Update

November 23, 2004

Thank you helon. I too am looking forward to seeing you at SRD. Hopefully I will be abel to go. I am trying to get my husband to go so we can ride the bike there. I hear it is really pretty country side.

Thank you for the well wishes. I think our Thanksgiving will be great. My daughter is cooking dinner, of course I will be taking some dishes over there, but she will be doing the biggest part of the work this eyar for a change. Maybe by Christmas the scare of my heart attack will eb forgotten and I will be able to do dinner here at our house.

I will be leaving to go to Missouri the 29th as I had originally planned. the doctor told me today he did not see a problem with it as long as I took my medications and kept the nitro pills close at hand. I ahve his home number so the doctors can reach him if the need arise while I am in Missouri. Where my brother is taking his treatments there is an excellent heart care center there. So I will be in good hand if anything should happen.

I hope youa nd your have a Wonderful Thanksgiving Holiday also.

HAPPY THANKSGIVING TO ALL OF YOU.

lOVE PEPPERHelon wrote:

Pepper,

Sorry that you are having such medical problems. I will be praying for you and for your brother in Missouri. Hope that you will have a great Thanksgiving also, enjoy the family that you have here with you, and think of the great times that you have had in years past with your family in Missouri.

You take care of yourself, cause I want to see you at SRD in San Angelo next April Kiddo.

Luv ya,

Helon

LOSIN' MORE IN '04

update

Hello I just wanted to send a little update on what my tests revealed. It seems that the first test that showed I had blockages and I was a walking heat attack waiting to happen was false. When I went to the Herman Hospital to have the cath did they were unable to complete it because my arteries are know as "corkscrew" arteries. They are twisted and bent therefore giving a false reading with the other tests that was taken. So the cath was not performed and they had to do what is called an IVUS (intervienous ultra sound) and the results were that I do have a partially blocked artery. This artery is located behind a bigger artery that is like in a Y shape and can not be reached to insert a stint. The doctor said it was too risky to try and insert a stint there. He is putting me on meds to try and help me to not increase the blockage. If the meds do not work and the blockage becomes worse then they will have to go in

and do a by-pass. He has also put me on nittro, but, I ahte that stuff because it causes me to have HORRIBLE headaches. So I am going to have to really watch my eating habits for sure now. It is not just a matter of losing weight I guess it is a matter of living longer now. That does not make it any easier for me though. I guess it will make me try harder now though. With the lupus and diabeties it is only goning to increase my chances of a heart attack also . Well I guess I will just have to make the best fo a bad situation here. Havbe a great holiday. Love Pepper

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November 4, 2007

Hey Judy, I am probably not the best at this but here goes.. no

wait..I am so thrilled you are breathing well..

I can only imagine.. You are always in my prayers.

Leanne- listed on 10/12, waiting for her call. Still so sweet, smart

& a beauty.

Joyce D- Is AMAZING. she could teach all these Dr's a thing or two,

She has the stamina of Moses.

I do worry about her a bit.

Jane- Just doing so well. has been having a little trouble but

is fine. Eddie to.

- still a brat, has a part time job back with the co. she was

with when she got sick.

Beth- packing for her move to NC. doing great.

Jon- the pirfinadone (sp?)study is improving his numbers but he is so

short of breath I do worry he doesn't use enough O2.

Gwynne- AMAZING. she is listed and is trying to move out to LA since

she has some blood problems and needs to

be near a bigger center.

L - another Amazing what a fighter. She is having fits with

Apria STILL she just can't get a break with them.

Pink Joyce- We haven't heard from her for a while.

New Guy Bruce- A man of many words.. LOL nice guy. I threw him in

just so when you see his posts you'll know what to expect. Analytical.

Ok so now I will be called the blabber mouth.. I know there are many

I haven't written here so they will just have to

POST and let us know how they are.

God Bless you and help you deal with all these drugs. Hopefully it

won't last long.

Take a deep breath for me.........................THANKS that felt so

good..

Love and Prayers, Peggy

ipf 6/04 Florida

" Worry looks around,

Sorry looks back,

Faith looks up. "

Hi Peggy and All,

Peggy - Did you get my email with my health update? Eversince they

gave me those 3 IV doses of 500 mg of sulumedrol (steroid) I've had

some rough days. Mostly the trembling and vision problems have kept

me from getting on line, plus I've had lots more doctor appointments

and tests. But I am still breathing good so that's what counts and

am still active with still trying to get settle in my new home still

shopping for decorating items and have done some Christmas shopping

but frustrated as still not organized. I keep putting off getting

all my papers piled on my dining table gone through mostly because

my vision makes it too difficult plus the frustration of the screw

ups with Medicare and Medicare supplement on my medications which

cost a fortune. I did get my drapes for my living room, bedroom and

valance for my kitchen bought and hired someone to install them and

am very pleased. Jeff, my son has been busy enough helping with

everything else I figured I could have a professional do the draper

installation and safe Jeff the stress. I've also resorted to buying

a refill for my lin Planner to try to get myself organized as

having a bunch of notebooks just doesn't work and my Palm Pilot

wouldn't hot sync for me when I needed to install new batteries so

haven't been able to use it. I did finally see an ENT this week who

specializes in thyroid problems & he did an ultra sound and

confirmed my suspicion that my adenome has enlarged. I've felt SOB

lately whenever I bend over or just look down. Also the fluid

retention could be part of the problem, but they will continue to

monitor the thyroid situation. I sure don't want to have another

surgery (the IL doctor had recommended thyroid surgery this past

Jan.) but a 2nd opinion doc in Indy had said see him in Aug for

another test first. Since I had moved to Cincy I had gotten an

appointment here to get that check but it turned out that

appointment was scheduled for 22 Aug. which turned out to be when I

was in surgery for the lung transplant. I do have some good days

when I can walk around in the house without even using my cane but

cannot do it too much as it makes my leg really hurt by evening. I

have started to do my PT home exercises again and Tues. I start back

into Pulm Rehab. Unfortnately my 2 visits to an opthamalogist

hasn't helped my eyes much. I'm having better results just using

Visine than their prescriptions.

If someone could give me a short summary of how people are doing I'd

appreciate it. I still think of you all a lot and hoping the best

for you. I certainly now understand all the previous complaints

Ihad red about Prednisone. Wait until you get a lung transplant and

they put you on Prograf. It is supposedly the cause of my

trembling. But I will say when I go places alone people are very

considerate and helpful with me. It makes me feel so much better

about mankind.

Love and Aloha,

Judy Left Lung Transplant 22 Aug 07 & yes the final biopsy of the

left lung confirmed that I had IPF and apparently my condition was

really bad is why I was only on the list for 9 days before I got my

new lung. People tell me how lucky I am but I feel that it's not

just luck but that God has a plan for me to get well so I can do

some good for other people.

Bless you all.

November 4, 2007