New to group...

[Guest guest]

Welcome, Rebeca. As you will soon find out, you are not alone...we are all

in the same boat!

" Rebeca "

<gcorchado@...>

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@yaho Subject:

[ ] New to Group...

ogroups.com

05/19/2006 07:22 AM

Please respond to

Hi all... my name is Rebeca,SAHM, (Army veteran 1991-2003). I live in

North Carolina, I am the mother of 3 boys 12 , 5 Jake , 3 Ben

(dd). This past April 06 we just went thru the process of the full

evaluation which determined Ben is delayed (speech and

oral/communication). At first he was receiving speech therapy at a

private practice 1 a week for 30 minutes, and then they advised me

about this preschool program that is ran thru our county school

system. So we tried that route as well, assuming Ben needed more

therapy then the 1 a week for 30 minutes. We did the full eval, the

home study , and then the final decision on what would be the best

programs for Ben to reach his goals. Thru all this Ben has improved

remarkably...and we are so thankful, that we see and hear such an

improvement. At this time he receives sppech therapy 2x week for 30

minutes and also he has a Special Education teacher who comes 2x week

for 45 minutes at our home. We had the opportunity to place him in a

part day preschool 4x week but because of the lateness in the school

year (school is almost out)he wouldnt get much sessions before summer

vacation and we assumed he probably wasnt ready for the classroom

environment. At first the whole thought of Ben being delayed really

made me feel it was my fault he is not learning like my other boys. I

felt like the mother who failed her child. It was really hard for me

to the point I was at tears with my case manager. Just Yesterday I

met another little girl who has the same delay that Ben has and to my

relief I thought Ben was the only child with the delay. Boy do have

alot to learn. Thanks for this site I hope to get a better

understanding of everything and gain wisdom for our family.

Rebeca and my boys

[Guest guest]

Hi Rebeca,

Welcome. I struggle with feeling like I failed my son too (25

mos). It's the worst feeling I've ever had because I love him so

much and want to provide him with the very best life I can. I

always imagined I would give my child every advantage, that I would

have perfect healthy habits while pregnant; I would breastfeed and

make him homemade baby food; there would be no TV and lots of books

and I would nurture him and all my research and hard work would mean

that he would be healthy in every way. Well, I did these things and

my child has a speech delay and sensory integration issues and maybe

even PDD. It has been a heartbreaking and humbling experience. But

my job is really still the same: I have to provide my child with the

best life I can and help him to fulfill his potential, whatever that

may be.

>

> Hi all... my name is Rebeca,SAHM, (Army veteran 1991-2003). I live

in

> North Carolina, I am the mother of 3 boys 12 , 5 Jake , 3 Ben

> (dd). This past April 06 we just went thru the process of the full

> evaluation which determined Ben is delayed (speech and

> oral/communication). At first he was receiving speech therapy at a

> private practice 1 a week for 30 minutes, and then they advised me

> about this preschool program that is ran thru our county school

> system. So we tried that route as well, assuming Ben needed more

> therapy then the 1 a week for 30 minutes. We did the full eval,

the

> home study , and then the final decision on what would be the best

> programs for Ben to reach his goals. Thru all this Ben has improved

> remarkably...and we are so thankful, that we see and hear such an

> improvement. At this time he receives sppech therapy 2x week for 30

> minutes and also he has a Special Education teacher who comes 2x

week

> for 45 minutes at our home. We had the opportunity to place him

in a

> part day preschool 4x week but because of the lateness in the

school

> year (school is almost out)he wouldnt get much sessions before

summer

> vacation and we assumed he probably wasnt ready for the classroom

> environment. At first the whole thought of Ben being delayed really

> made me feel it was my fault he is not learning like my other

boys. I

> felt like the mother who failed her child. It was really hard for

me

> to the point I was at tears with my case manager. Just Yesterday I

> met another little girl who has the same delay that Ben has and to

my

> relief I thought Ben was the only child with the delay. Boy do

have

> alot to learn. Thanks for this site I hope to get a better

> understanding of everything and gain wisdom for our family.

>

> Rebeca and my boys

>

[Guest guest]

Kristi -

Me too!!! I did all those things, thinking I am going to do things so

different from my mother.....breast feed, homemade baby food (even the brown

rice cereal), super nutritious homemade toddler snacks, no TV etc etc. It has

been super hard to let go of that ideal. What is my son doing right now?, eating

Fruit Loops and watching Nemo....<sigh> I really stuck to my guns on the food

thing until he got down to the 10 percentile on weight, it was like a hunger

strike! Now I am like, frozen pizza? sure.

Things have not turned out as I hoped either but I can say my son does so much

better when I just chill and let him eat the easy-mac. And, being the sneaky mom

that I am I hide the nutrition (tofu in lasagna, organic snacks that he thinks

are junk, pureed meat).

I almost think you have to go through a grieving process, letting go of the

idea of what should have been in order to accept and enjoy what you have.

I have also come to the realization that as parents we are not omnipotent, that

sometimes we are not in charge and have no control of how life turns out. We

just try hard and hope for the best. Because, try as I may my son is strong and

sometimes I am weak ;o)

Martha

momma to Will 2.9, apraxia? pdd-nos? sid? & Isabelle 3mo

myjunkytrash <myjunkytrash@...> wrote:

Hi Rebeca,

Welcome. I struggle with feeling like I failed my son too (25

mos). It's the worst feeling I've ever had because I love him so

much and want to provide him with the very best life I can. I

always imagined I would give my child every advantage, that I would

have perfect healthy habits while pregnant; I would breastfeed and

make him homemade baby food; there would be no TV and lots of books

and I would nurture him and all my research and hard work would mean

that he would be healthy in every way. Well, I did these things and

my child has a speech delay and sensory integration issues and maybe

even PDD. It has been a heartbreaking and humbling experience. But

my job is really still the same: I have to provide my child with the

best life I can and help him to fulfill his potential, whatever that

may be.

[Guest guest]

Yep, we did the brown rice cereal too! And actually, even though my

son is picky and STILL eats a good bit of baby food (at 25 mos), he

does eat some good stuff too. He eats brown rice, whole wheat

pasta, and lately he's doing great with vegetables (though it takes

him forever to chew). For a while he would eat almost anything as

long as it was chopped up a LOT and covered in spaghetti sauce, but

now I've gotten him eating more textures and more things seperately

(he's the opposite of most kids who don't want their food to touch;

he has always wanted stuff mixed together). I still can't get him

to eat fruit though (just baby food fruit sauce) or bites of chicken

or non-ground meat. I think it's just too hard for him to chew.

And I would be thrilled if I could get him to eat pizza, chicken

nuggets, pancakes and mac n cheese. He won't eat the foods most

kids love! His OT wants him to eat chewy candy and he won't touch

it. He won't have anything to do with gummibear vitamins. I guess

I was too successful with the healthy food thing. Can't win!!

>

> Kristi -

>

> Me too!!! I did all those things, thinking I am going to do

things so different from my mother.....breast feed, homemade baby

food (even the brown rice cereal), super nutritious homemade toddler

snacks, no TV etc etc. It has been super hard to let go of that

ideal. What is my son doing right now?, eating Fruit Loops and

watching Nemo....<sigh> I really stuck to my guns on the food thing

until he got down to the 10 percentile on weight, it was like a

hunger strike! Now I am like, frozen pizza? sure.

> Things have not turned out as I hoped either but I can say my

son does so much better when I just chill and let him eat the easy-

mac.

[Guest guest]

My son who is almost 2 1/2 will eat pizza if it is dominos deep

dish. The crust is really soft, not chewy, the texture reminds me of

a biscuit. What's funny is that he turns the slice upside down, and

eats it that way. Trey didn't eat chicken nuggets, pancakes, or mac

and cheese for a long time. But he will now. The pancakes I make

really small, like three or four inch circles and he will eat them

plain by hand, sometimes I will toss some mini choco chips into the

batter.

M.

> >

> > Kristi -

> >

> > Me too!!! I did all those things, thinking I am going to do

> things so different from my mother.....breast feed, homemade baby

> food (even the brown rice cereal), super nutritious homemade

toddler

> snacks, no TV etc etc. It has been super hard to let go of that

> ideal. What is my son doing right now?, eating Fruit Loops and

> watching Nemo....<sigh> I really stuck to my guns on the food thing

> until he got down to the 10 percentile on weight, it was like a

> hunger strike! Now I am like, frozen pizza? sure.

> > Things have not turned out as I hoped either but I can say my

> son does so much better when I just chill and let him eat the easy-

> mac.

>

[Guest guest]

Hi! I am new to this group-I have not been officially dx w/RA but I

have a strong suspicion I may have it. My hands are often, like right

now, red and tight. The first and second finger knuckles on both hands,

where the fingers attach to the palm, are often large and appear

swollen, but no pain. I also get cramps deep in my palms sometimes,

when I'm writing or using my whole hand for something. I also have

painful joints in my big and little toes on both feet, and I often get

a case of the " hot foot " !

I'm not really sure if this sounds like RA, but I'm curious of other's

opinions who have it. I already have Myasthenia Gravis that I blieve

has progressed from Ocular to generalized due to upper arm and leg

weakness I've been having for abt a year now, so I'm going back to a

Neurologist Friday to get evaluated. Maybe I'll ask him what he thinks!

I look foreward to talking to all of you soon!

Hines

[Guest guest]

We knew about our son's plagio at 2 months. We banded at 7.5 months

and honestly for us this was a great time because our son hit some

great growth spurts and when he graduated he was very mobile. They

say regression is more common in babies with unresolved tort or that

graduate before they are sitting up, mobile, etc. so for those

reasons too 7.5 months was good for us! Hopefully, your son will

have a good growth spurt during this time too. As for movement, the

band will NOT hinder his ability to move more or try to crawl. The

band is SO light. Some babies learn to crawl, walk, etc. in the

band. HOnestly, it serves as good head protection when they are

learning these new milestones. You decorate the band...we got

different themed stickers and changed them about every week...that

was my favorite part of the banding experience. Because of your

son's age, this is what we did and I would encourage you to do...pay

for the band upfront (if you can) and then appeal your insurance

later. We won 80% (UHC) and that is what we expected from our

specific policy. CT has an insurance person that can help and if

you do have to appeal, ask for an appeals packed from CT. Have you

been for an evaluation? If not, get that done and if your ped. will

write you a script before you go then you may be able to set-up the

casting (or scanning depending on location) for the helmet.

Good luck.

>

> Hi Everyone:

>

> Since my son was two months, I noticed a problem with the shape of

his

> head and the doctors ignored me. Now five months later, he needs a

DOC

> band. I wish it could have done sooner because now I worry that

when

> he moving more and trying to crawl, he has to wear a helmet.

>

> Can anyone tell me how wearing the helmet affected their child's

> movement? Do you have any advice of information for me since I am

not

> sure what to expect? Lastly, I see on the Cranial's website about

> decorating the helmets. Do they do that or just tell you what

options

> you have available?

>

> THANK YOU for your time as well as have such a group for parents.

>

[Guest guest]

WELCOME!

The band did not affect my dd's movement - in fact she was not rolling over until the day after she got her band (6.5 mo. old) I was worried because she was delated - But with the band she started walking at 8.5 mo old!!!!! She never crawled.

Ask the ortho about decorating. We used Hanger and it came pink and we put stickers on it - but I know that DOC only comes in white. I think some paint them, others do stickers.

Jen and Luli - 26 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

New to Group...

Hi Everyone:

Since my son was two months, I noticed a problem with the shape of his

head and the doctors ignored me. Now five months later, he needs a DOC

band. I wish it could have done sooner because now I worry that when

he moving more and trying to crawl, he has to wear a helmet.

Can anyone tell me how wearing the helmet affected their child's

movement? Do you have any advice of information for me since I am not

sure what to expect? Lastly, I see on the Cranial's website about

decorating the helmets. Do they do that or just tell you what options

you have available?

THANK YOU for your time as well as have such a group for parents.

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