Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 WELCOME, . :-) Donna Lay - Florida teresa_l23 wrote:Hello everyone...I am new to this group. Like most everyone in here I made the mistake of getting my tubes tied, I was only 17 when I married my ex-husband and he was irresponsible and wouldnt get/keep a job we had 4 beautiful children in just 5 yrs I was 22 when my tubes were tied. I was pressured by family to do it, I regretted it the day after...I felt broken! After 12 years of trying to keep the marriage going by myself, and him not working, I found out he had cheated on me several times so I moved out and moved on. I met my husband online he is a wonderful stepdaddy, and of course we are ready for a TR. We are in the saving-up stage, so its gonna be a while! The posts are very exciting and motivational! Thank you all for sharing your experiences!!! Lane Levy (husband) Camille (daughter) (daughter) (son) (daughter) TL 3-1-95 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 WELCOME, . :-) Donna Lay - Florida teresa_l23 wrote:Hello everyone...I am new to this group. Like most everyone in here I made the mistake of getting my tubes tied, I was only 17 when I married my ex-husband and he was irresponsible and wouldnt get/keep a job we had 4 beautiful children in just 5 yrs I was 22 when my tubes were tied. I was pressured by family to do it, I regretted it the day after...I felt broken! After 12 years of trying to keep the marriage going by myself, and him not working, I found out he had cheated on me several times so I moved out and moved on. I met my husband online he is a wonderful stepdaddy, and of course we are ready for a TR. We are in the saving-up stage, so its gonna be a while! The posts are very exciting and motivational! Thank you all for sharing your experiences!!! Lane Levy (husband) Camille (daughter) (daughter) (son) (daughter) TL 3-1-95 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 WELCOME, . :-) Donna Lay - Florida teresa_l23 wrote:Hello everyone...I am new to this group. Like most everyone in here I made the mistake of getting my tubes tied, I was only 17 when I married my ex-husband and he was irresponsible and wouldnt get/keep a job we had 4 beautiful children in just 5 yrs I was 22 when my tubes were tied. I was pressured by family to do it, I regretted it the day after...I felt broken! After 12 years of trying to keep the marriage going by myself, and him not working, I found out he had cheated on me several times so I moved out and moved on. I met my husband online he is a wonderful stepdaddy, and of course we are ready for a TR. We are in the saving-up stage, so its gonna be a while! The posts are very exciting and motivational! Thank you all for sharing your experiences!!! Lane Levy (husband) Camille (daughter) (daughter) (son) (daughter) TL 3-1-95 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 welcome to the list.... mom to 11 months old CHARGE http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2002 Report Share Posted September 7, 2002 Dear & , I'm the Mom of a 15 month old CHARGEr and we live in sville, NC. If you are close I would love to meet you and and talk about what you have experienced. You can contact me via my private email at hugginss@.... Huggins Wife to Robin, Mom to Hailey (5) and Jillyan (15 mos) NEWBIE I AM A NEW MEMBER TO THIS GROUP, AND HAVE AN EIGHT YOLD SON, jERMEY WHO HAS CHARGE, I WOULD LOVE TO CHAT WITH MOM'S AND DAD'S, OF CHILDREN WITH CHARGE, I HAVE EIGHT YEARS EXPERIENCE, BUT LEARN SOMETHING NEW EVERY DAY, WOULD LOVE TO HEAR MORE STORIES, AND SHARE MINE, IM IN NC IF ANY ONE LOCAL COULD REPLY WOULD LOVE TO HEAR FROM YA, THANKS KELLY & JEREMY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 We are about 2 hours from Raleigh. Sometimes we tag along with my husband on business if it is around a time when my oldest is out of school. If we are ever in your neck of the woods I'll drop you an email to let you know. Huggin NEWBIE I AM A NEW MEMBER TO THIS GROUP, AND HAVE AN EIGHT YOLD SON, jERMEY WHO HAS CHARGE, I WOULD LOVE TO CHAT WITH MOM'S AND DAD'S, OF CHILDREN WITH CHARGE, I HAVE EIGHT YEARS EXPERIENCE, BUT LEARN SOMETHING NEW EVERY DAY, WOULD LOVE TO HEAR MORE STORIES, AND SHARE MINE, IM IN NC IF ANY ONE LOCAL COULD REPLY WOULD LOVE TO HEAR FROM YA, THANKS KELLY & JEREMY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2002 Report Share Posted September 8, 2002 We are about 2 hours from Raleigh. Sometimes we tag along with my husband on business if it is around a time when my oldest is out of school. If we are ever in your neck of the woods I'll drop you an email to let you know. Huggin NEWBIE I AM A NEW MEMBER TO THIS GROUP, AND HAVE AN EIGHT YOLD SON, jERMEY WHO HAS CHARGE, I WOULD LOVE TO CHAT WITH MOM'S AND DAD'S, OF CHILDREN WITH CHARGE, I HAVE EIGHT YEARS EXPERIENCE, BUT LEARN SOMETHING NEW EVERY DAY, WOULD LOVE TO HEAR MORE STORIES, AND SHARE MINE, IM IN NC IF ANY ONE LOCAL COULD REPLY WOULD LOVE TO HEAR FROM YA, THANKS KELLY & JEREMY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2002 Report Share Posted September 14, 2002 Hi kelly, I am a 48 year old charger. I suppose that means I have 48 years of experience but not sure since I've only known about the diagnosis for less than a year now. mary Kay NEWBIE > I AM A NEW MEMBER TO THIS GROUP, AND HAVE AN EIGHT YOLD SON, jERMEY > WHO HAS CHARGE, I WOULD LOVE TO CHAT WITH MOM'S AND DAD'S, OF > CHILDREN WITH CHARGE, I HAVE EIGHT YEARS EXPERIENCE, BUT LEARN > SOMETHING NEW EVERY DAY, WOULD LOVE TO HEAR MORE STORIES, AND SHARE > MINE, IM IN NC IF ANY ONE LOCAL COULD REPLY WOULD LOVE TO HEAR FROM > YA, > THANKS KELLY & JEREMY > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 bethany - welcome! how did you end up having your ob check the labs? you were more fortunate than me - i wish i had paid more attention to the symptoms and went further but i had just got off the pill to try to get pg when it all started and she said it would take a couple months for perrriods etc to regulate then of course i was packing on the weight fast and expressing my concern and long story short it took her 8 months and a good 75 lbs later to do a hormone blood check - i was hypoT - got on synthroid and lost 35 lbs then got pg (LOL) then i had a baby 2/19/2003 and got messed up with her - went into hashi'sT so they took me off my meds andd saiddd go see your dr 2 weeks later - my TSH was 74 by then and i could barely get out of bed....its been a constant struggle since and its now progressed into hashi's encephalopathy and i'm being treated ffor that - and like you said with 2 little kids there isn't time for mommy to be sick plus i have this usually understanding husband who at times gets fed up of me and gets mean but i will get through this as we all will........sorry to run on like that - seems to be a side effect of my meds lately. i'm glad you found the group - its the best thing thats ever happened to me. visit our website www.geocities.com/tanyarn96/countryside.html www.poncetihomes.com -- Newbie Hello. My name is Bethany e, I am married and have 3 young children...I have no time for fatigue! LOL I found this group through doing a search on the internet and am hoping to find some answers. I have almost all of the symptoms of hypothyroidism...yet my blood tests aren't showing a problem. I just got the test results back yesterday from my ob, she will call back on Mon and I'm going to ask what the numbers are. There's a checklist on a thyroid site and I have almost all the symptoms, that's why I find myself so stumped and frustrated and even confused about all of this. It's very frustrating, actually.Anyway, thank you for letting me join, especially since I haven't been diagnosed or anything yet. Bethany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 bethany - welcome! how did you end up having your ob check the labs? you were more fortunate than me - i wish i had paid more attention to the symptoms and went further but i had just got off the pill to try to get pg when it all started and she said it would take a couple months for perrriods etc to regulate then of course i was packing on the weight fast and expressing my concern and long story short it took her 8 months and a good 75 lbs later to do a hormone blood check - i was hypoT - got on synthroid and lost 35 lbs then got pg (LOL) then i had a baby 2/19/2003 and got messed up with her - went into hashi'sT so they took me off my meds andd saiddd go see your dr 2 weeks later - my TSH was 74 by then and i could barely get out of bed....its been a constant struggle since and its now progressed into hashi's encephalopathy and i'm being treated ffor that - and like you said with 2 little kids there isn't time for mommy to be sick plus i have this usually understanding husband who at times gets fed up of me and gets mean but i will get through this as we all will........sorry to run on like that - seems to be a side effect of my meds lately. i'm glad you found the group - its the best thing thats ever happened to me. visit our website www.geocities.com/tanyarn96/countryside.html www.poncetihomes.com -- Newbie Hello. My name is Bethany e, I am married and have 3 young children...I have no time for fatigue! LOL I found this group through doing a search on the internet and am hoping to find some answers. I have almost all of the symptoms of hypothyroidism...yet my blood tests aren't showing a problem. I just got the test results back yesterday from my ob, she will call back on Mon and I'm going to ask what the numbers are. There's a checklist on a thyroid site and I have almost all the symptoms, that's why I find myself so stumped and frustrated and even confused about all of this. It's very frustrating, actually.Anyway, thank you for letting me join, especially since I haven't been diagnosed or anything yet. Bethany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 bethany - welcome! how did you end up having your ob check the labs? you were more fortunate than me - i wish i had paid more attention to the symptoms and went further but i had just got off the pill to try to get pg when it all started and she said it would take a couple months for perrriods etc to regulate then of course i was packing on the weight fast and expressing my concern and long story short it took her 8 months and a good 75 lbs later to do a hormone blood check - i was hypoT - got on synthroid and lost 35 lbs then got pg (LOL) then i had a baby 2/19/2003 and got messed up with her - went into hashi'sT so they took me off my meds andd saiddd go see your dr 2 weeks later - my TSH was 74 by then and i could barely get out of bed....its been a constant struggle since and its now progressed into hashi's encephalopathy and i'm being treated ffor that - and like you said with 2 little kids there isn't time for mommy to be sick plus i have this usually understanding husband who at times gets fed up of me and gets mean but i will get through this as we all will........sorry to run on like that - seems to be a side effect of my meds lately. i'm glad you found the group - its the best thing thats ever happened to me. visit our website www.geocities.com/tanyarn96/countryside.html www.poncetihomes.com -- Newbie Hello. My name is Bethany e, I am married and have 3 young children...I have no time for fatigue! LOL I found this group through doing a search on the internet and am hoping to find some answers. I have almost all of the symptoms of hypothyroidism...yet my blood tests aren't showing a problem. I just got the test results back yesterday from my ob, she will call back on Mon and I'm going to ask what the numbers are. There's a checklist on a thyroid site and I have almost all the symptoms, that's why I find myself so stumped and frustrated and even confused about all of this. It's very frustrating, actually.Anyway, thank you for letting me join, especially since I haven't been diagnosed or anything yet. Bethany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Welcome, Bethany. Do you have copies of your tests? Odds are the docs aren't even ordering the right tests... Jan Bethany e wrote: >Hello. My name is Bethany e, I am married and have 3 young >children...I have no time for fatigue! LOL I found this group >through doing a search on the internet and am hoping to find some >answers. I have almost all of the symptoms of hypothyroidism...yet >my blood tests aren't showing a problem. I just got the test >results back yesterday from my ob, she will call back on Mon and I'm >going to ask what the numbers are. There's a checklist on a thyroid >site and I have almost all the symptoms, that's why I find myself so >stumped and frustrated and even confused about all of this. It's >very frustrating, actually. > >Anyway, thank you for letting me join, especially since I haven't >been diagnosed or anything yet. > >Bethany > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Welcome, Bethany. Do you have copies of your tests? Odds are the docs aren't even ordering the right tests... Jan Bethany e wrote: >Hello. My name is Bethany e, I am married and have 3 young >children...I have no time for fatigue! LOL I found this group >through doing a search on the internet and am hoping to find some >answers. I have almost all of the symptoms of hypothyroidism...yet >my blood tests aren't showing a problem. I just got the test >results back yesterday from my ob, she will call back on Mon and I'm >going to ask what the numbers are. There's a checklist on a thyroid >site and I have almost all the symptoms, that's why I find myself so >stumped and frustrated and even confused about all of this. It's >very frustrating, actually. > >Anyway, thank you for letting me join, especially since I haven't >been diagnosed or anything yet. > >Bethany > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Welcome, Bethany. Do you have copies of your tests? Odds are the docs aren't even ordering the right tests... Jan Bethany e wrote: >Hello. My name is Bethany e, I am married and have 3 young >children...I have no time for fatigue! LOL I found this group >through doing a search on the internet and am hoping to find some >answers. I have almost all of the symptoms of hypothyroidism...yet >my blood tests aren't showing a problem. I just got the test >results back yesterday from my ob, she will call back on Mon and I'm >going to ask what the numbers are. There's a checklist on a thyroid >site and I have almost all the symptoms, that's why I find myself so >stumped and frustrated and even confused about all of this. It's >very frustrating, actually. > >Anyway, thank you for letting me join, especially since I haven't >been diagnosed or anything yet. > >Bethany > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Hi , Welcome I've not been through the surgery, and no cancer.. but I've been through RAI. They had to kill my gland, I was in thyroid storm. That was about 15 years ago. Getting rid of the entire gland via surgery and RAI should have gotten all of it... so they'll just monitor for any new activity of thyroid tissue... they may repeat the RAI if there is. For now, you body is going to do some adjusting. How were your thyroid levels before surgery? Were you hyper or hypo? Some docs handle this next part by adding thyroid medication right away, some wait for a while to see if the thyroid kicks back in, signalling that they didn't kill all of it... So it depends on your doc and how everything looked. Do you know yet which medication your doc will put you on? Most choose the synthetics, like Synthroid... but the better choice for those of us with no thyroid function is Natural Thyroid, like Armour... it gives us all the components that our own glands did while they were still working. The next step, most likely will be labs to see what your thyroid hormone levels are doing... Request copies of those, and we'll help you to understand what the numbers mean. We're here to help with questions... or to listen to you scream.. which ever may happen to come along... Welcome. Topper () On Mon, 06 Sep 2004 22:36:22 -0000 "sweetjennyaz" writes: Hello, My name is and I was diagnosed with Thyroid Cancer about 6 months ago. I beleive that I have had it longer but none of the tests came back positive. It started when I felt a lump on my neck and went downhill from there. I then had the biopsy, 2 surgeries to remove both sides and I just had my radiation Iodine last week. Im hoping that this is it but I still am feeling really lousy. Im 25 yrs old and used to being so active and now I feel like sleeping and puking all the time!!!! I hope you can shed some light on how long before you feel "normal" because I am getting really depressed about the whole thing. Please help me understand my symptoms and it would be nice to talk to someone who has been through the same things.Thank you Mesa, Arizona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Hi , Welcome I've not been through the surgery, and no cancer.. but I've been through RAI. They had to kill my gland, I was in thyroid storm. That was about 15 years ago. Getting rid of the entire gland via surgery and RAI should have gotten all of it... so they'll just monitor for any new activity of thyroid tissue... they may repeat the RAI if there is. For now, you body is going to do some adjusting. How were your thyroid levels before surgery? Were you hyper or hypo? Some docs handle this next part by adding thyroid medication right away, some wait for a while to see if the thyroid kicks back in, signalling that they didn't kill all of it... So it depends on your doc and how everything looked. Do you know yet which medication your doc will put you on? Most choose the synthetics, like Synthroid... but the better choice for those of us with no thyroid function is Natural Thyroid, like Armour... it gives us all the components that our own glands did while they were still working. The next step, most likely will be labs to see what your thyroid hormone levels are doing... Request copies of those, and we'll help you to understand what the numbers mean. We're here to help with questions... or to listen to you scream.. which ever may happen to come along... Welcome. Topper () On Mon, 06 Sep 2004 22:36:22 -0000 "sweetjennyaz" writes: Hello, My name is and I was diagnosed with Thyroid Cancer about 6 months ago. I beleive that I have had it longer but none of the tests came back positive. It started when I felt a lump on my neck and went downhill from there. I then had the biopsy, 2 surgeries to remove both sides and I just had my radiation Iodine last week. Im hoping that this is it but I still am feeling really lousy. Im 25 yrs old and used to being so active and now I feel like sleeping and puking all the time!!!! I hope you can shed some light on how long before you feel "normal" because I am getting really depressed about the whole thing. Please help me understand my symptoms and it would be nice to talk to someone who has been through the same things.Thank you Mesa, Arizona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Hi , Welcome I've not been through the surgery, and no cancer.. but I've been through RAI. They had to kill my gland, I was in thyroid storm. That was about 15 years ago. Getting rid of the entire gland via surgery and RAI should have gotten all of it... so they'll just monitor for any new activity of thyroid tissue... they may repeat the RAI if there is. For now, you body is going to do some adjusting. How were your thyroid levels before surgery? Were you hyper or hypo? Some docs handle this next part by adding thyroid medication right away, some wait for a while to see if the thyroid kicks back in, signalling that they didn't kill all of it... So it depends on your doc and how everything looked. Do you know yet which medication your doc will put you on? Most choose the synthetics, like Synthroid... but the better choice for those of us with no thyroid function is Natural Thyroid, like Armour... it gives us all the components that our own glands did while they were still working. The next step, most likely will be labs to see what your thyroid hormone levels are doing... Request copies of those, and we'll help you to understand what the numbers mean. We're here to help with questions... or to listen to you scream.. which ever may happen to come along... Welcome. Topper () On Mon, 06 Sep 2004 22:36:22 -0000 "sweetjennyaz" writes: Hello, My name is and I was diagnosed with Thyroid Cancer about 6 months ago. I beleive that I have had it longer but none of the tests came back positive. It started when I felt a lump on my neck and went downhill from there. I then had the biopsy, 2 surgeries to remove both sides and I just had my radiation Iodine last week. Im hoping that this is it but I still am feeling really lousy. Im 25 yrs old and used to being so active and now I feel like sleeping and puking all the time!!!! I hope you can shed some light on how long before you feel "normal" because I am getting really depressed about the whole thing. Please help me understand my symptoms and it would be nice to talk to someone who has been through the same things.Thank you Mesa, Arizona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Are you saying that you now have no thyroid at all, right? Which thyroid disease were you diagnosed with? What are your most recent thyroid lab results, and what is your doctor's plan of action with you, since your last surgery? Are you on any thyroid med right now, or are they waiting on this? Were you hypo or hyper during a time before your surgeries? So many questions, I know, but necessary to get started here. Have you had your ferritin (amt of iron in storage, NOT serum iron), B12, Folic Acid, or any other tests done to see if you have a nutritional deficiency, which is very common with long ongoing chronic thyroid disease. I have to assume that you had some form of thyroid disorder way before the cancer was discovered, either undetected or detected and undertreated, maybe? Newbie > Hello, My name is and I was diagnosed with Thyroid Cancer > about 6 months ago. I beleive that I have had it longer but none of > the tests came back positive. It started when I felt a lump on my > neck and went downhill from there. I then had the biopsy, 2 > surgeries to remove both sides and I just had my radiation Iodine > last week. Im hoping that this is it but I still am feeling really > lousy. Im 25 yrs old and used to being so active and now I feel like > sleeping and puking all the time!!!! I hope you can shed some light > on how long before you feel " normal " because I am getting really > depressed about the whole thing. Please help me understand my > symptoms and it would be nice to talk to someone who has been through > the same things. > > Thank you > > Mesa, Arizona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Are you saying that you now have no thyroid at all, right? Which thyroid disease were you diagnosed with? What are your most recent thyroid lab results, and what is your doctor's plan of action with you, since your last surgery? Are you on any thyroid med right now, or are they waiting on this? Were you hypo or hyper during a time before your surgeries? So many questions, I know, but necessary to get started here. Have you had your ferritin (amt of iron in storage, NOT serum iron), B12, Folic Acid, or any other tests done to see if you have a nutritional deficiency, which is very common with long ongoing chronic thyroid disease. I have to assume that you had some form of thyroid disorder way before the cancer was discovered, either undetected or detected and undertreated, maybe? Newbie > Hello, My name is and I was diagnosed with Thyroid Cancer > about 6 months ago. I beleive that I have had it longer but none of > the tests came back positive. It started when I felt a lump on my > neck and went downhill from there. I then had the biopsy, 2 > surgeries to remove both sides and I just had my radiation Iodine > last week. Im hoping that this is it but I still am feeling really > lousy. Im 25 yrs old and used to being so active and now I feel like > sleeping and puking all the time!!!! I hope you can shed some light > on how long before you feel " normal " because I am getting really > depressed about the whole thing. Please help me understand my > symptoms and it would be nice to talk to someone who has been through > the same things. > > Thank you > > Mesa, Arizona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Are you saying that you now have no thyroid at all, right? Which thyroid disease were you diagnosed with? What are your most recent thyroid lab results, and what is your doctor's plan of action with you, since your last surgery? Are you on any thyroid med right now, or are they waiting on this? Were you hypo or hyper during a time before your surgeries? So many questions, I know, but necessary to get started here. Have you had your ferritin (amt of iron in storage, NOT serum iron), B12, Folic Acid, or any other tests done to see if you have a nutritional deficiency, which is very common with long ongoing chronic thyroid disease. I have to assume that you had some form of thyroid disorder way before the cancer was discovered, either undetected or detected and undertreated, maybe? Newbie > Hello, My name is and I was diagnosed with Thyroid Cancer > about 6 months ago. I beleive that I have had it longer but none of > the tests came back positive. It started when I felt a lump on my > neck and went downhill from there. I then had the biopsy, 2 > surgeries to remove both sides and I just had my radiation Iodine > last week. Im hoping that this is it but I still am feeling really > lousy. Im 25 yrs old and used to being so active and now I feel like > sleeping and puking all the time!!!! I hope you can shed some light > on how long before you feel " normal " because I am getting really > depressed about the whole thing. Please help me understand my > symptoms and it would be nice to talk to someone who has been through > the same things. > > Thank you > > Mesa, Arizona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Welcome ! I'm Deb, 46, from Colorado and recently diagnosed with Fibro. You will like it here! Hugs, Deb in Co. ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ " All we have to do is decide what to do with the time that is given us. " ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ > My name is , I live in Syracuse,NY " snow country " ... I am > 56years old and have had fibromyalgia for 3years. My brother who is > 54 also has it also. I have been married for 31years and have a > 17year old daughter. I have 4 dogs. My husband works two jobs because > I can't work and I homeschooled my daughter until last december and > then she graduated early. I feel very lonely because there isn't > anybody that understands what I have. It's almost like if you look > okay you feel okay. I have pain most days. I have IBS. Most of my > hearing is gone in my right ear, I say because of fibro the hearing > doctor says no. But my brother needs hearing aides to hear with. I > feel like I'm on a merry go round with doctors. So far I haven't had > any that really understand. I am glad I found this group and > everyone here knows how we feel. > -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.300 / Virus Database: 266.6.0 - Release Date: 3/2/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Welcome ! I'm Deb, 46, from Colorado and recently diagnosed with Fibro. You will like it here! Hugs, Deb in Co. ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ " All we have to do is decide what to do with the time that is given us. " ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ > My name is , I live in Syracuse,NY " snow country " ... I am > 56years old and have had fibromyalgia for 3years. My brother who is > 54 also has it also. I have been married for 31years and have a > 17year old daughter. I have 4 dogs. My husband works two jobs because > I can't work and I homeschooled my daughter until last december and > then she graduated early. I feel very lonely because there isn't > anybody that understands what I have. It's almost like if you look > okay you feel okay. I have pain most days. I have IBS. Most of my > hearing is gone in my right ear, I say because of fibro the hearing > doctor says no. But my brother needs hearing aides to hear with. I > feel like I'm on a merry go round with doctors. So far I haven't had > any that really understand. I am glad I found this group and > everyone here knows how we feel. > -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.300 / Virus Database: 266.6.0 - Release Date: 3/2/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Welcome ! I'm Deb, 46, from Colorado and recently diagnosed with Fibro. You will like it here! Hugs, Deb in Co. ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ " All we have to do is decide what to do with the time that is given us. " ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ > My name is , I live in Syracuse,NY " snow country " ... I am > 56years old and have had fibromyalgia for 3years. My brother who is > 54 also has it also. I have been married for 31years and have a > 17year old daughter. I have 4 dogs. My husband works two jobs because > I can't work and I homeschooled my daughter until last december and > then she graduated early. I feel very lonely because there isn't > anybody that understands what I have. It's almost like if you look > okay you feel okay. I have pain most days. I have IBS. Most of my > hearing is gone in my right ear, I say because of fibro the hearing > doctor says no. But my brother needs hearing aides to hear with. I > feel like I'm on a merry go round with doctors. So far I haven't had > any that really understand. I am glad I found this group and > everyone here knows how we feel. > -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.300 / Virus Database: 266.6.0 - Release Date: 3/2/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 hi laura. im glad you found us. yes, we have some caring and understanding people here -- Newbie Good morning everyone, my name is Laurie and I was diagnosed with FMS 2 years ago. I am a 40 y/o SAHM mom, and have been married to my dh for 7 years, he is my rock, he is so understanding of my FMS and is always there for me, even when he is working nights and I call him at 2:00 in the morning, crying, for his gentle voice to calm me down and help me stop crying because of the pain. However, *LOL*, he has days when he doesn't notice that, as someone mentioned, dinner won't make itself when I have a bad day and he needs to at least get up off his tookus and help me out or God willing, just do it himself! My daughter is almost 11, going on 30...ughhhhh...., she has hit puberty early, and hubby's kids are 22 and 30, they do not live with us as they are all grown up. I love dh's kids as they were my own. They're great kids! OH and I have a wonderful DL that I reminds me of Dharma from the TV show! She's awesome!I joined last week and have been reading the e-mail's trying to get a feel for this board and I have to say it is very touching to read about all of your aches, pains, good days and bad days.I was having some very good days up until last week, when the Fibro monster reared his ugly head again. It's nice to have a group of individuals who know how you feel, or how much pain your in, so you don't feel so alone in the world. It's like I don't have to have my own pity party alone anymore! :'( I look forward to new relationships here on this msg board and sending gentle hugs to each and everyone of you who happens to need one, because I may need one too!Warm regards;Laurie in TX O:)1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 Thank you Theresa! Just reading a lot of these posts makes me feel that I have found comfort in knowing there are a lot of others out there like myself. Hugs... Laurie in TX O:) In Fibromyalgia_Support_Group , " Theresa " <tlvc@w...> wrote: > hi laura. im glad you found us. yes, we have some caring and understanding > people here > > > > > Quote Link to comment Share on other sites More sharing options...
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