Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 I *love* Rite Aid. Had one just a mile from my house and knew the pharmacists intimately. Then they closed and I was crushed. But I started going to another Rite Aid much farther away and they have been wonderful. The main pharmacist bends over backward to help me. In my experience Walgreens has always seemed very impersonal, but the Rite Aid pharmacists really do care. Perhaps I've just been lucky but it sure helps to have a sympathetic, knowledgeable person on my side Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 IMPORTANT: Make sure to specify that you do NOT want LDN in a slow- release form. Reports have been received from patients that their pharmacies have been supplying a slow-release form of naltrexone. Pharmacies should be instructed NOT to provide LDN in an " SR " or slow-release or timed- release form. Unless the low dose of naltrexone is in an unaltered form, which permits it to reach a prompt " spike " in the blood stream, its therapeutic effects may be inhibited. Fillers. Capsules of LDN necessarily contain a substantial percentage of neutral inactive filler. Experiments by the compounding pharmacist, Dr. Skip Lenz, have demonstrated that the use of calcium carbonate as a filler will interfere with absorption of the LDN capsule. Therefore, it is suggested that calcium carbonate filler not be employed in compounding LDN capsules. He recommends either Avicel, lactose (if lactose intolerance is not a problem), or sucrose fillers as useful fast-release fillers. > IMPORTANT: Make sure to fill your Rx at a compounding pharmacy that has a reputation for consistent reliability in the quality of the LDN it delivers. The FDA has found a significant error rate in compounded prescriptions produced at randomly selected pharmacies. Dr. Bihari has reported seeing adverse effects from this problem. http://www.low dose naltrexone.org/ Please see our report, Reliability Problem With Compounding Pharmacies. Please see the above list of recommended pharmacies for some suggested sources. http://www.low dose naltrexone.org/comp_pharm.htm Art -- > > Since I'm pretty new to this site I have a question. How and by whom is it decided that a pharmacy is or is not on the OK list? Is the LDN they make tested? Is it just word of mouth that people are getting better, having relapses? I noticed that the pharmacy I use, BelMar, is getting kind of a bad rap on the LDN Forum. Some say it's simply because they make quick release tablets, others because they don't feel better immediately. With MS I thought the idea is to halt progression not cure. Any improvement is a plus, Right? > > Just curious... > > Take Care, > Tonette > > RRMS since 1996, SPMS since 2007 > Rocky Mountains, Colorado > LDN since May 2008 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 Thanks Art, The LDN I get is in fast release form and the filler is Avicel. I put a tablet in water and it was completely disolved in less than a minute. I am still wondering who makes the determination of which pharmacies get on the OK list and how is it determined. Take Care,TonetteRRMS since 1996, SPMS since 2007Rocky Mountains, ColoradoLDN since May 2008 From: Art <rtee54@...>Subject: [low dose naltrexone] Re: Pharmacieslow dose naltrexone Date: Sunday, July 27, 2008, 3:04 PM IMPORTANT: Make sure to specify that you do NOT want LDN in a slow-release form.Reports have been received from patients that their pharmacies have been supplying a slow-release form of naltrexone. Pharmacies should be instructed NOT to provide LDN in an "SR" or slow-release or timed-release form. Unless the low dose of naltrexone is in an unaltered form, which permits it to reach a prompt "spike" in the blood stream, its therapeutic effects may be inhibited.Fillers. Capsules of LDN necessarily contain a substantial percentage of neutral inactive filler. Experiments by the compounding pharmacist, Dr. Skip Lenz, have demonstrated that the use of calcium carbonate as a filler will interfere with absorption of the LDN capsule. Therefore, it is suggested that calcium carbonate filler not be employed in compounding LDN capsules. He recommends either Avicel, lactose (if lactose intolerance is not a problem), or sucrose fillers as useful fast-release fillers. > IMPORTANT: Make sure to fill your Rx at a compounding pharmacy that has a reputation for consistent reliability in the quality of the LDN it delivers.The FDA has found a significant error rate in compounded prescriptions produced at randomly selected pharmacies. Dr. Bihari has reported seeing adverse effects from this problem. http://www.lowdosen altrexone. org/Please see our report, Reliability Problem With Compounding Pharmacies. Please see the above list of recommended pharmacies for some suggested sources.http://www.lowdosen altrexone. org/comp_ pharm.htmArt-->> Since I'm pretty new to this site I have a question. How and by whom is it decided that a pharmacy is or is not on the OK list? Is the LDN they make tested? Is it just word of mouth that people are getting better, having relapses? I noticed that the pharmacy I use, BelMar, is getting kind of a bad rap on the LDN Forum. Some say it's simply because they make quick release tablets, others because they don't feel better immediately. With MS I thought the idea is to halt progression not cure. Any improvement is a plus, Right?> > Just curious...> > Take Care,> Tonette> > RRMS since 1996, SPMS since 2007> Rocky Mountains, Colorado> LDN since May 2008> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 Hey Tonette, Dr. Gluck is the owner of the LDN website. You should ask him how they determine that. Art -- > > > > Since I'm pretty new to this site I have a question. How and by > whom is it decided that a pharmacy is or is not on the OK list? Is > the LDN they make tested? Is it just word of mouth that people are > getting better, having relapses? I noticed that the pharmacy I use, > BelMar, is getting kind of a bad rap on the LDN Forum. Some say it's > simply because they make quick release tablets, others because they > don't feel better immediately. With MS I thought the idea is to > halt progression not cure. Any improvement is a plus, Right? > > > > Just curious... > > > > Take Care, > > Tonette > > > > RRMS since 1996, SPMS since 2007 > > Rocky Mountains, Colorado > > LDN since May 2008 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 ThanksTake Care,TonetteRRMS since 1996, SPMS since 2007Rocky Mountains, ColoradoLDN since May 2008 From: Art Hansen <rtee54@...>Subject: [low dose naltrexone] Re: Pharmacieslow dose naltrexone Date: Sunday, July 27, 2008, 8:36 PM Hey Tonette,Dr. Gluck is the owner of the LDN website. You should ask him how they determine that.Art--> >> > Since I'm pretty new to this site I have a question. How and by > whom is it decided that a pharmacy is or is not on the OK list? Is > the LDN they make tested? Is it just word of mouth that people are > getting better, having relapses? I noticed that the pharmacy I use, > BelMar, is getting kind of a bad rap on the LDN Forum. Some say it's > simply because they make quick release tablets, others because they > don't feel better immediately. With MS I thought the idea is to > halt progression not cure. Any improvement is a plus, Right?> > > > Just curious...> > > > Take Care,> > Tonette> > > > RRMS since 1996, SPMS since 2007> > Rocky Mountains, Colorado> > LDN since May 2008> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Thanks Art,The LDN I get is in fast release form and the filler is Avicel. I put a tablet in water and it was completely disolved in less than a minute.I am still wondering who makes the determination of which pharmacies get on the OK list and how is it determined. Take Care,Tonette Tonette, all we can do is trust that reputable pharmacies are just that!! It is their business after all............ Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2008 Report Share Posted July 28, 2008 Thanks Celia, I appreciate the positive input and you make a lot of sense. I'm going to trust my pharmacy unless I hear otherwise.Take Care,TonetteRRMS since 1996, SPMS since 2007Rocky Mountains, ColoradoLDN since May 2008 From: CELIA DANKS <celia@...>Subject: Re: [low dose naltrexone] Re: Pharmacieslow dose naltrexone Date: Monday, July 28, 2008, 8:21 AM Thanks Art,The LDN I get is in fast release form and the filler is Avicel. I put a tablet in water and it was completely disolved in less than a minute.I am still wondering who makes the determination of which pharmacies get on the OK list and how is it determined. Take Care,Tonette Tonette, all we can do is trust that reputable pharmacies are just that!! It is their business after all......... ... Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 > The LDN I get is in fast release form and the filler is Avicel. I put a tablet in water and it was completely disolved in less than a minute. > I am still wondering who makes the determination of which pharmacies get on the OK list and how is it determined. > Take Care, > Tonette Hi Tonette, I am having some doubts about Belmar Pharmacy regarding the efficacy of their tablets, wondering if they have the potency they are supposed to have. I did very well for the first seven weeks on LDN, mixing my own from the 50 mg tabs. (see my response to newcomer Liz.) Then I switched to the Belmar 4.5 mg tablet, and by week ten started getting into an awful fibro-flare, with wide-spread tenderness, and severe rib cage pain. I thought for several weeks that I was just revisiting old symptoms, especially those that developed right after my last flu shot. Now I really think the tablet may be to blame. So today I mixed up a new batch of liquid and mailed off a new script to Skip's pharmacy. Will let you know how it goes. I would hate to malign a pharmacy for mistaken reasons, so would be very interested to hear if you and others are getting an adequate response to the Belmar tablet. Maybe I'm just having one of those inexplicable set-backs, but seven weeks seems a bit long, and I think I need to make a change, to test my theory. I am now in my 17th week on LDN. Konnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Belmar is NOT on the list of pharmacies that are known to be reliable compounders of LDN. http://www.low dose naltrexone.org/ Art -- > I am having some doubts about Belmar Pharmacy regarding the efficacy > of their tablets, wondering if they have the potency they are supposed > to have. > I did very well for the first seven weeks on LDN, mixing my own from > the 50 mg tabs. (see my response to newcomer Liz.) > Then I switched to the Belmar 4.5 mg tablet, and by week ten started > getting into an awful fibro-flare, with wide-spread tenderness, and > severe rib cage pain. I thought for several weeks that I was just > revisiting old symptoms, especially those that developed right after > my last flu shot. > Now I really think the tablet may be to blame. So today I mixed up a > new batch of liquid and mailed off a new script to Skip's pharmacy. > Will let you know how it goes. > > I would hate to malign a pharmacy for mistaken reasons, so would be > very interested to hear if you and others are getting an adequate > response to the Belmar tablet. Maybe I'm just having one of those > inexplicable set-backs, but seven weeks seems a bit long, and I think > I need to make a change, to test my theory. > I am now in my 17th week on LDN. > > Konnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 BelMar is on Crystal's list. That's why I thought it was fine to go through them.Take Care,TonetteRRMS since 1996, SPMS since 2007Rocky Mountains, ColoradoLDN since May 2008 From: Art Hansen <rtee54@...>Subject: [low dose naltrexone] Re: Pharmacieslow dose naltrexone Date: Tuesday, July 29, 2008, 11:00 AM Belmar is NOT on the list of pharmacies that are known to be reliable compounders of LDN.http://www.lowdosen altrexone. org/Art-- > I am having some doubts about Belmar Pharmacy regarding the efficacy> of their tablets, wondering if they have the potency they are supposed> to have.> I did very well for the first seven weeks on LDN, mixing my own from> the 50 mg tabs. (see my response to newcomer Liz.)> Then I switched to the Belmar 4.5 mg tablet, and by week ten started> getting into an awful fibro-flare, with wide-spread tenderness, and> severe rib cage pain. I thought for several weeks that I was just> revisiting old symptoms, especially those that developed right after> my last flu shot.> Now I really think the tablet may be to blame. So today I mixed up a> new batch of liquid and mailed off a new script to Skip's pharmacy.> Will let you know how it goes.> > I would hate to malign a pharmacy for mistaken reasons, so would be> very interested to hear if you and others are getting an adequate> response to the Belmar tablet. Maybe I'm just having one of those> inexplicable set-backs, but seven weeks seems a bit long, and I think> I need to make a change, to test my theory.> I am now in my 17th week on LDN.> > Konnie> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Well if people are having problems with Belmar Pharmacy then I am taking them off my list.. Hugs & Blessings, Crystal LDN_Users Group Owner Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 10 months on LDN with Skip's Pharmacy..... Crystal's MS,TM & LDN Website Crystal's LDN Gift Shop Crystal's LDN Support Group Skip's Compounding Pharmacy LDN Website [low dose naltrexone] Re: Pharmacieslow dose naltrexoneDate: Tuesday, July 29, 2008, 11:00 AM Belmar is NOT on the list of pharmacies that are known to be reliable compounders of LDN.http://www.lowdosen altrexone. org/Art-- > I am having some doubts about Belmar Pharmacy regarding the efficacy> of their tablets, wondering if they have the potency they are supposed> to have.> I did very well for the first seven weeks on LDN, mixing my own from> the 50 mg tabs. (see my response to newcomer Liz.)> Then I switched to the Belmar 4.5 mg tablet, and by week ten started> getting into an awful fibro-flare, with wide-spread tenderness, and> severe rib cage pain. I thought for several weeks that I was just> revisiting old symptoms, especially those that developed right after> my last flu shot.> Now I really think the tablet may be to blame. So today I mixed up a> new batch of liquid and mailed off a new script to Skip's pharmacy.> Will let you know how it goes.> > I would hate to malign a pharmacy for mistaken reasons, so would be> very interested to hear if you and others are getting an adequate> response to the Belmar tablet. Maybe I'm just having one of those> inexplicable set-backs, but seven weeks seems a bit long, and I think> I need to make a change, to test my theory.> I am now in my 17th week on LDN.> > Konnie> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Skip, If you're color blind, how can you tell the cranberries from the brussels sprouts? :-) Konnie > > Wow. I get the same sort of emails in color. The neat thing is that I am > color blind. Ha. So who ever this person is, Ha.Ha. Tonnette don't be > angry with the rest of us. There is always one in the crowd. > Skip Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 Gee, I thought everyone knew that brussel sprouts taste good with cheese sauce and cranberries don't. skip In a message dated 7/31/2008 3:08:06 A.M. Eastern Daylight Time, floradelvalles@... writes: Skip,If you're color blind, how can you tell the cranberries from thebrussels sprouts? :-)Konnie>> Wow. I get the same sort of emails in color. The neat thing is that I am > color blind. Ha. So who ever this person is, Ha.Ha. Tonnettedon't be > angry with the rest of us. There is always one in the crowd. > Skip Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 I think everything tastes better with cheese sauce, even LDN.Take Care,TonetteRRMS since 1996, SPMS since 2007Rocky Mountains, ColoradoLDN since May 2008 From: slenzrph@... <slenzrph@...>Subject: Re: [low dose naltrexone] Re: Pharmacieslow dose naltrexone Date: Thursday, July 31, 2008, 5:34 PM Gee, I thought everyone knew that brussel sprouts taste good with cheese sauce and cranberries don't. skip In a message dated 7/31/2008 3:08:06 A.M. Eastern Daylight Time, floradelvalles writes: Skip,If you're color blind, how can you tell the cranberries from thebrussels sprouts? :-)Konnie>> Wow. I get the same sort of emails in color. The neat thing is that I am > color blind. Ha. So who ever this person is, Ha.Ha. Tonnettedon't be > angry with the rest of us. There is always one in the crowd. > Skip Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
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