Yana updates

[Guest guest]

I have been running a

non-commercial website - You Are Not Alone Now www.yananow.net for a number of years now. The second

section of the site of the site was set up in the belief that there is

tremendous value in reading of other people's experiences with prostate cancer

and also recognition that it might be helpful men diagnosed with PCa (and their

families or partners) find someone to 'talk' to; someone who had dealt with the

same issues and problems.

Contributors are encouraged to update their stories

at least once a year. The current week’s list of new contributors and

updates is below – many are from older members as I have been sending out

reminders for them to update their stories.

NEW STORIES:

http://www.yananow.net/Mentors/MikeL.htm

MIKE L - although not all young men have aggressive forms of the disease, Mike

has, with a PSA of 1,500, GS 9, T4 diagnosis

http://www.yananow.net/Mentors/H2.htm

WILLIAM H - opted for Proton Beam at Loma after diagnosis in June

http://www.yananow.net/Mentors/SandyD.htm

SANDY DUFF

has chosen EBRT but is concerned about potential side effects

http://www.yananow.net/Mentors/C.htm

CHARLES COHEN - two years after his surgery he is satisfied with the outcome,

using bi-mix and Viagra and catheterization to deal with the side effects

http://www.yananow.net/Mentors/HughJ.htm

HUGH J - diagnosed in June and chose surgery

UPDATES TO EXISTING STORIES

http://www.yananow.net/Mentors/DaveM.htm

DAVE MARTINEZ after being told he had no PCa a further biopsy was

positive and he chose RALP (Robotic Assisted Laparoscopic Prostatectomy) at

City of Hope and Dr Kawachi – and like so many others found this to be a

positive experience

http://www.yananow.net/Mentors/K.htm

ANDREW KAYSER - has decided on RALP (Robotic

Assisted Laparoscopic Prostatectomy) which is set for August 13

http://www.yananow.net/Mentors/RickS.htm

RICK S – details of his recovery from surgery

http://www.yananow.net/Mentors/IanM.htm

IAN MEEKIN – involved in an EBRT (External Beam

Radiation Therapy) trial at Royal Marsden

http://www.yananow.net/Mentors/W3.htm

DAVID W - coming up for two years since surgery and he reports no side

effects

http://www.yananow.net/Mentors/JoeT.htm

JOE TILLSON - has his RALP (Robotic Assisted Laparoscopic Prostatectomy)

in June and has some troublesome continence and ED issues

http://www.yananow.net/Mentors/ChuckC.htm

CHUCK CAMERON - has a rising PSA after EBRT (External Beam

Radiation Therapy) but is waiting for present before commencing ADT (Androgen

Deprivation Therapy)

http://www.yananow.net/Mentors/A.htm

JOSE ALSON – has a bouncing PSA after EBRT (External Beam Radiation

Therapy) but no incontinence problems and an improvement in ED

http://www.yananow.net/Mentors/DaveA.htm

DAVE ARTERBURN coming up to three years after RALP (Robotic

Assisted Laparoscopic Prostatectomy) he still has ED issues

http://www.yananow.net/Mentors/SaltyC.htm

SALTY CLARK no problems after his RALP

(Robotic Assisted Laparoscopic Prostatectomy)

http://www.yananow.net/Mentors/KipF.htm

KIP FOSS diagnosed in June 2006 he chose RALP (Robotic Assisted

Laparoscopic Prostatectomy) – still has ED

http://www.yananow.net/Mentors/J.htm

BRYAN JONES - eighteen months after RALP (Robotic

Assisted Laparoscopic Prostatectomy) has no ED problems and only slight leaking

http://www.yananow.net/Mentors/BillR2.htm

BILL ROBINSONS - chose proton beam and sets out the minor side effects he had

http://www.yananow.net/Mentors/S.htm

ERIC SONDEEN - while battling the severe side effects of a failed HIFU

procedure, he has lost his job but has remained amazingly positive. A wonderful

example for all

http://www.yananow.net/Mentors/JWB.htm

JW BURFORD - had ‘the lot’ to deal with a GS 8 diagnosis –

RALP (Robotic Assisted Laparoscopic Prostatectomy), EBRT (External Beam

Radiation Therapy) and ADT (Androgen Deprivation Therapy). Has been off Lupron

for three months but sees no signs of life as far as ED is concerned

http://www.yananow.net/Mentors/HenkvdW.htm

HENK VAN SER WILK - Silver member has been on

Zoladex after failed surgery and EBRT (External Beam Radiation Therapy) and

would like a ‘holiday’

http://www.yananow.net/Mentors/SteveB2.htm

STEVE BREYFOGLE – 16 months after his RALP (Robotic Assisted

Laparoscopic Prostatectomy) he still has ED but finds Trimix does the trick

http://www.yananow.net/Mentors/TimH.htm

TIM HILLEN – Silver member still happy with his choice

of Brachytherapy and a very low PSA

http://www.yananow.net/Mentors/ChrisF.htm

CHRIS F - another young man diagnosed with an aggressive form of the disease.

He is now on chemotherapy which he says he is tolerating well

http://www.yananow.net/Mentors/DougA.htm

DOUG ADAM - 18 years after diagnosis with a GS 10, this Platinum member

is enjoying his life and his remission

http://www.yananow.net/Mentors/HarvV.htm

HARV V - decided on Active Surveillance and has seen a reduction in his

PSA since last year

http://www.yananow.net/Mentors/PatI.htm

PAT INGLESE – has come back to HIFU as his choice but has a question

http://www.yananow.net/Mentors/AmadorA.htm

AMADOR MONTEJANO - is excited as he has just had his lowest PSA ever

– 2.5

http://www.yananow.net/Mentors/TonyS2.htm

TONY SAWYER concerned about pancreatic problems with ADT (Androgen Deprivation

Therapy) after failed surgery

http://www.yananow.net/Mentors/G.htm

ERIC GAMBLE another Platinum member, diagnosed 15 years ago with GS9 at

age 70: now 85 he is having some pain problems

All the best

Terry Herbert

I have no medical qualifications but I was diagnosed

in ‘96: and have learned a bit since then.

My sites are at www.yananow.net

and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a

physician, I am painfully aware that most of the decisions we make with regard

to prostate cancer are made with inadequate data "