Guest guest Posted November 15, 2007 Report Share Posted November 15, 2007 Hi. My name is and I am 23, I was diagnosed with Juvenile RA when I was 15. I went on medication for it right away, tacking methotrexate shots once a week and Remicade infusions once a month. I had to stop at age 19 though because my dads insurance wouldnt cover me anymore. I am married with 3 kids, ages 6, 5, and 10 months. My husband recently got insurance at his work, but I wont be coverd for 2 years, and i finally decided to ge on disability july of this year after losing 2 jobs because of my hands, but my medicare wont kick in for 2 years either. I feel like I have had to give everything up I have ever wanted. School was hard, I dropped out my senior year because I couldnt keep up and was failing, so I didnt get to go to college like I wanted. Now that i am on disability I make enough to pay the mortgage each month but my husband is left paying everything else out of his checks each week and I feel like I dont help enough. He is very supportive of me and never complains but I cant help feeling bad because I can't bring in more. I have never met anyone else as young as me with RA, even my doctor says I am the only one he ever treated that young. My daughter asks me all the time if her fingers are going to be bent and broken like mine and I just want to cry because that is the first thing people notice when they meet me and then I have all the questions to answer. Sorry for getting on here and pretty much crying the first time I post but I just want other people with the same things I have to talk to. Quote Link to comment Share on other sites More sharing options...
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