Oprah

[Guest guest]

SHE HAS SHOWN COURAGE IN THE FACE OF POSSIBLE INTERNAL OPPOSITION;

SHE HAS WATCHED HER CHILD REGRESS INTO AUTISM........

SHE HAS CHOSEN TO WORK FOR TRUTH........

SHE IS HERSELF.....SHE IS NOT HER " FAMILY'S OTHER INVOLVEMENTS.... "

'SHE' IS 'US' AND I AM GRATEFUL FOR IT........Suzanne

_____

From: [mailto: ]

On Behalf Of centreav2c

Sent: Friday, April 06, 2007 2:15 AM

Subject: [ ] Re: Oprah

I will give you the benefit of the doubt for now, but I see only

reason to loose my enthusiasm for both NAA and Safeminds. Why is it

that the day she appears on Oprah, that she is named to the board of

directors of these 2 groups and for tha matter why both. There also

does not appear mention in the press release of her family and their

other involvements. I am not plugged in to this soap opra(h), but it

seems to me that she and her family are taking autism and all of us

for a ride. I don't think we need them. When they take over A-champ

or perhaps the lsits, I will loose all respect, and stop tuning

into this show.

sincerely and with all due respect,

Joe Marciano

>

> We are gratified that she has become a Board

> Member of NAA and SafeMinds. Suzanne Messina REAACH

>

>

>

>

[Guest guest]

Actually Oprah plainly stated for the record that she had to put the

autism speaks rep up to speaking up for her own children.

That can only mean that the AS person WAS willing to appear on the

show knowing that the obligatory CDC-planted doctor would spew lots

and lots of " no evidence of harm " propaganda and she had no

instinctive, initial desire to contradict what was being said.

The same goes for the bogus CDC rate spewage which was allowed to go

on unchecked and typically not well defined. This false notion that

autism rates are currently 1 in 150 has been debunked.

This level of " professionalism " , where the advocate fails to advocate

undoubtedly due to financial and political implications is neither

productive nor beneficial to our children's fight.

> >

> > We are gratified that she has become a Board

> > Member of NAA and SafeMinds. Suzanne Messina REAACH

> >

> >

> >

> >

[Guest guest]

Yikes. Although I don't fully agree with Joe, I think yelling at him

in caps isn't the way to go.

This is the first time The -Hildebrands have so publically

talked about vaccines playing a role despite many opportunities. It

wouldn't bother me so much if they didn't believe in that link, but

they apparently do.

I understand the skepticism. I thought it was interesting that her

family ties weren't mentioned, but I'm sure she just wants to be

known as a parent and not as a child of an NBC executive for this

battle. She still has the resources, regardless.

Pam

> >

> > We are gratified that she has become a Board

> > Member of NAA and SafeMinds. Suzanne Messina REAACH

> >

> >

> >

> >

[Guest guest]

I'll clarify: those who know me know I am a terrible typist. hate it

I type looking aty he keys

when I finished the e-mail, I looked up, and saw they were all in caps...

check the time it was 2:24 AM when I wrote it too tired to re-write,

three ASD kids with the flu, and I actually thought

it looked emphatic, not nasty...however, if caps in the e-mail community

signify yelling..i'll do my best to be more careful

PS I NEVER YELL ON LINE EVER AT ANYONE...whoops....i never

do.....actually, I strive to be dignified when others forget to be....

but you have a point, so thank-you SUZANNE Suzanne....

_____

From: [mailto: ]

On Behalf Of noaholiviaian

Sent: Friday, April 06, 2007 8:28 AM

Subject: [ ] Re: Oprah

Yikes. Although I don't fully agree with Joe, I think yelling at him

in caps isn't the way to go.

This is the first time The -Hildebrands have so publically

talked about vaccines playing a role despite many opportunities. It

wouldn't bother me so much if they didn't believe in that link, but

they apparently do.

I understand the skepticism. I thought it was interesting that her

family ties weren't mentioned, but I'm sure she just wants to be

known as a parent and not as a child of an NBC executive for this

battle. She still has the resources, regardless.

Pam

> >

> > We are gratified that she has become a Board

> > Member of NAA and SafeMinds. Suzanne Messina REAACH

> >

> >

> >

> >

[Guest guest]

has a special on depression today. I think this might benifit a lot of people.

Joy

[Guest guest]

Hvn safe, sorry you are going through this physical and emotional anguish just

now.

The doctor you're thinking of is Mehmet Oz. Here's his bio from Columbia U

hospital:

http://asp.cumc.columbia.edu/facdb/profile_list.asp?uni=mco2 & DepAffil=Surgery.

Maybe addressing some message to him will help sway things. It's worth a try.

All the best,

Margh

[ ] Re: NEW OPRAH GROUP: THE AGONY OF LYME

Sorry...I just wrote a huge vent....but forgot to mention

something...

I dont watch Oprah too often....well, more so now that I am forced

to the couch unwillingly due to this illness...

ANYWAY....who is that doctor she has guest on her show a lot?? Not

dr. phil....but the medical doc...not sure what his name is.

I would suggest you to try to contact HIM and Oprah in

conjunction....Maybe he can do some sort of segment on Lymes on the

show....

Hope the suggestion helps.

I will check out your message board....I think it is courageous of

you to open that up for people.....

When I am feeling a little more stable, i will gladly share my

experience and story.

Hang in there...our voices WILL be heard.

[Guest guest]

From a business stand point I think it would be a good idea to do an episode

on hypothyroidism. Seeing as possibly 1 in 4 people have hypothyroidism it

would appeal to practically everyone. People who have the syndrome, disease,

etc. and people who know people with it. It's about time an accurate picture

is portrayed.

In a message dated 10/16/07 9:32:26 PM, nelsonck@... writes:

>

> I did see her show today and was disappointed. I thought she was going to

> talk more

> about being hypoT etc. It was a very small part of the show. The show did

> talk about

> women's health issues which is a good thing. One thing she did say though

> surprised me

> because she talked of her thyroid now being regulated... because she talked

> of her thyroid

> how hard it is going to be to keep it regulated... how hard it is going to

> be to keep

> informed of this disease, however I'm not so sure.

>

> Venizia

>

>

>

**************************************

See what's new at http://www.aol.com

[Guest guest]

I actually wrote to her show about doing a show on Hypo.. as of this

writing... no response

************************************** See what's new at http://www.aol.com

[Guest guest]

Is is me or does she look like she has gained back a lot of weight?

Roni

Re: oprah

I did see her show today and was disappointed. I thought she was going to talk

more

about being hypoT etc. It was a very small part of the show. The show did talk

about

women's health issues which is a good thing. One thing she did say though

surprised me

because she talked of her thyroid now being regulated... ...and I thought, she

has no idea

how hard it is going to be to keep it regulated... .I thought she would have

been more

informed of this disease, however I'm not so sure.

Venizia

>

> did anyone see oprah today? She talked about blowing out her thyroid.

>

________________________________________________________________________________\

____

Check out the hottest 2008 models today at Autos.

http://autos./new_cars.html

[Guest guest]

This woman is so normal aside from the fact that she has more money

than some countries. She was fed the garbage that she had some deep,

psychological reason for her weight. Unfortunately, she believed them

for a long time, and broke her butt trying to eat like a bird. Ya gotta

love her.

Roni

Re: oprah

You're right. She gained 20#. Before she was diagnosed with hypoT.

Venizia

> >

> > did anyone see oprah today? She talked about blowing out her thyroid.

> >

>

>

>

>

>

>

____________ _________ _________ _________ _________ _________ _

> Check out the hottest 2008 models today at Autos.

> http://autos. / new_cars. html

>

>

[Guest guest]

Thanks for the info. Can you tell me more about what the book teaches? I

may just put it on my to-read list. Thanks!!!!!!!

-- Re: Re: oprah

Crystal...I have a friend who is a clinician specializing in trauma.

She told me years ago about a book, _The Body Remebers: The

Psychophysiology of Trauma and Trauma Treatment_ by Babette Rothschild.

Psychoneuroimmunology looks at the mind-body connection.

There are many books published regarding the effects of trauma

on an individual...I've found Ms Rothchild's book very helpful.

Best thoughts,

Crystal wrote:

>I'd like to add something. My pastor's wife was diagnosed with hashimotos.

>This was several years back. She went through the long line of docs and

>diagnoses like most of us here did. She read a book about meditative prayer

> Once she learned how to do this, she was able to come off all the drugs.

>Her thyroid is fully functioning again. I so hope this for all of us here.

>Not likely but hope full. So obviously her thyroid problems came from

>being not being able to relax and have joy. I do have this problem, but

>unlike some, I can't pinpoint why. I have had many bad things happen to me

>in my life, maybe it was the first bad thing that started my thyroid

>problems who knows. Sorry, this has turned out longer than it was suppose

>to.

>

>

[Guest guest]

Hey everyone!

It was so strange, I got home today from school, turned on the TV and was

shocked to realize that it was Extra talking about Oprah's thyroid problem. I

only saw the end of it which consisted of some " supposed to be experienced "

doctor who was saying " All you have to do is get a simple test to check on how

your

thyroid is doing. Granted I didn't see the whole show so maybe I am

incorrect but from what I heard, hypothyroidism is being represented very badly.

I'm

going to e-mail Oprah tonight lol.

In a message dated 10/17/07 2:17:01 PM, sweetnwright@... writes:

>

> Don't know if this was already answered, but you have to go to her site and

> hit contact us, I think it is on the left. I already sent the email

> -- Re: Re: oprah

> >

> > From a business stand point I think it would be a good idea to do an

> episode

> >

> > on hypothyroidism. Seeing as possibly 1 in 4 people have hypothyroidism it

> > would appeal to practically everyone. People who have the syndrome,

> disease,

> >

> > etc. and people who know people with it. It's about time an accurate

> picture

> >

> > is portrayed.

> >

> >

> >

> > In a message dated 10/16/07 9:32:26 PM, nelsonck@... writes:

> > >

> > > I did see her show today and was disappointed. I thought she was going

> to

> > > talk more

> > > about being hypoT etc. It was a very small part of the show. The show

> did

> > > talk about

> > > women's health issues which is a good thing. One thing she did say

> though

> > > surprised me

> > > because she talked of her thyroid now being regulated... because she

> > talked

> > > of her thyroid

> > > how hard it is going to be to keep it regulated... how hard it is going

> to

> >

> > > be to keep

> > > informed of this disease, however I'm not so sure.

> > >

> > > Venizia

>

>

>

**************************************

See what's new at http://www.aol.com

[Guest guest]

Venizia-

I totally agree with you.

In a message dated 10/18/07 6:08:39 PM, nelsonck@... writes:

>

> ,

>

> You are correct. I was not impressed with the show at all. When the doctor

> made that

> comment I said to the TV....you have no idea what you are talking about. I

> also believe

> that Oprah has no idea what is ahead for herself. What a shame.

>

> Venizia

>

> --- In hypothyroidism@hypothyroidihyp, bear339@, be

> >

> > Hey everyone!

> >

> > It was so strange, I got home today from school, turned on the TV and was

> > shocked to realize that it was Extra talking about Oprah's thyroid

> problem. I

> > only saw the end of it which consisted of some " supposed to be

> experienced "

> > doctor who was saying " All you have to do is get a simple test to check on

> how your

> > thyroid is doing. Granted I didn't see the whole show so maybe I am

> > incorrect but from what I heard, hypothyroidism is being represented very

> badly. I'm

> > going to e-mail Oprah tonight lol.

> >

> >

> >

> > In a message dated 10/17/07 2:17:01 PM, sweetnwright@ In a messa

> > >

> > > Don't know if this was already answered, but you have to go to her site

> and

> > > hit contact us, I think it is on the left. I already sent the email

> > > -- Re: Re: oprah

> > > >

> > > > From a business stand point I think it would be a good idea to do an

> > > episode

> > > >

> > > > on hypothyroidism. Seeing as possibly 1 in 4 people have

> hypothyroidism it

> > > > would appeal to practically everyone. People who have the syndrome,

> > > disease,

> > > >

> > > > etc. and people who know people with it. It's about time an accurate

> > > picture

> > > >

> > > > is portrayed.

> > > >

> > > >

> > > >

> > > > In a message dated 10/16/07 9:32:26 PM, nelsonck@... writes:

> > > > >

> > > > > I did see her show today and was disappointed. I thought she was

> going

> > > to

> > > > > talk more

> > > > > about being hypoT etc. It was a very small part of the show. The

> show

> > > did

> > > > > talk about

> > > > > women's health issues which is a good thing. One thing she did say

> > > though

> > > > > surprised me

> > > > > because she talked of her thyroid now being regulated... because she

> > > > talked

> > > > > of her thyroid

> > > > > how hard it is going to be to keep it regulated... how hard it is

> going

> > > to

> > > >

> > > > > be to keep

> > > > > informed of this disease, however I'm not so sure.

> > > > >

> > > > > Venizia

>

>

>

**************************************

See what's new at http://www.aol.com

[Guest guest]

,

You are correct. I was not impressed with the show at all. When the doctor

made that

comment I said to the TV....you have no idea what you are talking about. I also

believe

that Oprah has no idea what is ahead for herself. What a shame.

Venizia

>

> Hey everyone!

>

> It was so strange, I got home today from school, turned on the TV and was

> shocked to realize that it was Extra talking about Oprah's thyroid problem. I

> only saw the end of it which consisted of some " supposed to be experienced "

> doctor who was saying " All you have to do is get a simple test to check on how

your

> thyroid is doing. Granted I didn't see the whole show so maybe I am

> incorrect but from what I heard, hypothyroidism is being represented very

badly. I'm

> going to e-mail Oprah tonight lol.

>

>

>

> In a message dated 10/17/07 2:17:01 PM, sweetnwright@... writes:

> >

> > Don't know if this was already answered, but you have to go to her site and

> > hit contact us, I think it is on the left. I already sent the email

> > -- Re: Re: oprah

> > >

> > > From a business stand point I think it would be a good idea to do an

> > episode

> > >

> > > on hypothyroidism. Seeing as possibly 1 in 4 people have hypothyroidism it

> > > would appeal to practically everyone. People who have the syndrome,

> > disease,

> > >

> > > etc. and people who know people with it. It's about time an accurate

> > picture

> > >

> > > is portrayed.

> > >

> > >

> > >

> > > In a message dated 10/16/07 9:32:26 PM, nelsonck@... writes:

> > > >

> > > > I did see her show today and was disappointed. I thought she was going

> > to

> > > > talk more

> > > > about being hypoT etc. It was a very small part of the show. The show

> > did

> > > > talk about

> > > > women's health issues which is a good thing. One thing she did say

> > though

> > > > surprised me

> > > > because she talked of her thyroid now being regulated... because she

> > > talked

> > > > of her thyroid

> > > > how hard it is going to be to keep it regulated... how hard it is going

> > to

> > >

> > > > be to keep

> > > > informed of this disease, however I'm not so sure.

> > > >

> > > > Venizia

> >

> >

> >

>

>

>

>

> **************************************

> See what's new at http://www.aol.com

>

>

>

[Guest guest]

           Hahahaaaaa, I can just picture all of us on Oprah. Hahaaa,

spacey, hungry, wondering how when we were trying to lose a couple pounds for

the show actually gained ten? Hehe.

           I'm seriously going to start mass e-mailing her myself

about the fact that when you bring up a topic, it deserves to be represented

accurately.  She has severely failed to do this.  Hypo slowly sucked my life

away.  Even now it is a daily struggle. It isn't just a weight issue solved by

a simple test. Man, this p*sses me off.

Re: Re: oprah

Yeah, wouldn't that be great if all of us got on the oprah show from this forum,

and then all of us Hypos can finally meet!!

hugs,

AlanticLdy@... wrote:

With all the power she has do you all really think she's that much in the

dark on this? I mean really now...lol. She may even be here in our group and

none of us know it! Hmmmmmm.....I still think she will do a show on it. As far

as she and Stedman, maybe she likes to keep her personal life private from her

professional life.

In a message dated 10/19/2007 11:24:05 AM Eastern Daylight Time,

nelsonck@... writes:

It's amazing to me that someone with her money and power can be so out of

the loop on

this subject. She must be able to have access to the best doctors etc and

she does a show

like the one she did the other day? I always thought her to be very

bright.....I don't know

now. It very disappointing and frustrating.

************************************** See what's new at http://www.aol.com

[Guest guest]

Venizia-

I totally agree with you.

Re: oprah

YES, I absolutely believe she is in the dark. She would never had put on that

show the way

she did if she wasn't. She should have done more research on the subject. She

put the

show on too soon. She had the wrong person on the show. Should I go on....

Venizia

-- In hypothyroidism , AlanticLdy@... wrote:

>

>

> With all the power she has do you all really think she's that much in the

> dark on this? I mean really now...lol. She may even be here in our group and

> none of us know it! Hmmmmmm.....I still think she will do a show on it. As far

> as she and Stedman, maybe she likes to keep her personal life private from her

> professional life.

>

>

> In a message dated 10/19/2007 11:24:05 AM Eastern Daylight Time,

> nelsonck@... writes:

>

> It's amazing to me that someone with her money and power can be so out of

> the loop on

> this subject. She must be able to have access to the best doctors etc and

> she does a show

> like the one she did the other day? I always thought her to be very

> bright.....I don't know

> now. It very disappointing and frustrating.

>

>

>

>

>

>

> ************************************** See what's new at http://www.aol.com

>

>

>

[Guest guest]

Right, other people do do a lot of work too, but she wouldn't do a show on

something she didn't believe in.? Like if one of her producers gave her a script

on how women are inferior, it's a fact, yada, yada, no way would she do it. If I

didn't know much at all about?hypothyroidism and someone showed me that script,

I wouldn't see anything to object to about it. She just doesn't know what so

many of us go through.

Re: Re: oprah

Oprah doesn't make up the shows she does. She has several producers that do that

type of thing. They do the research, they book the guests they brief Oprah, they

have the scripts written up. Basically, they do all the work.

Roni

Re: oprah

YES, I absolutely believe she is in the dark. She would never had put on that

show the way

she did if she wasn't. She should have done more research on the subject. She

put the

show on too soon. She had the wrong person on the show. Should I go on....

Venizia

-- In hypothyroidism, AlanticLdy@. .. wrote:

>

>

> With all the power she has do you all really think she's that much in the

> dark on this? I mean really now...lol. She may even be here in our group and

> none of us know it! Hmmmmmm..... I still think she will do a show on it. As

far

> as she and Stedman, maybe she likes to keep her personal life private from her

> professional life.

>

>

> In a message dated 10/19/2007 11:24:05 AM Eastern Daylight Time,

> nelsonck@... writes:

>

> It's amazing to me that someone with her money and power can be so out of

> the loop on

> this subject. She must be able to have access to the best doctors etc and

> she does a show

> like the one she did the other day? I always thought her to be very

> bright.....I don't know

> now. It very disappointing and frustrating.

>

>

>

>

>

>

> ************ ********* ********* ******** See what's new at http://www.aol.

com

>

>

>