Nerve Pain

[Guest guest]

Hi Guys,

Anybody taking anything other than Neurontin for nerve pain? My LLMD

feels that it's not helping me because I have to keep increasing the

dose and still have pain. He also feels that it is making me too groggy

and wants me to taper off. Any ideas?

Thanks,

Joan LI NY

[Guest guest]

I never had severe nerve pain as it seems you do but Elavil really helped

for my moderate pain. I suppose you already tried it. On bad days when I had

spinal compression pain I'd take Viacodan. Didn't get rid of the pain just

put some distance between it and me.

beth

> Anybody taking anything other than Neurontin for nerve pain? My LLMD

> feels that it's not helping me because I have to keep increasing the

> dose and still have pain. He also feels that it is making me too groggy

> and wants me to taper off. Any ideas?

> Thanks,

> Joan LI NY

>

> > Send to -Offtopiconelist messages unrelated to lyme, please.

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[Guest guest]

Joan,

My doc tried treating me with very small doses of diazpen. I can't say

that it helped the nerve pain much, but it did help the nerve twitches or

muscle twitches.....

Re: [Lyme-aid] Nerve Pain

>From: Namkrats3@... (Joan)

>

>Hi Guys,

>Anybody taking anything other than Neurontin for nerve pain? My LLMD

>feels that it's not helping me because I have to keep increasing the

>dose and still have pain. He also feels that it is making me too groggy

>and wants me to taper off. Any ideas?

>Thanks,

>Joan LI NY

>

>>Send to -Offtopiconelist messages unrelated to lyme, please.

>/archive/lyme-aid

>/archives.cgi/Lyme-Documents

>To unsubscribe, send email to -unsubscribeonelist

>You may substitute " subscribe " , or " digest " or " normal " for

>the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank

both the message and subject header.

>

[Guest guest]

Joan.

I take 900mg of Neurontin daily (supposed to take 1200, but always forget

the last pill!), I also take Vicoprofen, and Darvocets for pain, and they

help a lot, are you on other pain meds? Funny, Neurontin never made me

tired, I know I am the exception to the rule.

Hugs,

Marta NJ

>From: Namkrats3@... (Joan)

>

>Hi Guys,

>Anybody taking anything other than Neurontin for nerve pain? My LLMD

>feels that it's not helping me because I have to keep increasing the

>dose and still have pain. He also feels that it is making me too groggy

>and wants me to taper off. Any ideas?

>Thanks,

>Joan LI NY

[Guest guest]

Dear Joan & All,

As you all know, I've been researching electrical treatments.

Rife can alleviate pain (instantly, in some cases) & " wet cell battery " can

help to rengenerate nerves (from what I've read & been told by lymies &

others with chronic pain and/or lyme).

If anyone is interested, I have sites on this info. Email privately (no

interest, other than in sharing info to help others - these devices can be

built at home - instructions on net.)

Hope this helps.

[Guest guest]

Thanks to all who responded to my post about nerve pain. Since I started

taking the Ceftin, all of my sx have increased (gotta be herxing), and

it feel is like I'm having " crazy legs " all over my body!

Ugh!

Joan LI NY

[Guest guest]

How are you going about moving metals? If you're not already using AC protocol,

please consider doing so.

S S

<p>My arms and other areas experience terrible nerve pain whenever I

move<br>

metals. Its a feeling of being sensitive, raw, and achy all combined<br>

with some shooting nerve pain.<br>

<br>

Anyone know how I could make this more comfortable? thanks, barb<br>

<br>

_______________________________________________

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[Guest guest]

I believe I have moved metals either with the SCD diet which must

really been ridding my body of yeast overgrowth or with the addition

of the MB12 nasal spray.

The nerve pain is very symptomatic of mercury toxicity.

I have always been too sick to chelate. When I chelated my boys with

AC protocol, I became sick when inhaling the chelators I was making in

the capsules. Have never been brave enough to try them. barb

>

>

> _______________________________________________

> Join Excite! - http://www.excite.com

> The most personalized portal on the Web!

>

[Guest guest]

Thanks for your post Joanne- I hate to hear that others are going

through what I am going through, but it's nice at the same time to

hear that I am not alone.

You really hit the nail on the head, it's pain that goes straight to

the bone. For a long time, I couldn't figure out where the pain

actually was....my bones, muscles, connective tissue, but Dr. Huang

figured it out quick.

So, I'm headed to Walmart to get some epsom salt. I have a funny

question though....are you just supposed to soak your feet, or do you

soak your whole body?!! Sorry for the funny question, I should

probably know this, but I just googled epsom salt and they are just

talking about soaking your feet in it, so I got confused. :-)

Congrats on the new boyfriend, having people to support you around in

so important.

Thanks again!

~Krista

>

> Yes, I have the nerve pain also. It is so much worse on days in which

> I am detoxing than on others. I feel like the " electric " feeling goes

> straight through to the bone. I also have in in my cheeks, toungue,

> arms. I have to say that since I have taken a serious approach to

> detoxing, (I was just waiting on God for years) it has improved quite

> a bit. My favorite things to calm it down are the Epson salt baths and

> the foot bath. I can't tell you how many nights I have taken a bath in

> the middle of the night! But after a year of working at it I am

> actually having more normal days then not. I just got a new boyfriend.

> He is very understaning. I never thought I would see the day that I

> could date again.

>

> PS Tonight I have set aside to do my first liver flush! This should be

> interesting.

> God Bless.

> Joanne

>

[Guest guest]

Joanne,

What great news. Thanks so much for sharing. Please let us know how the liver flush goes, I want to give it a try.

Lynn

Ps... I love my Epson salt bath too - I should buy stock in the company.

nerve pain

Yes, I have the nerve pain also. It is so much worse on days in which I am detoxing than on others. I feel like the "electric" feeling goes straight through to the bone. I also have in in my cheeks, toungue, arms. I have to say that since I have taken a serious approach to detoxing, (I was just waiting on God for years) it has improved quite a bit. My favorite things to calm it down are the Epson salt baths and the foot bath. I can't tell you how many nights I have taken a bath in the middle of the night! But after a year of working at it I am actually having more normal days then not. I just got a new boyfriend. He is very understaning. I never thought I would see the day that I could date again. PS Tonight I have set aside to do my first liver flush! This should be interesting.God Bless.Joanne

[Guest guest]

Hi Rogene- Thanks for all the help. I did the Espom salt bath last

night....I'm not sure if helped or not. I actually felt a little

worse and the pain seemed more intense after I got out. I had to

drink a lot of water because it made me sooooo thirsty!

Anyone heard of anyone having MORE pain with the Epsom?

~Krista

>

> Krista,

>

> Soak in a tub with water as high and hot as you can get it . . .

>

> Don't skimp on the Espom salts either . . . Use at least 1 cup

for a small tub, 2 cups for a bigger tub.

>

> Plan to spend about 30 minutes if the water stays warm that

long. . .

>

> Rinse in the shower when you're done. . . And drink plenty of

water!

>

> IF you should experience burning skin when you get in the tub,

get out immediately and shower off. . . . A very few people have

extremely sensitive skin and should not use Epsom salt soaks. . .

Never soak an open wound, or if you're diabetic.

>

> You can add 3% hydrogen peroxide if you wish.

>

> Hugs,

>

> Rogene

>

[Guest guest]

Krista ~

Get something that is 6-8 inches high to put in front

of your chair at work to put your feet on, it will get

the weight off your lower back, and will sort of reallign

you, and it will help. At lunch, take 15-20 minutes

and meditate. Close your eyes, and breathe, and

clear your mind and relax everything you own from

the top of your head to the bottom of your feet.

This too will help.

Do you drink orange juice?

Hugs DedeSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Krista, Any time you're detoxing, you may experience a Herximer effect . . . That is, the symptoms get temporarily worse because toxins are stirred up. The good news is that a Herx indicates you hit the target and will soon feel better than you did prior to detoxing. . . If it gets too uncomfortable, back off a little next time . . . less Epsom, cooler water, less time . . . or a combination. Drinking a lot of water is GREAT! . . . this will help flush the toxins stirred up quickly. . . Always drink a lot of water when detoxing. The only time I'd be alarmed about pain with Epsom salts is if your skin starts burning because your skin is sensitive, or you have an open wound. If that happens, shower away the salts right away. . . . If you wonder if you are sensitive, you can test the water first with a hand, foot or elbow. Hugs, Rogene

[Guest guest]

Thanks Rogene- I thought that might be the reason. My skin didn't

start burning or anything, it itched a little bit when I got out of

the tub, but rinses off in the shower and the itch went away.

I don't even know if it was the epsom that caused me more pain, or

just the fact that it was at the end of the day.

Each day I wake-up feeling okay like I might go through the day

without pain, but slowly it creeps up on me throughout the day.

At this point, I really don't know how much longer I'm going to be

able to wait. All of the pain is basically making it impossible to

get through the day....sigh....

thanks for all your support!

~Krista

>

> Krista,

>

> Any time you're detoxing, you may experience a Herximer

effect . . . That is, the symptoms get temporarily worse because

toxins are stirred up.

>

> The good news is that a Herx indicates you hit the target and

will soon feel better than you did prior to detoxing. . . If it gets

too uncomfortable, back off a little next time . . . less Epsom,

cooler water, less time . . . or a combination.

>

> Drinking a lot of water is GREAT! . . . this will help flush the

toxins stirred up quickly. . . Always drink a lot of water when

detoxing.

>

> The only time I'd be alarmed about pain with Epsom salts is if

your skin starts burning because your skin is sensitive, or you have

an open wound. If that happens, shower away the salts right

away. . . . If you wonder if you are sensitive, you can test the

water first with a hand, foot or elbow.

>

> Hugs,

>

> Rogene

>

[Guest guest]

Hi Dede- I actully do have a little step that is under my desk, I've

never used it because HR told me my heels are too high to be using

it, but maybe I'll give it a shot. I have terrible posture. No, I

don't drink a lot of OJ. Is that helpful?

I don't really have anywhere to go to meditate unfortunately, my

building is stuffed full of people in every nook and crany and I take

the bus to work, so I don't have a car here. Perhaps, I'll just put

my headphones on at my desk and see if I can block everything else

out.

Thanks for ALL the wonderful suggestions.

~Krista

>

> Krista ~

> Get something that is 6-8 inches high to put in front

> of your chair at work to put your feet on, it will get

> the weight off your lower back, and will sort of reallign

> you, and it will help. At lunch, take 15-20 minutes

> and meditate. Close your eyes, and breathe, and

> clear your mind and relax everything you own from

> the top of your head to the bottom of your feet.

> This too will help.

> Do you drink orange juice?

> Hugs Dede

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

[Guest guest]

Nan- Yeah, my nerve pain is a constant pain. It does feel better when

I wake up in the morning and then gets progresively worse as the days

goes on. By this time of the day the only thing I want to do is knock

myself out and go to sleep! During the day (especially at work) I am

so sensitive to all of the sounds around me. The lady in the cube next

to me types really loud and it makes my skin crawl!

>

> I have had a ton of nerve pain. It gets so bad even the sound of a

> door is painful. I started more magnesium. I also read that candida

> can cause this so I am really focusing on this. My nerve pain has

> substantially decreased the last few weeks and my brain fog is much

> better. Nan

>

[Guest guest]

Wonderful Nan! . . . Step by step, you're getting better! Hugs, Rogene

[Guest guest]

Krista,

I remember the same thing with people talking too loud or typing too loud at work. I don't have this anymore. I will be 6 month post-op tomorrow!! WAHOOO...

I know it seems like forever - and you want them out NOW/YESTERDAY - but it will come. I remember thinking I was too ill to make it through surgery but I made it just fine. You'll be in great hands with Dr. Huang. Now, I can't believe it was 6 months ago.

Pre-explant I had to take pain killers many nights to get by. I had vicodin and naprosyn from previous surgeries. I know it isn't good to take these drugs but it was the only thing that got me through many nights. After explant I used what Dr. Huang prescribed for a while until I healed - but I don't take any now. Tylenol is about it

I am sorry you aren't feeling well. I remember it clearly. Do you have a surgery date yet?

Hugs, Lynn

Re: Nerve pain

Nan- Yeah, my nerve pain is a constant pain. It does feel better whenI wake up in the morning and then gets progresively worse as the daysgoes on. By this time of the day the only thing I want to do is knockmyself out and go to sleep! During the day (especially at work) I amso sensitive to all of the sounds around me. The lady in the cube nextto me types really loud and it makes my skin crawl!>> I have had a ton of nerve pain. It gets so bad even the sound of a > door is painful. I started more magnesium. I also read that candida > can cause this so I am really focusing on this. My nerve pain has > substantially decreased the last few weeks and my brain fog is much > better.

Nan>

[Guest guest]

Hi Krista, I've had my implants for 5 years and I've been married for

three years. My husband and I would also like to have a baby once

this nightmare is over. I have nerve pain in my left arm and

sometimes I have chest pains in the left side of my chest. Do you

have something similar to that? I've been taking hot epsom salt baths

which seems to be helping and I am hoping to be explanted soon.

Steph

> >

> > Krista ~

> > Get something that is 6-8 inches high to put in front

> > of your chair at work to put your feet on, it will get

> > the weight off your lower back, and will sort of reallign

> > you, and it will help. At lunch, take 15-20 minutes

> > and meditate. Close your eyes, and breathe, and

> > clear your mind and relax everything you own from

> > the top of your head to the bottom of your feet.

> > This too will help.

> > Do you drink orange juice?

> > Hugs Dede

> >

> >

> >

> > ************************************** See what's new at

> http://www.aol.com

> >

>

[Guest guest]

YES, that exactly describes me too. I wake up okay, I can get out

and about for a few hours, then it starts to hit me, I have to lie

down for 2 hours midday, then I get up will a little energy, but am

usually frazzled feeling with the nerves. I wish I knew what to say

this is exactly. I read a lot on ME (myalgic encephalitis) and wow

it is right on with every symptom. I also get these episodes where

it just peaks, and I am in pain along with the nerves, but it is not

fibromyalgia. I am in a better spot today, and am just grateful for

any day when I am not in pain. I have contemplated taking an

antidepressant for the pain, just trying to manage all of it. I will

say that I am MUCH better than I was, in that I was passing out cold

and had weeks where I could barely move. Last December before my

removal, I thought I was going to die. I never feel like that now.

I think a lot of it was yeast and just plain old poison from the

implants. But I sure would like to be functional again. Just a few

errands still does me in. If I stay home I can monitor it, but then I

feel like I am not even in the human race. I have to stay home a lot

anyway with kids, but would like to be able to say hey lets go to the

museum like I used to. That would kill me today. I just found this

website that deals with nerves and immune function, of course they

are selling something but I am a sucker for a " cure " ! Are you

finding anything that helps? Nan

>

> Nan- Yeah, my nerve pain is a constant pain. It does feel better

when

> I wake up in the morning and then gets progresively worse as the

days

> goes on. By this time of the day the only thing I want to do is

knock

> myself out and go to sleep! During the day (especially at work) I am

> so sensitive to all of the sounds around me. The lady in the cube

next

> to me types really loud and it makes my skin crawl!

>

>

>

> >

> > I have had a ton of nerve pain. It gets so bad even the sound of

a

> > door is painful. I started more magnesium. I also read that

candida

> > can cause this so I am really focusing on this. My nerve pain

has

> > substantially decreased the last few weeks and my brain fog is

much

> > better. Nan

> >

>

[Guest guest]

Nan . . . Just know that you ARE getting better. It's going to take time . . and every day should (usually) be a tiny bit better than the day before. Your body is undergoing a huge rebuilding process. It won't happen overnight. Your job is to provide quality raw materials and the environment it needs to get the job done right. Patience, patience, patience! You're going to get there - just not as fast as you'd like. Hugs, Rogene

[Guest guest]

Rogene, thanks, that has been my new attitude. I went a spell where I

was resigned to the whole thing, figuring I was going to live a sick

life forver. I am using a lot of imagery with what you just said.

Imagining my body is healing a little every day, and that works a lot

better. I have had some people come into my life with that message and

it has turned me around. I have started using that as a mantra every

day, my body is healing itself. I was having a bad attack a few days

ago and I just kept telling myself I was not going to let it get me for

a week, I took it easy the next day, and am better now. That kind of

thing used to put me in bed for a week. Thanks Rogene for the

encouragment. Love Nan

- In , Rogene <saxony01@...> wrote:

>

> Nan . . .

>

> Just know that you ARE getting better. It's going to take time . .

and every day should (usually) be a tiny bit better than the day before.

>

> Your body is undergoing a huge rebuilding process. It won't happen

overnight. Your job is to provide quality raw materials and the

environment it needs to get the job done right.

>

> Patience, patience, patience!

>

> You're going to get there - just not as fast as you'd like.

>

> Hugs,

>

> Rogene

>

[Guest guest]

Nan . . . When you have a flare, or a bad day . . . consider Dede's way . . . She concentrates on how she wants to feel and refuses to give illness the energy it needs to persist . . . Keep repeating "Every day, in every way, I'm getting better and better and better" - Silva Mind Contol. Rogene

[Guest guest]

Nan, You are describing classic adrenal exhaustion. When you feel okay upon wakening, that is because your cortisol levels are highest when you wake up. If you get a drop in cortisol mid-morning, it is because your adrenal glands can't put out the cortisol it needs...you are in adrenal fatigue and it goes downhill from there. Overnight rest is what allows the adrenal glands to recharge for the next day. Some women, myself included, tended to get that drop in the later afternoon. When I first got my cortisol tested, that is exactly what came up on the tests. I had normal cortisol levels until about 4 PM and then it dropped and that was when I felt the need to sit down and relax or read. You've been through alot...several surgeries, the implants and all....it sounds to me like your adrenal glands are screaming for some support! Have you looked

into trying any Isocort? You need to give your body a chance to rest and heal above all! Check out Dr. 's site on Adrenal Fatigue: http://www.adrenalfatigue.org/drwilson.php or get his book and follow the recommendations! Patty nnnttwilliams <nnnttwilliams@...> wrote: YES, that exactly describes me too. I wake up okay, I can get out and about for a few hours,

then it starts to hit me, I have to lie down for 2 hours midday, then I get up will a little energy, but am usually frazzled feeling with the nerves. I wish I knew what to say this is exactly. I read a lot on ME (myalgic encephalitis) and wow it is right on with every symptom. I also get these episodes where it just peaks, and I am in pain along with the nerves, but it is not fibromyalgia. I am in a better spot today, and am just grateful for any day when I am not in pain. I have contemplated taking an antidepressant for the pain, just trying to manage all of it. I will say that I am MUCH better than I was, in that I was passing out cold and had weeks where I could barely move. Last December before my removal, I thought I was going to die. I never feel like that now. I think a lot of it was yeast and just plain old poison from the implants. But I sure would like to be functional again. Just a few errands still does me

in. If I stay home I can monitor it, but then I feel like I am not even in the human race. I have to stay home a lot anyway with kids, but would like to be able to say hey lets go to the museum like I used to. That would kill me today. I just found this website that deals with nerves and immune function, of course they are selling something but I am a sucker for a "cure"! Are you finding anything that helps? Nan>> Nan- Yeah, my nerve pain is a constant pain. It does feel better when> I wake up in the morning and then gets progresively worse as the days> goes on. By this time of the day the only thing I want to do is knock> myself out and go to sleep! During the day (especially at work) I am> so sensitive to all of the sounds around me. The lady in the cube next> to me types really loud and it makes my skin crawl!> > > > >> > I have had a ton of nerve pain. It gets so bad even the sound of a > > door is painful. I started more magnesium. I also read that candida > > can cause this so I am really focusing on this. My nerve pain has > > substantially decreased the last few weeks and my brain fog is much > > better. Nan> >>

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[Guest guest]

Krista,

I called Dr. Huangs office Aug 20 and had explant surgery Sept 11.

I did tell them when I called that I had been diagnosed with an

autoimmune disease and was quickly becoming very ill.

I'm not sure how I got in so fast... maybe God had something to do

with it...

Maybe they will have a cancellation...

> > > >

> > > > I have had a ton of nerve pain. It gets so bad even the sound of a

> > > > door is painful. I started more magnesium. I also read that

candida

> > > > can cause this so I am really focusing on this. My nerve pain has

> > > > substantially decreased the last few weeks and my brain fog is

much

> > > > better. Nan

> > > >

> > >

> >

> >

>