Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 , First off, Welcome to CHARGEland... Glad to have you. As far as the head bobbing, I wouldn't be surprised if it's just " Jillyan's thing " . Kennedy flaps her hands like she's about to take flight when she's happy, excited, wound up in general, etc... If you are concerned it's medical though, (ex..seizure type activity) it'd be best to have a neurologist check it out. Weir Mom to Kennedy 4yr old CHARGEr, 12, 10, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://personal.nbnet.nb.ca/gweir ICQ #1426476 " In three words I can sum up everything I've learned about life: it goes on. " - Frost Head Bobbing Jillyan (8 mo. old CHARGEr)over the past couple of weeks has started doing this head bobbing . . . may sound strange, but when anything unusual happens with her I get worried. She'll be laying on her mat playing and then all of a sudden her head will bob up and down like she is saying " yes " to me. When it first happened I did not think much of it, but I notice it more and more. I can grab her head and it will stop without her putting up any resistance. We have stepped up the PT on her neck by adding a chiropractor last week and in one week he has done wonders with getting her to hold her head up and not be so hunched over. Now we can actually see her little neck. Could this be related to the PT or could this be something else? We have yet to add a neurologist to her long list of docs as we have been concentrating on other more urgent issues -- in a couple of weeks she heads to yet another surgery -- this time on her eye for her glaucoma to hopefully gain some control over the pressure and while she is under the nose doc will see if she needs any additional laser surgery on her nose. Huggins Wife to Robin, Mom to Hailey (4) and Jillyan (8 mos) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 , First off, Welcome to CHARGEland... Glad to have you. As far as the head bobbing, I wouldn't be surprised if it's just " Jillyan's thing " . Kennedy flaps her hands like she's about to take flight when she's happy, excited, wound up in general, etc... If you are concerned it's medical though, (ex..seizure type activity) it'd be best to have a neurologist check it out. Weir Mom to Kennedy 4yr old CHARGEr, 12, 10, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://personal.nbnet.nb.ca/gweir ICQ #1426476 " In three words I can sum up everything I've learned about life: it goes on. " - Frost Head Bobbing Jillyan (8 mo. old CHARGEr)over the past couple of weeks has started doing this head bobbing . . . may sound strange, but when anything unusual happens with her I get worried. She'll be laying on her mat playing and then all of a sudden her head will bob up and down like she is saying " yes " to me. When it first happened I did not think much of it, but I notice it more and more. I can grab her head and it will stop without her putting up any resistance. We have stepped up the PT on her neck by adding a chiropractor last week and in one week he has done wonders with getting her to hold her head up and not be so hunched over. Now we can actually see her little neck. Could this be related to the PT or could this be something else? We have yet to add a neurologist to her long list of docs as we have been concentrating on other more urgent issues -- in a couple of weeks she heads to yet another surgery -- this time on her eye for her glaucoma to hopefully gain some control over the pressure and while she is under the nose doc will see if she needs any additional laser surgery on her nose. Huggins Wife to Robin, Mom to Hailey (4) and Jillyan (8 mos) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 , I'd like to second the Welcome. I know the first few years is constantly trying to figure out if something is right or wrong. Just a suggestion... I recently got hooked up with the Texas School for the Blind and Visually Impaired (TSBVI) and among a lot of wonderful information I got from them about deaf-blindness, I also get their SEE/HEAR newletter. Their website is at www.tsbvi.edu. There is an article in the Fall 2001 newletter called " Looking for Self-Stimulation in the Pursuit of Leisure " or " I'm Okay, You Have a Mannerism. " It really put things into perspective for me. They compare the " Miss Manners Guide to Appropriate Self-Stimulation " of say rocking in chairs to the " Creative Varitaions Which may Plug You into a Written Behavior Plan " of rocking your body. Check it out - It gave me a new appreciation of what my child does for entertainment. Paz, --- Graeme & Weir wrote: > , > First off, Welcome to CHARGEland... Glad to > have you. As far as the head bobbing, I > wouldn't be surprised if it's just " Jillyan's > thing " . Kennedy flaps her hands like she's > about to take flight when she's happy, excited, > wound up in general, etc... If you are > concerned it's medical though, (ex..seizure > type activity) it'd be best to have a > neurologist check it out. > Weir > Mom to Kennedy 4yr old CHARGEr, 12, > 10, and wife to Graeme > New Brunswick, Canada > Visit the " Weir homepage " at: > http://personal.nbnet.nb.ca/gweir > ICQ #1426476 > > " In three words I can sum up everything I've > learned about life: it goes on. " > - Frost > > > > > > Head Bobbing > > > Jillyan (8 mo. old CHARGEr)over the past > couple of weeks has started > doing this head bobbing . . . may sound > strange, but when anything > unusual happens with her I get worried. > She'll be laying on her mat > playing and then all of a sudden her head > will bob up and down like > she is saying " yes " to me. When it first > happened I did not think > much of it, but I notice it more and more. I > can grab her head and > it will stop without her putting up any > resistance. > > We have stepped up the PT on her neck by > adding a chiropractor last > week and in one week he has done wonders with > getting her to hold > her head up and not be so hunched over. Now > we can actually see her > little neck. Could this be related to the PT > or could this be > something else? > > We have yet to add a neurologist to her long > list of docs as we have > been concentrating on other more urgent > issues -- in a couple of > weeks she heads to yet another surgery -- > this time on her eye for > her glaucoma to hopefully gain some control > over the pressure and > while she is under the nose doc will see if > she needs any additional > laser surgery on her nose. > > Huggins > Wife to Robin, Mom to Hailey (4) and Jillyan > (8 mos) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 , I'd like to second the Welcome. I know the first few years is constantly trying to figure out if something is right or wrong. Just a suggestion... I recently got hooked up with the Texas School for the Blind and Visually Impaired (TSBVI) and among a lot of wonderful information I got from them about deaf-blindness, I also get their SEE/HEAR newletter. Their website is at www.tsbvi.edu. There is an article in the Fall 2001 newletter called " Looking for Self-Stimulation in the Pursuit of Leisure " or " I'm Okay, You Have a Mannerism. " It really put things into perspective for me. They compare the " Miss Manners Guide to Appropriate Self-Stimulation " of say rocking in chairs to the " Creative Varitaions Which may Plug You into a Written Behavior Plan " of rocking your body. Check it out - It gave me a new appreciation of what my child does for entertainment. Paz, --- Graeme & Weir wrote: > , > First off, Welcome to CHARGEland... Glad to > have you. As far as the head bobbing, I > wouldn't be surprised if it's just " Jillyan's > thing " . Kennedy flaps her hands like she's > about to take flight when she's happy, excited, > wound up in general, etc... If you are > concerned it's medical though, (ex..seizure > type activity) it'd be best to have a > neurologist check it out. > Weir > Mom to Kennedy 4yr old CHARGEr, 12, > 10, and wife to Graeme > New Brunswick, Canada > Visit the " Weir homepage " at: > http://personal.nbnet.nb.ca/gweir > ICQ #1426476 > > " In three words I can sum up everything I've > learned about life: it goes on. " > - Frost > > > > > > Head Bobbing > > > Jillyan (8 mo. old CHARGEr)over the past > couple of weeks has started > doing this head bobbing . . . may sound > strange, but when anything > unusual happens with her I get worried. > She'll be laying on her mat > playing and then all of a sudden her head > will bob up and down like > she is saying " yes " to me. When it first > happened I did not think > much of it, but I notice it more and more. I > can grab her head and > it will stop without her putting up any > resistance. > > We have stepped up the PT on her neck by > adding a chiropractor last > week and in one week he has done wonders with > getting her to hold > her head up and not be so hunched over. Now > we can actually see her > little neck. Could this be related to the PT > or could this be > something else? > > We have yet to add a neurologist to her long > list of docs as we have > been concentrating on other more urgent > issues -- in a couple of > weeks she heads to yet another surgery -- > this time on her eye for > her glaucoma to hopefully gain some control > over the pressure and > while she is under the nose doc will see if > she needs any additional > laser surgery on her nose. > > Huggins > Wife to Robin, Mom to Hailey (4) and Jillyan > (8 mos) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 , I'd like to second the Welcome. I know the first few years is constantly trying to figure out if something is right or wrong. Just a suggestion... I recently got hooked up with the Texas School for the Blind and Visually Impaired (TSBVI) and among a lot of wonderful information I got from them about deaf-blindness, I also get their SEE/HEAR newletter. Their website is at www.tsbvi.edu. There is an article in the Fall 2001 newletter called " Looking for Self-Stimulation in the Pursuit of Leisure " or " I'm Okay, You Have a Mannerism. " It really put things into perspective for me. They compare the " Miss Manners Guide to Appropriate Self-Stimulation " of say rocking in chairs to the " Creative Varitaions Which may Plug You into a Written Behavior Plan " of rocking your body. Check it out - It gave me a new appreciation of what my child does for entertainment. Paz, --- Graeme & Weir wrote: > , > First off, Welcome to CHARGEland... Glad to > have you. As far as the head bobbing, I > wouldn't be surprised if it's just " Jillyan's > thing " . Kennedy flaps her hands like she's > about to take flight when she's happy, excited, > wound up in general, etc... If you are > concerned it's medical though, (ex..seizure > type activity) it'd be best to have a > neurologist check it out. > Weir > Mom to Kennedy 4yr old CHARGEr, 12, > 10, and wife to Graeme > New Brunswick, Canada > Visit the " Weir homepage " at: > http://personal.nbnet.nb.ca/gweir > ICQ #1426476 > > " In three words I can sum up everything I've > learned about life: it goes on. " > - Frost > > > > > > Head Bobbing > > > Jillyan (8 mo. old CHARGEr)over the past > couple of weeks has started > doing this head bobbing . . . may sound > strange, but when anything > unusual happens with her I get worried. > She'll be laying on her mat > playing and then all of a sudden her head > will bob up and down like > she is saying " yes " to me. When it first > happened I did not think > much of it, but I notice it more and more. I > can grab her head and > it will stop without her putting up any > resistance. > > We have stepped up the PT on her neck by > adding a chiropractor last > week and in one week he has done wonders with > getting her to hold > her head up and not be so hunched over. Now > we can actually see her > little neck. Could this be related to the PT > or could this be > something else? > > We have yet to add a neurologist to her long > list of docs as we have > been concentrating on other more urgent > issues -- in a couple of > weeks she heads to yet another surgery -- > this time on her eye for > her glaucoma to hopefully gain some control > over the pressure and > while she is under the nose doc will see if > she needs any additional > laser surgery on her nose. > > Huggins > Wife to Robin, Mom to Hailey (4) and Jillyan > (8 mos) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Thanks so much for the information. Jilly is legally blind, however, she does see and reaches for her toys, her sister, etc. I had wondered if perhaps it was a way of her searching to find things. Her peripheral vision is much much better than her central vision. We do believe that she really does not see a whole lot in the lower part of her vision as when things are introduced in that area she does not even see them coming. The past two months we have a completely different child -- with the dramatic weight gain and her increased activity -- now we see this head bobbing -- you get excited and then you wonder if it is yet something else medically that she will have to deal with. I will check out the web site. Thanks again. Huggins Wife to Robin, Mom to Hailey (4 yrs) and Jillyan (8 mos. CHARGEr) Re: Head Bobbing , I'd like to second the Welcome. I know the first few years is constantly trying to figure out if something is right or wrong. Just a suggestion... I recently got hooked up with the Texas School for the Blind and Visually Impaired (TSBVI) and among a lot of wonderful information I got from them about deaf-blindness, I also get their SEE/HEAR newletter. Their website is at www.tsbvi.edu. There is an article in the Fall 2001 newletter called " Looking for Self-Stimulation in the Pursuit of Leisure " or " I'm Okay, You Have a Mannerism. " It really put things into perspective for me. They compare the " Miss Manners Guide to Appropriate Self-Stimulation " of say rocking in chairs to the " Creative Varitaions Which may Plug You into a Written Behavior Plan " of rocking your body. Check it out - It gave me a new appreciation of what my child does for entertainment. Paz, --- Graeme & Weir wrote: > , > First off, Welcome to CHARGEland... Glad to > have you. As far as the head bobbing, I > wouldn't be surprised if it's just " Jillyan's > thing " . Kennedy flaps her hands like she's > about to take flight when she's happy, excited, > wound up in general, etc... If you are > concerned it's medical though, (ex..seizure > type activity) it'd be best to have a > neurologist check it out. > Weir > Mom to Kennedy 4yr old CHARGEr, 12, > 10, and wife to Graeme > New Brunswick, Canada > Visit the " Weir homepage " at: > http://personal.nbnet.nb.ca/gweir > ICQ #1426476 > > " In three words I can sum up everything I've > learned about life: it goes on. " > - Frost > > > > > > Head Bobbing > > > Jillyan (8 mo. old CHARGEr)over the past > couple of weeks has started > doing this head bobbing . . . may sound > strange, but when anything > unusual happens with her I get worried. > She'll be laying on her mat > playing and then all of a sudden her head > will bob up and down like > she is saying " yes " to me. When it first > happened I did not think > much of it, but I notice it more and more. I > can grab her head and > it will stop without her putting up any > resistance. > > We have stepped up the PT on her neck by > adding a chiropractor last > week and in one week he has done wonders with > getting her to hold > her head up and not be so hunched over. Now > we can actually see her > little neck. Could this be related to the PT > or could this be > something else? > > We have yet to add a neurologist to her long > list of docs as we have > been concentrating on other more urgent > issues -- in a couple of > weeks she heads to yet another surgery -- > this time on her eye for > her glaucoma to hopefully gain some control > over the pressure and > while she is under the nose doc will see if > she needs any additional > laser surgery on her nose. > > Huggins > Wife to Robin, Mom to Hailey (4) and Jillyan > (8 mos) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 does this head moving thing to I can tell you how is started ......I have this silky bathrobe that he is in love with and it started by him rubbing his head on the robe and it must make him happy or he knows it makes us laugh because he looks at us and bobbs his head while laughing wether or not the robe is there and they said his vision is about 20/30 to 20/50 .....I had one of the nurses freak about and say it was a seizure so now we call it the silky robe seizure..... http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 I am not going to worry about like I said I no where it started hehe http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 I am not going to worry about like I said I no where it started hehe http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.