Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Donna, Not yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Donna, Not yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Thanks to you, Mark, for bringing us all together in the first place. Had you not set up PLS-Friends, we wouldn't have all our " special " friends. Hope to see you in San Diego. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Thanks to you, Mark, for bringing us all together in the first place. Had you not set up PLS-Friends, we wouldn't have all our " special " friends. Hope to see you in San Diego. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 and : Please know how much I appreciate your time and dedication in helping us fight this battle. Thanks for the hard work. - Is there a web page where I can see the brochure? Sincerely, Donna > , > > I am in complete agreement with Ronnie--the PLS brochure should only > be mailed out to the mailing list containing all U.S. neurologists, > but not to the lists containing all general practitioners or all > pediatricians. > > NORD will print plenty of extra brochures for other interested > physicians who are not neurologists. Most likely, this will be a > small group comprised of those with PLS patients. > > Sending the brochure to over 50,000 (estimate) general practitioners > just to reach this small group with PLS patients seems like a huge > waste of money. And as Ronnie pointed out, GP's only need enough info > to refer us to a qualified neurologist. It's the neurologists who > diagnose and treat--not the GP's and pediatricians. > > Since we're on the subject of the PLS brochure, some thanks are in > order. > > Gentner has been riding herd on this project from the very > beginning. That it is going to happen at all is because of her > devotion to the cause, steadfast attention to detail, and endurance > for seeing the project through for well over a year. Thanks for your > hard work, . > > Dixon has been working behind the scenes designing the brochure > and providing the artwork. Those of you who have gone to PLS > Connections in the past have seen her beautiful work. I have no idea > how many hours it's taken you to do all this work, , but it is > obviously a lot. Thanks for your talent and commitment to the cause. > > Mark Weber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 and : Please know how much I appreciate your time and dedication in helping us fight this battle. Thanks for the hard work. - Is there a web page where I can see the brochure? Sincerely, Donna > , > > I am in complete agreement with Ronnie--the PLS brochure should only > be mailed out to the mailing list containing all U.S. neurologists, > but not to the lists containing all general practitioners or all > pediatricians. > > NORD will print plenty of extra brochures for other interested > physicians who are not neurologists. Most likely, this will be a > small group comprised of those with PLS patients. > > Sending the brochure to over 50,000 (estimate) general practitioners > just to reach this small group with PLS patients seems like a huge > waste of money. And as Ronnie pointed out, GP's only need enough info > to refer us to a qualified neurologist. It's the neurologists who > diagnose and treat--not the GP's and pediatricians. > > Since we're on the subject of the PLS brochure, some thanks are in > order. > > Gentner has been riding herd on this project from the very > beginning. That it is going to happen at all is because of her > devotion to the cause, steadfast attention to detail, and endurance > for seeing the project through for well over a year. Thanks for your > hard work, . > > Dixon has been working behind the scenes designing the brochure > and providing the artwork. Those of you who have gone to PLS > Connections in the past have seen her beautiful work. I have no idea > how many hours it's taken you to do all this work, , but it is > obviously a lot. Thanks for your talent and commitment to the cause. > > Mark Weber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 , Thanks for your kind words. I'm going to try real hard to be in San Diego for the PLS California Connection. My family and I are moving to western Connecticut sometime during the first half of October. (Don't know where, don't know when.) The move will make a trip to CA difficult--but not impossible. Fortunately, my family knows how much it means to me to attend. I'll try my best. Mark > Thanks to you, Mark, for bringing us all together in the first place. Had > you not set up PLS-Friends, we wouldn't have all our " special " friends. > > Hope to see you in San Diego. > > > > > Quote Link to comment Share on other sites More sharing options...
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