Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 HI DONNA! YES, I HAVE FOUND WHEN MY LUPIE THING IS MOST ACTIVE THAT MY SED RATE IS VERY HIGH AND INDICATES AN INFECTION OR MORE INFLAMMATION. HAVE A COZY NIGHT AND HAPPY VALENTINE'S DAY! LOVE, VONDA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 HI DONNA! YES, I HAVE FOUND WHEN MY LUPIE THING IS MOST ACTIVE THAT MY SED RATE IS VERY HIGH AND INDICATES AN INFECTION OR MORE INFLAMMATION. HAVE A COZY NIGHT AND HAPPY VALENTINE'S DAY! LOVE, VONDA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 Hi, Donna, My tests always reflect how I'm feeling. My ANA's are positive when I am in a bad flare, SED rate is higher than the usual high, and rashes are much more apparent. I also frequently run fevers which they can document, have hot spots on my skin directly over a fibro outbreak, etc. So, yes, your tests can be more reflective of the disease if you are in a flare. Of course, it can also work the opposite because of the nature of this damned disease...it's like the Scarlet Pimpernel, " They seek him here, they seek him there, that damned elusive Pimpernel. " LOL This disease is just as hard to pin down as anything I have ever run across. And, I know some pretty slippery characters. LOL Love you, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 Hi, Donna, My tests always reflect how I'm feeling. My ANA's are positive when I am in a bad flare, SED rate is higher than the usual high, and rashes are much more apparent. I also frequently run fevers which they can document, have hot spots on my skin directly over a fibro outbreak, etc. So, yes, your tests can be more reflective of the disease if you are in a flare. Of course, it can also work the opposite because of the nature of this damned disease...it's like the Scarlet Pimpernel, " They seek him here, they seek him there, that damned elusive Pimpernel. " LOL This disease is just as hard to pin down as anything I have ever run across. And, I know some pretty slippery characters. LOL Love you, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Do you see these as all different, castrate-resistant prostate cancer as opposed to, for example, hormone-resistant prostate cancer or hormone-independent prostate cancer, hormone-refractory prostate cancer or do you view them as all the same? As patients what term would you like to have used for this stage of prostate cancer? Kathy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 Hi Grace, I had robotic surgery in August. My surgeon suggest a wait of 2-3 months to allow healing from the biopsy. I understand that had to do with allowing the prostate to go down in size. If your dad is not going to have robotic surgery, it might not make a difference on the size of the prostate. Good luck on his surgery. Dennis Dennis J dennisp42@... Seffner, FL 33584 From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of jdindie5 Sent: Tuesday, October 06, 2009 13:58 To: ProstateCancerSupport Subject: question Hi, Our question is: what is the normal wait time after having the biopsy done until having the prostate surgery? We have gotten two opinions for treatment (an original and a second) of my dads prostate cancer. Both drs agree that he is not a candidate for the robotic type surgery. However, one dr says he would do the operation fairly right away (around Oct 20th) and the other dr says he would wait until beginning of Dec. His logic was that area needs time to recover from the biopsy. His biopsy was two weeks ago. They both agree that his cancer is aggressive. He is staged at T3 with a gleason score of 9. Thanks, Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 > > Hi, > > Our question is: what is the normal wait time after having the biopsy done until having the prostate surgery? > > We have gotten two opinions for treatment (an original and a second) of my dads prostate cancer. Both drs agree that he is not a candidate for the robotic type surgery. However, one dr says he would do the operation fairly right away (around Oct 20th) and the other dr says he would wait until beginning of Dec. His logic was that area needs time to recover from the biopsy. His biopsy was two weeks ago. They both agree that his cancer is aggressive. > > He is staged at T3 with a gleason score of 9. Dear Grace, My husband had a Gleason 9, he was staged T2b. We did a lot of research and saw five different specialists. They put him on hormones right away to stop the spread of the cancer and to shrink the prostate. We had even planned the date for surgery until we learned about Proton Bean Radiation Therapy. All five specialist said he would need radiation. So we went to Mass. General and the specialist said because his numbers were so high he recommended IMRT treatments so the lymph nodes could be radiated as well. My husband had 44 IMRT treatments and his PSA now is 0.01. He had one year of hormones and still has hot flashes from them. He had his last three month injection in November 08. I wish you all the best and will keep you in my thoughts and prayers. Best Wishes, Sheila > Thanks, Grace > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2009 Report Share Posted October 8, 2009 > > Hi, > > Our question is: what is the normal wait time after having the biopsy done until having the prostate surgery? > > We have gotten two opinions for treatment (an original and a second) of my dads prostate cancer. Both drs agree that he is not a candidate for the robotic type surgery. However, one dr says he would do the operation fairly right away (around Oct 20th) and the other dr says he would wait until beginning of Dec. His logic was that area needs time to recover from the biopsy. His biopsy was two weeks ago. They both agree that his cancer is aggressive. > > He is staged at T3 with a gleason score of 9. Dear Grace, My husband had a Gleason 9, he was staged T2b. We did a lot of research and saw five different specialists. They put him on hormones right away to stop the spread of the cancer and to shrink the prostate. We had even planned the date for surgery until we learned about Proton Bean Radiation Therapy. All five specialist said he would need radiation. So we went to Mass. General and the specialist said because his numbers were so high he recommended IMRT treatments so the lymph nodes could be radiated as well. My husband had 44 IMRT treatments and his PSA now is 0.01. He had one year of hormones and still has hot flashes from them. He had his last three month injection in November 08. I wish you all the best and will keep you in my thoughts and prayers. Best Wishes, Sheila > Thanks, Grace > Quote Link to comment Share on other sites More sharing options...
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