Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 SHIRLY & DON, BOTH OF YOU HAVE HIT THE NAIL ON THE HEAD. IT TAKE THE ENTIRE FAMILY TO HELP WITH ANY MEDICAL CONDITION THAT ROBS A MEMBER OF THE FAMILY THEIR DIGNITY AND ABILITIES. PLEASE CONTINUE TO SUPPORT OUR LOVED ONES. AS IT BECOMES MORE DIFFICULT CHECK AROUND THEIR IS HELP OUT THERE TO KEEP YOUR LOVED ONES AT HOME WITH PHYSICAL CARE AND EQUIPMENT NEEDED. I HAD SOMEONE TELL ME RECENTLY NOT TO GET THE STATE INVOLVED IT MAKES US LOOK LIKE PULPIER. OF COURSE THIS PERSON WAS VERY CAPABLE TO WORK SINCE HE HAD A DESK JOB AND ONLY HAD PROBLEMS WITH HIS LOWER EXTREMITIES. AND HIS PROFESSION PROVIDES HIM WITH A VERY SUBSTANTIAL INCOME. WELL YOU KNOW ALL OF CAN'T AFFORD THAT AND SHOULD NOT BE PUT DOWN BECAUSE THE STATE OR OTHER ORGANIZATIONS CAN AND WILL HELP. HE WILL NOT HAVE TO WORRY ABOUT LOOKING LIKE A PULPIER HE MAKES TO MUCH FOR ASSISTANCE. REMEMBER, WHERE THERE IS A WILL THERE IS A WAY - YOU JUST HAVE TO FIND IT. LOVE TO ALL BONNIE OH Re: How we got this way > Don, > To start I must say that your words where very well written. They very > much brought tears to my eyes. I too am a caregiver but I am the female with > my husband being the one with the PLS. I could so relate to all the things > you said. But you must know that all these things hold true for we woman > also. We may have been raised to be the caregivers in the home. But with the > shoe on the other foot. Think of all the things that you do or did as the man > of the house. All those things I must do. I have to say this illness has made > me to learn many things that I thought I would never have a desire to learn > but have had to out of need. I as I am sure you know that many of the things > we have to have done on a day to day basis can be paid to have done. But > sometimes with money being as it is in this day and age we cannot afford to > pay to have these things done. Mowing the lawn, shoveling the snow, fixing > the car, spraying the wasp nest, taking the trash out and bringing the cans > back, unplugging the toilet, fixing the leaking faucet, hanging the PIC on > the wall, I could go on and on but I am sure you all get the idea. I think > that it just does not matter if you are a man or a woman these things are > very hard. I guess what it comes down to is that when you get married you are > a team and then when one of team members can't do there part you must pick up > the slack. So then you look and think do I want to stay part of this team if > I have to do it all? Well, like you I have to much investment in my team to > walk away. Even though some days I would love to. I stay I do I learn and > from here we will go on. Will I guess I have went on long enough? I hope I > have not offended anyone. Thanks for taking the time. Shirley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 Thank you, for your message of concern and support. You sound like a wonderful person. Lois is a lucky gal to have you, as I'm sure you are to have her. God bless you both. Dolores How we got this way > Don > Very well written Don it makes me sad that not all caretakers are as patient > and caring as you are. I commend you and all other caretakers that are as > caring and sensitive as you. > > Dolores, > My heart really goes out for you and any spouse that is in the same > situation. PLS alone is a strain and when you add three or four others to > the mix it makes it so much harder. Lois also has been diagnosed with > fibromyalgia in the past year. Although it isn't severe as yours is it is > still there. That is one reason half of our garden is now in flowers. First > we gave up Lima Beans, then Peas, now we are down to sweet corn, tomatoes > just enough beans that we can eat as they ripen. She does Volunteer work two > days a week which she really enjoys. She has been doing this work for 25 > years. It is a arm of our church called Ten Thousand Villages. We always > thought when I retired we would do some kind of work with them but that was > not to be. Some one mentioned to take time away by your self. I like to > think that this is our time away from each other to just be ourselves. I am > very fortunate to have a spouse that is all ways there to help me and some > times when I think I don't need help. This what is meant when we said the > words " for better and for worse, in health and sickness, in rich and poor. I > am just sorry that this doesn't apply to all of us. My neuro has told more > than once that I have a good attitude and people have asked how I cope with > it. I attribute it to three things. A loving spouse, a understanding family, > and a caring and praying church family. > > Shirley, > Well said no matter if it's man or woman when you go outside of what you > have been doing for so many years (or know how to do) it's hard. We PLS'ERS > need to realize that and not be too demanding of our care takers. We need to > give them some breathing room. That is one reason Lois is in northern MI > this week and I am home alone in Ohio. She had a chance to go with my two > sisters and a sister in law for the week. I thought it would be good for her > to get away and hopefully she won't worry about me too much. > > M. Lehman > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 Thank you, for your message of concern and support. You sound like a wonderful person. Lois is a lucky gal to have you, as I'm sure you are to have her. God bless you both. Dolores How we got this way > Don > Very well written Don it makes me sad that not all caretakers are as patient > and caring as you are. I commend you and all other caretakers that are as > caring and sensitive as you. > > Dolores, > My heart really goes out for you and any spouse that is in the same > situation. PLS alone is a strain and when you add three or four others to > the mix it makes it so much harder. Lois also has been diagnosed with > fibromyalgia in the past year. Although it isn't severe as yours is it is > still there. That is one reason half of our garden is now in flowers. First > we gave up Lima Beans, then Peas, now we are down to sweet corn, tomatoes > just enough beans that we can eat as they ripen. She does Volunteer work two > days a week which she really enjoys. She has been doing this work for 25 > years. It is a arm of our church called Ten Thousand Villages. We always > thought when I retired we would do some kind of work with them but that was > not to be. Some one mentioned to take time away by your self. I like to > think that this is our time away from each other to just be ourselves. I am > very fortunate to have a spouse that is all ways there to help me and some > times when I think I don't need help. This what is meant when we said the > words " for better and for worse, in health and sickness, in rich and poor. I > am just sorry that this doesn't apply to all of us. My neuro has told more > than once that I have a good attitude and people have asked how I cope with > it. I attribute it to three things. A loving spouse, a understanding family, > and a caring and praying church family. > > Shirley, > Well said no matter if it's man or woman when you go outside of what you > have been doing for so many years (or know how to do) it's hard. We PLS'ERS > need to realize that and not be too demanding of our care takers. We need to > give them some breathing room. That is one reason Lois is in northern MI > this week and I am home alone in Ohio. She had a chance to go with my two > sisters and a sister in law for the week. I thought it would be good for her > to get away and hopefully she won't worry about me too much. > > M. Lehman > > > > > > > Quote Link to comment Share on other sites More sharing options...
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