Re: [RSD-CRPSofAmerica ) Betsy

[Guest guest]

In a message dated 6/5/2003 1:05:00 AM Eastern Daylight Time, RSD-CRPSofAmerica writes:

One question I would like to ask of

anyone......is if they have had shock type pain in areas before the

spread? I do have areas where this type of pain comes

Hi Betsy,

First I am glad you found us:} and welcome to our family. As for your question above, yes it did happen to me after my nerve blocks but I found if I increased my fluid intake and added more zinc it helped these feelings subside. The 'cramping' I felt does still come back on occasion, but the rsd did NOT spread to theses areas. I hope this is what you mean.

Secondly as for medication

you were saying you cannot afford the medications the doctors suggest for you to take. There are places out there that give you financial help in this area. Her is one. Accessing Free Medication - The Patient's Advocate

http://themedicineprogram.com/

Good luck with this.

Take care

Hugs and a pain free minute,

Deborah (Deb)

Debgena@...(Deborah Genatossio)

Founder of  RSD-CRPSofAmerica

providing support for many years for

all RSD patients and families.

E-mail us anytime @RSD-CRPS of America

Deb, Jo, and Felice moderators 

The material presented here does not reflect the views of professionals.

Please remember we are not professionals. Members may discuss uses and

dosages for therapeutic products that have not been approved by their own

doctor.   A qualified health care professional should be consulted before

using any therapeutic product discussed on this list. All members should

verify all information and data with their own healthcare professional before

employing any therapies discussed in this group.

(outgoing mail protected by Norton antivirus)

[Guest guest]

In a message dated 6/5/2003 1:05:00 AM Eastern Daylight Time, RSD-CRPSofAmerica writes:

One question I would like to ask of

anyone......is if they have had shock type pain in areas before the

spread? I do have areas where this type of pain comes

Hi Betsy,

First I am glad you found us:} and welcome to our family. As for your question above, yes it did happen to me after my nerve blocks but I found if I increased my fluid intake and added more zinc it helped these feelings subside. The 'cramping' I felt does still come back on occasion, but the rsd did NOT spread to theses areas. I hope this is what you mean.

Secondly as for medication

you were saying you cannot afford the medications the doctors suggest for you to take. There are places out there that give you financial help in this area. Her is one. Accessing Free Medication - The Patient's Advocate

http://themedicineprogram.com/

Good luck with this.

Take care

Hugs and a pain free minute,

Deborah (Deb)

Debgena@...(Deborah Genatossio)

Founder of  RSD-CRPSofAmerica

providing support for many years for

all RSD patients and families.

E-mail us anytime @RSD-CRPS of America

Deb, Jo, and Felice moderators 

The material presented here does not reflect the views of professionals.

Please remember we are not professionals. Members may discuss uses and

dosages for therapeutic products that have not been approved by their own

doctor.   A qualified health care professional should be consulted before

using any therapeutic product discussed on this list. All members should

verify all information and data with their own healthcare professional before

employing any therapies discussed in this group.

(outgoing mail protected by Norton antivirus)

[Guest guest]

Hi to all again. First I would like to thank all who have responded

to my questions and welcomed me into the group. I have been this

morning for my third nerve block. The doctor was not too pleased

with the last response and said if I did not get anymore help than

one day that this would be the last one of this type of block. He

did have me get an RX for Ketamine HCL 20% PLO. It is very pricey

and I nearly fell over when they told me $191.00. It has anesthisia

mixed with some othe ingredients and your put it on in a 2 inch

square and cover with a Bio-Occlusive dressing each morning and if

you do this religiously it is supposed to really help with the pain.

Has anyone ever tried this and if so has it helped? One feels so

helpless in this situation. I have appreciated reading some of your

files and find it helpful just to know that others have the samed

issues to deal with as I do. Friends and family just don't get

it.....you know...like ..you had the surgery clear back in Feb....you

should be better by now. I also deal with a life threatening

problem....I have PPH (Primary Pulmonary Hypertension) and am on 02

24/7 plus other drugs for that and all I wanted to do was make life

alittle better by getting rid of some foot problems that had been

bothering me for some time...Did not mean to write an epistle of

sorts. Forgive me and I will try to keep them shorter from now on.

thanks for lisening.

May the Lord Bless,

Betsy in Utah

> In a message dated 6/5/2003 1:05:00 AM Eastern Daylight Time,

> RSD-CRPSofAmerica writes:

>

> > One question I would like to ask of

> > anyone......is if they have had shock type pain in areas before

the

> > spread? I do have areas where this type of pain comes

> Hi Betsy,

> First I am glad you found us:} and welcome to our family. As for

your

> question above, yes it did happen to me after my nerve blocks but I

found if I

> increased my fluid intake and added more zinc it helped these

feelings subside. The

> 'cramping' I felt does still come back on occasion, but the rsd did

NOT spread

> to theses areas. I hope this is what you mean.

> Secondly as for medication

> you were saying you cannot afford the medications the doctors

suggest for

> you to take. There are places out there that give you financial

help in this

> area. Her is one. <A

HREF= " http://themedicineprogram.com/ " >Accessing Free Medication - The

Patient's Advocate</A>

> <A

HREF= " http://themedicineprogram.com/ " >http://themedicineprogram.com/</

A>

> Good luck with this.

> Take care

>

> Hugs and a pain free minute,

> Deborah (Deb)

> Debgena@a...(Deborah Genatossio)

> Founder of  <A HREF= " http://groups.yahoo.com/group/RSD-

CRPSofAmerica/ " >RSD-CRPSofAmerica</A>

> providing support for many years for

> all RSD patients and families.

> <A HREF= " RSD-CRPSofAmerica " >E-mail us anytime @RSD-

CRPS of America</A>

>

>

> Deb, Jo, and Felice moderators 

> The material presented here does not reflect the views of

professionals.

> Please remember we are not professionals. Members may discuss uses

and

> dosages for therapeutic products that have not been approved by

their own

> doctor.   A qualified health care professional should be consulted

before

> using any therapeutic product discussed on this list. All members

should

> verify all information and data with their own healthcare

professional before

>

> employing any therapies discussed in this group.

> (outgoing mail protected by Norton antivirus)

[Guest guest]

Hi to all again. First I would like to thank all who have responded

to my questions and welcomed me into the group. I have been this

morning for my third nerve block. The doctor was not too pleased

with the last response and said if I did not get anymore help than

one day that this would be the last one of this type of block. He

did have me get an RX for Ketamine HCL 20% PLO. It is very pricey

and I nearly fell over when they told me $191.00. It has anesthisia

mixed with some othe ingredients and your put it on in a 2 inch

square and cover with a Bio-Occlusive dressing each morning and if

you do this religiously it is supposed to really help with the pain.

Has anyone ever tried this and if so has it helped? One feels so

helpless in this situation. I have appreciated reading some of your

files and find it helpful just to know that others have the samed

issues to deal with as I do. Friends and family just don't get

it.....you know...like ..you had the surgery clear back in Feb....you

should be better by now. I also deal with a life threatening

problem....I have PPH (Primary Pulmonary Hypertension) and am on 02

24/7 plus other drugs for that and all I wanted to do was make life

alittle better by getting rid of some foot problems that had been

bothering me for some time...Did not mean to write an epistle of

sorts. Forgive me and I will try to keep them shorter from now on.

thanks for lisening.

May the Lord Bless,

Betsy in Utah

> In a message dated 6/5/2003 1:05:00 AM Eastern Daylight Time,

> RSD-CRPSofAmerica writes:

>

> > One question I would like to ask of

> > anyone......is if they have had shock type pain in areas before

the

> > spread? I do have areas where this type of pain comes

> Hi Betsy,

> First I am glad you found us:} and welcome to our family. As for

your

> question above, yes it did happen to me after my nerve blocks but I

found if I

> increased my fluid intake and added more zinc it helped these

feelings subside. The

> 'cramping' I felt does still come back on occasion, but the rsd did

NOT spread

> to theses areas. I hope this is what you mean.

> Secondly as for medication

> you were saying you cannot afford the medications the doctors

suggest for

> you to take. There are places out there that give you financial

help in this

> area. Her is one. <A

HREF= " http://themedicineprogram.com/ " >Accessing Free Medication - The

Patient's Advocate</A>

> <A

HREF= " http://themedicineprogram.com/ " >http://themedicineprogram.com/</

A>

> Good luck with this.

> Take care

>

> Hugs and a pain free minute,

> Deborah (Deb)

> Debgena@a...(Deborah Genatossio)

> Founder of  <A HREF= " http://groups.yahoo.com/group/RSD-

CRPSofAmerica/ " >RSD-CRPSofAmerica</A>

> providing support for many years for

> all RSD patients and families.

> <A HREF= " RSD-CRPSofAmerica " >E-mail us anytime @RSD-

CRPS of America</A>

>

>

> Deb, Jo, and Felice moderators 

> The material presented here does not reflect the views of

professionals.

> Please remember we are not professionals. Members may discuss uses

and

> dosages for therapeutic products that have not been approved by

their own

> doctor.   A qualified health care professional should be consulted

before

> using any therapeutic product discussed on this list. All members

should

> verify all information and data with their own healthcare

professional before

>

> employing any therapies discussed in this group.

> (outgoing mail protected by Norton antivirus)

[Guest guest]

Hi to all again. First I would like to thank all who have responded

to my questions and welcomed me into the group. I have been this

morning for my third nerve block. The doctor was not too pleased

with the last response and said if I did not get anymore help than

one day that this would be the last one of this type of block. He

did have me get an RX for Ketamine HCL 20% PLO. It is very pricey

and I nearly fell over when they told me $191.00. It has anesthisia

mixed with some othe ingredients and your put it on in a 2 inch

square and cover with a Bio-Occlusive dressing each morning and if

you do this religiously it is supposed to really help with the pain.

Has anyone ever tried this and if so has it helped? One feels so

helpless in this situation. I have appreciated reading some of your

files and find it helpful just to know that others have the samed

issues to deal with as I do. Friends and family just don't get

it.....you know...like ..you had the surgery clear back in Feb....you

should be better by now. I also deal with a life threatening

problem....I have PPH (Primary Pulmonary Hypertension) and am on 02

24/7 plus other drugs for that and all I wanted to do was make life

alittle better by getting rid of some foot problems that had been

bothering me for some time...Did not mean to write an epistle of

sorts. Forgive me and I will try to keep them shorter from now on.

thanks for lisening.

May the Lord Bless,

Betsy in Utah

> In a message dated 6/5/2003 1:05:00 AM Eastern Daylight Time,

> RSD-CRPSofAmerica writes:

>

> > One question I would like to ask of

> > anyone......is if they have had shock type pain in areas before

the

> > spread? I do have areas where this type of pain comes

> Hi Betsy,

> First I am glad you found us:} and welcome to our family. As for

your

> question above, yes it did happen to me after my nerve blocks but I

found if I

> increased my fluid intake and added more zinc it helped these

feelings subside. The

> 'cramping' I felt does still come back on occasion, but the rsd did

NOT spread

> to theses areas. I hope this is what you mean.

> Secondly as for medication

> you were saying you cannot afford the medications the doctors

suggest for

> you to take. There are places out there that give you financial

help in this

> area. Her is one. <A

HREF= " http://themedicineprogram.com/ " >Accessing Free Medication - The

Patient's Advocate</A>

> <A

HREF= " http://themedicineprogram.com/ " >http://themedicineprogram.com/</

A>

> Good luck with this.

> Take care

>

> Hugs and a pain free minute,

> Deborah (Deb)

> Debgena@a...(Deborah Genatossio)

> Founder of  <A HREF= " http://groups.yahoo.com/group/RSD-

CRPSofAmerica/ " >RSD-CRPSofAmerica</A>

> providing support for many years for

> all RSD patients and families.

> <A HREF= " RSD-CRPSofAmerica " >E-mail us anytime @RSD-

CRPS of America</A>

>

>

> Deb, Jo, and Felice moderators 

> The material presented here does not reflect the views of

professionals.

> Please remember we are not professionals. Members may discuss uses

and

> dosages for therapeutic products that have not been approved by

their own

> doctor.   A qualified health care professional should be consulted

before

> using any therapeutic product discussed on this list. All members

should

> verify all information and data with their own healthcare

professional before

>

> employing any therapies discussed in this group.

> (outgoing mail protected by Norton antivirus)

[Guest guest]

If your letter was too long, I'm really in trouble!! I've written a few longer than that one! Actually, they say it's a "no-no" to apologize for stuff like that on here-just thought I'd warn you!

Love,

N.

Re: [RSD-CRPSofAmerica ) Betsy

Hi to all again. First I would like to thank all who have responded to my questions and welcomed me into the group. I have been this morning for my third nerve block. The doctor was not too pleased with the last response and said if I did not get anymore help than one day that this would be the last one of this type of block. He did have me get an RX for Ketamine HCL 20% PLO. It is very pricey and I nearly fell over when they told me $191.00. It has anesthisia mixed with some othe ingredients and your put it on in a 2 inch square and cover with a Bio-Occlusive dressing each morning and if you do this religiously it is supposed to really help with the pain. Has anyone ever tried this and if so has it helped? One feels so helpless in this situation. I have appreciated reading some of your files and find it helpful just to know that others have the samed issues to deal with as I do. Friends and family just don't get it.....you know...like ..you had the surgery clear back in Feb....you should be better by now. I also deal with a life threatening problem....I have PPH (Primary Pulmonary Hypertension) and am on 02 24/7 plus other drugs for that and all I wanted to do was make life alittle better by getting rid of some foot problems that had been bothering me for some time...Did not mean to write an epistle of sorts. Forgive me and I will try to keep them shorter from now on. thanks for lisening.May the Lord Bless,Betsy in Utah> In a message dated 6/5/2003 1:05:00 AM Eastern Daylight Time, > RSD-CRPSofAmerica writes:> > > One question I would like to ask of > > anyone......is if they have had shock type pain in areas before the > > spread? I do have areas where this type of pain comes> Hi Betsy,> First I am glad you found us:} and welcome to our family. As for your > question above, yes it did happen to me after my nerve blocks but I found if I > increased my fluid intake and added more zinc it helped these feelings subside. The > 'cramping' I felt does still come back on occasion, but the rsd did NOT spread > to theses areas. I hope this is what you mean.> Secondly as for medication> you were saying you cannot afford the medications the doctors suggest for > you to take. There are places out there that give you financial help in this > area. Her is one. <A HREF="http://themedicineprogram.com/">Accessing Free Medication - The Patient's Advocate</A> > <A HREF="http://themedicineprogram.com/">http://themedicineprogram.com/</A>> Good luck with this.> Take care> > Hugs and a pain free minute, > Deborah (Deb)> Debgena@a...(Deborah Genatossio) > Founder of <A HREF="http://groups.yahoo.com/group/RSD-CRPSofAmerica/">RSD-CRPSofAmerica</A>> providing support for many years for > all RSD patients and families.> <A HREF="RSD-CRPSofAmerica ">E-mail us anytime @RSD-CRPS of America</A>> > > Deb, Jo, and Felice moderators > The material presented here does not reflect the views of professionals. > Please remember we are not professionals. Members may discuss uses and > dosages for therapeutic products that have not been approved by their own > doctor. A qualified health care professional should be consulted before > using any therapeutic product discussed on this list. All members should > verify all information and data with their own healthcare professional before > > employing any therapies discussed in this group.> (outgoing mail protected by Norton antivirus)

[Guest guest]

If your letter was too long, I'm really in trouble!! I've written a few longer than that one! Actually, they say it's a "no-no" to apologize for stuff like that on here-just thought I'd warn you!

Love,

N.

Re: [RSD-CRPSofAmerica ) Betsy

Hi to all again. First I would like to thank all who have responded to my questions and welcomed me into the group. I have been this morning for my third nerve block. The doctor was not too pleased with the last response and said if I did not get anymore help than one day that this would be the last one of this type of block. He did have me get an RX for Ketamine HCL 20% PLO. It is very pricey and I nearly fell over when they told me $191.00. It has anesthisia mixed with some othe ingredients and your put it on in a 2 inch square and cover with a Bio-Occlusive dressing each morning and if you do this religiously it is supposed to really help with the pain. Has anyone ever tried this and if so has it helped? One feels so helpless in this situation. I have appreciated reading some of your files and find it helpful just to know that others have the samed issues to deal with as I do. Friends and family just don't get it.....you know...like ..you had the surgery clear back in Feb....you should be better by now. I also deal with a life threatening problem....I have PPH (Primary Pulmonary Hypertension) and am on 02 24/7 plus other drugs for that and all I wanted to do was make life alittle better by getting rid of some foot problems that had been bothering me for some time...Did not mean to write an epistle of sorts. Forgive me and I will try to keep them shorter from now on. thanks for lisening.May the Lord Bless,Betsy in Utah> In a message dated 6/5/2003 1:05:00 AM Eastern Daylight Time, > RSD-CRPSofAmerica writes:> > > One question I would like to ask of > > anyone......is if they have had shock type pain in areas before the > > spread? I do have areas where this type of pain comes> Hi Betsy,> First I am glad you found us:} and welcome to our family. As for your > question above, yes it did happen to me after my nerve blocks but I found if I > increased my fluid intake and added more zinc it helped these feelings subside. The > 'cramping' I felt does still come back on occasion, but the rsd did NOT spread > to theses areas. I hope this is what you mean.> Secondly as for medication> you were saying you cannot afford the medications the doctors suggest for > you to take. There are places out there that give you financial help in this > area. Her is one. <A HREF="http://themedicineprogram.com/">Accessing Free Medication - The Patient's Advocate</A> > <A HREF="http://themedicineprogram.com/">http://themedicineprogram.com/</A>> Good luck with this.> Take care> > Hugs and a pain free minute, > Deborah (Deb)> Debgena@a...(Deborah Genatossio) > Founder of <A HREF="http://groups.yahoo.com/group/RSD-CRPSofAmerica/">RSD-CRPSofAmerica</A>> providing support for many years for > all RSD patients and families.> <A HREF="RSD-CRPSofAmerica ">E-mail us anytime @RSD-CRPS of America</A>> > > Deb, Jo, and Felice moderators > The material presented here does not reflect the views of professionals. > Please remember we are not professionals. Members may discuss uses and > dosages for therapeutic products that have not been approved by their own > doctor. A qualified health care professional should be consulted before > using any therapeutic product discussed on this list. All members should > verify all information and data with their own healthcare professional before > > employing any therapies discussed in this group.> (outgoing mail protected by Norton antivirus)

[Guest guest]

If your letter was too long, I'm really in trouble!! I've written a few longer than that one! Actually, they say it's a "no-no" to apologize for stuff like that on here-just thought I'd warn you!

Love,

N.

Re: [RSD-CRPSofAmerica ) Betsy

Hi to all again. First I would like to thank all who have responded to my questions and welcomed me into the group. I have been this morning for my third nerve block. The doctor was not too pleased with the last response and said if I did not get anymore help than one day that this would be the last one of this type of block. He did have me get an RX for Ketamine HCL 20% PLO. It is very pricey and I nearly fell over when they told me $191.00. It has anesthisia mixed with some othe ingredients and your put it on in a 2 inch square and cover with a Bio-Occlusive dressing each morning and if you do this religiously it is supposed to really help with the pain. Has anyone ever tried this and if so has it helped? One feels so helpless in this situation. I have appreciated reading some of your files and find it helpful just to know that others have the samed issues to deal with as I do. Friends and family just don't get it.....you know...like ..you had the surgery clear back in Feb....you should be better by now. I also deal with a life threatening problem....I have PPH (Primary Pulmonary Hypertension) and am on 02 24/7 plus other drugs for that and all I wanted to do was make life alittle better by getting rid of some foot problems that had been bothering me for some time...Did not mean to write an epistle of sorts. Forgive me and I will try to keep them shorter from now on. thanks for lisening.May the Lord Bless,Betsy in Utah> In a message dated 6/5/2003 1:05:00 AM Eastern Daylight Time, > RSD-CRPSofAmerica writes:> > > One question I would like to ask of > > anyone......is if they have had shock type pain in areas before the > > spread? I do have areas where this type of pain comes> Hi Betsy,> First I am glad you found us:} and welcome to our family. As for your > question above, yes it did happen to me after my nerve blocks but I found if I > increased my fluid intake and added more zinc it helped these feelings subside. The > 'cramping' I felt does still come back on occasion, but the rsd did NOT spread > to theses areas. I hope this is what you mean.> Secondly as for medication> you were saying you cannot afford the medications the doctors suggest for > you to take. There are places out there that give you financial help in this > area. Her is one. <A HREF="http://themedicineprogram.com/">Accessing Free Medication - The Patient's Advocate</A> > <A HREF="http://themedicineprogram.com/">http://themedicineprogram.com/</A>> Good luck with this.> Take care> > Hugs and a pain free minute, > Deborah (Deb)> Debgena@a...(Deborah Genatossio) > Founder of <A HREF="http://groups.yahoo.com/group/RSD-CRPSofAmerica/">RSD-CRPSofAmerica</A>> providing support for many years for > all RSD patients and families.> <A HREF="RSD-CRPSofAmerica ">E-mail us anytime @RSD-CRPS of America</A>> > > Deb, Jo, and Felice moderators > The material presented here does not reflect the views of professionals. > Please remember we are not professionals. Members may discuss uses and > dosages for therapeutic products that have not been approved by their own > doctor. A qualified health care professional should be consulted before > using any therapeutic product discussed on this list. All members should > verify all information and data with their own healthcare professional before > > employing any therapies discussed in this group.> (outgoing mail protected by Norton antivirus)

[Guest guest]

Thanks .....I'll keep that in mind.

Betsy in Utah

> > In a message dated 6/5/2003 1:05:00 AM Eastern Daylight Time,

> > RSD-CRPSofAmerica writes:

> >

> > > One question I would like to ask of

> > > anyone......is if they have had shock type pain in areas

before

> the

> > > spread? I do have areas where this type of pain comes

> > Hi Betsy,

> > First I am glad you found us:} and welcome to our family. As

for

> your

> > question above, yes it did happen to me after my nerve blocks

but I

> found if I

> > increased my fluid intake and added more zinc it helped these

> feelings subside. The

> > 'cramping' I felt does still come back on occasion, but the rsd

did

> NOT spread

> > to theses areas. I hope this is what you mean.

> > Secondly as for medication

> > you were saying you cannot afford the medications the doctors

> suggest for

> > you to take. There are places out there that give you financial

> help in this

> > area. Her is one. <A

> HREF= " http://themedicineprogram.com/ " >Accessing Free Medication -

The

> Patient's Advocate</A>

> > <A

>

HREF= " http://themedicineprogram.com/ " >http://themedicineprogram.com/</

> A>

> > Good luck with this.

> > Take care

> >

> > Hugs and a pain free minute,

> > Deborah (Deb)

> > Debgena@a...(Deborah Genatossio)

> > Founder of <A HREF= " http://groups.yahoo.com/group/RSD-

> CRPSofAmerica/ " >RSD-CRPSofAmerica</A>

> > providing support for many years for

> > all RSD patients and families.

> > <A HREF= " RSD-CRPSofAmerica " >E-mail us anytime

@RSD-

> CRPS of America</A>

> >

> >

> > Deb, Jo, and Felice moderators

> > The material presented here does not reflect the views of

> professionals.

> > Please remember we are not professionals. Members may discuss

uses

> and

> > dosages for therapeutic products that have not been approved by

> their own

> > doctor. A qualified health care professional should be

consulted

> before

> > using any therapeutic product discussed on this list. All

members

> should

> > verify all information and data with their own healthcare

> professional before

> >

> > employing any therapies discussed in this group.

> > (outgoing mail protected by Norton antivirus)

>

>

>