Re: swallowing and sjogrens

March 1, 2007

Sjorgrens is not fun. Have any tried REstasis? I use it 2 times per day

and it really helps. But you have to be very careful taking it, because " in

your mind " you think you should use the whole individual vial, and that is not

the case. Especially in the beginning, It will really make your eyes burn.

After I shake the vial, I use about 1/2 of it, and then because you have

already mixed it you have to discard it. It seemed like such a waste. But it

works and if you need it, you can still use moisturinzing eye drops.

Especially if you have done lots of reading.

I currently have a horrible sore throat, which seems to be from dryness and

inflamation. I drink water all night long, and wake up ok, but it gets worse

progressively during the day, until I can hardly swallow food at dinner

time. There seems like NO saliva at all, I think I need to get mouth dryness

gel

again to help with eating. Dr. increased my prednisone to 10mg from 5,

hoping that will help. Fatigue is just ripping me up. Anyone have any ideas?

Carol

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