2nd opinion

[Guest guest]

I was diagnosed with AIH about two weeks ago. I was on a medication called

Parlodel and also took a lot of Tylenol for headaches right when I started

feeling bad, which lasted about two weeks before I was diagnosed. Needless

to say, I did not know what was wrong with me, so I kept taking Tylenol

thinking I'll get over the bug I have.

I had pretty elevated ALT and AST. I think they were like 750 and billirubin

was 5.4. After I learned this, I stopped taking meds and and went down to

650 and 3.4 in a week. Then the doc put me on Prednisone and Imuran and my

levels went to normal in less than two weeks. Does this sound like it could

be caused by the drugs? When I told the doctor about they Tylenol and other

medication, it was like he didn't even listen to me, like that wasn't even

possible that that could be causing the inflammation. He tested me for the

anti-smooth muscle antibody and it was positive. Can you have the antibody

caused from medication you have taken too much of?

I was contemplating getting a second opinion. Anybody have any thoughts?

[Guest guest]

It never hurts to get a second opinion. They did not think mine was AIH but

I have a positive ANA and did have a positive ASMA. I was on a short course

of prednisone so I don't know if that deletes the ASMA. So, I think it is

possible to have these antibodies and not be liver related-not my opinion

though! You could have some other autoimmune thing going on too.

Susie

[Guest guest]

From what Ive read if the liver inflammation is caused by drug

toxicity, stopping the drug in question will cause the numbers to

reduce. I don't think it can cause an AMA or other Ab's to be positive.

I will be interested to see what the rest of you all think..

jody

--- ADilli5783@... wrote:

> From: ADilli5783@...

>

> I was diagnosed with AIH about two weeks ago. I was

> on a medication called

> Parlodel and also took a lot of Tylenol for

> headaches right when I started

> feeling bad, which lasted about two weeks before I

> was diagnosed. Needless

> to say, I did not know what was wrong with me, so I

> kept taking Tylenol

> thinking I'll get over the bug I have.

>

> I had pretty elevated ALT and AST. I think they

> were like 750 and billirubin

> was 5.4. After I learned this, I stopped taking

> meds and and went down to

> 650 and 3.4 in a week. Then the doc put me on

> Prednisone and Imuran and my

> levels went to normal in less than two weeks. Does

> this sound like it could

> be caused by the drugs? When I told the doctor

> about they Tylenol and other

> medication, it was like he didn't even listen to me,

> like that wasn't even

> possible that that could be causing the

> inflammation. He tested me for the

> anti-smooth muscle antibody and it was positive.

> Can you have the antibody

> caused from medication you have taken too much of?

>

> I was contemplating getting a second opinion.

> Anybody have any thoughts?

>

> ---------------------------

[Guest guest]

I think a second opinion is always wise. Before I ever started on Imuran and

prednisone I got a second opinion. Did the doc mention a biopsy in your

future?

Roxanne

[Guest guest]

Thanks . I have printed off this post and will probably call after my

next appointment at UVA. I go on 10-17-02. Time for a 2nd biopsy. My

daughter is an EMT in Blacksburg and she was really impressed when they

transported a kidney transplant patient to Duke. She's right, Duke is

probably the smartest choice for a 2nd opinion as I live in Richmond VA and

do not want to go to MCV. How long did it take you to get an appointment?

[Guest guest]

, I believe it took about one month to get the appointment. My gastro doc set it up. It was worth the wait. I had the liver biopsy performed by my gasto and the biopsy came back AIH. That's when he made the decision to refer me. He says he only treats approx. l-2 pts per yr with AIH. I really respected my gastro's decision. I am quite familiar with Blacksburg. My husband is a VA Tech grad and we are still big HOKIE fans. Are you a Cavalier fan? I love Blacksburg. We are originally from Galax, VA. Always good to hear from a VA person. B.

AIH 9/00

Re: [ ] RE: 2nd opinion

Thanks . I have printed off this post and will probably call after my next appointment at UVA. I go on 10-17-02. Time for a 2nd biopsy. My daughter is an EMT in Blacksburg and she was really impressed when they transported a kidney transplant patient to Duke. She's right, Duke is probably the smartest choice for a 2nd opinion as I live in Richmond VA and do not want to go to MCV. How long did it take you to get an appointment?

[Guest guest]

,

I went to the Duke Web site and read about your Dr. I also e-maled the

department to see if I could self refer. I don't want to upset the

Hepatologist at UVA and I don't think it would however, my last visit with

him he was not himself and this is why I'm going to get the 2nd opinion. I

know my local Gastro will refer if needed.

I HAVE to be a Hokie fan or my daughter would shoot me. I must admit the

best games are alwasy UVA and TECH.

When my daughter got married last year you should have seen the entire

wedding party and guest had to get up and dance to the Hokie Pokie by order

of the grooms mother. Not a preatty sight, but I guess most people had had

enough to drink that they really didn't care.

Thanks so much for the info and I will let you know how things progress.

[Guest guest]

, good luck in your efforts at obtaining an app't at Duke. I believe you would really like Dr. Heneghan. If you should get an appointment with him, mention my name. He has been great. I think it is always aggravating when you have questions and live as far away as we do and can't just run by the clinic when we feel we need to do so. However, Duke is a great place. The Hokie Pokie is so much fun! B.

Re: [ ] RE: 2nd opinion

, I went to the Duke Web site and read about your Dr. I also e-maled the department to see if I could self refer. I don't want to upset the Hepatologist at UVA and I don't think it would however, my last visit with him he was not himself and this is why I'm going to get the 2nd opinion. I know my local Gastro will refer if needed.I HAVE to be a Hokie fan or my daughter would shoot me. I must admit the best games are alwasy UVA and TECH.When my daughter got married last year you should have seen the entire wedding party and guest had to get up and dance to the Hokie Pokie by order of the grooms mother. Not a preatty sight, but I guess most people had had enough to drink that they really didn't care.Thanks so much for the info and I will let you know how things progress.

[Guest guest]

Hi Kathy,

So glad you got positive feedback from the second opinion. It

sounds like you are a 'bit' more relaxed now. Sometimes you just

have to get that second opinion to feel more at ease. And like you

said the doctor didn't think it was as bad as the first ENT thought.

Please keep us posted how your husband is doing and our prayers are

with you.

Kim

[Guest guest]

In a message dated 3/25/2004 1:26:17 AM Eastern Standard Time,

eagles55@... writes:

at ....at this point and time...i will be talking to you all again

in CHRIST love...Larry

So sorry Larry to hear this. Is there a strong enough medication though

that can help you with the pain? Also, can your condition get any worse? If so

is there a way to prevent it? A firend of mind was diagnosed with MS and of

course for her it took years to finally find out what was wrong and all they

can do is give her these shots to help it not get worse. I know yours is

different but I wonder if there is something that can help. Also, with your

condition can they do the radio frequency lesing? I know when I had that it

helped

with the pain for several months. I wish you the best of luck in getting

something to help you be painfree. Also, I have heard from others that

acupuncture

has worked for them have you tried it yet? I was debating about that myself.

Joy

Joy

[Guest guest]

Glad you got your 2nd opinion, Larry. And with a neuro's report as well as the

other two...maybe medical will come thru for you.

Viv in GA

[Guest guest]

right now my dr has me on " tramadol " which is great it helps me alot, also

im on " ibuprofen " which is great , and " amitriptyline " which is great. these

are working real good the pain is still making itself known but i do feel

some better. and acupuncher NO , i don't like like and never will heard to

much about that and were talking there at the spine and i have so much there

now i really don't want no more addingthere , not trying to be rude but

thanks but no thanks. and its just amzing to me how neither dr knows each

other and told me word-for-word what each one said. he told me no surgery

would help. i mean no surgery so i would not have beleived him but my dr of

10 years has told me this and this dr wouldn't give me no meds " BEING " a

country type dr , so i went with not only a different dr and whom i have

known by some else in my family i gave him a chance and took my mri with

me since i didn't want him to think i wanted to see him just to get drugs

which he thanked me for and told me he didn't understand why they did't do

something back in 1987 so now the damge has been done its to late , he said

i could have sygery but the pain will continue so i say why pay for a DEAD

horse , know what i mean so as i mentioned now here i sit 17 years later and

for the rest of my life in pain. but i do hope i answered all your Q's. but

what im taking now my country dr would not even give me that , the wife says

he doesn't believe in thoes kind of meds , well i say if he don't then he

dam well better get out of practicing meds ya know . due to all pain is so

differet and not every bodys pain is the same . so that another reason why i

went to seek another opinoin. but this is my life and im living it the only

way i know. with the exceptions of certain things like sex but as my

nurologist told me years ago you have to do things differently like every

one else but a longer way around so im working with it..and i will talk

later......Larry

Re: 2nd opinion

> In a message dated 3/25/2004 1:26:17 AM Eastern Standard Time,

> eagles55@... writes:

> at ....at this point and time...i will be talking to you all again

>

> in CHRIST love...Larry

>

> So sorry Larry to hear this. Is there a strong enough medication though

> that can help you with the pain? Also, can your condition get any worse?

If so

> is there a way to prevent it? A firend of mind was diagnosed with MS and

of

> course for her it took years to finally find out what was wrong and all

they

> can do is give her these shots to help it not get worse. I know yours is

> different but I wonder if there is something that can help. Also, with

your

> condition can they do the radio frequency lesing? I know when I had that

it helped

> with the pain for several months. I wish you the best of luck in getting

> something to help you be painfree. Also, I have heard from others that

acupuncture

> has worked for them have you tried it yet? I was debating about that

myself.

>

> Joy

>

> Joy

>

>

>

[Guest guest]

We saw a pediatric cleft and facial plastic surgeon.

Angie and Jenna(STAR grad)

2nd opinion

>

>

> If I wanted to get a second opinion on whether a band is best for my

> son...who whould I see?

>

> I've seen his pedi (doesn't think the band is needed in this case)

> and the pt (who says he is border line on needing it).

>

> should I see an orthopedic surgen?

> neurologist? (doesn't seem right)???

>

> thanks

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Hi,

Are you near a Cranial Tech office? They will give you a free

evaluation and an honest opinion on whether or not your baby would

benefit from a band.

http://www.cranialtech.com

--- In Plagiocephaly , " k_harris8 " <k_harris8@y...>

wrote:

>

> If I wanted to get a second opinion on whether a band is best for

my

> son...who whould I see?

>

> I've seen his pedi (doesn't think the band is needed in this case)

> and the pt (who says he is border line on needing it).

>

> should I see an orthopedic surgen?

> neurologist? (doesn't seem right)???

>

> thanks

[Guest guest]

We saw a pediatric cleft and facial plastic surgeon.

Angie and Jenna(STAR grad)

2nd opinion

>

>

> If I wanted to get a second opinion on whether a band is best for my

> son...who whould I see?

>

> I've seen his pedi (doesn't think the band is needed in this case)

> and the pt (who says he is border line on needing it).

>

> should I see an orthopedic surgen?

> neurologist? (doesn't seem right)???

>

> thanks

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Hi,

Are you near a Cranial Tech office? They will give you a free

evaluation and an honest opinion on whether or not your baby would

benefit from a band.

http://www.cranialtech.com

--- In Plagiocephaly , " k_harris8 " <k_harris8@y...>

wrote:

>

> If I wanted to get a second opinion on whether a band is best for

my

> son...who whould I see?

>

> I've seen his pedi (doesn't think the band is needed in this case)

> and the pt (who says he is border line on needing it).

>

> should I see an orthopedic surgen?

> neurologist? (doesn't seem right)???

>

> thanks

[Guest guest]

That's exactly what we did yesterday, if you will look at my post

above.

Janet

, 9.2.04

> >

> > If I wanted to get a second opinion on whether a band is best for

> my

> > son...who whould I see?

> >

> > I've seen his pedi (doesn't think the band is needed in this case)

> > and the pt (who says he is border line on needing it).

> >

> > should I see an orthopedic surgen?

> > neurologist? (doesn't seem right)???

> >

> > thanks

[Guest guest]

That's exactly what we did yesterday, if you will look at my post

above.

Janet

, 9.2.04

> >

> > If I wanted to get a second opinion on whether a band is best for

> my

> > son...who whould I see?

> >

> > I've seen his pedi (doesn't think the band is needed in this case)

> > and the pt (who says he is border line on needing it).

> >

> > should I see an orthopedic surgen?

> > neurologist? (doesn't seem right)???

> >

> > thanks

[Guest guest]

We saw a cranial/facial surgeon.

Jules

--- In Plagiocephaly , " k_harris8 " <k_harris8@y...>

wrote:

>

> If I wanted to get a second opinion on whether a band is best for

my

> son...who whould I see?

>

> I've seen his pedi (doesn't think the band is needed in this case)

> and the pt (who says he is border line on needing it).

>

> should I see an orthopedic surgen?

> neurologist? (doesn't seem right)???

>

> thanks

[Guest guest]

We saw a cranial/facial surgeon.

Jules

--- In Plagiocephaly , " k_harris8 " <k_harris8@y...>

wrote:

>

> If I wanted to get a second opinion on whether a band is best for

my

> son...who whould I see?

>

> I've seen his pedi (doesn't think the band is needed in this case)

> and the pt (who says he is border line on needing it).

>

> should I see an orthopedic surgen?

> neurologist? (doesn't seem right)???

>

> thanks

[Guest guest]

do they have these specifically for babies? thanks!

jadegnan <jadegnan@...> wrote:

We saw a cranial/facial surgeon.Jules> > If I wanted to get a second opinion on whether a band is best for my > son...who whould I see? > > I've seen his pedi (doesn't think the band is needed in this case)> and the pt (who says he is border line on needing it).> > should I see an orthopedic surgen?> neurologist? (doesn't seem right)???> > thanksFor more plagio info

[Guest guest]

do they have these specifically for babies? thanks!

jadegnan <jadegnan@...> wrote:

We saw a cranial/facial surgeon.Jules> > If I wanted to get a second opinion on whether a band is best for my > son...who whould I see? > > I've seen his pedi (doesn't think the band is needed in this case)> and the pt (who says he is border line on needing it).> > should I see an orthopedic surgen?> neurologist? (doesn't seem right)???> > thanksFor more plagio info

[Guest guest]

We saw a pediatric rehabilitation specialist.

Re: 2nd opinion

>

>

> We saw a cranial/facial surgeon.

>

> Jules

>

>

>>

>> If I wanted to get a second opinion on whether a band is best for

> my

>> son...who whould I see?

>>

>> I've seen his pedi (doesn't think the band is needed in this case)

>> and the pt (who says he is border line on needing it).

>>

>> should I see an orthopedic surgen?

>> neurologist? (doesn't seem right)???

>>

>> thanks

>

>

>

>

>

>

> For more plagio info

[Guest guest]

We saw a pediatric rehabilitation specialist.

Re: 2nd opinion

>

>

> We saw a cranial/facial surgeon.

>

> Jules

>

>

>>

>> If I wanted to get a second opinion on whether a band is best for

> my

>> son...who whould I see?

>>

>> I've seen his pedi (doesn't think the band is needed in this case)

>> and the pt (who says he is border line on needing it).

>>

>> should I see an orthopedic surgen?

>> neurologist? (doesn't seem right)???

>>

>> thanks

>

>

>

>

>

>

> For more plagio info

[Guest guest]

We saw a Pediatric Neurosurgeon fisrt who passed us off and said

was very mild plagio and he didn't suggest banding her. I

didn't feel comfortable with that so we went for another opinion to a

craniofacial surgeon and he classified her high mild-moderate

plagio. Make sure that whichever specialty you choose that you make

sure that they work with kids with plagio. We also got opinions from

an Orthotist from Cranial Solutions and from Hanger (which is where

she will be banded).

Good luck with everything and go with your gut.

Jen

Mom to (almost 7 Mo), tort and plagio, soon to get Hanger Band

and (3 years)

--- In Plagiocephaly , " k_harris8 " <k_harris8@y...>

wrote:

>

> If I wanted to get a second opinion on whether a band is best for

my

> son...who whould I see?

>

> I've seen his pedi (doesn't think the band is needed in this case)

> and the pt (who says he is border line on needing it).

>

> should I see an orthopedic surgen?

> neurologist? (doesn't seem right)???

>

> thanks