Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 In a message dated 7/1/2002 4:21:20 PM Pacific Daylight Time, Kathipro@... writes: > apologize for > the inconvenience of multiple copies. > Kathi - I hardly think this is something that you need to apologize for...how much of an inconvenience can it be to want to keep everyone informed. Now that PLS-FRIENDS is on the list, I won't need to forward. Thanks for ALL you do, I, for one, appreciate it. Gentner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 In a message dated 7/1/2002 4:21:20 PM Pacific Daylight Time, Kathipro@... writes: > apologize for > the inconvenience of multiple copies. > Kathi - I hardly think this is something that you need to apologize for...how much of an inconvenience can it be to want to keep everyone informed. Now that PLS-FRIENDS is on the list, I won't need to forward. Thanks for ALL you do, I, for one, appreciate it. Gentner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 > I have been receiving 4 copies of E-News letters, I think from PLS- Friends, > PLSers-News, HSP, and SPF. Are these going to be one and the same. Hello Dolores and others wondering, There is one monthly communique, and it's the SPF E-News. The HSP List, PLS Friends, and PLS News are all subscribers, so it automatically goes out to all three groups. We recognize that some people subscribe to all three daily email groups, and apologize for the inconvenience of multiple copies. Here is where to unsubscribe so you don't have to receive an additional one: http://www.sp-foundation.org/unsub.htm There is no monthly HSP announcement. There used to be one, and it's purpose was to alert people of changes in the HSPinfo website. This no longer exists. The SPF E-News is for the Spastic Paraplegia Foundation, which is for the HSP and PLS communities. There are many people who are not on any of the daily email groups, and this is their primary connection to the SPF community. We are open to, and hoping for, volunteers to help provide input for the monthly E-News in the areas of: Research, treatment, drugs, and daily living tips. If anyone is particularly keen on one of these areas and wants to help, please let us know. We could use a helping hand! The SPF E-News also provides information regarding SPF events. Thanks and regards, Kathi www.sp-foundation.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 > I have been receiving 4 copies of E-News letters, I think from PLS- Friends, > PLSers-News, HSP, and SPF. Are these going to be one and the same. Hello Dolores and others wondering, There is one monthly communique, and it's the SPF E-News. The HSP List, PLS Friends, and PLS News are all subscribers, so it automatically goes out to all three groups. We recognize that some people subscribe to all three daily email groups, and apologize for the inconvenience of multiple copies. Here is where to unsubscribe so you don't have to receive an additional one: http://www.sp-foundation.org/unsub.htm There is no monthly HSP announcement. There used to be one, and it's purpose was to alert people of changes in the HSPinfo website. This no longer exists. The SPF E-News is for the Spastic Paraplegia Foundation, which is for the HSP and PLS communities. There are many people who are not on any of the daily email groups, and this is their primary connection to the SPF community. We are open to, and hoping for, volunteers to help provide input for the monthly E-News in the areas of: Research, treatment, drugs, and daily living tips. If anyone is particularly keen on one of these areas and wants to help, please let us know. We could use a helping hand! The SPF E-News also provides information regarding SPF events. Thanks and regards, Kathi www.sp-foundation.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 Dolores, I am also getting a lot of duplications. I spend more time deleting than reading. Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth ************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 Dolores, I am also getting a lot of duplications. I spend more time deleting than reading. Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth ************************************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 Hi Rita, Is it cool in NH? It's awful in CT--in the 90s and humid. Dolores Re: duplicate newsletters > Dolores, I am also getting a lot of duplications. I spend more time > deleting than reading. > > Rita > > Luv & Hugs! > > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth > ************************************* > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 Hi Rita, Is it cool in NH? It's awful in CT--in the 90s and humid. Dolores Re: duplicate newsletters > Dolores, I am also getting a lot of duplications. I spend more time > deleting than reading. > > Rita > > Luv & Hugs! > > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth > ************************************* > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 Hi Dolores, no it's not cool in NH, suppose to hit 97 either tomorrow or Wednesday. Thank God for A/C! I just sit watch " old movies " , do my x-stitching and let wait on me. What a life!! Hope your feeling better. Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth ************************************* Quote Link to comment Share on other sites More sharing options...
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