Re: A question for all PLSers

June 25, 2002

yes my husband had his pilots liscense and also a degree in aerodynamic

engineneering.

Shirley(michigan)

June 25, 2002

yes my husband had his pilots liscense and also a degree in aerodynamic

engineneering.

Shirley(michigan)

June 25, 2002

yes my husband had his pilots liscense and also a degree in aerodynamic

engineneering.

Shirley(michigan)

June 25, 2002

Neither me nor my parents have worked around airplanes

A question for all PLSers

Have any of you ever worke around airplanes prior to getting PLS? I read

about an airport that was shut down because so many of the workers developed

motor neuron disease. I can't remember all of the details from the story.

Have any of you heard of this? Just curious. My father worked for Pan

American Airlines for many years as a metal mechanic fixing the body of

planes.

Liz

June 25, 2002

Neither me nor my parents have worked around airplanes

A question for all PLSers

Have any of you ever worke around airplanes prior to getting PLS? I read

about an airport that was shut down because so many of the workers developed

motor neuron disease. I can't remember all of the details from the story.

Have any of you heard of this? Just curious. My father worked for Pan

American Airlines for many years as a metal mechanic fixing the body of

planes.

Liz

June 25, 2002

Neither me nor my parents have worked around airplanes

A question for all PLSers

Have any of you ever worke around airplanes prior to getting PLS? I read

about an airport that was shut down because so many of the workers developed

motor neuron disease. I can't remember all of the details from the story.

Have any of you heard of this? Just curious. My father worked for Pan

American Airlines for many years as a metal mechanic fixing the body of

planes.

Liz

June 26, 2002

i was dx with als on may 29. I worked at jfk from 1976

to 1980 for pan am in their communications . i would

be very interested if there is a tie in . also i found

a als group on msn called als and the airforce . They

are looking for people who were stationed at raf

alconbury in england . I am still waiting to hear from

them Again i found this interesting .

--- lldesigninfo@... wrote:

> Have any of you ever worke around airplanes prior to

> getting PLS? I read

> about an airport that was shut down because so many

> of the workers developed

> motor neuron disease. I can't remember all of the

> details from the story.

> Have any of you heard of this? Just curious. My

> father worked for Pan

> American Airlines for many years as a metal mechanic

> fixing the body of

> planes.

> Liz

>

__________________________________________________

June 26, 2002

Dear Commander,

I am sorry about your diagnosis. Were you told you had PLS before this? I

am also interested to see how many respond to the airplane theory. I believe

there is a common thread to something environmental.

Liz

June 26, 2002

Liz,

No not around airplanes but my father had his own company that had heavy

equipment and I was around all of the fuel, grease, etc.

Jane Anne King

A question for all PLSers

Have any of you ever worke around airplanes prior to getting PLS? I read

about an airport that was shut down because so many of the workers developed

motor neuron disease. I can't remember all of the details from the story.

Have any of you heard of this? Just curious. My father worked for Pan

American Airlines for many years as a metal mechanic fixing the body of

planes.

Liz

June 26, 2002

Liz & Commander, I too believe some of our symptoms are due to environmential

surrounding. Look at J. Fox four of his movie crew members have

Parkinson when he was in Canada. I worked in a offices that had asbestos

ceiling panels early in 1987 and then 1991 I found out the floor tile was

that old asbestos. I ask my neurologist about it but he couldn't say it was

or wasn't. ...........Flora/Florida

June 26, 2002

Liz & Commander, I too believe some of our symptoms are due to environmential

surrounding. Look at J. Fox four of his movie crew members have

Parkinson when he was in Canada. I worked in a offices that had asbestos

ceiling panels early in 1987 and then 1991 I found out the floor tile was

that old asbestos. I ask my neurologist about it but he couldn't say it was

or wasn't. ...........Flora/Florida

June 26, 2002

I was told it was pls with possible borderline als .

i beleive it is called upper motor nuteron dominant

als. My progness is very good i am told . I guess now

i have a millon questions of how i got it . I also

found out a equity trader on my trading floor has had

als since dec 2000 and now is in a wheelchair. My

question is what chances of 2 people in the same

office building in nyc having this disease . if i was

feeling lucky maybe i should play lotto .

pls let me know if u have any luck in this theory.

regards to your father

tom

--- lldesigninfo@... wrote:

> Dear Commander,

> I am sorry about your diagnosis. Were you told you

> had PLS before this? I

> am also interested to see how many respond to the

> airplane theory. I believe

> there is a common thread to something environmental.

> Liz

>

__________________________________________________

June 26, 2002

I got my PLS dx (replacing MS) primarily due to the fact that my MRI's (8)

show no abnormalities. I do have pretty severe imbalance, leg weakness,

swallowing and talking problems. But I have never been around airplanes,

airports, auto repair garages nor any polluted environments (knowingly).

Vaughn Hickman

June 26, 2002

I got my PLS dx (replacing MS) primarily due to the fact that my MRI's (8)

show no abnormalities. I do have pretty severe imbalance, leg weakness,

swallowing and talking problems. But I have never been around airplanes,

airports, auto repair garages nor any polluted environments (knowingly).

Vaughn Hickman

June 27, 2002

Liz:

My Dad was in the forces but, to my knowledge, didn't work on or around

airplanes, I'll have to check with him on that though to make sure. He did

however do alot of mechanical work on cars, etc. while I was growing up, in

fact this was almost a constant around our home between him and my

brothers...don't know if there could be any connection there.

Take care.

Jen

>

>Reply-To: PLS-FRIENDS

>To: <PLS-FRIENDS >

>Subject: Re: A question for all PLSers

>Date: Wed, 26 Jun 2002 16:35:25 -0400

>

>Liz,

>

> No not around airplanes but my father had his own company that had

>heavy equipment and I was around all of the fuel, grease, etc.

>

> Jane Anne King

> A question for all PLSers

>

> Have any of you ever worke around airplanes prior to getting PLS? I

>read

> about an airport that was shut down because so many of the workers

>developed

> motor neuron disease. I can't remember all of the details from the

>story.

> Have any of you heard of this? Just curious. My father worked for Pan

> American Airlines for many years as a metal mechanic fixing the body of

> planes.

> Liz

>

June 27, 2002

Liz:

My Dad was in the forces but, to my knowledge, didn't work on or around

airplanes, I'll have to check with him on that though to make sure. He did

however do alot of mechanical work on cars, etc. while I was growing up, in

fact this was almost a constant around our home between him and my

brothers...don't know if there could be any connection there.

Take care.

Jen

>

>Reply-To: PLS-FRIENDS

>To: <PLS-FRIENDS >

>Subject: Re: A question for all PLSers

>Date: Wed, 26 Jun 2002 16:35:25 -0400

>

>Liz,

>

> No not around airplanes but my father had his own company that had

>heavy equipment and I was around all of the fuel, grease, etc.

>

> Jane Anne King

> A question for all PLSers

>

> Have any of you ever worke around airplanes prior to getting PLS? I

>read

> about an airport that was shut down because so many of the workers

>developed

> motor neuron disease. I can't remember all of the details from the

>story.

> Have any of you heard of this? Just curious. My father worked for Pan

> American Airlines for many years as a metal mechanic fixing the body of

> planes.

> Liz

>

June 27, 2002

Jen,

While working at Pan Am as a metal mechanic on planes, my father also did

body work on cars at home as a side job. This was also a constant in my

house my whole childhood.

Liz

June 27, 2002

Jen,

While working at Pan Am as a metal mechanic on planes, my father also did

body work on cars at home as a side job. This was also a constant in my

house my whole childhood.

Liz

June 27, 2002

Liz,

I never worked around airplanes.

Although it is conceivable that environmental factors cause (or

contribute to) PLS and ALS, no such causes have been found to date.

And people have tried--at least for ALS.

Currently, scientists are examining why US servicemen and women who

served in Operation Desert Storm have a significantly higher incidence

than normal of ALS. Also, why service men and women from other

countries who served in the same military action, and even in the same

geographic areas, do not have a high incidence of ALS. (Note: those

foreigners weren't given the shots that our service mena and women

were given prior to going to the Middle East.)

Other studies have been done in the past--why several members of 1

national football team, who all played together, developed ALS; why

geographic pockets of ALS cases exist. (I vaguely remember an article

about a higher than normal incidence of ALS among Vermont diary farmers.)

The options for these strange occurances are: 1) statistical flukes,

2) either chemical or biological causes, or 3) a genetic condition

that predisposes one to ALS (or PLS), but requires exposure to either

a chemical or biological agent before the disorder begins A

combination of genetic and environmental factors).

Attempts to track down causes have so far come up dry. (Yes--I'm

fully aware that sometimes studies are done with the actual intent of

not finding anything. I've seen it done. I worked as an

organizer/lobbyist for an environmental group working on hazardous

waste issues in the early 1980's and saw it done in Woburn, MA, Love

Canal (Niagara Falls, NY), and Canton, MA)

But some of the people working on environmental causes of motor neuron

diseases actually want to find an environmental cause.

The task is daunting. Try to figure out all of the exposures that

people in an affected group have in common. (There will probably be

hundreds of them.) Then try to determine which one(s) are the culprits.

Mark

> Have any of you ever worke around airplanes prior to getting PLS? I

read

> about an airport that was shut down because so many of the workers

developed

> motor neuron disease. I can't remember all of the details from the

story.

> Have any of you heard of this? Just curious. My father worked for Pan

> American Airlines for many years as a metal mechanic fixing the body of

> planes.

> Liz

June 27, 2002

Liz,

I never worked around airplanes.

Although it is conceivable that environmental factors cause (or

contribute to) PLS and ALS, no such causes have been found to date.

And people have tried--at least for ALS.

Currently, scientists are examining why US servicemen and women who

served in Operation Desert Storm have a significantly higher incidence

than normal of ALS. Also, why service men and women from other

countries who served in the same military action, and even in the same

geographic areas, do not have a high incidence of ALS. (Note: those

foreigners weren't given the shots that our service mena and women

were given prior to going to the Middle East.)

Other studies have been done in the past--why several members of 1

national football team, who all played together, developed ALS; why

geographic pockets of ALS cases exist. (I vaguely remember an article

about a higher than normal incidence of ALS among Vermont diary farmers.)

The options for these strange occurances are: 1) statistical flukes,

2) either chemical or biological causes, or 3) a genetic condition

that predisposes one to ALS (or PLS), but requires exposure to either

a chemical or biological agent before the disorder begins A

combination of genetic and environmental factors).

Attempts to track down causes have so far come up dry. (Yes--I'm

fully aware that sometimes studies are done with the actual intent of

not finding anything. I've seen it done. I worked as an

organizer/lobbyist for an environmental group working on hazardous

waste issues in the early 1980's and saw it done in Woburn, MA, Love

Canal (Niagara Falls, NY), and Canton, MA)

But some of the people working on environmental causes of motor neuron

diseases actually want to find an environmental cause.

The task is daunting. Try to figure out all of the exposures that

people in an affected group have in common. (There will probably be

hundreds of them.) Then try to determine which one(s) are the culprits.

Mark

> Have any of you ever worke around airplanes prior to getting PLS? I

read

> about an airport that was shut down because so many of the workers

developed

> motor neuron disease. I can't remember all of the details from the

story.

> Have any of you heard of this? Just curious. My father worked for Pan

> American Airlines for many years as a metal mechanic fixing the body of

> planes.

> Liz

June 27, 2002

Yes, I've read about the increased incidence of ALS in Gulf War Vets, too.

Recently there was an article (I think in the NY Times) reporting an

increased ALS incidence in athletes in general--baseball players, for

instance. They suggest a link between physically fit, slender folks and

ALS.

Dolores

Re: A question for all PLSers

> Liz,

>

> I never worked around airplanes.

>

> Although it is conceivable that environmental factors cause (or

> contribute to) PLS and ALS, no such causes have been found to date.

> And people have tried--at least for ALS.

>

> Currently, scientists are examining why US servicemen and women who

> served in Operation Desert Storm have a significantly higher incidence

> than normal of ALS. Also, why service men and women from other

> countries who served in the same military action, and even in the same

> geographic areas, do not have a high incidence of ALS. (Note: those

> foreigners weren't given the shots that our service mena and women

> were given prior to going to the Middle East.)

>

> Other studies have been done in the past--why several members of 1

> national football team, who all played together, developed ALS; why

> geographic pockets of ALS cases exist. (I vaguely remember an article

> about a higher than normal incidence of ALS among Vermont diary farmers.)

>

> The options for these strange occurances are: 1) statistical flukes,

> 2) either chemical or biological causes, or 3) a genetic condition

> that predisposes one to ALS (or PLS), but requires exposure to either

> a chemical or biological agent before the disorder begins A

> combination of genetic and environmental factors).

>

> Attempts to track down causes have so far come up dry. (Yes--I'm

> fully aware that sometimes studies are done with the actual intent of

> not finding anything. I've seen it done. I worked as an

> organizer/lobbyist for an environmental group working on hazardous

> waste issues in the early 1980's and saw it done in Woburn, MA, Love

> Canal (Niagara Falls, NY), and Canton, MA)

>

> But some of the people working on environmental causes of motor neuron

> diseases actually want to find an environmental cause.

>

> The task is daunting. Try to figure out all of the exposures that

> people in an affected group have in common. (There will probably be

> hundreds of them.) Then try to determine which one(s) are the culprits.

>

> Mark

>

> > Have any of you ever worke around airplanes prior to getting PLS? I

> read

> > about an airport that was shut down because so many of the workers

> developed

> > motor neuron disease. I can't remember all of the details from the

> story.

> > Have any of you heard of this? Just curious. My father worked for Pan

> > American Airlines for many years as a metal mechanic fixing the body of

> > planes.

> > Liz

>

June 27, 2002

Yes, I've read about the increased incidence of ALS in Gulf War Vets, too.

Recently there was an article (I think in the NY Times) reporting an

increased ALS incidence in athletes in general--baseball players, for

instance. They suggest a link between physically fit, slender folks and

ALS.

Dolores

Re: A question for all PLSers

> Liz,

>

> I never worked around airplanes.

>

> Although it is conceivable that environmental factors cause (or

> contribute to) PLS and ALS, no such causes have been found to date.

> And people have tried--at least for ALS.

>

> Currently, scientists are examining why US servicemen and women who

> served in Operation Desert Storm have a significantly higher incidence

> than normal of ALS. Also, why service men and women from other

> countries who served in the same military action, and even in the same

> geographic areas, do not have a high incidence of ALS. (Note: those

> foreigners weren't given the shots that our service mena and women

> were given prior to going to the Middle East.)

>

> Other studies have been done in the past--why several members of 1

> national football team, who all played together, developed ALS; why

> geographic pockets of ALS cases exist. (I vaguely remember an article

> about a higher than normal incidence of ALS among Vermont diary farmers.)

>

> The options for these strange occurances are: 1) statistical flukes,

> 2) either chemical or biological causes, or 3) a genetic condition

> that predisposes one to ALS (or PLS), but requires exposure to either

> a chemical or biological agent before the disorder begins A

> combination of genetic and environmental factors).

>

> Attempts to track down causes have so far come up dry. (Yes--I'm

> fully aware that sometimes studies are done with the actual intent of

> not finding anything. I've seen it done. I worked as an

> organizer/lobbyist for an environmental group working on hazardous

> waste issues in the early 1980's and saw it done in Woburn, MA, Love

> Canal (Niagara Falls, NY), and Canton, MA)

>

> But some of the people working on environmental causes of motor neuron

> diseases actually want to find an environmental cause.

>

> The task is daunting. Try to figure out all of the exposures that

> people in an affected group have in common. (There will probably be

> hundreds of them.) Then try to determine which one(s) are the culprits.

>

> Mark

>

> > Have any of you ever worke around airplanes prior to getting PLS? I

> read

> > about an airport that was shut down because so many of the workers

> developed

> > motor neuron disease. I can't remember all of the details from the

> story.

> > Have any of you heard of this? Just curious. My father worked for Pan

> > American Airlines for many years as a metal mechanic fixing the body of

> > planes.

> > Liz

>

June 27, 2002

Hi! I just thought I would share and if there is a researcher out there I

would like them to at least read this. I have been in a decline the past

two weeks. I went to have an increase in my pump yesterday and was asked

if anything different had happened to me that may have caused this, I

couldn't think of anything then. I am very sensitive to all drugs. Last

night I stared getting very spastic again and I was having hot flashes

(you know ladies the ones you get when you need to jump into the

freezer). The pharmacy had change manufactures on my hormone

replacements. I started having trouble with hot flashes shortly after the

taking this new med.. My son brought me ice packs and I took another

Estradiol and about two hours later the spasticity started to decrease. I

started falling etc.. after having a hysterectomy in 1997. The PLS

progressed very slowly but steadily

from that point tell now. After my son and daughter were born I had

problems with muscle cramps and weakness in my left foot and right hand.

There were other times when I had hormone imbalances and also had PLS

symptoms. Couldn't hormone imbalances be caused by environmental factors,

illnesses, STRESS etc.. Just something to think about. B. Oregon

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June 27, 2002