Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 What does submucous mean? I do not know much about cleft palate, has a ver high palate but not cleft. Thanks mom to 8 years this month. Submucous cleft Hi All, I know this has been discussed before but I've forgotten. Can anyone tell me how they actually diagnose submucous cleft palate ? Jack's speech is quite strange and can be quite nasally(sp?). He did see a ENT Dr who just looked in his mouth and said that he didn't have this but now the Oral Surgeon at our local hospital has said that this is a possibility and that it could not be detected by just looking at the back of the mouth/throat. We are seeing him in June and will find out more then but just wondered what experience you have of this matter. Thanks in advance. Elaine, mum to Elise (9yrs) & Jack (4.5yrs) CHaRGE Dumfries, Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Hi Elaine, I don't know how they are supposed to find it, we had ask about this for about a year on my daughter and it was not found until they went in to do another surgery. Sorry I couldn't be of more help... Leisa ( 's Mom ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Hi, had submucous cleft too, I can't remember exactly how they diagnosed this, but they told us about it when he was doing pre-tonsillectomy thing. I think ENT saw it somehow. good luck, Barbra M Submucous cleft > Hi All, > I know this has been discussed before but I've forgotten. Can anyone tell me > how they actually diagnose submucous cleft palate ? Jack's speech is quite > strange and can be quite nasally(sp?). He did see a ENT Dr who just looked in > his mouth and said that he didn't have this but now the Oral Surgeon at our > local hospital has said that this is a possibility and that it could not be > detected by just looking at the back of the mouth/throat. We are seeing him > in June and will find out more then but just wondered what experience you > have of this matter. > Thanks in advance. > > Elaine, mum to Elise (9yrs) & Jack (4.5yrs) CHaRGE > Dumfries, Scotland > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 As I understand it, a submucous cleft is where the muscles didn't come together in the soft palate. Everyone has a hard palate (the bony part on the roof of the mouth), and a soft palate just in front of the uvula (that thing that hangs down in the back of your throat). Even though the soft palate looks normal on the outside, the underlying muscles may still be cleft. I've heard that this may be suspect if the uvula has a notch in it. Also, submucous clefts can cause a lot of middle ear infections. My son does not have a cleft palate, but a high palate, so I don't really have any experience in this, but this is what I've been told. Let me know if I'm mistaken! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Everyone, Thanks so much for your replies on this. I don't know if Jack does have this but he certainly has some strange speech . I think they can diagnose it with either videofluroscopy or nasendoscopy (sp?). With the videofluroscopy they get the child to speak and take x-rays to see what the palate is doing during speech. So I've been told anyway by another mum who's wee boy is being checked for submucous cleft. Jack sees the oral surgeon and orthodontist in june so I'll keep you posted. Elaine, mum to Elise (9yrs) & Jack (4.5yrs) CHaRGE Dumfries, Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Everyone, Thanks so much for your replies on this. I don't know if Jack does have this but he certainly has some strange speech . I think they can diagnose it with either videofluroscopy or nasendoscopy (sp?). With the videofluroscopy they get the child to speak and take x-rays to see what the palate is doing during speech. So I've been told anyway by another mum who's wee boy is being checked for submucous cleft. Jack sees the oral surgeon and orthodontist in june so I'll keep you posted. Elaine, mum to Elise (9yrs) & Jack (4.5yrs) CHaRGE Dumfries, Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 I believe there might be variations of a submucus cleft. Patty has one. It is small so there is little problem with it. It is where the palate bone on the roof of her mouth did not close properly so there is a small hole. This is covered by though by what I call the skin in her mough. They diagnosed it by feeling it with their finger when she was a baby. At that time when Patty would drink from a bottle it would go up the palate and come back out her nose. Her palate is also high and she has a short soft palate. The soft palate is in the back of the throat and moves for swallowing and in making sounds. Along with that her uvula, which is the dangly thing in the back of the throat, is split. This has nothing to do with anything for her they said. When she was a baby we were told she would never talk. Well, they were wrong. The thing that causes problems is because of these her eustachian tube does not function properly and she struggles even today with ear infections and fluids. Otherwise, it now makes little difference in her life. Bonnie, Mom to Kris 19, Patty CHARGE 17, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 also has bifid uvula, seems typical in charge. they never did anything about submucous cleft I don't think, when he had tonsillectomy. *I guess it doesn't cause any probs Re: Re: Submucous cleft > I believe there might be variations of a submucus cleft. Patty has one. It > is small so there is little problem with it. It is where the palate bone on > the roof of her mouth did not close properly so there is a small hole. This > is covered by though by what I call the skin in her mough. They diagnosed it > by feeling it with their finger when she was a baby. At that time when Patty > would drink from a bottle it would go up the palate and come back out her > nose. Her palate is also high and she has a short soft palate. The soft > palate is in the back of the throat and moves for swallowing and in making > sounds. Along with that her uvula, which is the dangly thing in the back of > the throat, is split. This has nothing to do with anything for her they > said. > When she was a baby we were told she would never talk. Well, they > were wrong. The thing that causes problems is because of these her > eustachian tube does not function properly and she struggles even today with > ear infections and fluids. Otherwise, it now makes little difference in her > life. > > Bonnie, Mom to Kris 19, Patty CHARGE 17, and wife to > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
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