YANA updates

[Guest guest]

I have been running a non-commercial website - You

Are Not Alone Now www.yananow.net

for a number of years now. The first section is aimed at newly diagnosed men and

their supporters. It gives some basic information in plain language with links

to more complex and technical sites and is accessed by using the link www.yananow.net and hitting

the Don’t Panic button.

The second section of the

site of the site was set up in the belief that there is tremendous value in

reading of other people's experiences with prostate cancer and also recognition

that it might be helpful men diagnosed with PCa (and their families or partners)

find someone to 'talk' to; someone who had dealt with the same issues and

problems.

Contributors are encouraged to update their stories

at least once a year. The current week’s list of new contributors and

updates is below

NEW STORIES:

http://www.yananow.net/Mentors/P2.htm

DAVID PRICE - newly diagnosed and undecided

UPDATES TO EXISTING STORIES

http://www.yananow.net/Mentors/GregS2.htm

GREG SWAN – was almost finished his proton beam therapy in Florida and was enjoying

himself

http://www.yananow.net/Mentors/NeilC.htm

NEIL CONNELL - Silver member – who is really down

because of low T and continued ADT – should he have a holiday and or

supplements?

http://www.yananow.net/Mentors/CBB.htm

CB BUNTING III – first PSA after surgery was undetectable but

with a GS of 9 and PSA 31, his doctor is advising adjuvant EBRT

http://www.yananow.net/Mentors/ScotK.htm

SCOT KINNAMAN – amusing update with regard to his catheter

experience after surgery

http://www.yananow.net/Mentors/PhilipP.htm

PHILIP PRESS - 18 months out of RALP and although he still

has ED issues, he is satisfied with the status quo

http://www.yananow.net/Mentors/M.htm

RONALD MITCHELL - six months out from RALP with undetectable PSA, and

everything in working order

http://www.yananow.net/Mentors/JackC.htm

JACK CARDEN – has found that his doctor did not provide accurate

information before treatment

http://www.yananow.net/Mentors/BobE2.htm

BOB EVENSEN - four months after RALP and all’s well

http://www.yananow.net/Mentors/RonW.htm

RON WAGNER - nine months after surgery has very few leaks and erectile function

is returning to pre-op levels

http://www.yananow.net/Mentors/TomL.htm

TOM LISETT - has recently finished his EBRT following failed surgery and hopes

all will go well this time

http://www.yananow.net/Mentors/GerryP.htm

GERRY

PIWOWARCZYK had a

nasty surprise when his GS changed from 6 to 9 after surgery

http://www.yananow.net/Mentors/SamF.htm

SAM FULLERTON a Silver member with nine years behind him since EBRT, his

PSA is stable and no side effects reported

http://www.yananow.net/Mentors/DinoB.htm

DINO BROWN the latest in Dino’s saga with uncontrollable

incontinence following RALP

http://www.yananow.net/Mentors/GregR.htm

GREG RUTHERFORD has just hit Silver status with concerns about an

apparent PSA rise – or is it a change in protocols?

http://www.yananow.net/Mentors/W.htm

JAMES WEIDNER seven months after HDR brachytherapy, everything is going

well – still some blood in ejaculate

http://www.yananow.net/Mentors/KentW.htm

KENT WILLIAMS battling insurers and urologist to find a way to get the

treatment of his choice – proton beam

http://www.yananow.net/Mentors/HerbD.htm

HERB DICKER - positive update two years after surgery despite continued

mild incontinence and ED issues

http://www.yananow.net/Mentors/CamB.htm

CAM BISHOP Silver member who has been on

Active Surveillance for six and a bit years and isn’t changing course

All the best,

Terry Herbert in Melbourne, Australia

Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2:

Gleason 7: No treatment. Jun '07 PSA 42.0 - Bony Metastasis:Started ADT;

Stopped ADT May '08. Jun '09 PSA 1.20

My site is at www.yananow.net

As a physician, I am painfully aware that

most of the decisions we make with regard to prostate cancer are made with

inadequate data: Dr “Snuffy”

Myers.