Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Martha, We have seen a Urologist at New England Medical Center. His name is Klauber. We like him, but as I have said we are changing pedis so we will be at Children's Hospital Boston. I spoke with our old pediatrician and he suggested a Dr. Bower at Children's. We'll see. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Martha, We have seen a Urologist at New England Medical Center. His name is Klauber. We like him, but as I have said we are changing pedis so we will be at Children's Hospital Boston. I spoke with our old pediatrician and he suggested a Dr. Bower at Children's. We'll see. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 In a message dated 4/4/2002 3:40:08 AM Eastern Standard Time, res0rkkt@... writes: > Sorry to ask this but I am not sure what a DMSA is. We have had so much > done with and I do not remember this test. Could you explain this to > me. Thanks. They inject a very small amount of radioactive material into the child. Then you wait about an hour and come back. The child needs to lay still in a smaller scale version of CT-scan. The machine rotates around the child and it takes approximately 1/2 hour. Sedation may be necessary. For we were able to humor him with a video. The hardest part for him, was keeping his arms up over his head. He could move them a little but not much. I held his hands to help to remind him to stay still. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 In a message dated 4/4/2002 3:40:08 AM Eastern Standard Time, res0rkkt@... writes: > Sorry to ask this but I am not sure what a DMSA is. We have had so much > done with and I do not remember this test. Could you explain this to > me. Thanks. They inject a very small amount of radioactive material into the child. Then you wait about an hour and come back. The child needs to lay still in a smaller scale version of CT-scan. The machine rotates around the child and it takes approximately 1/2 hour. Sedation may be necessary. For we were able to humor him with a video. The hardest part for him, was keeping his arms up over his head. He could move them a little but not much. I held his hands to help to remind him to stay still. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Sorry to ask this but I am not sure what a DMSA is. We have had so much done with and I do not remember this test. Could you explain this to me. Thanks. mom to almost 8 years. Re: kidney problems , How would they check for that? He's had a renal ultrasound and a DMSA scan. His blood pressure, for now is fine (97/65) with him taking the analipril. I just worry about the potential of needing to remove the kidney. 's heart is doing well now, but as we all know, anaestesia (sp?) can be a big concern for our kids. Thanks. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Sorry to ask this but I am not sure what a DMSA is. We have had so much done with and I do not remember this test. Could you explain this to me. Thanks. mom to almost 8 years. Re: kidney problems , How would they check for that? He's had a renal ultrasound and a DMSA scan. His blood pressure, for now is fine (97/65) with him taking the analipril. I just worry about the potential of needing to remove the kidney. 's heart is doing well now, but as we all know, anaestesia (sp?) can be a big concern for our kids. Thanks. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 I spoke with our old pediatrician and he > suggested a Dr. Bower at Children's. We'll see. Janet, My ped recently recommended Dr. Bower also. Although my daughter has no functional problems (but has the horseshoe kidney and dual collecting systems) my ped thought she should have another evaluation done now. She has only had one UTI. I agree with whoever said that these things need to be monitored periodically - not just checked once. I guess my daughter's peditrician thinks the same thing. We have not yet seen Dr. Bower, so I can't comment further. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 I spoke with our old pediatrician and he > suggested a Dr. Bower at Children's. We'll see. Janet, My ped recently recommended Dr. Bower also. Although my daughter has no functional problems (but has the horseshoe kidney and dual collecting systems) my ped thought she should have another evaluation done now. She has only had one UTI. I agree with whoever said that these things need to be monitored periodically - not just checked once. I guess my daughter's peditrician thinks the same thing. We have not yet seen Dr. Bower, so I can't comment further. -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Thanks Janet we have had this test done but it was a long time ago before was a year old. He did very well with it in fact he was asleep through the whole test. mom to almost 8 years. Re: kidney problems In a message dated 4/4/2002 3:40:08 AM Eastern Standard Time, res0rkkt@... writes: > Sorry to ask this but I am not sure what a DMSA is. We have had so much > done with and I do not remember this test. Could you explain this to > me. Thanks. They inject a very small amount of radioactive material into the child. Then you wait about an hour and come back. The child needs to lay still in a smaller scale version of CT-scan. The machine rotates around the child and it takes approximately 1/2 hour. Sedation may be necessary. For we were able to humor him with a video. The hardest part for him, was keeping his arms up over his head. He could move them a little but not much. I held his hands to help to remind him to stay still. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Thanks Janet we have had this test done but it was a long time ago before was a year old. He did very well with it in fact he was asleep through the whole test. mom to almost 8 years. Re: kidney problems In a message dated 4/4/2002 3:40:08 AM Eastern Standard Time, res0rkkt@... writes: > Sorry to ask this but I am not sure what a DMSA is. We have had so much > done with and I do not remember this test. Could you explain this to > me. Thanks. They inject a very small amount of radioactive material into the child. Then you wait about an hour and come back. The child needs to lay still in a smaller scale version of CT-scan. The machine rotates around the child and it takes approximately 1/2 hour. Sedation may be necessary. For we were able to humor him with a video. The hardest part for him, was keeping his arms up over his head. He could move them a little but not much. I held his hands to help to remind him to stay still. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 : Every time I hear from you on this subject, I ache. is 17, and we started seeing the same thing about 2 years ago, though we don't see it often. I just do not understand. The Perkins folks would probably swear that it has to do with doses of Ativan (perhaps in conjunction with other drugs). I believe this is true at times (and consider it an unacceptable side effect!), at others, it happens without any meds. I just do not know what to do. I really wish professionals on the list would voice any ideas. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 : Every time I hear from you on this subject, I ache. is 17, and we started seeing the same thing about 2 years ago, though we don't see it often. I just do not understand. The Perkins folks would probably swear that it has to do with doses of Ativan (perhaps in conjunction with other drugs). I believe this is true at times (and consider it an unacceptable side effect!), at others, it happens without any meds. I just do not know what to do. I really wish professionals on the list would voice any ideas. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 Martha, Well we have NO clue what is causing this either. We saw the neurologist yesterday and mentioned the wetting again and if he had any ideas. He took him off Catapres about 2 months ago and we saw NO CHANGE. He is now weaning him off Depakote and increasing the Wellbutrin. We'll see if that helps. I am just praying for a miracle here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 In a message dated 4/5/02 9:51:54 AM Central Standard Time, wkeedy@... writes: > Do they call this condition: irritable bladder? > , Yes this is the only thing that was mentioned to us. But the Dr didn't really want to commit to that diagnosis either. karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 In a message dated 4/5/02 9:51:54 AM Central Standard Time, wkeedy@... writes: > Do they call this condition: irritable bladder? > , Yes this is the only thing that was mentioned to us. But the Dr didn't really want to commit to that diagnosis either. karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 , Do they call this condition: irritable bladder? I read a reference to that condition in some immune system stuff I was reading. At 08:16 AM 4/5/02 -0500, you wrote: > Well we have NO clue what is causing this either. We saw the >neurologist yesterday and mentioned the wetting again and if he had any >ideas. He took him off Catapres about 2 months ago and we saw NO CHANGE. He >is now weaning him off Depakote and increasing the Wellbutrin. We'll see if >that helps. I am just praying for a miracle here. > > > Quote Link to comment Share on other sites More sharing options...
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