My Mom

[Guest guest]

________________________________

While I have not posted a lot during the almost 3 yrs or so that I have been a

part of this wonderful group, I have read your posts several times a week and I

have felt your pain, your sorrow, your frustration, your anxiety, your anger,

and often your sad and happy relief that your spouse, your parent, your

brother, your sister or other love one have been released from the grip of this

terrible disease;  now as of yesterday I have joined those of you who have

grieved, and who are who are still greiving , as my dear Mother passed away just

after lunch time EST, from her very long, long battle with LBD. 

I received a call from the nurse in her unit at the care center, just as I

was finising up testing at the hospital (as I am to have surgery for breast

cancer on Mon. Jan 30th), that she had passed away.  She said that my Mom had

been having a lot of trouble with really bad muscus in the morning, and that she

had not eaten lunch and they were just getting ready to suction some of the

mucous and give her her afternoon meds when she just slumped over in her chair

and stopped breathing.  I am thankful to our Lord Jesus that he did not allow

her to suffer or linger for days on end, and when I went to the care center to

she her before the funeral home came she looked so very, very peaceful and

sweet. 

I am also thankful that I had spent about 4 hrs with her on Sunday afternoon

helping her eat lunch, feeding her a bowl of ice cream and sitting beside her

while she napped.  I had planned to go to see her today before my MRI, but that

was not to be.  I had watched her slowly going downhill these last 4 or 5 months

to the point where it had become almost impossible for her to talk and she has

been a total lift and unable to walk in anyway for many more months before

that.  The doctor had said around Chirstmas time that she was showing signs of

congestive heart failure but her breathing had not been labored in any way,

although I had noticed that she had been sleeping more and more, a combination

of her age and the disease.  The last time I had seen her really alert and

talking more was on Christmas Day.

She was 95 yrs. old on Oct. 27 and she had been suffering from this disease for

many years although she was only officially diagnosed about 3 yrs. ago.  But as

I look back over all the years of her Parkinson-like symptoms,  the terrible

tremors, all of her neurlogical problems, the falls and the passing out, I knew

after finding this group that she had had LBD for many years.  I also believe

that her poor heart just gave out on her yesterday and could just not support

her any longer.

For your caring advice, your amazing knowledge about this awful disease, and

your care and concern for all of those in this group, I can never thank you

enough.  Many, many times, I have shaken my head in agreement, as your stories

were often so similiar to the journey I have traveled with my Mom and I knew

exactly what you were going through.  You have been a Godsend to me and I know

you will contine to be for those who come to this group in the future.  I could

not have traveled this road without you.  God bless you all. 

My brother is flying to OH from Colorado later today, and our Mother's funeral

will be on Friday.  I will not be as frequent a reader for awhile as I have

another journey to travel on my own for a few months with my surgery and the

chemo and radiation to follow, but I am positive that all will be well and I

will continue to check back from time to time.  Thank you to those of you who

administer this group for your amazing help and I will pray for you as you keep

up this very, very important work.

Patti , dtr of Pat, age 95, diagnosed with LBD 2009, passed away

peacefully, Jan. 24, 2012 Dear LBD caregivers group:

[Guest guest]

Thank you for your kind words Donna R

________________________________

To: LBDcaregivers

Sent: Wednesday, January 25, 2012 1:34 PM

Subject: Re: My Mom

 

Patti,

Sending my condolences to your family with the passing of your Mom.  She has

lived a long life.  And it sounds like you have been there for her,  Now will

be your time to grieve.

We will all be thinking of you on the 30th of the month as you take care of your

health problems.  Do let us know how things are going eventually.

Hugs,

Donna R

Mother  Lorraine, never diagnosed but I am sure had LBD, 

Lived with me for 3 years and another year in NH.

Died Oct.2002  MI

My Mom

 

________________________________

While I have not posted a lot during the almost 3 yrs or so that I have been a

part of this wonderful group, I have read your posts several times a week and I

have felt your pain, your sorrow, your frustration, your anxiety, your anger,

and often your sad and happy relief that your spouse, your parent, your

brother, your sister or other love one have been released from the grip of

this terrible disease;  now as of yesterday I have joined those of you who

have grieved, and who are who are still greiving , as my dear Mother passed away

just after lunch time EST, from her very long, long battle with LBD. 

I received a call from the nurse in her unit at the care center, just as I

was finising up testing at the hospital (as I am to have surgery for breast

cancer on Mon. Jan 30th), that she had passed away.  She said that my Mom had

been having a lot of trouble with really bad muscus in the morning, and that

she had not eaten lunch and they were just getting ready to suction some of the

mucous and give her her afternoon meds when she just slumped over in her chair

and stopped breathing.  I am thankful to our Lord Jesus that he did not allow

her to suffer or linger for days on end, and when I went to the care center to

she her before the funeral home came she looked so very, very peaceful and

sweet. 

I am also thankful that I had spent about 4 hrs with her on Sunday afternoon

helping her eat lunch, feeding her a bowl of ice cream and sitting beside her

while she napped.  I had planned to go to see her today before my MRI, but that

was not to be.  I had watched her slowly going downhill these last 4 or 5

months to the point where it had become almost impossible for her to talk and

she has been a total lift and unable to walk in anyway for many more months

before that.  The doctor had said around Chirstmas time that she was showing

signs of congestive heart failure but her breathing had not been labored in any

way, although I had noticed that she had been sleeping more and more, a

combination of her age and the disease.  The last time I had seen her really

alert and talking more was on Christmas Day.

She was 95 yrs. old on Oct. 27 and she had been suffering from this disease for

many years although she was only officially diagnosed about 3 yrs. ago.  But as

I look back over all the years of her Parkinson-like symptoms,  the terrible

tremors, all of her neurlogical problems, the falls and the passing out, I knew

after finding this group that she had had LBD for many years.  I also believe

that her poor heart just gave out on her yesterday and could just not support

her any longer.

For your caring advice, your amazing knowledge about this awful disease, and

your care and concern for all of those in this group, I can never thank you

enough.  Many, many times, I have shaken my head in agreement, as your

stories were often so similiar to the journey I have traveled with my Mom and I

knew exactly what you were going through.  You have been a Godsend to me and I

know you will contine to be for those who come to this group in the future.  I

could not have traveled this road without you.  God bless you all. 

My brother is flying to OH from Colorado later today, and our Mother's funeral

will be on Friday.  I will not be as frequent a reader for awhile as I have

another journey to travel on my own for a few months with my surgery and the

chemo and radiation to follow, but I am positive that all will be well and I

will continue to check back from time to time.  Thank you to those of you who

administer this group for your amazing help and I will pray for you as you keep

up this very, very important work.

Patti , dtr of Pat, age 95, diagnosed with LBD 2009, passed away

peacefully, Jan. 24, 2012 Dear LBD caregivers group:

[Guest guest]

So very sorry for your loss Patti. I will be thinking of you Friday.

- Dorothy

from cell phone

>

>

> ________________________________

>

> While I have not posted a lot during the almost 3 yrs or so that I have been a

part of this wonderful group, I have read your posts several times a week and I

have felt your pain, your sorrow, your frustration, your anxiety, your anger,

and often your sad and happy relief that your spouse, your parent, your brother,

your sister or other love one have been released from the grip of this terrible

disease; now as of yesterday I have joined those of you who have grieved, and

who are who are still greiving , as my dear Mother passed away just after lunch

time EST, from her very long, long battle with LBD.

>

> I received a call from the nurse in her unit at the care center, just as I was

finising up testing at the hospital (as I am to have surgery for breast cancer

on Mon. Jan 30th), that she had passed away. She said that my Mom had been

having a lot of trouble with really bad muscus in the morning, and that she had

not eaten lunch and they were just getting ready to suction some of the mucous

and give her her afternoon meds when she just slumped over in her chair and

stopped breathing. I am thankful to our Lord Jesus that he did not allow her to

suffer or linger for days on end, and when I went to the care center to she her

before the funeral home came she looked so very, very peaceful and sweet.

>

> I am also thankful that I had spent about 4 hrs with her on Sunday afternoon

helping her eat lunch, feeding her a bowl of ice cream and sitting beside her

while she napped. I had planned to go to see her today before my MRI, but that

was not to be. I had watched her slowly going downhill these last 4 or 5 months

to the point where it had become almost impossible for her to talk and she has

been a total lift and unable to walk in anyway for many more months before that.

The doctor had said around Chirstmas time that she was showing signs of

congestive heart failure but her breathing had not been labored in any way,

although I had noticed that she had been sleeping more and more, a combination

of her age and the disease. The last time I had seen her really alert and

talking more was on Christmas Day.

>

> She was 95 yrs. old on Oct. 27 and she had been suffering from this disease

for many years although she was only officially diagnosed about 3 yrs. ago. But

as I look back over all the years of her Parkinson-like symptoms, the terrible

tremors, all of her neurlogical problems, the falls and the passing out, I knew

after finding this group that she had had LBD for many years. I also believe

that her poor heart just gave out on her yesterday and could just not support

her any longer.

>

> For your caring advice, your amazing knowledge about this awful disease, and

your care and concern for all of those in this group, I can never thank you

enough. Many, many times, I have shaken my head in agreement, as your stories

were often so similiar to the journey I have traveled with my Mom and I knew

exactly what you were going through. You have been a Godsend to me and I know

you will contine to be for those who come to this group in the future. I could

not have traveled this road without you. God bless you all.

>

> My brother is flying to OH from Colorado later today, and our Mother's funeral

will be on Friday. I will not be as frequent a reader for awhile as I have

another journey to travel on my own for a few months with my surgery and the

chemo and radiation to follow, but I am positive that all will be well and I

will continue to check back from time to time. Thank you to those of you who

administer this group for your amazing help and I will pray for you as you keep

up this very, very important work.

>

> Patti , dtr of Pat, age 95, diagnosed with LBD 2009, passed away

peacefully, Jan. 24, 2012 Dear LBD caregivers group:

>

>