Thank you

[Guest guest]

It is Chuck Lemieux

27 Hospital Hill Road

Sharon, CT 06069

Re: thank you

> Dolores,

>

> I cant't find Chuch's address....guess I buried it somewhere. Would you

> please repeat it so I can continue to send him cards? Thanks.

>

> Vivian

>

>

>

[Guest guest]

,

Your tender eloquence is a joy to read--each and every word. You call 'us'

remarkable--I say you are that with a capital 'R'. It is comforting to know

that Jane Anne has such a supportive soul mate. Bless you for being the man

you are.

Dolores

P.S. Do you happen to have an unmarried twin?

Thank you

> Hi to all,

> I just wanted to let you know how very much I appreciate your thoughts and

prayers you wrote about Jane Anne's terrible pain she is going through. I

have saved them all for her to read when she is able. It constantly amazes

me that even though you too have this awful disease, you still take time to

comfort others. I remember those years ago when we first learned the name of

the disease Jane Anne had--- it was such a cruel, cold, unfeeling name. We

had never heard of it (as had few Drs.) and were so terrified as to what the

future would hold. We felt as though she was the only one in the world who

had it. Then we discovered PLS-FRIENDS. There were only a few of us on then

but what a relief to find there were others who understood what we were

going through. We were able to share ideas, problems and even a laugh now

and then. You are really a remarkable group--- I truly don't know if I would

have the courage to face what you all do every day. I think all of us that

try to care for you feel the same way. As we are not as brave as you, please

forgive us if sometimes we get a little agitated or a little short with

you--- we simply are so frustrated that we cannot take some of your pain on

to ourselves, or make your legs work just a little better or make your hand

hold that glass of water. Believe me, if we could, we would with no

hesitation. So please be patient with us--- we too awake each day praying

that maybe " today " will be the day that someone somewhere will find the cure

for this devastating illness. Until that day comes (and it will) continue to

stand together and share with all of us; because now we need no longer to

fear this thing, but rather as a group, we can face it, challenge it, and

someday defeat it. I know you are tired of reading this but lack of sleep

tends to make me ramble on and on. Again, thank you for your thoughts and

prayers. God bless you.

> - King-

>

>

>

[Guest guest]

,

Your tender eloquence is a joy to read--each and every word. You call 'us'

remarkable--I say you are that with a capital 'R'. It is comforting to know

that Jane Anne has such a supportive soul mate. Bless you for being the man

you are.

Dolores

P.S. Do you happen to have an unmarried twin?

Thank you

> Hi to all,

> I just wanted to let you know how very much I appreciate your thoughts and

prayers you wrote about Jane Anne's terrible pain she is going through. I

have saved them all for her to read when she is able. It constantly amazes

me that even though you too have this awful disease, you still take time to

comfort others. I remember those years ago when we first learned the name of

the disease Jane Anne had--- it was such a cruel, cold, unfeeling name. We

had never heard of it (as had few Drs.) and were so terrified as to what the

future would hold. We felt as though she was the only one in the world who

had it. Then we discovered PLS-FRIENDS. There were only a few of us on then

but what a relief to find there were others who understood what we were

going through. We were able to share ideas, problems and even a laugh now

and then. You are really a remarkable group--- I truly don't know if I would

have the courage to face what you all do every day. I think all of us that

try to care for you feel the same way. As we are not as brave as you, please

forgive us if sometimes we get a little agitated or a little short with

you--- we simply are so frustrated that we cannot take some of your pain on

to ourselves, or make your legs work just a little better or make your hand

hold that glass of water. Believe me, if we could, we would with no

hesitation. So please be patient with us--- we too awake each day praying

that maybe " today " will be the day that someone somewhere will find the cure

for this devastating illness. Until that day comes (and it will) continue to

stand together and share with all of us; because now we need no longer to

fear this thing, but rather as a group, we can face it, challenge it, and

someday defeat it. I know you are tired of reading this but lack of sleep

tends to make me ramble on and on. Again, thank you for your thoughts and

prayers. God bless you.

> - King-

>

>

>

[Guest guest]

BONNIE;

YOU JUST STAY AROUND, THATS AN ORDER. NO ONE KNOWS THERE FATE. MY

SISTER-IN-LAW'S BROTHER-IN-LAW WAS DIAGNOSED WITH INCURABLE LUNG CANCER

A MONTH AGO, WELL HE WAS GIVEN A YEAR OR SO TO LIVE, AND BY GOD HE DIED

TWO DAYS AGO, HIS HEART!

wE JUST DON'T KNOW WHATS AHEAD FOR ANY OF US. SO TRY NOT TO WASTE

PRECIOUS TIME WORRYING ABOUT WHATS GOING TO HAPPEN.

SERMON'S OVER.

RITA

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth

When you worry it's like sitting in a rocking chair, it gives you a good

ride, but it doesn't get you any where.

*************************************

[Guest guest]

BONNIE;

YOU JUST STAY AROUND, THATS AN ORDER. NO ONE KNOWS THERE FATE. MY

SISTER-IN-LAW'S BROTHER-IN-LAW WAS DIAGNOSED WITH INCURABLE LUNG CANCER

A MONTH AGO, WELL HE WAS GIVEN A YEAR OR SO TO LIVE, AND BY GOD HE DIED

TWO DAYS AGO, HIS HEART!

wE JUST DON'T KNOW WHATS AHEAD FOR ANY OF US. SO TRY NOT TO WASTE

PRECIOUS TIME WORRYING ABOUT WHATS GOING TO HAPPEN.

SERMON'S OVER.

RITA

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth

When you worry it's like sitting in a rocking chair, it gives you a good

ride, but it doesn't get you any where.

*************************************

[Guest guest]

Oh ouch ouch ouch....NO ICE !!!!!!!!!!

I can't say that its a fact....but in my personal case, I do believe that Ice did make mine spread during the begining, which was within the first 2 months of onset.

What RSD does is makes the blood vessels and veins smaller, making it harder for the blood and oxygen to go from place to place, and also is what causes the discoloration. Ice does the exact same thing......makes the vessels smaller.

The main thing that does help out alot is HEAT. Using heat helps open up the vessels...so that the blood and oxygen flow can move at normal speed, which helps keep the skin the normal color, keeps your foot/ankle and leg all hopefully warmer instead of the ice cold feeling, and it can also help keep some swelling down if you have it propped up.

If you can go back into the RSDHope site, print out that page that says no ice, and also find the one that says Hot/Cold Challenge......and print it out also......and take those to your therapist. If your Therapist is any good, and understands what RSD actually is....then they will stop all ice immediately!

If they don't....start refusing to let them even near your leg/ankle with it! Its your body.....its your right to refuse any part of the treatment you don't like!

I went thru the ice deal myself for 6 months.....UNTIL I started doing my own researching on the internet, and also started talking to a few people face to face that has RSD.....and finding out stuff on my own.

That is when I started finding out that I didn't have to take the crap even though it was W/C doctors, Therapists or whoever......it was MY body...MY life....NOT THEIRS!

The most they will do is tell you not to come back....and they will just write down in your report that you was uncooperative.....but that is where your lawyer comes in at. He is supposed to find you good doctors to send you to, who will send you to therapy also....and it is up to them to make out their own reports. If they don't work out to your liking either....tell your doctor that you are seeing, and he can send you somewhere else for Therapy.

Hope this helps you out some Bill!

Tonia

-- Thank you

Hi,, Please forgive me for not putting my name at the bottom of my post. I have been alittle stressed. My Name is Bill ,I'm from Staten Island, NY. I read all of the reply's from my other post. Thank you for listen to me complain. Tom , you asked , if i was taking any med's at all. Well the only Med's i've been taking is celbrex! The doctor is going to decided next week, even if he wants to do the second injection in my ankle. I'm waiting for them to offically say, I have the rsd. But with the pain, burning, & pins & needles now moving from ankle to me knee and the rest of my leg. I really , i'm not going to sit here Imagine i don't have this. It would be great to find out next week , there is some other reason for this! But i don't think its going to happen. Besides he was pretty serious about the possiblty of me having rsd. Plus i have to go through the steps of deteriming, 'if i have it or not' for workman compensation reason. I 'm going to ask for a med's next week.I Have a few question, does anyone know if it is true that ICE help spread the RSD? My Physical Therpist is wraping my ankle with ice, along the tens machine one at ever vist( 3x a week) He is also telling to ICE my ankle to death when i'm here at home. I read on the rsdhope site that ice help the spread of the RSD. Is this true??

[Guest guest]

Hello Bill, My name is Penny I live in New Jersey and I have also heard over

and again -- NO ice. Well, I've heard that from Dr's who know anything

about RSD that is, Drs and PT's in the past didn't even know what is whas,

lest how to even treat it correctly.

Bill, I was misdiagnosed for over 2.5 yrs. I was injured 9/00, RSD onset

immediately in Right leg. The mechaincal injury that set it was a

sports-related injury that caused ligament damage to my right leg and my

right sacro-iliac joint (that joint is right below low back and connects hip

to pelvis. As, the ligament (and soft tissue) injury was the only thing

they diagnosed (and missed the RSD).

And...immediately I had major intense burning over the sprained area

(sacroiliac joint) and ice felt so good. I would literally buy 5 lb bag of

us and stick it under the right side of butt when I went to bed. I had a

smaller ice bad packed inside my pants when I was just walking around me

house...you catch the idea here ... I iced that area down like a mad person

because it was so inflamed. Everyone I was saw (Dr's, PT's, chiros) said

there was nothing wrong with this, if it feels good - do it. I would

alternate with heat from time to time -- but mostly ice. Well, Bill 2-3

months after my this initial injury the RSD mirror pattern into my left leg.

Now, I can not say with absolute certainty that it was the icing that did

this (as I was also under chiro care - direct forceful manipulations -- that

I now realize was a bad move), but I do think the ice had alot to do with

the rather quick spread.

But, unknown to me at the time that ice was bad (as Dr's still missed the

RSD diagnosis) I continued to ice and ice and ice as it numbed it out and

the inflamation soothed temporarily, or I was so numbed out that I didn't

feel it as strongly, unsure wich.

After all this -- and then 3 surgeries later to the si joint (likely in

retrospect not even necessary) -- last month I was finaly diagnosed with

RSD. I have had RSD this entire time. It now has spread to my upper left

quandrant as well (left shoulder blade, left rib cage, and left arm). But

finally, a diangosis and finaly some direction. Bill, I am working with Dr.

Knobler in Philly (who see's alot of RSD patients) and he concurs NO ice.

I know you are probably stuck in the worker comp system right now and

therefore, your choices of DRs and PTs may be limited -- BUT, if your PT is

at all knowledgable or interested in learning more on how to treat RSD

patients, maybe you can do a websearch and bring them in some literature.

Consdier yourself lucky at this moment, sounds like your RSD was caught in

early (relatively) and if you get proper treatment you have a better shot on

knocking this beast down a few pegs and teaching it who's boss!

PT is necessary, but it doesn't sound like you are getting the right kind of

therapy. The affected limb should be moving -- important to keep in moving

- but how about in warm water pool -- that should be very good for it. You

can move it with the bouancy of the water, rather than land activity (less

stress on it). Also, heat packs -- now that I am finally aware no ice, I

have alternated to heat packs...and quess what? It gives relief as well.

Also, what helps alot is a warm bath with empson salts.

But, please I agree with what you've read and I trust my overseeing Dr (as

he really knows alot on RSD and has done alot of research on the matter) ...

I really think ice is a no no. From my experience, I have great regrets and

can't help but think if I wasn't nubming down with ice all the time -- could

I have kept the thing at bay rather than weeding through 3/4 of my body?

Hard to say. But for you, better safe than sorry.

Good Luck with everything. And hang in there, I read your previous post and

it sounds like life and personal problems are spinning out of control for

you at the moment ... I think that happened to all of us (especially

initially) ... it was hard to reason, think clearly, control emotions, etc.

This beast has a way of messing with nearly every part of your being. Take

good care. Sincere regards, Penny

_________________________________________________________________

The new MSN 8: advanced junk mail protection and 2 months FREE*

http://join.msn.com/?page=features/junkmail

[Guest guest]

HEY .........

You chicken, you posted that in the wrong group, lol.

Love & Huggs MariBeth

Thank you

Hi,, Please forgive me for not putting my name at the bottom of my post. I have been alittle stressed. My Name is Bill ,I'm from Staten Island, NY. I read all of the reply's from my other post. Thank you for listen to me complain. Tom , you asked , if i was taking any med's at all. Well the only Med's i've been taking is celbrex! The doctor is going to decided next week, even if he wants to do the second injection in my ankle. I'm waiting for them to offically say, I have the rsd. But with the pain, burning, & pins & needles now moving from ankle to me knee and the rest of my leg. I really , i'm not going to sit here Imagine i don't have this. It would be great to find out next week , there is some other reason for this! But i don't think its going to happen. Besides he was pretty serious about the possiblty of me having rsd. Plus i have to go through the steps of deteriming, 'if i have it or not' for workman compensation reason. I 'm going to ask for a med's next week.I Have a few question, does anyone know if it is true that ICE help spread the RSD? My Physical Therpist is wraping my ankle with ice, along the tens machine one at ever vist( 3x a week) He is also telling to ICE my ankle to death when i'm here at home. I read on the rsdhope site that ice help the spread of the RSD. Is this true??

[Guest guest]

HEY .........

You chicken, you posted that in the wrong group, lol.

Love & Huggs MariBeth

Thank you

Hi,, Please forgive me for not putting my name at the bottom of my post. I have been alittle stressed. My Name is Bill ,I'm from Staten Island, NY. I read all of the reply's from my other post. Thank you for listen to me complain. Tom , you asked , if i was taking any med's at all. Well the only Med's i've been taking is celbrex! The doctor is going to decided next week, even if he wants to do the second injection in my ankle. I'm waiting for them to offically say, I have the rsd. But with the pain, burning, & pins & needles now moving from ankle to me knee and the rest of my leg. I really , i'm not going to sit here Imagine i don't have this. It would be great to find out next week , there is some other reason for this! But i don't think its going to happen. Besides he was pretty serious about the possiblty of me having rsd. Plus i have to go through the steps of deteriming, 'if i have it or not' for workman compensation reason. I 'm going to ask for a med's next week.I Have a few question, does anyone know if it is true that ICE help spread the RSD? My Physical Therpist is wraping my ankle with ice, along the tens machine one at ever vist( 3x a week) He is also telling to ICE my ankle to death when i'm here at home. I read on the rsdhope site that ice help the spread of the RSD. Is this true??

[Guest guest]

> Bill,

There is a website called " RSDHope " They warn against using ice and

that it can make the RSD worse. Be very careful. My primary doc

told me to try using ice and I am glad I did not. The pain

management doctor told me to keep my ankle warm.

Like all of us, I know what you are going through. It took me four

years to get this diagnosed and it was living hell. I hope you do

not have it, but if you do, this group will give you wonderful

support.

Hope you lose the pain.

Helen

>

> Hi,,

> Please forgive me for not putting my name at the bottom of my

post.

> I have been alittle stressed. My Name is Bill ,I'm from Staten

> Island, NY.

> I read all of the reply's from my other post. Thank you for

listen

> to me complain. Tom , you asked , if i was taking any med's at

all.

> Well the only Med's i've been taking is celbrex! The doctor is

> going to decided next week, even if he wants to do the second

> injection in my ankle. I'm waiting for them to offically say, I

have

> the rsd.

>

> But with the pain, burning, & pins & needles now moving from ankle

to

> me knee and the rest of my leg. I really , i'm not going to sit

here

> Imagine i don't have this. It would be great to find out next

week ,

> there is some other reason for this! But i don't think its going

to

> happen. Besides he was pretty serious about the possiblty of me

> having rsd.

>

> Plus i have to go through the steps of deteriming, 'if i have it

or

> not' for workman compensation reason. I 'm going to ask for a

med's

> next week.

>

> I Have a few question, does anyone know if it is true that ICE

help

> spread the RSD? My Physical Therpist is wraping my ankle with ice,

> along the tens machine one at ever vist( 3x a week) He is also

> telling to ICE my ankle to death when i'm here at home. I read on

the

> rsdhope site that ice help the spread of the RSD. Is this true??

[Guest guest]

> Bill,

There is a website called " RSDHope " They warn against using ice and

that it can make the RSD worse. Be very careful. My primary doc

told me to try using ice and I am glad I did not. The pain

management doctor told me to keep my ankle warm.

Like all of us, I know what you are going through. It took me four

years to get this diagnosed and it was living hell. I hope you do

not have it, but if you do, this group will give you wonderful

support.

Hope you lose the pain.

Helen

>

> Hi,,

> Please forgive me for not putting my name at the bottom of my

post.

> I have been alittle stressed. My Name is Bill ,I'm from Staten

> Island, NY.

> I read all of the reply's from my other post. Thank you for

listen

> to me complain. Tom , you asked , if i was taking any med's at

all.

> Well the only Med's i've been taking is celbrex! The doctor is

> going to decided next week, even if he wants to do the second

> injection in my ankle. I'm waiting for them to offically say, I

have

> the rsd.

>

> But with the pain, burning, & pins & needles now moving from ankle

to

> me knee and the rest of my leg. I really , i'm not going to sit

here

> Imagine i don't have this. It would be great to find out next

week ,

> there is some other reason for this! But i don't think its going

to

> happen. Besides he was pretty serious about the possiblty of me

> having rsd.

>

> Plus i have to go through the steps of deteriming, 'if i have it

or

> not' for workman compensation reason. I 'm going to ask for a

med's

> next week.

>

> I Have a few question, does anyone know if it is true that ICE

help

> spread the RSD? My Physical Therpist is wraping my ankle with ice,

> along the tens machine one at ever vist( 3x a week) He is also

> telling to ICE my ankle to death when i'm here at home. I read on

the

> rsdhope site that ice help the spread of the RSD. Is this true??

[Guest guest]

I don't know if ice makes RSD spread but I Do know that it makes RSD Worse.

I've had RSD over 13 years now & that's what I ( & my doctors) have found out.

Please make them stop!

--

Wishing you pain-lowered days and

sleepful nights! Love,

Hoping to see ya'll at the RSD

ReTreat! July 26th & 27th in

Elkhart,In.

www.rsdretreat.com

>

>

> Hi,,

> Please forgive me for not putting my name at the bottom of my post.

> I have been alittle stressed. My Name is Bill ,I'm from Staten

> Island, NY.

> I read all of the reply's from my other post. Thank you for listen

> to me complain. Tom , you asked , if i was taking any med's at all.

> Well the only Med's i've been taking is celbrex! The doctor is

> going to decided next week, even if he wants to do the second

> injection in my ankle. I'm waiting for them to offically say, I have

> the rsd.

>

> But with the pain, burning, & pins & needles now moving from ankle to

> me knee and the rest of my leg. I really , i'm not going to sit here

> Imagine i don't have this. It would be great to find out next week ,

> there is some other reason for this! But i don't think its going to

> happen. Besides he was pretty serious about the possiblty of me

> having rsd.

>

> Plus i have to go through the steps of deteriming, 'if i have it or

> not' for workman compensation reason. I 'm going to ask for a med's

> next week.

>

> I Have a few question, does anyone know if it is true that ICE help

> spread the RSD? My Physical Therpist is wraping my ankle with ice,

> along the tens machine one at ever vist( 3x a week) He is also

> telling to ICE my ankle to death when i'm here at home. I read on the

> rsdhope site that ice help the spread of the RSD. Is this true??

>

>

>

>

>

[Guest guest]

I don't know if ice makes RSD spread but I Do know that it makes RSD Worse.

I've had RSD over 13 years now & that's what I ( & my doctors) have found out.

Please make them stop!

--

Wishing you pain-lowered days and

sleepful nights! Love,

Hoping to see ya'll at the RSD

ReTreat! July 26th & 27th in

Elkhart,In.

www.rsdretreat.com

>

>

> Hi,,

> Please forgive me for not putting my name at the bottom of my post.

> I have been alittle stressed. My Name is Bill ,I'm from Staten

> Island, NY.

> I read all of the reply's from my other post. Thank you for listen

> to me complain. Tom , you asked , if i was taking any med's at all.

> Well the only Med's i've been taking is celbrex! The doctor is

> going to decided next week, even if he wants to do the second

> injection in my ankle. I'm waiting for them to offically say, I have

> the rsd.

>

> But with the pain, burning, & pins & needles now moving from ankle to

> me knee and the rest of my leg. I really , i'm not going to sit here

> Imagine i don't have this. It would be great to find out next week ,

> there is some other reason for this! But i don't think its going to

> happen. Besides he was pretty serious about the possiblty of me

> having rsd.

>

> Plus i have to go through the steps of deteriming, 'if i have it or

> not' for workman compensation reason. I 'm going to ask for a med's

> next week.

>

> I Have a few question, does anyone know if it is true that ICE help

> spread the RSD? My Physical Therpist is wraping my ankle with ice,

> along the tens machine one at ever vist( 3x a week) He is also

> telling to ICE my ankle to death when i'm here at home. I read on the

> rsdhope site that ice help the spread of the RSD. Is this true??

>

>

>

>

>

[Guest guest]

a, this is a very nice and supportive group. That's why I stayed after my biopsy came back and my lump was benign. They helped me get through those few weeks till I got the results. Without this group I'm sure I would have made everyone in my family and my friends wish they had never met me. LOL.

Thank You

To all of you that read my post regarding my questions and information on my mother. I want to thank you all. It is very nice to know that there are people out there who care. Since I could not get a lot of information from doctors or Chemo Nurses. The response was very informative and helpful and I appreciate it more then words can say. Thank you again for caringa

[Guest guest]

whoo hoo! way to go Helen! I'm sure that all that dancin had to

work off most of what you ate and drank....keep up that exercise and

you'll be below goal before ya know it!

Melody

>

> Hi Melody glad you got my weigh now I can sleep tonight ,LOL got

my

> excercise in on sunday hubby and I went to Pepe,s on the river and

> danced for 3 hours( wont tell you what I ate and drank) and today

> got my 6000 steps in, entered my food chart, hope to have a small

> weight loss Im only 2 1/2 lbs from the bottom of my leeway, and

> turtle would be nice good luck to our team... Helen

[Guest guest]

whoo hoo! way to go Helen! I'm sure that all that dancin had to

work off most of what you ate and drank....keep up that exercise and

you'll be below goal before ya know it!

Melody

>

> Hi Melody glad you got my weigh now I can sleep tonight ,LOL got

my

> excercise in on sunday hubby and I went to Pepe,s on the river and

> danced for 3 hours( wont tell you what I ate and drank) and today

> got my 6000 steps in, entered my food chart, hope to have a small

> weight loss Im only 2 1/2 lbs from the bottom of my leeway, and

> turtle would be nice good luck to our team... Helen

[Guest guest]

I'm glad that things are slowly getting better. I can't imagine the

sorrow you're feeling right now, but hope that you take comfort in

knowing it will get better.

Alisab

>

>

> I just wanted to say thank you for the all the kind words and

prayers this week.

>

> It's been a tough week loosing my friend. I still can't believe

she is gone.

>

>

> I walked for a mile and half this morning.

>

> It looks like rain here in Indiana.

>

> We have to haul water so I can do laundry.

>

> We need to go to Walmart and CVS to get a few things so I will be

back.

>

>

> Love to all,

>

>

>

[Guest guest]

I wanted to thank you for the e-mails. This has meant

a great deal to me. I just turned 60 and the doctor

thinks I might have two years to live but I think I

will live longer. It is nice to see so many of you

have a faith in Christ. I know He knows when we will

go. While I do appreciate my doctor and know he is

coming from a medical standpoint I feel if the Lord

wants this fibrosis to slow down or stop it will

happen and if it is meant for me to go sooner then

that will happen too.

Try to keep - we will continue to pray for you ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour

[Guest guest]

Thank you for accepting me back into the fold. I joined this

group a couple years ago when I had BPH but had not been diagnosed with cancer.

Now I have been.

In a nutshell, I'm 64, married, have a Gleason score of 6

with a 67% chance that the cancer is still only in the prostate. Out of 12

biopsies, only a small part of one is malignant, although it's on the bottom of

the prostate. I was ready to sign up for brachytherapy until we spent time with

the radiological oncologist yesterday. External radiation seems to be an

acceptable alternative, although I understand that if it doesn't work, it can't

be done again. I've pretty much ruled out surgery, but I don't know how

aggressive to be in my treatment. I was also on testosterone therapy for

several months, so it seems ironic that the emphasis now is on removing the

testosterone that I know can be feeding the cancer but seemed so important

before.

Any great thoughts re: radiation now, either internal or

external, vs. waiting to see what happens? I have minimal health coverage now

and will be on Medicare in six months, so I don't know if there's an advantage

one way or the other in terms of coverage. I'm terribly concerned about the

prospect of socialized medicine lowering our standard of treatment

precipitously.

Thanks in advance for your thoughts.

Tom Lauterback

[Guest guest]

Tom wrote" I'm terribly concerned about the prospect of socialized medicine lowering our standard of treatment precipitously."

Tom if I could help allay your fears, you could benefit from reading this article.

http://www.denverpost.com/opinion/ci_12523427

"Il faut d'abord durer" Hemingway

Thank you

Thank you for accepting me back into the fold. I joined this group a couple years ago when I had BPH but had not been diagnosed with cancer. Now I have been.

In a nutshell, I'm 64, married, have a Gleason score of 6 with a 67% chance that the cancer is still only in the prostate. Out of 12 biopsies, only a small part of one is malignant, although it's on the bottom of the prostate. I was ready to sign up for brachytherapy until we spent time with the radiological oncologist yesterday. External radiation seems to be an acceptable alternative, although I understand that if it doesn't work, it can't be done again. I've pretty much ruled out surgery, but I don't know how aggressive to be in my treatment. I was also on testosterone therapy for several months, so it seems ironic that the emphasis now is on removing the testosterone that I know can be feeding the cancer but seemed so important before.

Any great thoughts re: radiation now, either internal or external, vs. waiting to see what happens? I have minimal health coverage now and will be on Medicare in six months, so I don't know if there's an advantage one way or the other in terms of coverage. I'm terribly concerned about the prospect of socialized medicine lowering our standard of treatment precipitously.

Thanks in advance for your thoughts.

Tom Lauterback

[Guest guest]

Tom wrote" I'm terribly concerned about the prospect of socialized medicine lowering our standard of treatment precipitously."

Tom if I could help allay your fears, you could benefit from reading this article.

http://www.denverpost.com/opinion/ci_12523427

"Il faut d'abord durer" Hemingway

Thank you

Thank you for accepting me back into the fold. I joined this group a couple years ago when I had BPH but had not been diagnosed with cancer. Now I have been.

In a nutshell, I'm 64, married, have a Gleason score of 6 with a 67% chance that the cancer is still only in the prostate. Out of 12 biopsies, only a small part of one is malignant, although it's on the bottom of the prostate. I was ready to sign up for brachytherapy until we spent time with the radiological oncologist yesterday. External radiation seems to be an acceptable alternative, although I understand that if it doesn't work, it can't be done again. I've pretty much ruled out surgery, but I don't know how aggressive to be in my treatment. I was also on testosterone therapy for several months, so it seems ironic that the emphasis now is on removing the testosterone that I know can be feeding the cancer but seemed so important before.

Any great thoughts re: radiation now, either internal or external, vs. waiting to see what happens? I have minimal health coverage now and will be on Medicare in six months, so I don't know if there's an advantage one way or the other in terms of coverage. I'm terribly concerned about the prospect of socialized medicine lowering our standard of treatment precipitously.

Thanks in advance for your thoughts.

Tom Lauterback

[Guest guest]

Or, for a different perspective try this article:http://www.americanthinker.com/2009/06/call_it_what_it_is_rationed_he.html

Tom wrote "   I'm terribly concerned about the prospect of socialized medicine lowering our standard of treatment precipitously. "

 

Tom if I could help allay your fears, you could benefit from reading this article. 

 

http://www.denverpost.com/opinion/ci_12523427

 

 

 

" Il faut d'abord durer "    Hemingway

 

 

Thank you

Thank you for accepting me back into the fold. I joined this group a couple years ago when I had BPH but had not been diagnosed with cancer. Now I have been.

 

In a nutshell, I'm 64, married, have a Gleason score of 6 with a 67% chance that the cancer is still only in the prostate. Out of 12 biopsies, only a small part of one is malignant, although it's on the bottom of the prostate. I was ready to sign up for brachytherapy until we spent time with the radiological oncologist yesterday. External radiation seems to be an acceptable alternative, although I understand that if it doesn't work, it can't be done again. I've pretty much ruled out surgery, but I don't know how aggressive to be in my treatment. I was also on testosterone therapy for several months, so it seems ironic that the emphasis now is on removing the testosterone that I know can be feeding the cancer but seemed so important before.

 

Any great thoughts re: radiation now, either internal or external, vs. waiting to see what happens? I have minimal health coverage now and will be on Medicare in six months, so I don't know if there's an advantage one way or the other in terms of coverage. I'm terribly concerned about the prospect of socialized medicine lowering our standard of treatment precipitously.

 

Thanks in advance for your thoughts.

 

Tom Lauterback

 

-- Emersonwww.flhw.org

[Guest guest]

Or, for a different perspective try this article:http://www.americanthinker.com/2009/06/call_it_what_it_is_rationed_he.html

Tom wrote "   I'm terribly concerned about the prospect of socialized medicine lowering our standard of treatment precipitously. "

 

Tom if I could help allay your fears, you could benefit from reading this article. 

 

http://www.denverpost.com/opinion/ci_12523427

 

 

 

" Il faut d'abord durer "    Hemingway

 

 

Thank you

Thank you for accepting me back into the fold. I joined this group a couple years ago when I had BPH but had not been diagnosed with cancer. Now I have been.

 

In a nutshell, I'm 64, married, have a Gleason score of 6 with a 67% chance that the cancer is still only in the prostate. Out of 12 biopsies, only a small part of one is malignant, although it's on the bottom of the prostate. I was ready to sign up for brachytherapy until we spent time with the radiological oncologist yesterday. External radiation seems to be an acceptable alternative, although I understand that if it doesn't work, it can't be done again. I've pretty much ruled out surgery, but I don't know how aggressive to be in my treatment. I was also on testosterone therapy for several months, so it seems ironic that the emphasis now is on removing the testosterone that I know can be feeding the cancer but seemed so important before.

 

Any great thoughts re: radiation now, either internal or external, vs. waiting to see what happens? I have minimal health coverage now and will be on Medicare in six months, so I don't know if there's an advantage one way or the other in terms of coverage. I'm terribly concerned about the prospect of socialized medicine lowering our standard of treatment precipitously.

 

Thanks in advance for your thoughts.

 

Tom Lauterback

 

-- Emersonwww.flhw.org