Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 Hay guys and gals It has been over 2 months now since had his radical prostectomy. He is doing alot better. He has full bladder control, which he has had since the catheter was removed. And is getting erections. At first they were spontanious and good. But then it started to hurt when we were done. His perineum and his right side. So after time sex=pain and he lost his drve. His brian told him.. " no way man, sex will cause pain " . So he was at the point where he had no interest in women or sex..would rather have a burger. This was depressing him so he started to eat. And because he is not at work and getting the excersizes, now he has gained 30lbs. But went to out Dr and he did a testosterone test and the lowest is 14, was 7. Which was expained it was not that the prostate was removed. The Dr explained he could not have a testosterone medication that would incourage him to produce more, as it (testosterone) is a cause of prostate cancer. But we were give a name of a herb product called T3, got it at GNC. It will NATURALLY incourage production and it has an estrogen blocker. But he can only be on it for 2 months. After which he will be producing it again. But the dr did agree if pain was following sex, your brian will make it so you are not interested. is taking Cealis 5mg daily and Levitra 20mg when he needed. Which he has only had 2 and he is now back to chasing me around. On February 20th had his PSA blood test and we got the results back on March 3rd. He was at 0.02. Which I was told was GREAT. He has to go back on his 6th month for an examination and blood test. On the other hand a very close friend of ours found out he is having the same complications as . His PSA was really high and his prostate was larger. He is terrified. Says after watching and I, he does not know how he would cope. We told him, with our support. I know his wife is very queezy with blood and all of it, so we will step in and help where we can....But I also told him he has no one in the family that has/have had prosate cancer. So that is a good thing on his side. Bottom line, we told him to take a step back, take 3 deep breaths, and relax. Deal with the tests one at a time. It will be after the specialist does a PSA racio test, then it will tell jim which direction to go. But he is not alone and I know place he can join and chat, and expess his feeling and then relise everyone is different. Not to worry till after he sees the specialist and has the Ratio PSA done. And to get in to see him could be 2 months. The test results are another month for the results. And then he will know more. Anyways, thaught would check in and tell the good news about . >Marla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 wrote: > Just went to pick up my 9 month post IGRT results today from my local > lab. I don't see my Onco to discuss til the 2nd Sept but my own > interpretation is that they are encouraging. PSA is now at 2.35 (down > from 2.91 on June 17th) with free PSA now at .13ng/ml, which is up from > .12 last test. Is free PSA much of an indicator after TX? I believe that it is not. See, http://www.prostate-cancer.org/education/preclin/PCRIViewOnTesting.html " Free PSA is a sub-type of PSA that is associated with benign prostatic cell proliferation; the free PSA percentage is equal to the free PSA divided by the total PSA, multiplied by 100. A free PSA percentage of less than 10% (after prostatitis has been ruled out) should be considered a possible “ flag” for PC, and biopsy would be warranted. " (snip) > Thankfully my testosterone is now down to 0.9ng/ml whereas it was a frightening 2.7ng/ml last test. I recommend rechecking the report. Unless I'm mistaken (certainly possible), in Europe testosterone is measured in nano-moles (nmol), whereas in the USA it is measured in ng/dL (nanograms per *deciliter* not milliliter). I'm unsure of the conversion factor. Regards, Steve J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 wrote: > Just went to pick up my 9 month post IGRT results today from my local > lab. I don't see my Onco to discuss til the 2nd Sept but my own > interpretation is that they are encouraging. PSA is now at 2.35 (down > from 2.91 on June 17th) with free PSA now at .13ng/ml, which is up from > .12 last test. Is free PSA much of an indicator after TX? I believe that it is not. See, http://www.prostate-cancer.org/education/preclin/PCRIViewOnTesting.html " Free PSA is a sub-type of PSA that is associated with benign prostatic cell proliferation; the free PSA percentage is equal to the free PSA divided by the total PSA, multiplied by 100. A free PSA percentage of less than 10% (after prostatitis has been ruled out) should be considered a possible “ flag” for PC, and biopsy would be warranted. " (snip) > Thankfully my testosterone is now down to 0.9ng/ml whereas it was a frightening 2.7ng/ml last test. I recommend rechecking the report. Unless I'm mistaken (certainly possible), in Europe testosterone is measured in nano-moles (nmol), whereas in the USA it is measured in ng/dL (nanograms per *deciliter* not milliliter). I'm unsure of the conversion factor. Regards, Steve J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 Hi Steve, Thanks for the info on the free PSA. I've now had my testosterone checked at 2 different labs and both labs have expressed it in ng/ml. On both occassions my previous lab stated the normal range as 0.2 - 0.8 ng/ml ( my readings at that lab were 2.4 followed by 2.7). My new lab lists the normal range as 0.3 - 1.0 ng/ml and my reading came in at 0.9. I think the nmol unit of measure is just about confined to the non-decimal UK. The level is obviously something I'll have to bring up with my Onco on Wednesday. Chris Re: Update wrote: > Just went to pick up my 9 month post IGRT results today from my local > lab. I don't see my Onco to discuss til the 2nd Sept but my own > interpretation is that they are encouraging. PSA is now at 2.35 (down > from 2.91 on June 17th) with free PSA now at .13ng/ml, which is up from > .12 last test. Is free PSA much of an indicator after TX? I believe that it is not. See, http://www.prostate-cancer.org/education/preclin/PCRIViewOnTesting.html " Free PSA is a sub-type of PSA that is associated with benign prostatic cell proliferation; the free PSA percentage is equal to the free PSA divided by the total PSA, multiplied by 100. A free PSA percentage of less than 10% (after prostatitis has been ruled out) should be considered a possible “ flag” for PC, and biopsy would be warranted. " (snip) > Thankfully my testosterone is now down to 0.9ng/ml whereas it was a > frightening 2.7ng/ml last test. I recommend rechecking the report. Unless I'm mistaken (certainly possible), in Europe testosterone is measured in nano-moles (nmol), whereas in the USA it is measured in ng/dL (nanograms per *deciliter* not milliliter). I'm unsure of the conversion factor. Regards, Steve J ------------------------------------ There are just two rules for this group 1 No Spam 2 Be kind to others Please recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking reply Try to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 Hi Steve, Thanks for the info on the free PSA. I've now had my testosterone checked at 2 different labs and both labs have expressed it in ng/ml. On both occassions my previous lab stated the normal range as 0.2 - 0.8 ng/ml ( my readings at that lab were 2.4 followed by 2.7). My new lab lists the normal range as 0.3 - 1.0 ng/ml and my reading came in at 0.9. I think the nmol unit of measure is just about confined to the non-decimal UK. The level is obviously something I'll have to bring up with my Onco on Wednesday. Chris Re: Update wrote: > Just went to pick up my 9 month post IGRT results today from my local > lab. I don't see my Onco to discuss til the 2nd Sept but my own > interpretation is that they are encouraging. PSA is now at 2.35 (down > from 2.91 on June 17th) with free PSA now at .13ng/ml, which is up from > .12 last test. Is free PSA much of an indicator after TX? I believe that it is not. See, http://www.prostate-cancer.org/education/preclin/PCRIViewOnTesting.html " Free PSA is a sub-type of PSA that is associated with benign prostatic cell proliferation; the free PSA percentage is equal to the free PSA divided by the total PSA, multiplied by 100. A free PSA percentage of less than 10% (after prostatitis has been ruled out) should be considered a possible “ flag” for PC, and biopsy would be warranted. " (snip) > Thankfully my testosterone is now down to 0.9ng/ml whereas it was a > frightening 2.7ng/ml last test. I recommend rechecking the report. Unless I'm mistaken (certainly possible), in Europe testosterone is measured in nano-moles (nmol), whereas in the USA it is measured in ng/dL (nanograms per *deciliter* not milliliter). I'm unsure of the conversion factor. Regards, Steve J ------------------------------------ There are just two rules for this group 1 No Spam 2 Be kind to others Please recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking reply Try to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 Just checked on line conversion and conversion fron ng/ml to ng/dl is to multiply by 100. WebMD give normal levels of testosterone in a 40 - 59 year old male (I'm 49) as 350 - 890 ng/dl so I'm at the high side of 'normal' ! Chris Re: Update wrote: > Just went to pick up my 9 month post IGRT results today from my local > lab. I don't see my Onco to discuss til the 2nd Sept but my own > interpretation is that they are encouraging. PSA is now at 2.35 (down > from 2.91 on June 17th) with free PSA now at .13ng/ml, which is up from > .12 last test. Is free PSA much of an indicator after TX? I believe that it is not. See, http://www.prostate-cancer.org/education/preclin/PCRIViewOnTesting.html " Free PSA is a sub-type of PSA that is associated with benign prostatic cell proliferation; the free PSA percentage is equal to the free PSA divided by the total PSA, multiplied by 100. A free PSA percentage of less than 10% (after prostatitis has been ruled out) should be considered a possible “ flag” for PC, and biopsy would be warranted. " (snip) > Thankfully my testosterone is now down to 0.9ng/ml whereas it was a > frightening 2.7ng/ml last test. I recommend rechecking the report. Unless I'm mistaken (certainly possible), in Europe testosterone is measured in nano-moles (nmol), whereas in the USA it is measured in ng/dL (nanograms per *deciliter* not milliliter). I'm unsure of the conversion factor. Regards, Steve J ------------------------------------ There are just two rules for this group 1 No Spam 2 Be kind to others Please recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking reply Try to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 Just checked on line conversion and conversion fron ng/ml to ng/dl is to multiply by 100. WebMD give normal levels of testosterone in a 40 - 59 year old male (I'm 49) as 350 - 890 ng/dl so I'm at the high side of 'normal' ! Chris Re: Update wrote: > Just went to pick up my 9 month post IGRT results today from my local > lab. I don't see my Onco to discuss til the 2nd Sept but my own > interpretation is that they are encouraging. PSA is now at 2.35 (down > from 2.91 on June 17th) with free PSA now at .13ng/ml, which is up from > .12 last test. Is free PSA much of an indicator after TX? I believe that it is not. See, http://www.prostate-cancer.org/education/preclin/PCRIViewOnTesting.html " Free PSA is a sub-type of PSA that is associated with benign prostatic cell proliferation; the free PSA percentage is equal to the free PSA divided by the total PSA, multiplied by 100. A free PSA percentage of less than 10% (after prostatitis has been ruled out) should be considered a possible “ flag” for PC, and biopsy would be warranted. " (snip) > Thankfully my testosterone is now down to 0.9ng/ml whereas it was a > frightening 2.7ng/ml last test. I recommend rechecking the report. Unless I'm mistaken (certainly possible), in Europe testosterone is measured in nano-moles (nmol), whereas in the USA it is measured in ng/dL (nanograms per *deciliter* not milliliter). I'm unsure of the conversion factor. Regards, Steve J ------------------------------------ There are just two rules for this group 1 No Spam 2 Be kind to others Please recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options. Try to delete old material that is no longer applying when clicking reply Try to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 wrote: > Just checked on line conversion and conversion fron ng/ml to > ng/dl is to multiply by 100. WebMD give normal levels of > testosterone in a 40 - 59 year old male (I'm 49) as 350 - 890 > ng/dl so I'm at the high side of 'normal' ! Thanks for checking. Why are you up so late? Pascual-Morales, a PCa brother in Madrid, is long in sleepy-land after our noon (Arizona) Saturday online chat. Well, I'm a night-owl, too. Regards, Steve J " The difference between food and beer is that beer has some food value, while food has no beer value " -- the waitress Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 wrote: > Just checked on line conversion and conversion fron ng/ml to > ng/dl is to multiply by 100. WebMD give normal levels of > testosterone in a 40 - 59 year old male (I'm 49) as 350 - 890 > ng/dl so I'm at the high side of 'normal' ! Thanks for checking. Why are you up so late? Pascual-Morales, a PCa brother in Madrid, is long in sleepy-land after our noon (Arizona) Saturday online chat. Well, I'm a night-owl, too. Regards, Steve J " The difference between food and beer is that beer has some food value, while food has no beer value " -- the waitress Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 Well it is about 1.30am, and it is Saturday night - though I am about to go to bed. However I'm obviously not THAT awake as that conversion factor of 100 would give my testosterone as 90ng/dl not 900! As both labs have a very similar normal range I think it is safe to assume I'm at the high end of that range. It's entirley possible they are talking picolitres (which may have a conversion factor of 1000?)and don't have the symbol for it on their computer - which I don't either! On that note I'm off to bed. Regards, Chris Re: Update wrote:> Just checked on line conversion and conversion fron ng/ml to > ng/dl is to multiply by 100. WebMD give normal levels of > testosterone in a 40 - 59 year old male (I'm 49) as 350 - 890 > ng/dl so I'm at the high side of 'normal' !Thanks for checking.Why are you up so late? Pascual-Morales, a PCa brother in Madrid, is long insleepy-land after our noon (Arizona) Saturday online chat.Well, I'm a night-owl, too.Regards,Steve J"The difference between food and beer is that beer has some foodvalue, while food has no beer value"-- the waitress Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 Well it is about 1.30am, and it is Saturday night - though I am about to go to bed. However I'm obviously not THAT awake as that conversion factor of 100 would give my testosterone as 90ng/dl not 900! As both labs have a very similar normal range I think it is safe to assume I'm at the high end of that range. It's entirley possible they are talking picolitres (which may have a conversion factor of 1000?)and don't have the symbol for it on their computer - which I don't either! On that note I'm off to bed. Regards, Chris Re: Update wrote:> Just checked on line conversion and conversion fron ng/ml to > ng/dl is to multiply by 100. WebMD give normal levels of > testosterone in a 40 - 59 year old male (I'm 49) as 350 - 890 > ng/dl so I'm at the high side of 'normal' !Thanks for checking.Why are you up so late? Pascual-Morales, a PCa brother in Madrid, is long insleepy-land after our noon (Arizona) Saturday online chat.Well, I'm a night-owl, too.Regards,Steve J"The difference between food and beer is that beer has some foodvalue, while food has no beer value"-- the waitress Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 In my experience over the past two years of fighting PCa, UK is decimal on ng/ml so readings should be comparable. To: ProstateCancerSupport Sent: Saturday, 29 August, 2009 11:59:41 PMSubject: Re: UpdateHi Steve,Thanks for the info on the free PSA. I've now had my testosterone checked at 2 different labs and both labs have expressed it in ng/ml. On both occassions my previous lab stated the normal range as 0.2 - 0.8 ng/ml ( my readings at that lab were 2.4 followed by 2.7). My new lab lists the normal range as 0.3 - 1.0 ng/ml and my reading came in at 0.9. I think the nmol unit of measure is just about confined to the non-decimal UK. The level is obviously something I'll have to bring up with my Onco on Wednesday..Chris----- Original Message ----- To: <ProstateCancerSupport >Sent: Sunday, August 30, 2009 12:44 AMSubject: Re: Updatewrote:> Just went to pick up my 9 month post IGRT results today from my local> lab. I don't see my Onco to discuss til the 2nd Sept but my own> interpretation is that they are encouraging. PSA is now at 2.35 (down> from 2.91 on June 17th) with free PSA now at .13ng/ml, which is up from> .12 last test. Is free PSA much of an indicator after TX?I believe that it is not.See,http://www.prostate-cancer.org/education/preclin/PCRIViewOnTesting.html"Free PSA is a sub-type of PSA that is associated with benignprostatic cell proliferation; the free PSA percentage is equal tothe free PSA divided by the total PSA, multiplied by 100. A freePSA percentage of less than 10% (after prostatitis has been ruledout) should be considered a possible “ flag†for PC, and biopsywould be warranted."(snip)> Thankfully my testosterone is now down to 0.9ng/ml whereas it was a > frightening 2.7ng/ml last test.I recommend rechecking the report.Unless I'm mistaken (certainly possible), in Europe testosteroneis measured in nano-moles (nmol), whereas in the USA it ismeasured in ng/dL (nanograms per *deciliter* not milliliter). I'munsure of the conversion factor.Regards,Steve J------------------------------------There are just two rules for this group1 No Spam2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options.Try to delete old material that is no longer applying when clicking replyTry to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 In my experience over the past two years of fighting PCa, UK is decimal on ng/ml so readings should be comparable. To: ProstateCancerSupport Sent: Saturday, 29 August, 2009 11:59:41 PMSubject: Re: UpdateHi Steve,Thanks for the info on the free PSA. I've now had my testosterone checked at 2 different labs and both labs have expressed it in ng/ml. On both occassions my previous lab stated the normal range as 0.2 - 0.8 ng/ml ( my readings at that lab were 2.4 followed by 2.7). My new lab lists the normal range as 0.3 - 1.0 ng/ml and my reading came in at 0.9. I think the nmol unit of measure is just about confined to the non-decimal UK. The level is obviously something I'll have to bring up with my Onco on Wednesday..Chris----- Original Message ----- To: <ProstateCancerSupport >Sent: Sunday, August 30, 2009 12:44 AMSubject: Re: Updatewrote:> Just went to pick up my 9 month post IGRT results today from my local> lab. I don't see my Onco to discuss til the 2nd Sept but my own> interpretation is that they are encouraging. PSA is now at 2.35 (down> from 2.91 on June 17th) with free PSA now at .13ng/ml, which is up from> .12 last test. Is free PSA much of an indicator after TX?I believe that it is not.See,http://www.prostate-cancer.org/education/preclin/PCRIViewOnTesting.html"Free PSA is a sub-type of PSA that is associated with benignprostatic cell proliferation; the free PSA percentage is equal tothe free PSA divided by the total PSA, multiplied by 100. A freePSA percentage of less than 10% (after prostatitis has been ruledout) should be considered a possible “ flag†for PC, and biopsywould be warranted."(snip)> Thankfully my testosterone is now down to 0.9ng/ml whereas it was a > frightening 2.7ng/ml last test.I recommend rechecking the report.Unless I'm mistaken (certainly possible), in Europe testosteroneis measured in nano-moles (nmol), whereas in the USA it ismeasured in ng/dL (nanograms per *deciliter* not milliliter). I'munsure of the conversion factor.Regards,Steve J------------------------------------There are just two rules for this group1 No Spam2 Be kind to othersPlease recognise that Prostate Cancerhas different guises and needs different levels of treatment and in some cases no treatment at all. Some men even with all options offered chose radical options that you would not choose. We only ask that people be informed before choice is made, we cannot and should not tell other members what to do, other than look at other options.Try to delete old material that is no longer applying when clicking replyTry to change the title if the content requires it Quote Link to comment Share on other sites More sharing options...
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