Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Wow Krista our stories are similar. I'm 27 so we're close in age and it's a shame that we're experiencing this stuff at such young ages. I was so scared about the chest pains that I also thought I was having a heart attack. I went to the ER and they did an EKG and it came out fine but I still have the pain! Do you still have chest pain or did it go away? 'm so mad that I caused myself this pain. Hopefully once we're explanted we will both have healthy babies! Re: nerve pain Hi Steph- Our stories sound VERY VERY similar! My pain initiallystarted on my left side (arm, chest, shoulder, back, etc.,) but itwasn't like a normal muscle pain, it was an electric type of pain. Ididn't know what was wrong (still hadn't made the implant connectionyet.) My doctor was very worried that I had MS. I thought I was havinga heart attack! I'm only 29! The pain has now spread to my right sideand to my legs. How long as it been since your pain started? Get your explant as soonas possible because the pain does not get better, it only gets worse!Then, once you and your husband get pregnant you don't have to worryabout harming the baby! You will be free from worrying!Good luck to you and please do keep me posted!~Krista> > >> > > Krista ~ > > > Get something that is 6-8 inches high to put in front > > > of your chair at work to put your feet on, it will get> > > the weight off your lower back, and will sort of reallign> > > you, and it will help. At lunch, take 15-20 minutes> > > and meditate. Close your eyes, and breathe, and > > > clear your mind and relax everything you own from> > > the top of your head to the bottom of your feet.> > > This too will help. > > > Do you drink orange juice?> > > Hugs Dede> > > > > > > > > > > > ************************************** See what's new at > > http://www.aol.com> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Lynda- My husband bought tickets to the Rockies game on Monday night. I sure hope I am feeling up to going because I do not want to disappoint my husband, and I sure do love the Rockies! Go Rocks!! > > > > > > > > > > I have had a ton of nerve pain. It gets so bad even the sound of a > > > > > door is painful. I started more magnesium. I also read that candida > > > > > can cause this so I am really focusing on this. My nerve pain has > > > > > substantially decreased the last few weeks and my brain fog is much > > > > > better. Nan > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 That is exactly what I am hoping for. They know how sick I am, so I think they'll be able to get me in quick (at least that's what I am hoping for.) Dr. Huang even said she'd try to get me in during an off hour if she could! I will let you know as soon I know! Thanks for the encouragement! > > > > > > > > > > I have had a ton of nerve pain. It gets so bad even the sound of a > > > > > door is painful. I started more magnesium. I also read that > candida > > > > > can cause this so I am really focusing on this. My nerve pain has > > > > > substantially decreased the last few weeks and my brain fog is > much > > > > > better. Nan > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Girls ~ There are a couple things that help me greatly. One is some advice someone gave me. Do not let the illness define who you are. Separate yourself from it. Since you are dealing with a body that has issues, you have to allow yourself permission to do things it takes to heal it, such as sleep when you need to. cry when you need to, laugh all you can. Meditate, a couple times a day if you can. Learn mind control, you can sure learn how to do a good quick relax to the bodies muscles that way. I did it while working at lunch, I would completely check out for about 20 minutes, and when I woke up, it would be like I took a good long nap ! Fully relaxed ! learn new things that you like to do, and can do, even if it is drawing or writing. Visualize yourself healthy, doing things you enjoy, make plans, set goals, and realistic ones........ Talk to God, he is sitting right next to you. Pamper yourself, breathe, try to remember to do some consious breathing several times a day. As you breath in, visualize God's love and warmth and healing energies going through your body healing everything in its path, and exhale out your mouth. Hugs Prayers and Hope ~ D See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Steph- Yeah, we are very similar. I was scared about the chest pains also. I'm not experiencing them as much as I was before, now it's more of an all-over sort of pain. I had an EKG, a electrocardiogram, chest x-rays, blood tests, the works to make sure I wasn't having a heart attack! It really is a shame that ANY of us have to go through this. We were all told these things were safe, what a joke! I'm mad at myself too, but the only thing we can do is look to the future. This will all be over with soon and it will all be a distant memory. We will have our children and live happily ever after! When is your explant surgery? What city are you having it in? ~Krista > > > > > > > > Krista ~ > > > > Get something that is 6-8 inches high to put in front > > > > of your chair at work to put your feet on, it will get > > > > the weight off your lower back, and will sort of reallign > > > > you, and it will help. At lunch, take 15-20 minutes > > > > and meditate. Close your eyes, and breathe, and > > > > clear your mind and relax everything you own from > > > > the top of your head to the bottom of your feet. > > > > This too will help. > > > > Do you drink orange juice? > > > > Hugs Dede > > > > > > > > > > > > > > > > ************************************** See what's new at > > > http://www.aol.com > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Wear long undies, warm sock, take gloves and a warm rain jacket. You will probably need all of that. Lynda At 06:09 PM 10/13/2007, you wrote: >Lynda- My husband bought tickets to the Rockies game on Monday night. >I sure hope I am feeling up to going because I do not want to >disappoint my husband, and I sure do love the Rockies! >Go Rocks!! > > > > > > > > > > > > > > I have had a ton of nerve pain. It gets so bad even the >sound of a > > > > > > door is painful. I started more magnesium. I also read that >candida > > > > > > can cause this so I am really focusing on this. My nerve >pain has > > > > > > substantially decreased the last few weeks and my brain fog >is much > > > > > > better. Nan > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Hang in there... You will be so happy when it is over and you can concentrate on healing. > > > > > > > > > > > > I have had a ton of nerve pain. It gets so bad even the > sound of a > > > > > > door is painful. I started more magnesium. I also read that > > candida > > > > > > can cause this so I am really focusing on this. My nerve > pain has > > > > > > substantially decreased the last few weeks and my brain fog is > > much > > > > > > better. Nan > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Dede, This was wonderful! You are amazing. I have a special visualization that has worked so well for me lately. I love the ocean so I visualize that I'm healthy and I'm walking barefoot on the beach. No pain, no problems. Just God by my side. It has worked so well for me the past few weeks. I'll bet everyone has a special place they could go in their minds. > > Girls ~ > There are a couple things that help me > greatly. One is some advice someone gave > me. Do not let the illness define who you are. > Separate yourself from it. Since you are > dealing with a body that has issues, you have > to allow yourself permission to do things it > takes to heal it, such as sleep when you need to. > cry when you need to, laugh all you can. Meditate, > a couple times a day if you can. Learn mind control, you > can sure learn how to do a good quick relax to the bodies > muscles that way. I did it while working at lunch, I would > completely check out for about 20 minutes, and when I > woke up, it would be like I took a good long nap ! Fully > relaxed ! learn new things that you like to do, and can do, even > if it is drawing or writing. > Visualize yourself healthy, doing things you enjoy, > make plans, set goals, and realistic ones........ > Talk to God, he is sitting right next to you. Pamper > yourself, breathe, try to remember to do some consious > breathing several times a day. As you breath in, visualize > God's love and warmth and healing energies going through > your body healing everything in its path, and exhale out > your mouth. > Hugs Prayers and Hope ~ D > > > > > ************************************** See what's new at http://www.aol.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Awe, thank you Rogene ~ I had to learn, and these things actually work for me ! Love you ~ DedeSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 ~ I love the water too, a matter of fact I am working on , or started 2 pics that I am painting that are of the beach. I dont know what I am doing, but playing at it and enjoying it , anyway.... I am very fortunate, I have a very visual and creative mind, and can visualize to the point I can use my senses in my special place. It has been such a useful tool. I hope you have a nice evening ! Hugs N Prayers ~ Dede See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 That's awesome Dede. You are painting again. My visual getaway are of course with the horses. I really miss them. Love ya, Traci --- DGRAHAMA@... wrote: > ~ > I love the water too, a matter of fact I am working > on , or started > 2 pics that I am painting that are of the beach. I > dont know what > I am doing, but playing at it and enjoying it , > anyway.... > I am very fortunate, I have a very visual and > creative mind, and > can visualize to the point I can use my senses in my > special place. > It has been such a useful tool. I hope you have a > nice evening ! > Hugs N Prayers ~ > Dede > > > > > ************************************** See what's > new at http://www.aol.com > No hour of life is wasted that is spent in the saddle. ~Winston Churchill ________________________________________________________________________________\ ____ Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. http://sims./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Dede, Your paintings sound wonderful! I would love to see them when they are finished.... would you take photos and post them? Thanks, > > ~ > I love the water too, a matter of fact I am working on , or started > 2 pics that I am painting that are of the beach. I dont know what > I am doing, but playing at it and enjoying it , anyway.... > I am very fortunate, I have a very visual and creative mind, and > can visualize to the point I can use my senses in my special place. > It has been such a useful tool. I hope you have a nice evening ! > Hugs N Prayers ~ > Dede > > > > > ************************************** See what's new at http://www.aol.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Beautiful painting! RogeneDGRAHAMA@... wrote: Traci ~ Here is a horse my mother did in 1988, she was doing pet protraits for people then...... She was an awesome artist....I hope you enjoy it ~ Love Dede See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 Oh, thank you Rogene ! I love it....... Hugs DedeSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2007 Report Share Posted November 25, 2007 I have RA as well as degenerative disk disease and a bunch of other labels that mean I have nerve pain in my legs and less frequently in my hands and arms. I take Gabapentin, (generic form of neurontin)it is a wonder drug for me. It seems like it either works wonders for folks or doesn't do a thing, but it is well worth the try in my opinion. You have to take a lot of it I am prescribed 900mg 3X a day ... I actually take 900 mg once a day because I have difficulties with spacey feeling I get. I am told if I took the full amount consistently I would adjust but for now I take it as soon as I am off work at 5:00 and it is such a blessing. in St. Louis Quote Link to comment Share on other sites More sharing options...
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