minocin

[Guest guest]

Dear group,

Today I saw the rhuemy and he ordered minocycline 100mg 2x/day. He isn't

opposed to AP, but doesn't bring the subject up because it's not a

" recognized " use of the antibiotic. Since I wanted to do it he had no

objections. My question is two-fold. Is this too high of a dose to start

with? (he said I could start lower and work up----I first had symptoms 7

mo.ago) When I asked about blood work he said none was necessary--we've

done rhuematic workup twice. But he saw no need to check for microplasms.

Should I have this done anyway, or just " go for it " as long as I have the

prescription ?

Thanks.

M.

[Guest guest]

Hi ,

I started with 50 mg 2x/day for two weeks. I didn't have any problems, in

fact, saw improvement by the end of the 2nd week. I then went to 100 mg.

2x/day and continued improvement. I'm in my 6th month, and went uphill for 5

months. I'm doing a bit of a backslide now but it could be in a mini flare.

I'm just going to keep on agoing!

I didn't have any blood tests from my Rheumatologist. Just one from my GP

showing negative. I had all the signs of RA however but started AP very

early in the disease.

That is my story. It has worked wonders for me. I know everyone is

different. Sounds to me like you are on the right track!

I wish you the best of luck and good health!!

Patti

[Guest guest]

Hi ,

>Today I saw the rhuemy and he ordered minocycline 100mg 2x/day. He isn't

>opposed to AP, but doesn't bring the subject up because it's not a

> " recognized " use of the antibiotic.

I wish some of these doctors would make time to read the clinical trials that

have been held. As quite a number of trials have now been held, this is now

a 'recognised' therapy, by the medical professionals' own rules. But at least

he prescribed, so that's great

>objections. My question is two-fold. Is this too high of a dose to start

>with? (he said I could start lower and work up----I first had symptoms 7

>mo.ago)

Some people can start with higher doses straight away and experience no problems

whatsoever. Others find they experience a reaction that is hard for them to

tolerate. Dr. Brown always introduced the antibiotic gradually and worked up

(as your doctor mentioned) to avoid any problems that might arise. I would work

up the dose slowly.

When I asked about blood work he said none was necessary--we've

>done rhuematic workup twice. But he saw no need to check for microplasms.

>Should I have this done anyway, or just " go for it " as long as I have the

>prescription ?

Mycoplasma testing often shows negative, even when done by the few labs who

know do it by the PCR method. And sometimes these tests are very expensive and

take a long time to get back. However, it's an advantage if the testing does

show up specific mycoplasma, because then you know which organism you're dealing

with and that might lead to the use of a different antibiotic. However, as you

have your prescription, and the approach is similar whether or not you test

positive for mycoplasma or not, personally I'd just get started and see how

you get on.

Keep us posted,

Chris.

[Guest guest]

Hi : You are doing the right thing in accordance with what Dr. Trentham

advocates, i.e. start right off, if possible, at 100 mg minocycline 2 Xs a

day. Minocycline = Minocin, no substitutes, taken on empty stomache. Also,

Dr. Trentham does not promote the mycoplasma testing since, as he explained

to me, many people can have mycoplasmas in their system and not have RA, it

can be circulating from prior infections and not necessarily

resulting/related to RA. To him, it was not an issue.

Babs

RA 8/98, DX 4/99, AP 11/99

200 mg. Minocin

2.5 mg. Methotrexate

112 mcg. Synthroid

2 mg. Hytrin

10 mg. Lipitor

Mestinon

Vits. & Misc. Suplmts.

[Guest guest]

: I for one, believe the dosage you describe is too high to start with.

You really don't need to herx to know the AP is working so why push it. The

50 mg MWF or 100 mg MWF is plenty to start with, then work up to a higher

dosage. I am sure many others will write you and tell you what they think,

but this is my thinking.

Re: rheumatic minocin

>From: eson@...

>

>Dear group,

>Today I saw the rhuemy and he ordered minocycline 100mg 2x/day. He isn't

>opposed to AP, but doesn't bring the subject up because it's not a

> " recognized " use of the antibiotic. Since I wanted to do it he had no

>objections. My question is two-fold. Is this too high of a dose to start

>with? (he said I could start lower and work up----I first had symptoms 7

>mo.ago) When I asked about blood work he said none was necessary--we've

>done rhuematic workup twice. But he saw no need to check for microplasms.

>Should I have this done anyway, or just " go for it " as long as I have the

>prescription ?

>Thanks.

> M.

>

>---------------------------

[Guest guest]

I've been on Minocin a month. In that time I've had repeated resp.

infections, plus the vomitting I wrote of earlier (?herx). Because of the

infections I haven't taken my methotrexate in the last month. Now I'm

beginning to get some aching in my knuckles again. I'd like to stay off the

methotrexate, if at all possible! Before I call the Dr. about it I'd like

some input from y'all. :-)

I've gone off the vioxx and decreased my prednisone by 2 mg in the last

month. Would you suggest going back on the vioxx, the methotrexate, or

increasing the prednisone back up to control the pain. I've been pain free

the last 6 weeks or so after being on all these meds for a couple of months.

Also, I'm now on augmentin for a persistant sinus infection. My internist

thot I should stop minocin while on augmentin since it's effective against

P. microplasma. (I don't know which microplasma I have--wasn't tested.)

What are your experiences? I'm tempted to stay on minocin while on

augmentin. I'm hoping some of you are more knowledgable about all this than

I am!

M.

[Guest guest]

Dear group,

Can someone tell me if we're supposed to gradually increase the minocin dose?

I started at 100mg 2x/d nearly 2 mo. ago. Now I've been off Methotrexate

the same amount of time. Pain in knuckles and toes has been intermittent and

lasts for brief periods. The pain is slowly getting worse, and today it's

been more constant---aching. This is probably from not being on metho, but

should I ask Dr. about increasing minocin? Can't say I've noticed much in

the way of herxing, unless this is what's going on. I see Dr. Tues. and

would like to know what to ask him. I'll have lab results back that

day-----that may tell us more. What would indicate a need to increase to

200mg or so 2x/d?

M. RA, FMS

[Guest guest]

The aching may be a herx , you can find out by easing back a bit on the

dose.

Barbara

eson@... wrote:

> From: eson@...

>

> Dear group,

> Can someone tell me if we're supposed to gradually increase the

> minocin dose?

> I started at 100mg 2x/d nearly 2 mo. ago. Now I've been off

> Methotrexate

> the same amount of time. Pain in knuckles and toes has been

> intermittent and

> lasts for brief periods. The pain is slowly getting worse, and today

> it's

> been more constant---aching. This is probably from not being on

> metho, but

> should I ask Dr. about increasing minocin? Can't say I've noticed

> much in

> the way of herxing, unless this is what's going on. I see Dr. Tues.

> and

> would like to know what to ask him. I'll have lab results back that

> day-----that may tell us more. What would indicate a need to increase

> to

> 200mg or so 2x/d?

> M. RA, FMS

>

> -----------------

> ------------------------------------------------------

> GET A NEXTCARD VISA, in 30 seconds! Get rates

> as low as 0.0% Intro APR and no hidden fees.

> Apply NOW!

> 1/975/0/_/532797/_/953865887/

>

> -----------------------------------------------------------------------

[Guest guest]

Dear ,

200mg per day would be the maximum for this therapy. What you describe sounds

like herxing to me, mainly because of the intermittent nature. It can go on

for a very long time but gradually you get more good days.

Make sure you're taking plenty of acidophilus every day, drinking at least eight

glasses of water per day, little or no sugar and plenty of fresh vegetables.

Dr. Stuart Weg has offered pain management techniques at rheumatic.org/weg.htm

- Dr. Weg is a specialist in pain management and especially the herxheimer

reaction.

Let us know how you get on.

Chris.

>From: eson@...

>

>Dear group,

>Can someone tell me if we're supposed to gradually increase the minocin dose?

> I started at 100mg 2x/d nearly 2 mo. ago. Now I've been off Methotrexate

>the same amount of time. Pain in knuckles and toes has been intermittent and

>lasts for brief periods. The pain is slowly getting worse, and today it's

>been more constant---aching. This is probably from not being on metho, but

>should I ask Dr. about increasing minocin? Can't say I've noticed much in

>the way of herxing, unless this is what's going on. I see Dr. Tues. and

>would like to know what to ask him. I'll have lab results back that

>day-----that may tell us more. What would indicate a need to increase to

>200mg or so 2x/d?

> M. RA, FMS

>

>------------------------------------------------------------------------

>GET A NEXTCARD VISA, in 30 seconds! Get rates

>as low as 0.0% Intro APR and no hidden fees.

>Apply NOW!

>1/975/0/_/532797/_/953865887/

>------------------------------------------------------------------------

>

>

>

[Guest guest]

Ken and wrote:

>

> Do you know if Minocin can start to have the side-effect of causing extreme

> fatigue/weakness on the days it is taken?

This is usually the result of the toxins circulating in the system - a

die-off reaction as Dr. Mercola likes to say. Drink loooooots of water

and try the hydrogen peroxide/epsom salts baths to lessen the effect.

Ethel

[Guest guest]

Mark,

I heard that before regarding Cipro, but it certainly has helped me in the IV

form.

It's amazing how much. However, I don't want to trade one problem for

another.

I know clindamycin IV does not help me. I did it several years ago. Do you

know of any others for myco. pneu.?

Thanks,

Carol

[Guest guest]

> He didn't put me on any IV's, but

> I have been on 1 IV per week of Cipro at my family physician's

office, for

> the past month. It has really helped.

>

> Any information anyone has about myco. pneu. would be appreciated.

>

> Thanks,

>

> Carol

Carol,

Be sure to discuss with your doctor the possibility of tendon

ruptures due to taking Cipro. The quinolone type drugs are known to

cause this and it can happen to healthy people, not just RA folks.

http://www.medizin-forum.de/prostatitis/ciproeffects.html

Mark

SW VA

[Guest guest]

> Also, does anyone know where can I find the usual protocol for Myco. Pneu.

on

> the computer.

The usual protocol for M pneumoniae is 7-10 days on tetracyclines or 5 days

on Zithromax. This is from a mom whose son just had pneumonia. ; )

If you want to see it from more official sources, go to www.dogpile.com or

your favorite search engine, and type in " M. pneumoniae " " walking

pneumonia " or " atypical pneumonia " and it will kick out a list of

pertinent websites.

Best wishes to you with your treatment. Isn't it nice to know exactly what

you are dealing with? Keep in mind when you are reading that once the spread

is systemic, it can take a lot longer to wipe out the infection than the

usual protocol for pulmonary infection. Take care, Liz G

[Guest guest]

Hi Carol,

You mentioned that Dr. Franco prescribed Minocin and Zithromax for you and that you had previously been prescribed IV Cipro. Trust Dr. Franco. The combination of Minocin and Zithromax is used by him in the same way that Minocin and Clindamycin are used. (He uses both combinations and determines on an individual basis for each patient.) In other words, if you have your family physician prescribe the Cipro IVs in addition to what Dr. Franco has prescribed, you may be doing too much or combining incompatible antibiotics. In any case, call Dr. Franco's nurse, and have her run that by him. Just because you don't take an IV doesn't mean that you are not on the right protocol.

Lederle is the correct manufacturer for Minocin. According to others in this group, the Schien brand of the generic form (minocycline) is effective, too.

take care and know that you are on the right track :-)

Connie

dermatomyositis Aug '96 AP Feb '98 doing great!

>>>>>>>>>>>>>>>Original Messages<<<<<<<<<<<<<<<

Message: 11 Date: Tue, 25 Jul 2000 16:29:33 EDT From: SurfcityCL@...Subject: MinocinI went to Dr. Franco yesterday. I have had R.A. for 10 years. He found that I had antibodies to Mycoplasma pneumonia. He is starting me on minocin and Zithromax.I know I have read e-mail before about using the correct pharmaceutical company for the minocin. Is Lederle acceptable? Also, the generic my pharmacy uses is by Schien Pharmaceutical. Is that one O.K. also?Also, does anyone know where can I find the usual protocol for Myco. Pneu. on the computer. I would like to read about it. If IV antibiotics are used, which one is usually used for myco. pneu.? He didn't put me on any IV's, but I have been on 1 IV per week of Cipro at my family physician's office, for the past month. It has really helped.Any information anyone has about myco. pneu. would be appreciated.Thanks,Carol

Message: 16 Date: Tue, 25 Jul 2000 18:58:29 EDT From: SurfcityCL@...Subject: Re: Re: MinocinMark,I heard that before regarding Cipro, but it certainly has helped me in the IV form.It's amazing how much. However, I don't want to trade one problem for another.I know clindamycin IV does not help me. I did it several years ago. Do you know of any others for myco. pneu.?Thanks,Carol

[Guest guest]

,

I take acidophillus 3 times a day with food. This works well for me.

Hugs,

a Peden

Rizun wrote:

> Can anyone please tell me when you take acidophillus, if you are taking

> minocin twice a day? Thanks.

[Guest guest]

Dear Carol,

If you are finding the dose too hard to tolerate, then drop the dose down

a little. This question of dose is highly individual. Some people can only

tolerate 50mg Mon Wed and Fri to start with and many people have recovered

on 100mg Mon Wed and Fri. Others can tolerate the higher doses from the

beginning with no trouble. The dose might vary over time - low to start

with, building up to tolerance and then dropping down to a lower

maintenance dose as remission is achieved. There is nothing lost by the

lower dose.

There is a trend recently to put everyone on 200mg every day. This is not

correct and the dose must be determined for each person based on

individual tolerance and needs. Many failures on this therapy are because

the person couldn't tolerate 200mg per day and so stopped using the

therapy. This is tragic when a low dose could have been taken and the

antibiotic therapy continued.

Dr. Brown said (and I should put this in capitals and underlined):

" The antibiotic should be introduced gradually in order to avoid an

allergic reaction by the patient. "

In this group, we support the methods used by Dr. Brown and the doctors

who follow his approach.

The trick is to take enough of the antibiotic to address the disease,

while not taking so much that the herxheimer is too hard to put up with.

In addition, there is a need to protect the gut and a pulsing dose (of

whatever length) gives the tissues a rest and on the days off, the

probiotics and other supplements get a better chance to act.

The recent discussions about leaky gut are spot on. If you run into the

gut problem it's hard work to correct and it can stop your recovery.

Another reason for some days of not taking antibiotics.

Carol, I'd drop to 200mg Mon Wed and Fri and see how you feel.

Chris.

On Fri, 29 Sep 2000 SurfcityCL@... wrote:

> Is anyone taking minocin 5 days per week and 200 mg. per day? It seems like

> so much to me and it really causes a major herx if I try to stay on that

> regimen.

>

> Thanks,

>

> Carol

[Guest guest]

Minocin is a brand name for minocycline...like Kleenex is tissue.

Minocin is favored for it's higher absorption rate especially if taken with

food. Some feel the differences are nil while others swear by the Lederle

brand.

*IN CANADA Lederle brand Minocin is distributed by Wyeth-Ayerst Canada Inc.

(correct me if I'm wrong but I think they purchased the rights to the

product.)

The capsule 100mg is deep blue and dark orange with the lederle name and

minocin 100mg stamped on the capsule. The 50mg is dark orange with lederle

m2 on the capsule.

As for the nervous part.........that will go away as time passes.

Read Read Read....everything. It helps make you more confident in your

choice of therapy.

I'll be swinging through Edmonton in May. Where abouts are you.

Yee Haaa....

Donna

Ottawa, Canada

Scleroderma, Jan.95, AP Oct.97

(Ottawa Support Group - Road Back Foundation)

http://www3.sympatico.ca/mousepotatoes/rbf.html

Donna

Ottawa, Canada

Scleroderma, Jan.95, AP Oct.97

(Ottawa Support Group - Road Back Foundation)

http://www3.sympatico.ca/mousepotatoes/rbf.html

rheumatic Minocin

>Hi All,

>Weeeeeeeellllllll, my Rheumy gave me a script (to appease me) she

>doesn't think it will help....that is a whole nother story...she yelled

>at me Big time....I stood my ground But technically I think She

>won...but I do have Minocin.

>What is the difference between Minocycline and Minocin...I have

>both..they look identical...is the generic not a good choice?????

>I have a million questions!!!

>a, you may be hearing from me constantly!!!a is a neighbour

>(sorta)

>I am waiting for blood tests before I can start minny.......

>Nervous, In Alberta

>Debi (RA )

>

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Hi Debi,

Don't worry, I'll hold your hand as much as you need (as long as you

don't squeeze because the old joints won't like that LOL). Just so the

rest of you know, I've already filled Debi in on the delightful attitude

of most rheums towards the treatment but personal examples from more of

you might help Debi to know that ignorance of AP is common but not a

reason not to use it. And Donna is right, as long as you have brand

name mino or the Lederle/Wyeth generic, you have the right stuff. If

you have a drug plan that covers your prescriptions, you might want to

tell the pharmacist you only want the brand name just to be safe but do

make sure you check each time you fill your prescription that you've

been given the proper stuff because on occasion, the pharmacist will

make an accidental substitution if you don't clarify what you want. I'm

sure you'll do fine on the AP and we'll all be here to help along the

way so yell whenever you need to.

Hugs

a

T Croteau wrote:

>

> Hi All,

> Weeeeeeeellllllll, my Rheumy gave me a script (to appease me) she

> doesn't think it will help....that is a whole nother story...she yelled

> at me Big time....I stood my ground But technically I think She

> won...but I do have Minocin.

> What is the difference between Minocycline and Minocin...I have

> both..they look identical...is the generic not a good choice?????

> I have a million questions!!!

> a, you may be hearing from me constantly!!!a is a neighbour

> (sorta)

> I am waiting for blood tests before I can start minny.......

> Nervous, In Alberta

> Debi (RA )

[Guest guest]

a:

Thanks for bringing back an old memory. I can remember the fear when

someone would grab my hand to shake it and I would almost cry out in pain.

Several times I actually did tear up it was such horrible pain. Even a

slight squeeze was terrible and would about send me to my knees ( but back

then I probably couldn't have gotten back up...)

Now anyone can grab any hand, anytime, any pressure, and I don't think

about it as the pain upon pressure is not there anymore.

It is funny how you forget about these things and it makes you realize how

far you have come from where you have been.

At 10:06 AM 3/14/2001 -0700, you wrote:

>Hi Debi,

>Don't worry, I'll hold your hand as much as you need (as long as you

>don't squeeze because the old joints won't like that LOL). Just so the

>rest of you know, I've already filled Debi in on the delightful attitude

>of most rheums towards the treatment but personal examples from more of

>you might help Debi to know that ignorance of AP is common but not a

>reason not to use it. And Donna is right, as long as you have brand

>name mino or the Lederle/Wyeth generic, you have the right stuff. If

>you have a drug plan that covers your prescriptions, you might want to

>tell the pharmacist you only want the brand name just to be safe but do

>make sure you check each time you fill your prescription that you've

>been given the proper stuff because on occasion, the pharmacist will

>make an accidental substitution if you don't clarify what you want. I'm

>sure you'll do fine on the AP and we'll all be here to help along the

>way so yell whenever you need to.

>Hugs

>a

>

>T Croteau wrote:

>>

>> Hi All,

>> Weeeeeeeellllllll, my Rheumy gave me a script (to appease me) she

>> doesn't think it will help....that is a whole nother story...she yelled

>> at me Big time....I stood my ground But technically I think She

>> won...but I do have Minocin.

>> What is the difference between Minocycline and Minocin...I have

>> both..they look identical...is the generic not a good choice?????

>> I have a million questions!!!

>> a, you may be hearing from me constantly!!!a is a neighbour

>> (sorta)

>> I am waiting for blood tests before I can start minny.......

>> Nervous, In Alberta

>> Debi (RA )

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Hello: I'm Joe and just started minocyline 100mg 2-x a day and it's kicking

the s-i-t out of me, started on monday. I was in this group before and

jumped off because I thought it would not work for me and well I did not

give it a chance here I'm back with my feet & fingers & wrist - knee, neck

well all over my body meaning every night I have to pull the covers on me

with my teeth because my shoulders hurt so much, even if I take an I B U

800mg before I go to bed. I just want to try and do the right thing this

time because if I don't I'm going to Be end up in a wheelchair and that

putting mild-ly. Well to whom it may concern Please Help ! Thank You ! Joe

p.s. I even order the cook book from Dr. ph Mercola

Re: rheumatic Minocin

> a:

>

> Thanks for bringing back an old memory. I can remember the fear when

> someone would grab my hand to shake it and I would almost cry out in pain.

> Several times I actually did tear up it was such horrible pain. Even a

> slight squeeze was terrible and would about send me to my knees ( but back

> then I probably couldn't have gotten back up...)

>

> Now anyone can grab any hand, anytime, any pressure, and I don't think

> about it as the pain upon pressure is not there anymore.

>

> It is funny how you forget about these things and it makes you realize how

> far you have come from where you have been.

>

>

>

>

>

>

>

>

> At 10:06 AM 3/14/2001 -0700, you wrote:

> >Hi Debi,

> >Don't worry, I'll hold your hand as much as you need (as long as you

> >don't squeeze because the old joints won't like that LOL). Just so the

> >rest of you know, I've already filled Debi in on the delightful attitude

> >of most rheums towards the treatment but personal examples from more of

> >you might help Debi to know that ignorance of AP is common but not a

> >reason not to use it. And Donna is right, as long as you have brand

> >name mino or the Lederle/Wyeth generic, you have the right stuff. If

> >you have a drug plan that covers your prescriptions, you might want to

> >tell the pharmacist you only want the brand name just to be safe but do

> >make sure you check each time you fill your prescription that you've

> >been given the proper stuff because on occasion, the pharmacist will

> >make an accidental substitution if you don't clarify what you want. I'm

> >sure you'll do fine on the AP and we'll all be here to help along the

> >way so yell whenever you need to.

> >Hugs

> >a

> >

> >T Croteau wrote:

> >>

> >> Hi All,

> >> Weeeeeeeellllllll, my Rheumy gave me a script (to appease me) she

> >> doesn't think it will help....that is a whole nother story...she

yelled

> >> at me Big time....I stood my ground But technically I think She

> >> won...but I do have Minocin.

> >> What is the difference between Minocycline and Minocin...I have

> >> both..they look identical...is the generic not a good choice?????

> >> I have a million questions!!!

> >> a, you may be hearing from me constantly!!!a is a neighbour

> >> (sorta)

> >> I am waiting for blood tests before I can start minny.......

> >> Nervous, In Alberta

> >> Debi (RA )

> >

> >

> >To unsubscribe, email: rheumatic-unsubscribeegroups

> >

> >

> >

[Guest guest]

Hello to Joe, and all the others who are on the minocycline,

Please don't get discouraged with the minocycline/minocin. I started taking it last May, and honestly, I didn't begin to feel better for months! I hurt for a long time - every joint. But now, here it is March, and I feel WONDERFUL!!

Just hang in there!

a

[Guest guest]

Hi Joe,

Reduce your dose - that dose is too high for you at the moment. It's worth

starting

on only 50mg MWF and then working up slowly by about 50mg a week. Let us know

how you get on.

Chris.

>Hello: I'm Joe and just started minocyline 100mg 2-x a day and it's kicking

>the s-i-t out of me, started on monday. I was in this group before and

>jumped off because I thought it would not work for me and well I did not

>give it a chance here I'm back with my feet & fingers & wrist - knee, neck

>well all over my body meaning every night I have to pull the covers on me

>with my teeth because my shoulders hurt so much, even if I take an I B U

>800mg before I go to bed. I just want to try and do the right thing this

>time because if I don't I'm going to Be end up in a wheelchair and that

>putting mild-ly. Well to whom it may concern Please Help ! Thank You ! Joe

>p.s. I even order the cook book from Dr. ph Mercola

> Re: rheumatic Minocin

>

>

>> a:

>>

>> Thanks for bringing back an old memory. I can remember the fear when

>> someone would grab my hand to shake it and I would almost cry out in pain.

>> Several times I actually did tear up it was such horrible pain. Even a

>> slight squeeze was terrible and would about send me to my knees ( but back

>> then I probably couldn't have gotten back up...)

>>

>> Now anyone can grab any hand, anytime, any pressure, and I don't think

>> about it as the pain upon pressure is not there anymore.

>>

>> It is funny how you forget about these things and it makes you realize how

>> far you have come from where you have been.

>>

>>

>>

>>

>>

>>

>>

>>

>> At 10:06 AM 3/14/2001 -0700, you wrote:

>> >Hi Debi,

>> >Don't worry, I'll hold your hand as much as you need (as long as you

>> >don't squeeze because the old joints won't like that LOL). Just so the

>> >rest of you know, I've already filled Debi in on the delightful attitude

>> >of most rheums towards the treatment but personal examples from more of

>> >you might help Debi to know that ignorance of AP is common but not a

>> >reason not to use it. And Donna is right, as long as you have brand

>> >name mino or the Lederle/Wyeth generic, you have the right stuff. If

>> >you have a drug plan that covers your prescriptions, you might want to

>> >tell the pharmacist you only want the brand name just to be safe but do

>> >make sure you check each time you fill your prescription that you've

>> >been given the proper stuff because on occasion, the pharmacist will

>> >make an accidental substitution if you don't clarify what you want. I'm

>> >sure you'll do fine on the AP and we'll all be here to help along the

>> >way so yell whenever you need to.

>> >Hugs

>> >a

>> >

>> >T Croteau wrote:

>> >>

>> >> Hi All,

>> >> Weeeeeeeellllllll, my Rheumy gave me a script (to appease me) she

>> >> doesn't think it will help....that is a whole nother story...she

>yelled

>> >> at me Big time....I stood my ground But technically I think She

>> >> won...but I do have Minocin.

>> >> What is the difference between Minocycline and Minocin...I have

>> >> both..they look identical...is the generic not a good choice?????

>> >> I have a million questions!!!

>> >> a, you may be hearing from me constantly!!!a is a neighbour

>> >> (sorta)

>> >> I am waiting for blood tests before I can start minny.......

>> >> Nervous, In Alberta

>> >> Debi (RA )

>> >

>> >

>> >To unsubscribe, email: rheumatic-unsubscribeegroups

>> >

>> >

>> >

[Guest guest]

Joe :

The book says to lighten up on the doseage. You are probably going through a

herx. Try starting with 100 mg every other day and after you stabilize, you

can adjust the doseage upwards.....Dean.

Re: rheumatic Minocin

>

>

> > a:

> >

> > Thanks for bringing back an old memory. I can remember the fear when

> > someone would grab my hand to shake it and I would almost cry out in

pain.

> > Several times I actually did tear up it was such horrible pain. Even a

> > slight squeeze was terrible and would about send me to my knees ( but

back

> > then I probably couldn't have gotten back up...)

> >

> > Now anyone can grab any hand, anytime, any pressure, and I don't think

> > about it as the pain upon pressure is not there anymore.

> >

> > It is funny how you forget about these things and it makes you realize

how

> > far you have come from where you have been.

> >

> >

> >

> >

> >

> >

> >

> >

> > At 10:06 AM 3/14/2001 -0700, you wrote:

> > >Hi Debi,

> > >Don't worry, I'll hold your hand as much as you need (as long as you

> > >don't squeeze because the old joints won't like that LOL). Just so the

> > >rest of you know, I've already filled Debi in on the delightful

attitude

> > >of most rheums towards the treatment but personal examples from more of

> > >you might help Debi to know that ignorance of AP is common but not a

> > >reason not to use it. And Donna is right, as long as you have brand

> > >name mino or the Lederle/Wyeth generic, you have the right stuff. If

> > >you have a drug plan that covers your prescriptions, you might want to

> > >tell the pharmacist you only want the brand name just to be safe but do

> > >make sure you check each time you fill your prescription that you've

> > >been given the proper stuff because on occasion, the pharmacist will

> > >make an accidental substitution if you don't clarify what you want.

I'm

> > >sure you'll do fine on the AP and we'll all be here to help along the

> > >way so yell whenever you need to.

> > >Hugs

> > >a

> > >

> > >T Croteau wrote:

> > >>

> > >> Hi All,

> > >> Weeeeeeeellllllll, my Rheumy gave me a script (to appease me) she

> > >> doesn't think it will help....that is a whole nother story...she

> yelled

> > >> at me Big time....I stood my ground But technically I think She

> > >> won...but I do have Minocin.

> > >> What is the difference between Minocycline and Minocin...I have

> > >> both..they look identical...is the generic not a good choice?????

> > >> I have a million questions!!!

> > >> a, you may be hearing from me constantly!!!a is a neighbour

> > >> (sorta)

> > >> I am waiting for blood tests before I can start minny.......

> > >> Nervous, In Alberta

> > >> Debi (RA )

> > >

> > >

> > >To unsubscribe, email: rheumatic-unsubscribeegroups

> > >

> > >

> > >

[Guest guest]

a,

I am so happy that you have gotten better on the mino!! I hope that we can continue to encourage others just as you did with this post!!!

Peace,

Sherry

Hello to Joe, and all the others who are on the minocycline,

Please don't get discouraged with the minocycline/minocin. I started taking it last May, and honestly, I didn't begin to feel better for months! I hurt for a long time - every joint. But now, here it is March, and I feel WONDERFUL!!

Just hang in there!

a

[Guest guest]

Debi,

My nodules used to come and go seemingly within a day or two. I still have swelling though that also comes and goes, but no nodules for over a year.

Maybe the swelling is hiding them. :>)

Bev

Will the puffiness and/or nodules ever go away..

> Debi

> In Sunny Alberta