Re: Update on me (Chrystine)

[Guest guest]

CHRYSTINE, IN YOUR GROUP HOW DO YOU GO ABOUT TALKING ABOUT RSD IN

LAYMAN'S TERMS. I'M GETTING READY TO EMAIL A MEDICAL MAGAZINE WE HAVE

HERE LOCALLY AND THEY NEVER HAVE MENTIONED RSD & I WOULD LIKE TO CONVINCE

THEM IT'S SUPER IMPORTANT. THIS HOSPITAL ISN'T A MILE FROM ME &

HOPEFULLY I CAN GET SOMETHING STARTED THERE. I'M SORRY I HAVE FORGOTTEN

WHAT YOUR GETTING THE EPIDURAL FOR ON THE 28TH IF YOU FEEL LIKE IT COULD

YOU REFRESH MY MEMORY? TAKE CARE & GOD BLESS BEV

[Guest guest]

CHRYSTINE, IN YOUR GROUP HOW DO YOU GO ABOUT TALKING ABOUT RSD IN

LAYMAN'S TERMS. I'M GETTING READY TO EMAIL A MEDICAL MAGAZINE WE HAVE

HERE LOCALLY AND THEY NEVER HAVE MENTIONED RSD & I WOULD LIKE TO CONVINCE

THEM IT'S SUPER IMPORTANT. THIS HOSPITAL ISN'T A MILE FROM ME &

HOPEFULLY I CAN GET SOMETHING STARTED THERE. I'M SORRY I HAVE FORGOTTEN

WHAT YOUR GETTING THE EPIDURAL FOR ON THE 28TH IF YOU FEEL LIKE IT COULD

YOU REFRESH MY MEMORY? TAKE CARE & GOD BLESS BEV

[Guest guest]

CHRYSTINE, IN YOUR GROUP HOW DO YOU GO ABOUT TALKING ABOUT RSD IN

LAYMAN'S TERMS. I'M GETTING READY TO EMAIL A MEDICAL MAGAZINE WE HAVE

HERE LOCALLY AND THEY NEVER HAVE MENTIONED RSD & I WOULD LIKE TO CONVINCE

THEM IT'S SUPER IMPORTANT. THIS HOSPITAL ISN'T A MILE FROM ME &

HOPEFULLY I CAN GET SOMETHING STARTED THERE. I'M SORRY I HAVE FORGOTTEN

WHAT YOUR GETTING THE EPIDURAL FOR ON THE 28TH IF YOU FEEL LIKE IT COULD

YOU REFRESH MY MEMORY? TAKE CARE & GOD BLESS BEV

[Guest guest]

KAREN I KNOW SO LITTLE ABOUT THE BRACHIAL PLEXUS BLOCK WHY ONLY 5 - 7

DAYS, AND HOW HAS YOUR PAIN BEEN SINCE YOU'VE HAD IT? TAKE CARE BEV

[Guest guest]

> , I am scheduled to have an epidural on April 28th, I am very

excited because i trust all my doctor's involved and I have hopes

that this will work, but if it doesnt then we will just try something

else...

Hi Chrystine,

Good luck with the epidural. I hope it helps.

Great job with the support group!! It is great that you are involved.

How many members do you have?

Keep us posted on your procedure.

Take care.

Hugs and a pain free minute,

Deborah (Deb)

Debgena@...(Deborah Genatossio)

Founder of  RSD-CRPSofAmerica

E-mail us anytime @RSD-CRPS of America

[Guest guest]

> , I am scheduled to have an epidural on April 28th, I am very

excited because i trust all my doctor's involved and I have hopes

that this will work, but if it doesnt then we will just try something

else...

Hi Chrystine,

Good luck with the epidural. I hope it helps.

Great job with the support group!! It is great that you are involved.

How many members do you have?

Keep us posted on your procedure.

Take care.

Hugs and a pain free minute,

Deborah (Deb)

Debgena@...(Deborah Genatossio)

Founder of  RSD-CRPSofAmerica

E-mail us anytime @RSD-CRPS of America

[Guest guest]

> , I am scheduled to have an epidural on April 28th, I am very

excited because i trust all my doctor's involved and I have hopes

that this will work, but if it doesnt then we will just try something

else...

Hi Chrystine,

Good luck with the epidural. I hope it helps.

Great job with the support group!! It is great that you are involved.

How many members do you have?

Keep us posted on your procedure.

Take care.

Hugs and a pain free minute,

Deborah (Deb)

Debgena@...(Deborah Genatossio)

Founder of  RSD-CRPSofAmerica

E-mail us anytime @RSD-CRPS of America

[Guest guest]

THANKS KAREN AND I TRULY HOPE THIS JUMP STARTS YOU. TAKE CARE BEV

[Guest guest]

THANKS KAREN AND I TRULY HOPE THIS JUMP STARTS YOU. TAKE CARE BEV

[Guest guest]

THANKS KAREN AND I TRULY HOPE THIS JUMP STARTS YOU. TAKE CARE BEV

[Guest guest]

Bev,

I'm getting the epidural for the rsd...

I explain rsd by saying that it is the worst imagineable pain ever, but if i'm speaking to a reporter i always tell them something different... I am friends with lots of kids with rsd, so i tell the reporter to imagine being 7 or 8 years old and having to deal with pain every day, not being able to play like a normal kid, having to see doctors constantly... Imagine if it was your kid and you had to watch them sit there and cry in pain everyday... this usually strikes a cord with most people, especially if they have children... So many children have to suffer with this illness, I run a support group online for kids, and i know of at least 40 kids under the age of 14 with rsd....I never feel bad for myself, or pity myself because these kids have to suffer with this, at least i got to live 16 years of my life without pain... some of them got rsd at 6 or 7...At least i didnt get it til 16, thats why i tell older people to never feel bad that they have rsd, because they could've gotten it younger and lost so many of their years as a child because of the pain...

Love,

Chrystine

Chrystine

[Guest guest]

THANK YOU CHRYSTINE, FOR THAT INFO I JUST WISH I WOULD HEAR FROM ALL THE

PEOPLE I'VE SENT EMAIL'S TOO ABOUT THIS HORRIBLE ILLNESS & I HAVE PRINTED

OUT WHAT YOU SENT ME & WILL HAVE IT READY. TAKE CARE BEV & THANKS

AGAIN!!!!!