks for the info.

> > > >

> > > > I have tried to weed through the posts to find out where to start, but

> > I don't have the concentration nor time required. I was directed here by a

> > member of HELPS with the suggestion that I may be T3 resistant. I have

> > Hashimoto's and started on Levothyroxin in 2000 when I flipped from Hyper to

> > Hypo. I stayed on that for

> > >

> >

> >

> >

>

[Guest guest]

If it's a hassle to deal with two different companies can you can the PrivateMD?At least you'll be set for next time.

I wish I had read your post before ordering. I used PrivateMD and EconoLab both because PMD's prices were: Serum Ferritin $44.49 and Reverse T3 $59.49. EconoLab's prices were: RT3 $154.00, but Ferritin was only $25.00. Pretty big price differences, and I go to the same lab to get both drawn. Since I pay for all health care myself, I have to be cost concious. I will email EconoLab about the price of RT3 at PMD to see what he says, I know I will need to check it again soon enough.

Thanks for the info.

> > > >

> > > > I have tried to weed through the posts to find out where to start, but

> > I don't have the concentration nor time required. I was directed here by a

> > member of HELPS with the suggestion that I may be T3 resistant. I have

> > Hashimoto's and started on Levothyroxin in 2000 when I flipped from Hyper to

> > Hypo. I stayed on that for

> > >

> >

> >

> >

>

[Guest guest]

If it's a hassle to deal with two different companies can you can the PrivateMD?At least you'll be set for next time.

I wish I had read your post before ordering. I used PrivateMD and EconoLab both because PMD's prices were: Serum Ferritin $44.49 and Reverse T3 $59.49. EconoLab's prices were: RT3 $154.00, but Ferritin was only $25.00. Pretty big price differences, and I go to the same lab to get both drawn. Since I pay for all health care myself, I have to be cost concious. I will email EconoLab about the price of RT3 at PMD to see what he says, I know I will need to check it again soon enough.

Thanks for the info.

> > > >

> > > > I have tried to weed through the posts to find out where to start, but

> > I don't have the concentration nor time required. I was directed here by a

> > member of HELPS with the suggestion that I may be T3 resistant. I have

> > Hashimoto's and started on Levothyroxin in 2000 when I flipped from Hyper to

> > Hypo. I stayed on that for

> > >

> >

> >

> >

>

[Guest guest]

It is only the hassle to have to make two seperate orders online. Only takes a

few minutes each. I will go to the same LabCorp office and the same

phlebotomist will draw blood for both companies at the same time. It just seems

to make sense to have all the records at the same place, but I can adjust. I

will just wait to see what EconoLab's response is.

> > > > > >

> > > > > > I have tried to weed through the posts to find out where to start,

> > but

> > > > I don't have the concentration nor time required. I was directed here

> > by a

> > > > member of HELPS with the suggestion that I may be T3 resistant. I have

> > > > Hashimoto's and started on Levothyroxin in 2000 when I flipped from

> > Hyper to

> > > > Hypo. I stayed on that for

> > > > >

> > > >

> > > >

> > > >

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[Guest guest]

Hi, again, Shirley,

Wow! I'm married to a saint too! Seriously, my husband is a gem, he has

supported me through this whole mess and only wishes for me to feel good and

waits on me hand and foot when needed.

You do have your plate full, homeschooling! We did not have children and did

animal rescue work for many years, so have a family of furry kitties to take

care of, but that's a lot less work than raising children.

Yes, you must get the STTM book! I have two stacks of books on this subject and

this is my go-to guide for everything.

Please be patient for your healing. I've studied Natural Health for 20 years

and only found out about all of this last summer. Actually, a year ago, got

some Veterinary information regarding cortisol replacement for our cats and made

the connection on the human side for myself. Started studying and got Janie's

book last year, then sought a Doctor to help me. We have three kitties on

Cortisol replacement, one of whom is 16 years old, was in kidney failure and

turned her around within 2 weeks! She is acting like a kitten again. It is

amazing!

But my point here is that this process takes time. I started Cortef

replacement, then needed the Aldosterone replacement, then the thyroid went

wacky and it's been a long 6 months. But I honestly feel I am very close to

being a functional human once again. It is well worth everything I've learned

and I know that the healing will be permanent, instead of continuing to look for

answers after 17 years of searching. You are at the end of your search, too,

and have found the best possible resource in this group.

I try to stay plugged into the messages daily, but am looking forward to going

back to work soon, so if I miss a question or you need something, feel free to

ask again.

Hugs,

>

> Thank you so much ,

> I read your post to my husband, (who is a saint, by the way) and he was

floored. He said, " Wow, that sounds like some support group! "

> I am trying to back up through posts but have only gotten back to December. I

home school 2 little men, so uninterrupted time on the computer only comes long

after everyone has gone to sleep. Guess there's an upside to chronic insomnia.

>

[Guest guest]

Birrddy, I did email EconoLab about the much lower price at PrivateMD and they

emailed right back that was doing the right thing to shop around. I got that

email right after I got my receipt for my order, but have still not gotten my

requisitions. Think I made them mad????:-(

> > > > > >

> > > > > > I have tried to weed through the posts to find out where to start,

> > but

> > > > I don't have the concentration nor time required. I was directed here

> > by a

> > > > member of HELPS with the suggestion that I may be T3 resistant. I have

> > > > Hashimoto's and started on Levothyroxin in 2000 when I flipped from

> > Hyper to

> > > > Hypo. I stayed on that for

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Well, the requisition is here...too funny that it came just as I posted. But

WHAT IS WRONG with yahoo? I keep getting strange " RT3-T3 unavailable " messages

all evening.

> > > > > > >

> > > > > > > I have tried to weed through the posts to find out where to start,

> > > but

> > > > > I don't have the concentration nor time required. I was directed here

> > > by a

> > > > > member of HELPS with the suggestion that I may be T3 resistant. I have

> > > > > Hashimoto's and started on Levothyroxin in 2000 when I flipped from

> > > Hyper to

> > > > > Hypo. I stayed on that for

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> > >

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[Guest guest]

Are you saying that they didn't beat their price and was saying that's it good you shop around (in other words, sorry we can't help you?).  I don't think you made them mad.  I don't think they operate like that.  I've actually spoken to the guy in charge many times and he's great to deal with.

If you didn't get your form, just email them.  I wonder if the weekend had anything to do with it?

Birrddy, I did email EconoLab about the much lower price at PrivateMD and they emailed right back that was doing the right thing to shop around. I got that email right after I got my receipt for my order, but have still not gotten my requisitions. Think I made them mad????:-(

> > > > > >

> > > > > > I have tried to weed through the posts to find out where to start,

> > but

> > > > I don't have the concentration nor time required. I was directed here

> > by a

> > > > member of HELPS with the suggestion that I may be T3 resistant. I have

> > > > Hashimoto's and started on Levothyroxin in 2000 when I flipped from

> > Hyper to

> > > > Hypo. I stayed on that for

> > > > >

> > > >

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