KIM

[Guest guest]

KIM,

SWELLING AND SORE THROAT ARE NOT UNIVERSAL SYMPTOMS OF THESE DDS. A LOT OF

PEOPLE WITH THEM DON'T HAVE THESE SYMPTOMS. THE FRUSTRATING PART OF THESE

DDS IS THAT THEY AFFECT EVERYONE DIFFERNETLY, AND THE SYMPTOMS CAN CHANGE

FOR NO APPARENT REASON.

THE RHEUMY WOULD DO THE TRIGGER (TENDER) POINT TEST ON YOUR SON, TOO. RIGHT

NOW THAT IS THE ONLY ACCEPTED TEST.

AND KAREN IS ABSOLUTELY RIGHT THAT OTHER THINGS MUST BE LOOKED AT. (MONO ?

EPSTIEN BARR ? NARCOLEPSY ? ALLERGIES ?) I WOULD ALSO ADD SLEEP APNEA, LYME

DISEASE, AND THERE ARE SO MANY OTHERS. YOU ALSO NEED TO CHECK IF IT MAY BE

ANY MEDICATIONS HE IS ON, EVEN ONES HE HAS BEEN ON FOR A LONG TIME. THESE

CAN CAUSE SEVERAL CFS-LIKE SYMPTOMS, AND IF HE HAS NEVER HAD TROUBLE WITH A

MED BEFORE, THEY CAN BUILD UP IN THE BODY UNTIL IT REBELS. INSIST ON TESTS

UNTIL THEY FIND OUT WHAT IS GOING ON.

{{{GENTLE HUGS}}}

DONI-MARIE

KIM SAID:

******************

NOW, I HAVE A QUESTION. AS FAR AS I KNOW, MY SON DOES NOT HAVE THE ACHINESS

OR SOME OF THE OTHER SYMPTOMS OF CFS. HIS MAIN THING IS THE EXHAUSTION AND

FEELING UNWELL MOST OF THE TIME. NOW, HE DOES HAVE SOME OF THE SECONDARY

THINGS LIKE A RINGING IN THE EARS, STOMACH PROBLEMS, HANDS AND FEET ARE

ALWAYS COLD, ETC. I HAVE A FEELING THAT HE WOULD NOT BE DIAGNOSED BECAUSE

OF

NO SWELLING OR SORE THROAT. WHAT DO THEY DO THEN? EVEN THOUGH WE HAVE

FOUND

SOMETHING THAT HAS TRMENDOUSLY HELPED HIS FATIGUE, I STILL WANT A DR. WHO

UNDERSTANDS WHAT HE IS GOING THROUGH. I AM SO GLAD THAT HE IS NOT AS BAD AS

BEFORE. BUT WE STILL HAVE NO DIAGNOSIS.

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