Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 , You are very welcome for the info!!!! And good luck with your surgery that you have to have......sounds like you got a great doctor! Keep us updated on not only your sister, but you too ok!?!?!?!?! Let us know when your surgery is scheduled! Tonia ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2003 Report Share Posted June 22, 2003 Hi li'l sis, I think it is wonderful that you are your sister's computer link! Many of us have no family members who care enough to spend any time understanding our lives and pain much less try to help us out. Thanks for the kind words, Debbie. To tell you the truth, it is always very hard for me to read posts from people with RSD who have ZERO support from their family, loved ones and friends. I guess it is easy to understand when someone close to you has a broken foot. Everyone understands that. It's broken. You get a cast. It's inconvenient and painful, and you do everything you can to help them. Then it gets better and goes away. Case closed. Ended. In the world of RSD, that just isn't going to happen. RSD is too hard to understand. Why does it even exist? Where did it come from? Why can't you just take a pill and make it better? And where is the closure? It is an extremely helpless feeling to be next to someone with RSD. I can sit here and read the medical reports and abstracts, and it is obvious that I read the emails. I can describe for the Big Sis some of the symptoms she is feeling better than she can. She was trying to explain to me about the feeling in her foot. "Kinda of like ..." "Red ants?" I provided. "Exactly." I can know it. And describe it. But help her? Nope. I can't make it go away. I can't offer to take it upon myself and spare her. It's a very, very helpless feeling, Debbie. And I think that is exactly why there often isn't the support from loved ones there should be. I don't think they get the fact that hey! Being diagnosed with RSD ain't no picnic. I truly believe that if an individual were diagnosed with cancer, they would have more support from those around them than having that same individual diagnosed with RSD. Cancer is understandable. RSD is not. People have a tendency to run from the unknown. But what about the one that has to stay and live in that same world of the unknown? There is not a shadow of a doubt in my mind that if the shoe were on the other foot (and if the Big Sis did not have brain fog!!!), she would do the same for me. I would be more than happy to ship her my much loved baby Toshiba and let her do all of this instead of me. I am long overdue for a vacation. .. If you need any information or want a different point of view, ask away. I've had RSD since 1989 and have lots of experience and injuries to share! LOL Thanks for the offer, Debbie. I am a veteran of many years of Groups in the ranges of RSD, Hepatitis C, liver, invasive bladder cancer and AIDS issues. I just throw myself out there -- ask when I need to. Help when I can. Sometimes I think that is all any of us can do. Hope everyone has had a pleasant weekend surrounded by caring, loving people. Gentle hugs, (aka the Little Sis) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2003 Report Share Posted June 22, 2003 Hi li'l sis, I think it is wonderful that you are your sister's computer link! Many of us have no family members who care enough to spend any time understanding our lives and pain much less try to help us out. Thanks for the kind words, Debbie. To tell you the truth, it is always very hard for me to read posts from people with RSD who have ZERO support from their family, loved ones and friends. I guess it is easy to understand when someone close to you has a broken foot. Everyone understands that. It's broken. You get a cast. It's inconvenient and painful, and you do everything you can to help them. Then it gets better and goes away. Case closed. Ended. In the world of RSD, that just isn't going to happen. RSD is too hard to understand. Why does it even exist? Where did it come from? Why can't you just take a pill and make it better? And where is the closure? It is an extremely helpless feeling to be next to someone with RSD. I can sit here and read the medical reports and abstracts, and it is obvious that I read the emails. I can describe for the Big Sis some of the symptoms she is feeling better than she can. She was trying to explain to me about the feeling in her foot. "Kinda of like ..." "Red ants?" I provided. "Exactly." I can know it. And describe it. But help her? Nope. I can't make it go away. I can't offer to take it upon myself and spare her. It's a very, very helpless feeling, Debbie. And I think that is exactly why there often isn't the support from loved ones there should be. I don't think they get the fact that hey! Being diagnosed with RSD ain't no picnic. I truly believe that if an individual were diagnosed with cancer, they would have more support from those around them than having that same individual diagnosed with RSD. Cancer is understandable. RSD is not. People have a tendency to run from the unknown. But what about the one that has to stay and live in that same world of the unknown? There is not a shadow of a doubt in my mind that if the shoe were on the other foot (and if the Big Sis did not have brain fog!!!), she would do the same for me. I would be more than happy to ship her my much loved baby Toshiba and let her do all of this instead of me. I am long overdue for a vacation. .. If you need any information or want a different point of view, ask away. I've had RSD since 1989 and have lots of experience and injuries to share! LOL Thanks for the offer, Debbie. I am a veteran of many years of Groups in the ranges of RSD, Hepatitis C, liver, invasive bladder cancer and AIDS issues. I just throw myself out there -- ask when I need to. Help when I can. Sometimes I think that is all any of us can do. Hope everyone has had a pleasant weekend surrounded by caring, loving people. Gentle hugs, (aka the Little Sis) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 > In a message dated 6/22/2003 8:14:34 PM Pacific Daylight Time, > djhslim@j... writes: > > I guess it is easy to understand when someone close to you has a broken foot. Everyone understands that. It's broken. You get a cast. It's inconvenient and painful, and you do everything you can to help them. Then it gets better and goes away. Case closed. Ended In the world of RSD, that just isn't going to happen. RSD is too hard to understand. Why does it even exist? Where did it come from? Why can't you just take a pill and make it better? And where is the closure? HI , I have used that analogy for years, it is so true. I have lost some friends, some have stayed for the long haul though. They are the people you know really love you, since there is no end in site. Take care, Deb Deborah Genatossio Debgena@... Quote Link to comment Share on other sites More sharing options...
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