Re: I NEED ADVICE

[Guest guest]

Hello Sally

Get your husbands vitamin D levels checked. There is a good deal of data suggesting that low levels predispose to the disease and affect outcomes. take a look at www.vitaminD3world.com under cancer treatment. Also sign up for the sites newsletter, they are following a number of trials using high dose vitmain d and issues updates when the results come out

good luck

Mike

To: ProstateCancerSupport Sent: Monday, March 16, 2009 6:25:19 PMSubject: I NEED ADVICE

HI, everyone,When my husband was first diagnosed with Prostate cancer in August/2005 his Gleason was 4-3. He chose a nerve sparing lapro-surgery. At the time all this was happening, I really didn't even know what a prostate was, let alone the choices he was making. I found out that my husband had been aware of an increasing PSA for two years before we went for a routine physical and our doctor told him to immediately get a biopsy with a urologist. My wonderful husband of then 35 years even kept that a secret and did not make an appointment. Our doctor followed up one Friday evening with a phone call to tell me that my husband had not made an appointment with the urologist! Talk about the beginning of a nightmare. I was with him when he had the biopsy, and I have been with him at every appointment, surgery, radiation, and consultations. We have sought the best advice, found the best doctors, and I think I have Prostate for Dummies memorized.

This has taken place over a period of now 3 1/2 years. His PSA is rising. It has never stopped rising. After his surgery, when his PSA and results of the post-op biopsy, we chose to follow up with radiation. After the radiation, which was in 2006, the PSA was at 0.07 and last week it is at 0.65. Three months ago it was at 0.4. He still believes that PSA can exist and is not necessarily related to the cancer. Is this true or is this a myth? Is it possible to have PSA after all of this and NOT have it mean that there is cancer somewhere in his body? These last few years can best be described as taking the happiest couple and putting them into the twilight zone and not letting them out. I still have no clue how a man thinks about all of this and we have been married for 37 years. He always makes the best of what is happening and I don't know if he is ignoring the latest increase in PSA or not. Women talk about everything, and men tend to

keep things private. I understand that there is a difference in the way we think. The effects from the radiation were awful to watch him go through. But, He is positive, happy, and quietly switched from playing golf, because of leakage and other problems that related to radiation, to setting a goal to become a world class soaring pilot for the rest of his life. He wants to live to be 100. I decided to enter this site because I would like to hear from someone who has taken this path, and tell me what is ahead for us right now? When do you seek out other options? Is hormone therapy worth it? Is chemotherapy worth it? Would it be better to just wait another 3 months for another test? Or six months? Do I bring this up to him? Do I just let him live his life the way he chooses and try and forget this is happening? He is now 58. Am I making too much out of this increase in PSA? Do you wait until it gets to be 20 or 40? If any

of you would like to share advice I am listening. I want him to live to be 100,too!Sally