Guest guest Posted June 21, 2009 Report Share Posted June 21, 2009 I have been running a non-commercial website - You Are Not Alone Now www.yananow.net for a number of years now. The first section is aimed at newly diagnosed men and their supporters. It gives some basic information in plain language with links to more complex and technical sites and is accessed by using the link www.yananow.net and hitting the Don’t Panic button. The second section of the site of the site was set up in the belief that there is tremendous value in reading of other people's experiences with prostate cancer and also recognition that it might be helpful men diagnosed with PCa (and their families or partners) find someone to 'talk' to; someone who had dealt with the same issues and problems. Contributors are encouraged to update their stories at least once a year. The current week’s list of new contributors and updates is below, including mine! Having had my latest PSA test, I’m off for four weeks holiday to see family and friends and to celebrate a significant birthday with my darling wife – an event we never thought we see together 13 years ago!! There is life after prostate cancer, folks. I’m here to tell you thatJ NEW STORIES: http://www.yananow.net/Mentors/M.htm RONALD MITCHELL - chose RALP and is doing fine after his surgery in January http://www.yananow.net/Mentors/GeneK.htm GENE KOSHIOL - had positive margins after RALP and is now exploring his options http://www.yananow.net/Mentors/DennisC.htm DENNIS CARLISLE - diagnosed with aggressive disease generating low PSA http://www.yananow.net/Mentors/MarkK.htm MARK K - chose Surgery and cannot speak too highly of his experience at s Hopkins UPDATES TO EXISTING STORIES http://www.yananow.net/Mentors/RalphB.htm RALPH BESNOY – a Silver member heading into his eight year after surgery with an undetectable PSA http://www.yananow.net/Mentors/BillA.htm BILL ABRAHAM - has decided on RALP and intends having surgery in September http://www.yananow.net/Mentors/SteveO.htm STEVE OSWALT - has decided on RALP and has booked in for surgery in July http://www.yananow.net/Mentors/DaleS.htm DALE SWANSON – has decided on surgery and is now evaluating surgeons http://www.yananow.net/Mentors/ReinhartP.htm REINHART POLLER – two years after his proton beam therapy and his PSA is 0.55 with no side effects http://www.yananow.net/Mentors/TonyJ.htm TONY JUPP - four years after his manual laparoscopic surgery he has some small problems http://www.yananow.net/Mentors/RonT.htm RON T has just had a PSA test after his HIFU and is very happy with 0.4 ng/ml with no side effects http://www.yananow.net/Mentors/phK2.htm JOSEPH KING recovering from RALP – good tale, well told, with amusing comments from Pam http://www.yananow.net/Mentors/TonyS.htm TONY SHORES - looking forward to his ADT holiday after seeing his PSA fall from 98.8 http://www.yananow.net/Mentors/L2.htm JOHN LEMLEY has opted for Active Surveillance for the present http://www.yananow.net/Mentors/DaveK.htm DAVE K - had his surgery earlier this month and is overwhelmed by people’s kindness http://www.yananow.net/Mentors/JerryB.htm JERRY BRAAM - 16 months after his RALP he is down to two pads a day and feels his incontinence is coming right http://www.yananow.net/Mentors/CBB.htm CB BUNTING III - recovering from his surgery – clear margins – and waiting for his first PSA http://www.yananow.net/Mentors/TonyC2.htm TONY CRISPINO - after 2 years with an undetectable PSA he was looking forward to an ADT ‘holiday’, but… http://www.yananow.net/Mentors/AndyR.htm ANDY RIPLEY - PSA still rocketing upwards – now 2625.0 http://www.yananow.net/Mentors/JimW.htm JIM WADE - having EBRT therapy after failed surgery and is looking for input on PSA spiking http://www.yananow.net/Mentors/L.htm MICHAEL L - has decided to have RALP http://www.yananow.net/Mentors/T.htm JOHN THOMPSON - has had his seed implants and starts on EBRT at the end of June http://www.yananow.net/Mentors/TerryH.htm TERRY HERBERT - latest PSA is 1.20 ng/ml, so he’s staying on ADT holiday – and going on holiday http://www.yananow.net/Mentors/HareshK.htm HARESH K - gives a bit more background to his diagnosis http://www.yananow.net/Mentors/GraemeW.htm GRAEME WILSON - has just hit Silver status and is happy with the outcome of his brachytherapy http://www.yananow.net/Mentors/DennisD.htm DENNIS DENNISISSURE - is rejoicing because three years after his surgery he is continent again There are now almost 700 stories covering all currently available treatment options on the site, providing an insight into how the contributors have dealt with the issues that others now face. They can be accessed by choice of treatment, year of diagnosis, age, PSA or Gleason Score at diagnosis and by country in which the contributor resides at this URL http://www.yananow.net/Experiences.html .. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " Quote Link to comment Share on other sites More sharing options...
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