Re: Getting ready for Christmas

[Guest guest]

Corinne,

Hi. I don't post as often as I used to but I have been around

awhile. In response to your msg, don't believe a word of it. They

think they have a high tolerance for pain. I'd like to see what

type of deformities they have and how long are they in a flare. I

often have a flare for 6 weeks at a time. Several weeks is a long

time to have your body under constant attack as you are having right

now. The hustle and bustle of the season may be the culprit, worry,

stress, etc. So you have every right to feel the way you do trust

me, you and I are in the same boat. I am not on anything at the

moment. i was taken off everything with the only option rutuxan or

something like that. I am getting a second opinion but in the

meantime I work FT, drive, shop, pump gas, etc. with very limited

mobility in all joints especially hips, feet, shoulders, and HANDS,

all because I have no choice. It is more like mind over matter than

high tolerance for pain. My hands are rapidly deteriorating. I

don't think I am ever not under attack from the RA and I can feel

when it is destroying healthy tissue and this is everyday. My

dentist thinks I have a high toleratnce for pain. I have been told

this by co-workers as well. No, it is mind over matter. You take

your mind to another place while the RA wreaks havoc in your once

beautiful, very normal body. Adapting is the name of the game. It

would help to be on a therapy that actually works either way you

just adapt to keep moving. And keep moving you must. You have no

choice. It is called arthritis but it should be called the stone

disease because it turns you into a motionless statue or the Tin

man's disease like in the wizard of oz, we need oiling every hour on

the hour just to walk across the kitchen floor or get out of a

chair. This is the meanest nastiest disease ever. There are some

out there equal or worse. But I wouldn't wish this on any living

being because it is as you said sheer torture when you think about.

The thing is I don't let myself think about it too much and you try

to take your mind off of it as well. Do all you need to try to stop

it before it takes all of your joints but still try to keep your

mind positive and occupied with positive things. Those grandbabies

is a good place to start. I sometimes count to get through the

pain. For example if I need to go to the bathroom but the hips are

in a flare which they are bone on bone so they feel like a flare all

the time but there are days believe it or where they feel like there

is a flame inside the joint and every step I take is on a nerve.

Those are days, I have to count my way to the bathroom and if my

mind start to go to the pain I start over with counting. Something

else may work for you singing, talking, meditation, etc. Numbers

work for me but that is the type of thing I do all day everyday to

cope. Keeping the mind busy enough where you can override the pain

signal. Sorry I went on and on but I really dislike very much so

when people say that because people do end up feeling bad or like

wimps but trust me, you are tough to even deal with this condition

for one day. I went through 36 hours of labor without pain meds

until the baby ripped then they insisted on giving me something and

I gladly accepted. I know what it is like to tolerate extreme pain

and it isn't because my tolerance is high. You just get good at

redirecting your thoughts on the pain signals you receive and

anybody can practice this.

As for gifts, I have long switched to decorative gift " bags. " Gift

cards are the answer too or you can always pay the extra cashola to

have the department stores gift wrap for you.

Hope you can experience some relief soon. Hang in there.

Gentle hugs back at ya! And Merry X-mas to you too!!

Ebony

--- In , Corinne Drover <Corinne@...>

wrote:

>

> Hi all,

> Just wondering how you are all dealing with getting ready for

> christmas? I have so much trouble wrapping

> gifts. This year I sent my grown children gift cards, but still

bought

> presents which I wrapped for my

> grandkids.

> I have been in a bad flare for weeks now. There are days when

trying to

> walk is just torture. Also

> my hands are getting really bad and to top it off because of all

the

> pain killers I can't sleep. I am on another

> support group also where we email back and forth and this morning

as I

> sit and read my emails there was a note

> from a lady that told me she has RA but that she has a high pain

> tolerance and can tough out the pain....

> Well that made me feel sorta bad because I am a tough old broad

but

> toughing out this pain is not something I can do.

> I emailed her back to ask if she really had RA because no way can

I not

> take meds.....

> Is it just me being silly with what but I know this disease is the

most

> painful thing I have ever had to deal with.

>

> Gentle Hugs,

>

> Corinne

>

> Ps: Merry Christmas to all!

>

[Guest guest]

Corinne

I noticed the other day wrapping my dh presents that I was hurting more than

normal.

Just the position I get in to do it was painful. It made me feel really old. I

am thinking

of getting more gift bags next year. I also did a lot of online shopping this

year.

Merry Christmas to you too!

Joy

Corinne Drover <Corinne@...> wrote:

Hi all,

Just wondering how you are all dealing with getting ready for

christmas? I have so much trouble wrapping

gifts. This year I sent my grown children gift cards, but still bought

presents which I wrapped for my

grandkids.

I have been in a bad flare for weeks now. There are days when trying to

walk is just torture. Also

my hands are getting really bad and to top it off because of all the

pain killers I can't sleep. I am on another

support group also where we email back and forth and this morning as I

sit and read my emails there was a note

from a lady that told me she has RA but that she has a high pain

tolerance and can tough out the pain....

Well that made me feel sorta bad because I am a tough old broad but

toughing out this pain is not something I can do.

I emailed her back to ask if she really had RA because no way can I not

take meds.....

Is it just me being silly with what but I know this disease is the most

painful thing I have ever had to deal with.

Gentle Hugs,

Corinne

Ps: Merry Christmas to all!

[Guest guest]

Hi Joy,

Thanks for your reply and I agree with the gift cards.......and shopping

online. Have a pain free christmas...

gentle hugs,

Corinne

Joy wrote:

>

> Corinne

> I noticed the other day wrapping my dh presents that I was hurting

> more than normal.

> Just the position I get in to do it was painful. It made me feel

> really old. I am thinking

> of getting more gift bags next year. I also did a lot of online

> shopping this year.

> Merry Christmas to you too!

> Joy

>

> Corinne Drover <Corinne@... <mailto:Corinne%40Dilkie.com>> wrote:

> Hi all,

> Just wondering how you are all dealing with getting ready for

> christmas? I have so much trouble wrapping

> gifts. This year I sent my grown children gift cards, but still bought

> presents which I wrapped for my

> grandkids.

> I have been in a bad flare for weeks now. There are days when trying to

> walk is just torture. Also

> my hands are getting really bad and to top it off because of all the

> pain killers I can't sleep. I am on another

> support group also where we email back and forth and this morning as I

> sit and read my emails there was a note

> from a lady that told me she has RA but that she has a high pain

> tolerance and can tough out the pain....

> Well that made me feel sorta bad because I am a tough old broad but

> toughing out this pain is not something I can do.

> I emailed her back to ask if she really had RA because no way can I not

> take meds.....

> Is it just me being silly with what but I know this disease is the most

> painful thing I have ever had to deal with.

>

> Gentle Hugs,

>

> Corinne

>

> Ps: Merry Christmas to all!

>

>

[Guest guest]

Hi Ebony,

First, Thanks so much for your reply to my email. It is so nice to hear

from someone that truely knows how you hurt.

I try and stay positive all the time and it sometimes gets the better of me.

I just ran out to get some windshield wash and could not even lift it...but

there was a nice boy that offered to help me.

I am a performer and this month is the busiest.....and so i have to go on...

For some strange reason though, when I sing my pain is cut in half....On

stage I feel much better....People would never know unless i had to leave

stage in front of them.

I hope you have a wonderful christmas and thanks again......

Corinne

Ebony wrote:

>

> Corinne,

>

> Hi. I don't post as often as I used to but I have been around

> awhile. In response to your msg, don't believe a word of it. They

> think they have a high tolerance for pain. I'd like to see what

> type of deformities they have and how long are they in a flare. I

> often have a flare for 6 weeks at a time. Several weeks is a long

> time to have your body under constant attack as you are having right

> now. The hustle and bustle of the season may be the culprit, worry,

> stress, etc. So you have every right to feel the way you do trust

> me, you and I are in the same boat. I am not on anything at the

> moment. i was taken off everything with the only option rutuxan or

> something like that. I am getting a second opinion but in the

> meantime I work FT, drive, shop, pump gas, etc. with very limited

> mobility in all joints especially hips, feet, shoulders, and HANDS,

> all because I have no choice. It is more like mind over matter than

> high tolerance for pain. My hands are rapidly deteriorating. I

> don't think I am ever not under attack from the RA and I can feel

> when it is destroying healthy tissue and this is everyday. My

> dentist thinks I have a high toleratnce for pain. I have been told

> this by co-workers as well. No, it is mind over matter. You take

> your mind to another place while the RA wreaks havoc in your once

> beautiful, very normal body. Adapting is the name of the game. It

> would help to be on a therapy that actually works either way you

> just adapt to keep moving. And keep moving you must. You have no

> choice. It is called arthritis but it should be called the stone

> disease because it turns you into a motionless statue or the Tin

> man's disease like in the wizard of oz, we need oiling every hour on

> the hour just to walk across the kitchen floor or get out of a

> chair. This is the meanest nastiest disease ever. There are some

> out there equal or worse. But I wouldn't wish this on any living

> being because it is as you said sheer torture when you think about.

> The thing is I don't let myself think about it too much and you try

> to take your mind off of it as well. Do all you need to try to stop

> it before it takes all of your joints but still try to keep your

> mind positive and occupied with positive things. Those grandbabies

> is a good place to start. I sometimes count to get through the

> pain. For example if I need to go to the bathroom but the hips are

> in a flare which they are bone on bone so they feel like a flare all

> the time but there are days believe it or where they feel like there

> is a flame inside the joint and every step I take is on a nerve.

> Those are days, I have to count my way to the bathroom and if my

> mind start to go to the pain I start over with counting. Something

> else may work for you singing, talking, meditation, etc. Numbers

> work for me but that is the type of thing I do all day everyday to

> cope. Keeping the mind busy enough where you can override the pain

> signal. Sorry I went on and on but I really dislike very much so

> when people say that because people do end up feeling bad or like

> wimps but trust me, you are tough to even deal with this condition

> for one day. I went through 36 hours of labor without pain meds

> until the baby ripped then they insisted on giving me something and

> I gladly accepted. I know what it is like to tolerate extreme pain

> and it isn't because my tolerance is high. You just get good at

> redirecting your thoughts on the pain signals you receive and

> anybody can practice this.

>

> As for gifts, I have long switched to decorative gift " bags. " Gift

> cards are the answer too or you can always pay the extra cashola to

> have the department stores gift wrap for you.

>

> Hope you can experience some relief soon. Hang in there.

>

> Gentle hugs back at ya! And Merry X-mas to you too!!

>

> Ebony

>

>

> >

> > Hi all,

> > Just wondering how you are all dealing with getting ready for

> > christmas? I have so much trouble wrapping

> > gifts. This year I sent my grown children gift cards, but still

> bought

> > presents which I wrapped for my

> > grandkids.

> > I have been in a bad flare for weeks now. There are days when

> trying to

> > walk is just torture. Also

> > my hands are getting really bad and to top it off because of all

> the

> > pain killers I can't sleep. I am on another

> > support group also where we email back and forth and this morning

> as I

> > sit and read my emails there was a note

> > from a lady that told me she has RA but that she has a high pain

> > tolerance and can tough out the pain....

> > Well that made me feel sorta bad because I am a tough old broad

> but

> > toughing out this pain is not something I can do.

> > I emailed her back to ask if she really had RA because no way can

> I not

> > take meds.....

> > Is it just me being silly with what but I know this disease is the

> most

> > painful thing I have ever had to deal with.

> >

> > Gentle Hugs,

> >

> > Corinne

> >

> > Ps: Merry Christmas to all!

> >

>

>

[Guest guest]

Hi Corinne!

It's interesting that when you sing, your pain is cut

in half. I was just discussing this very issue last

night with my CBT doctor. I have FMS/MPS/CFS and RA

and a myraid of other health issues. We were

discussing how anxiety can make my pain worse..it

tightens muscles that are already in knots and in

pain. We were talking about how if I can distract

myself by doing something that relaxes me and doesn't

stress me out, and I focus on relaxing thoughts, it

won't take my pain away but certainly won't make it

worse like stress/anxiety does. I did some holiday

baking Monday and yesterday I went to lean back on my

bed to lay down and I noticed my arms hurt really

badly from my hands all the way up, and were tingling

at times. They are still very sore. I think I

overdid it. I noticed when I spent a couple of hours

wrapping some gifts my hands and thumbs were really

sore. I just have to work on spreading activities out

and pacing myself a little bit more:)

--- Corinne Drover <Corinne@...> wrote:

> Hi Ebony,

> First, Thanks so much for your reply to my email.

> It is so nice to hear

> from someone that truely knows how you hurt.

> I try and stay positive all the time and it

> sometimes gets the better of me.

> I just ran out to get some windshield wash and could

> not even lift it...but

> there was a nice boy that offered to help me.

> I am a performer and this month is the

> busiest.....and so i have to go on...

> For some strange reason though, when I sing my pain

> is cut in half....On

> stage I feel much better....People would never know

> unless i had to leave

> stage in front of them.

> I hope you have a wonderful christmas and thanks

> again......

>

> Corinne

>

> Ebony wrote:

> >

> > Corinne,

> >

> > Hi. I don't post as often as I used to but I have

> been around

> > awhile. In response to your msg, don't believe a

> word of it. They

> > think they have a high tolerance for pain. I'd

> like to see what

> > type of deformities they have and how long are

> they in a flare. I

> > often have a flare for 6 weeks at a time. Several

> weeks is a long

> > time to have your body under constant attack as

> you are having right

> > now. The hustle and bustle of the season may be

> the culprit, worry,

> > stress, etc. So you have every right to feel the

> way you do trust

> > me, you and I are in the same boat. I am not on

> anything at the

> > moment. i was taken off everything with the only

> option rutuxan or

> > something like that. I am getting a second opinion

> but in the

> > meantime I work FT, drive, shop, pump gas, etc.

> with very limited

> > mobility in all joints especially hips, feet,

> shoulders, and HANDS,

> > all because I have no choice. It is more like mind

> over matter than

> > high tolerance for pain. My hands are rapidly

> deteriorating. I

> > don't think I am ever not under attack from the RA

> and I can feel

> > when it is destroying healthy tissue and this is

> everyday. My

> > dentist thinks I have a high toleratnce for pain.

> I have been told

> > this by co-workers as well. No, it is mind over

> matter. You take

> > your mind to another place while the RA wreaks

> havoc in your once

> > beautiful, very normal body. Adapting is the name

> of the game. It

> > would help to be on a therapy that actually works

> either way you

> > just adapt to keep moving. And keep moving you

> must. You have no

> > choice. It is called arthritis but it should be

> called the stone

> > disease because it turns you into a motionless

> statue or the Tin

> > man's disease like in the wizard of oz, we need

> oiling every hour on

> > the hour just to walk across the kitchen floor or

> get out of a

> > chair. This is the meanest nastiest disease ever.

> There are some

> > out there equal or worse. But I wouldn't wish this

> on any living

> > being because it is as you said sheer torture when

> you think about.

> > The thing is I don't let myself think about it too

> much and you try

> > to take your mind off of it as well. Do all you

> need to try to stop

> > it before it takes all of your joints but still

> try to keep your

> > mind positive and occupied with positive things.

> Those grandbabies

> > is a good place to start. I sometimes count to get

> through the

> > pain. For example if I need to go to the bathroom

> but the hips are

> > in a flare which they are bone on bone so they

> feel like a flare all

> > the time but there are days believe it or where

> they feel like there

> > is a flame inside the joint and every step I take

> is on a nerve.

> > Those are days, I have to count my way to the

> bathroom and if my

> > mind start to go to the pain I start over with

> counting. Something

> > else may work for you singing, talking,

> meditation, etc. Numbers

> > work for me but that is the type of thing I do all

> day everyday to

> > cope. Keeping the mind busy enough where you can

> override the pain

> > signal. Sorry I went on and on but I really

> dislike very much so

> > when people say that because people do end up

> feeling bad or like

> > wimps but trust me, you are tough to even deal

> with this condition

> > for one day. I went through 36 hours of labor

> without pain meds

> > until the baby ripped then they insisted on giving

> me something and

> > I gladly accepted. I know what it is like to

> tolerate extreme pain

> > and it isn't because my tolerance is high. You

> just get good at

> > redirecting your thoughts on the pain signals you

> receive and

> > anybody can practice this.

> >

> > As for gifts, I have long switched to decorative

> gift " bags. " Gift

> > cards are the answer too or you can always pay the

> extra cashola to

> > have the department stores gift wrap for you.

> >

> > Hope you can experience some relief soon. Hang in

> there.

> >

> > Gentle hugs back at ya! And Merry X-mas to you

> too!!

> >

> > Ebony

> >

> >

> > >

> > > Hi all,

> > > Just wondering how you are all dealing with

> getting ready for

> > > christmas? I have so much trouble wrapping

> > > gifts. This year I sent my grown children gift

> cards, but still

> > bought

> > > presents which I wrapped for my

> > > grandkids.

> > > I have been in a bad flare for weeks now. There

> are days when

> > trying to

> > > walk is just torture. Also

> > > my hands are getting really bad and to top it

> off because of all

> > the

> > > pain killers I can't sleep. I am on another

> > > support group also where we email back and forth

> and this morning

> > as I

> > > sit and read my emails there was a note

> > > from a lady that told me she has RA but that she

> has a high pain

> > > tolerance and can tough out the pain....

> > > Well that made me feel sorta bad because I am a

> tough old broad

> > but

> > > toughing out this pain is not something I can

> do.

> > > I emailed her back to ask if she really had RA

> because no way can

> > I not

> > > take meds.....

> > > Is it just me being silly with what but I know

> this disease is the

> > most

> > > painful thing I have ever had to deal with.

> > >

> > > Gentle Hugs,

> > >

> > > Corinne

> > >

> > > Ps: Merry Christmas to all!

> > >

> >

> >

>

>

> [Non-text portions of this message have been

> removed]

>

>

=== message truncated ===

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[Guest guest]

Hi ,

I think your exactly right about stress. I have been a singer

all my life and it is something I love to do.

Also if I do too much it makes it worst...but I keep

telling myself that it has to get done and if I don't do it

then just who will.

I hope you have a wonderful Christmas.

Corinne

stephanie wrote:

>

> Hi Corinne!

> It's interesting that when you sing, your pain is cut

> in half. I was just discussing this very issue last

> night with my CBT doctor. I have FMS/MPS/CFS and RA

> and a myraid of other health issues. We were

> discussing how anxiety can make my pain worse..it

> tightens muscles that are already in knots and in

> pain. We were talking about how if I can distract

> myself by doing something that relaxes me and doesn't

> stress me out, and I focus on relaxing thoughts, it

> won't take my pain away but certainly won't make it

> worse like stress/anxiety does. I did some holiday

> baking Monday and yesterday I went to lean back on my

> bed to lay down and I noticed my arms hurt really

> badly from my hands all the way up, and were tingling

> at times. They are still very sore. I think I

> overdid it. I noticed when I spent a couple of hours

> wrapping some gifts my hands and thumbs were really

> sore. I just have to work on spreading activities out

> and pacing myself a little bit more:)

> --- Corinne Drover <Corinne@... <mailto:Corinne%40Dilkie.com>>

> wrote:

>

> > Hi Ebony,

> > First, Thanks so much for your reply to my email.

> > It is so nice to hear

> > from someone that truely knows how you hurt.

> > I try and stay positive all the time and it

> > sometimes gets the better of me.

> > I just ran out to get some windshield wash and could

> > not even lift it...but

> > there was a nice boy that offered to help me.

> > I am a performer and this month is the

> > busiest.....and so i have to go on...

> > For some strange reason though, when I sing my pain

> > is cut in half....On

> > stage I feel much better....People would never know

> > unless i had to leave

> > stage in front of them.

> > I hope you have a wonderful christmas and thanks

> > again......

> >

> > Corinne

> >

> > Ebony wrote:

> > >

> > > Corinne,

> > >

> > > Hi. I don't post as often as I used to but I have

> > been around

> > > awhile. In response to your msg, don't believe a

> > word of it. They

> > > think they have a high tolerance for pain. I'd

> > like to see what

> > > type of deformities they have and how long are

> > they in a flare. I

> > > often have a flare for 6 weeks at a time. Several

> > weeks is a long

> > > time to have your body under constant attack as

> > you are having right

> > > now. The hustle and bustle of the season may be

> > the culprit, worry,

> > > stress, etc. So you have every right to feel the

> > way you do trust

> > > me, you and I are in the same boat. I am not on

> > anything at the

> > > moment. i was taken off everything with the only

> > option rutuxan or

> > > something like that. I am getting a second opinion

> > but in the

> > > meantime I work FT, drive, shop, pump gas, etc.

> > with very limited

> > > mobility in all joints especially hips, feet,

> > shoulders, and HANDS,

> > > all because I have no choice. It is more like mind

> > over matter than

> > > high tolerance for pain. My hands are rapidly

> > deteriorating. I

> > > don't think I am ever not under attack from the RA

> > and I can feel

> > > when it is destroying healthy tissue and this is

> > everyday. My

> > > dentist thinks I have a high toleratnce for pain.

> > I have been told

> > > this by co-workers as well. No, it is mind over

> > matter. You take

> > > your mind to another place while the RA wreaks

> > havoc in your once

> > > beautiful, very normal body. Adapting is the name

> > of the game. It

> > > would help to be on a therapy that actually works

> > either way you

> > > just adapt to keep moving. And keep moving you

> > must. You have no

> > > choice. It is called arthritis but it should be

> > called the stone

> > > disease because it turns you into a motionless

> > statue or the Tin

> > > man's disease like in the wizard of oz, we need

> > oiling every hour on

> > > the hour just to walk across the kitchen floor or

> > get out of a

> > > chair. This is the meanest nastiest disease ever.

> > There are some

> > > out there equal or worse. But I wouldn't wish this

> > on any living

> > > being because it is as you said sheer torture when

> > you think about.

> > > The thing is I don't let myself think about it too

> > much and you try

> > > to take your mind off of it as well. Do all you

> > need to try to stop

> > > it before it takes all of your joints but still

> > try to keep your

> > > mind positive and occupied with positive things.

> > Those grandbabies

> > > is a good place to start. I sometimes count to get

> > through the

> > > pain. For example if I need to go to the bathroom

> > but the hips are

> > > in a flare which they are bone on bone so they

> > feel like a flare all

> > > the time but there are days believe it or where

> > they feel like there

> > > is a flame inside the joint and every step I take

> > is on a nerve.

> > > Those are days, I have to count my way to the

> > bathroom and if my

> > > mind start to go to the pain I start over with

> > counting. Something

> > > else may work for you singing, talking,

> > meditation, etc. Numbers

> > > work for me but that is the type of thing I do all

> > day everyday to

> > > cope. Keeping the mind busy enough where you can

> > override the pain

> > > signal. Sorry I went on and on but I really

> > dislike very much so

> > > when people say that because people do end up

> > feeling bad or like

> > > wimps but trust me, you are tough to even deal

> > with this condition

> > > for one day. I went through 36 hours of labor

> > without pain meds

> > > until the baby ripped then they insisted on giving

> > me something and

> > > I gladly accepted. I know what it is like to

> > tolerate extreme pain

> > > and it isn't because my tolerance is high. You

> > just get good at

> > > redirecting your thoughts on the pain signals you

> > receive and

> > > anybody can practice this.

> > >

> > > As for gifts, I have long switched to decorative

> > gift " bags. " Gift

> > > cards are the answer too or you can always pay the

> > extra cashola to

> > > have the department stores gift wrap for you.

> > >

> > > Hope you can experience some relief soon. Hang in

> > there.

> > >

> > > Gentle hugs back at ya! And Merry X-mas to you

> > too!!

> > >

> > > Ebony

> > >

> > >

> > > >

> > > > Hi all,

> > > > Just wondering how you are all dealing with

> > getting ready for

> > > > christmas? I have so much trouble wrapping

> > > > gifts. This year I sent my grown children gift

> > cards, but still

> > > bought

> > > > presents which I wrapped for my

> > > > grandkids.

> > > > I have been in a bad flare for weeks now. There

> > are days when

> > > trying to

> > > > walk is just torture. Also

> > > > my hands are getting really bad and to top it

> > off because of all

> > > the

> > > > pain killers I can't sleep. I am on another

> > > > support group also where we email back and forth

> > and this morning

> > > as I

> > > > sit and read my emails there was a note

> > > > from a lady that told me she has RA but that she

> > has a high pain

> > > > tolerance and can tough out the pain....

> > > > Well that made me feel sorta bad because I am a

> > tough old broad

> > > but

> > > > toughing out this pain is not something I can

> > do.

> > > > I emailed her back to ask if she really had RA

> > because no way can

> > > I not

> > > > take meds.....

> > > > Is it just me being silly with what but I know

> > this disease is the

> > > most

> > > > painful thing I have ever had to deal with.

> > > >

> > > > Gentle Hugs,

> > > >

> > > > Corinne

> > > >

> > > > Ps: Merry Christmas to all!

> > > >

> > >

> > >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> === message truncated ===

>

> __________________________________________________________

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>

[Guest guest]

Such a good response ! ! ! but also maybe that person just does not

suffer from as much pain as some of us others. Corinne, I really

like your " it should be called the stone

> disease because it turns you into a motionless statue or the Tin

> man's disease like in the wizard of oz, we need oiling every hour

on

"

> >

> > Hi all,

> > Just wondering how you are all dealing with getting ready for

> > christmas? I have so much trouble wrapping

> > gifts. This year I sent my grown children gift cards, but still

> bought

> > presents which I wrapped for my

> > grandkids.

> > I have been in a bad flare for weeks now. There are days when

> trying to

> > walk is just torture. Also

> > my hands are getting really bad and to top it off because of all

> the

> > pain killers I can't sleep. I am on another

> > support group also where we email back and forth and this morning

> as I

> > sit and read my emails there was a note

> > from a lady that told me she has RA but that she has a high pain

> > tolerance and can tough out the pain....

> > Well that made me feel sorta bad because I am a tough old broad

> but

> > toughing out this pain is not something I can do.

> > I emailed her back to ask if she really had RA because no way can

> I not

> > take meds.....

> > Is it just me being silly with what but I know this disease is

the

> most

> > painful thing I have ever had to deal with.

> >

> > Gentle Hugs,

> >

> > Corinne

> >

> > Ps: Merry Christmas to all!

> >

>