Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 I found the following article online. As I was reading that " General health and vitality perception were most consistently impaired in the patients with 's disease " and that " Patients with autoimmune polyendocrine syndromes tended to have lower scores [of fatigue] than patients with solitary 's disease. The level of fatigue was higher than normal for both men and women " , I wanted to say, " DUH! " Why does it take a study to realize this??? However, the last sentence was most interesting: " There might be potential for further refinement of replacement therapy. " I agree. It seems that hydrocortisone keeps up alive, but what can help us regain our quality of life? It is so discouraging to think that we might always feel this tired, that we'll never be able to spend a Saturday cleaning the house without being wiped out for a week, or that the holidays will always be a stuggle. I think it should be all of our goal to not only keep us alive but help us regain quality of life. It must be possible! But how??? Hmm... ~Anne --------------------------- http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?itool=abstractplus & db=pubmed & cmd=R\ etrieve & dopt=abstractplus & list_uids=12030907 OBJECTIVE: Many patients with 's disease have complaints that might be related to the disease or to its treatment. However, only a few studies have addressed the subjective health status of patients with adrenocortical failure. The aim of the present study was to assess the subjective health status with special emphasis on fatigue among patients with 's disease. SUBJECTS, DESIGN AND MEASUREMENT: In a postal survey, 79 patients with confirmed primary adrenal failure ('s disease) completed the Short Form 36 (SF-36) and the Fatigue questionnaires. The subjective health status in 's disease was compared with normative data from the general population. RESULTS: General health and vitality perception were most consistently impaired in the patients with 's disease. The scores on physical functioning and role-physical were low in women. Social functioning and role-emotional scores were also lower than normal in the female patients, but this was confined to the patients with autoimmune polyendocrine syndromes. Patients with autoimmune polyendocrine syndromes tended to have lower scores than patients with solitary 's disease. The level of fatigue was higher than normal for both men and women. Working disability at ages 18-67 years was 26%, compared with 10% in the corresponding general Norwegian population. The high working disability increased with age and was higher in subgroups with concomitant endocrine diseases. Most subjective health parameters were lower among the disabled compared to the patients in work. CONCLUSIONS: Patients with 's disease under replacement therapy with cortisone acetate and fludrocortisone have reduced general health perception and vitality, and increased fatigue. Female patients reported reduced physical function, which might be due to adrenal androgen depletion. Mental health seems more influenced by concomitant endocrine diseases, but mental fatigue might be a specific feature in adrenal failure. The patient population is heterogeneous, with normal findings in a substantial proportion but markedly reduced subjective health status and working ability in many others. Thus, there might be potential for further refinement of replacement therapy. PMID: 12030907 [PubMed - indexed for MEDLINE] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Have hope! Since treatng my adrnals and weaning off HC and now gettign the Diabetes under good control, I am FINALLY beginning to feel the energy and drive returning. It has been a LONG time coming. Since my early 20's and I am 52 now. But the good days are comign back and my zest for life is returning. This after being at the brink brink of death from hypothyriodism and heart failure, and now the Diabetes complication and adrenal fatigue. Keep on hoping. -- Artistic Grooming- Hurricane WV My Ebay Jewelry Store (Closing after Xmas!!!) http://stores.ebay.com/valeriescrystalcreations http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Val, I've been meaning to ask you for a while whether you feel you needed to treat adrenals just so you could tolerate and optimize thyroid, and if that's why your adrenals were shot, or if you trashed your adrenals from prolonged stress, fight or flight, etc. Also, do you believe there are people with non-addison's adrenal insufficiency who need Cortef for life or can they all " treat " their adrenal fatigue and eventually come off it? I'm still undecided about myself... Re: quality of life Have hope! Since treatng my adrnals and weaning off HC and now gettign the Diabetes under good control, I am FINALLY beginning to feel the energy and drive returning. It has been a LONG time coming. Since my early 20's and I am 52 now. But the good days are comign back and my zest for life is returning. This after being at the brink brink of death from hypothyriodism and heart failure, and now the Diabetes complication and adrenal fatigue. Keep on hoping. -- Artistic Grooming- Hurricane WV My Ebay Jewelry Store (Closing after Xmas!!!) http://stores.ebay.com/valeriescrystalcreations http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 >>I've been meaning to ask you for a while whether you feel you needed to treat adrenals just so you could tolerate and optimize thyroid, and if that's why your adrenals were shot, or if you trashed your adrenals from prolonged stress, fight or flight, etc. Also, do you believe there are people with non-addison's adrenal insufficiency who need Cortef for life or can they all " treat " their adrenal fatigue and eventually come off it? I'm still undecided about myself...<< I never had a problem tolerating Armoru it just wasn;t doing me any good. I got up to 10 grains at one point and still had below range T3. Even taking extra T3 didn't get my T3 above the bottom of it;s range until I took HC. I believe 30 years of undertreated hypo with syncrap did most this damage, added in extreme stress with the last boyfriend where my life was in danger for the last 4 years i lived with him. It was when I finally moved out of that situation that everything in my body crashed. I am sure that was when my adrenals went from coping to crap. Yes I do believe there are people with adrenal insufficiency that cannot recover and will have to remian on HC the rest of their lives. I think thta has to do with how severe their adrenal fatigue is and how long left untreated or undertreated. -- Artistic Grooming- Hurricane WV My Ebay Jewelry Store (Closing after Xmas!!!) http://stores.ebay.com/valeriescrystalcreations http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 >>I've been meaning to ask you for a while whether you feel you needed to treat adrenals just so you could tolerate and optimize thyroid, and if that's why your adrenals were shot, or if you trashed your adrenals from prolonged stress, fight or flight, etc. Also, do you believe there are people with non-addison's adrenal insufficiency who need Cortef for life or can they all " treat " their adrenal fatigue and eventually come off it? I'm still undecided about myself...<< I never had a problem tolerating Armoru it just wasn;t doing me any good. I got up to 10 grains at one point and still had below range T3. Even taking extra T3 didn't get my T3 above the bottom of it;s range until I took HC. I believe 30 years of undertreated hypo with syncrap did most this damage, added in extreme stress with the last boyfriend where my life was in danger for the last 4 years i lived with him. It was when I finally moved out of that situation that everything in my body crashed. I am sure that was when my adrenals went from coping to crap. Yes I do believe there are people with adrenal insufficiency that cannot recover and will have to remian on HC the rest of their lives. I think thta has to do with how severe their adrenal fatigue is and how long left untreated or undertreated. -- Artistic Grooming- Hurricane WV My Ebay Jewelry Store (Closing after Xmas!!!) http://stores.ebay.com/valeriescrystalcreations http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 >>I've been meaning to ask you for a while whether you feel you needed to treat adrenals just so you could tolerate and optimize thyroid, and if that's why your adrenals were shot, or if you trashed your adrenals from prolonged stress, fight or flight, etc. Also, do you believe there are people with non-addison's adrenal insufficiency who need Cortef for life or can they all " treat " their adrenal fatigue and eventually come off it? I'm still undecided about myself...<< I never had a problem tolerating Armoru it just wasn;t doing me any good. I got up to 10 grains at one point and still had below range T3. Even taking extra T3 didn't get my T3 above the bottom of it;s range until I took HC. I believe 30 years of undertreated hypo with syncrap did most this damage, added in extreme stress with the last boyfriend where my life was in danger for the last 4 years i lived with him. It was when I finally moved out of that situation that everything in my body crashed. I am sure that was when my adrenals went from coping to crap. Yes I do believe there are people with adrenal insufficiency that cannot recover and will have to remian on HC the rest of their lives. I think thta has to do with how severe their adrenal fatigue is and how long left untreated or undertreated. -- Artistic Grooming- Hurricane WV My Ebay Jewelry Store (Closing after Xmas!!!) http://stores.ebay.com/valeriescrystalcreations http://www.stopthethyroidmadness.com/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.