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Hi Tonia,

If you could send me 's address, I'd like to send her a card or

something.

I wish I knew what to say about all of this. I hate this freaking disease!

Thanks,

JoAnne

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Hi Tonia,

If you could send me 's address, I'd like to send her a card or

something.

I wish I knew what to say about all of this. I hate this freaking disease!

Thanks,

JoAnne

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  • 4 weeks later...

> hello julie. if it is a poduct defect why doesn't the company do

> something about it? why is it taking comp so long in their

decision.

> enjoy florida. cold here in md. hugs cathy

Since this will be the 4th surgery for my scs, everyone is blaming

everyone else for the reason it is broken.

Work comp blames product defect, the doctor " doctors up his notes " to

say product defect, the doctor doesnt put all my office notes in my

file, I think the manufacturer blames the doctor, so they all sit and

do nothing, while I sit with a broken wire in my neck and the

receiver sticking out from my shoulder blade,this has been causing so

much more pain, I'm at the end of my rope. I have retained an attny

so a complaint has been filed reqeusting this surgery.

julie from fl.

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  • 3 weeks later...

> . Still sick with a cold. spring is coming. I

> think.

Hi ,

I can't believe how many people have had colds or bronchitis this

year. My son, husband and daughter have been coughing for a month at

least.

I hope your cold gets better soon, and yes spring is around the

corner, I can smell it! LOL

Hang in there and come to Boston I will bring a big trunk and put you

in it and bring you to Fl. with me. LOL

Take care,

Hugs,

Deb

Debgena@...

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> . Still sick with a cold. spring is coming. I

> think.

Hi ,

I can't believe how many people have had colds or bronchitis this

year. My son, husband and daughter have been coughing for a month at

least.

I hope your cold gets better soon, and yes spring is around the

corner, I can smell it! LOL

Hang in there and come to Boston I will bring a big trunk and put you

in it and bring you to Fl. with me. LOL

Take care,

Hugs,

Deb

Debgena@...

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  • 4 months later...
Guest guest

Hi , Yes some things have changed like medication and treatments

since I started with RSD. I had to try many medications before I found

one that worked for me. And I had so many different blocks done until I

found what worked best. When I get a flareup now I usually get three

epidural blocks. That usually calms it down. My stimulators reduce my

pain to about 50% and for the rest of the pain I take Morphine l5 mg.

two times a day. I also take Effexor, three capsules, once a day. I

just had all of medication changed when I was in the hospital the last

time. Before that what I was taking I had been taking for about seven

years but my body decided to get used to that and it did not work

anymore.

Whatever you do don't stop trying medications. I tried many types

before I found the one that worked. I will tell you this, it seems alot

easier for my dr to find something that works now that he knows me very

well. I have been going to him for l2 years now. So all I can say is

keep trying, eventually you will find something that works. For a long

time I thought that nothing was going to help my pain, but I was wrong.

Gentle hugs,

babs

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