Yana Experiences - Updates

[Guest guest]

I have been running a non-commercial website - You

Are Not Alone Now www.yananow.net

for a number of years now. The first section is aimed at newly diagnosed men

and their supporters. It gives some basic information in plain language with

links to more complex and technical sites and is accessed by using the link www.yananow.net and hitting

the Don’t Panic button.

The second section of the site of the site was set up

in the belief that there is tremendous value in reading of other people's

experiences with prostate cancer and also recognition that it might be helpful

men diagnosed with PCa (and their families or partners) find someone to 'talk'

to; someone who had dealt with the same issues and problems.

There are now more than 650 stories covering all

currently available treatment options on the site, providing an insight into

how the contributors have dealt with the issues that others now face. They can be

accessed by choice of treatment, year of diagnosis, age, PSA or Gleason Score

at diagnosis and by country in which the contributor resides.

The stories and charts provided are for information only, and show a brief

summary of what others have done, based on information received from the

contributors. They may not be completely accurate and should not be used for

making individual treatment decision.

Most of the men who have told their stories have volunteered to act as Mentors

and have provided their e-mail addresses. They invite you to mail them for any

further information you might want. They may not always be able to help you

directly, but may well know where to direct you.

Contributors are encouraged to update their stories

at least once a year. The current week’s list of new contributors and

updates is below.

NEW STORIES:

http://www.yananow.net/Mentors/HarvV.htm

HARV V - has chosen Active Surveillance after

investigating various surgical and radiation options

http://www.yananow.net/Mentors/PatI.htm

PAT INGLESES - diagnosed in January and was

thinking of HIFU, but now not certain

UPDATES TO EXISTING STORIES

http://www.yananow.net/Mentors/F.htm

MICHAEL F– seven weeks after RALP all’s going well

http://www.yananow.net/Mentors/2BukC.htm

2 BUK CHUK - his PSA is down to 0.9 just a

month shy of the two year anniversary of his HIFU

http://www.yananow.net/Mentors/PhilZ.htm

PHIL Z - was on Active Surveillance but an

increase in PSA led to a repeat biopsy and a choice of IMRT.

http://www.yananow.net/Mentors/A.htm

PAUL A - has had a second increase in his PSA

following radiation after a failed RALP

http://www.yananow.net/Mentors/yA.htm

- SCOTTY ALLEN - wondering if he should go

intermittent ADT after surgery and EBRT and 2 years ADT

http://www.yananow.net/Mentors/LarryH.htm

LARRY HALES - a little over a year after

completing proton beam therapy, his PSA is a satisfying low at 0.05 ng/ml

http://www.yananow.net/Mentors/BobDr.htm

BOB DR

- PSA is 2.6 ng/ml three months after completing proton beam therapy

http://www.yananow.net/Mentors/WayneS.htm

WAYNE S - 18 months after surgery and most

things are working at an acceptable level – interesting comment on PSA

levels

http://www.yananow.net/Mentors/H.htm

GEORGE HARDY - another good PSA result 20

months after stopping ADT following IMRT for a T4 PSA 182 tumour

http://www.yananow.net/Mentors/RonnieC.htm

RONNIE CASSELL - coming up to 12 months from

his surgery, he’s still battling ED

http://www.yananow.net/Mentors/MikeMc.htm

MIKE MCLAFFERTY - has started having

incontinence problems after EBRT/Brachy combination treatment no improvement in

ED

http://www.yananow.net/Mentors/B.htm

DAVID BASHOVER - comes in as a Silver member

– diagnosed in 2005 with a story that makes very interesting reading on

the importance of getting second opinions

http://www.yananow.net/Mentors/HughA.htm

HUGH ARMITAGE - arrived at Loma from Atlanta for his proton

beam therapy

http://www.yananow.net/Mentors/AndyR.htm

ANDY RIPLEY - has entered a second drug trial

with a rapidly rising PSA – 1,696.0 at last count

http://www.yananow.net/Mentors/DonP.htm

DON PEARSON - reporting in five months after

RALP – PSA undetectable, very little leakage some ED issues

http://www.yananow.net/Mentors/RonC3.htm

RON CARTER - new Silver member - five years

after brachytherapy his PSA is 0.04

http://www.yananow.net/Mentors/C.htm

GARY C - after taking the Active Surveillance

path instead of HIFU, his PSA is still down

http://www.yananow.net/Mentors/ArekD.htm

AREK DANIEL - all’s going well after his

RALP

All the best

Terry Herbert

I have no medical qualifications but I was diagnosed

in ‘96: and have learned a bit since then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions

we make with regard to prostate cancer are made with inadequate data "