Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 Lacy, I am working on it now. How is it going? Does the word AARRGGHH tell you anything,lol. I just had one whole section done, working so intently I forgot to save along the way, and then my son decides to try and log onto the desktop while I'm on the laptop I borrowed from Dad, and POOF, the damn connection is lost and it's all gone. I guess I will try again tomorrow to get it done. Is Wayd pulling up on anything yet? Is he doing the army crawl( you know on th belly)? He may need more tummy time play, even though he is not a little baby it is important for the whole developement. Every baby is different and he may just be developing other skills and then crawling and scooting will come. Dom skipped the crawl and scoot and went right to pulling up and walking holding on, and is now working on crawling. The army crawl is an important stepping stone to all the other movement skills. Try getting a rolling car and have him chase it across the floor. Even if it is moving just a tiny bit forward on his belly, it will get him moving and once he starts that the arms start moving independently to propell him. Once the arms are going then the legs start independent movement, usually one at a time (don't be alarmed if one lags the first few week or so). Give me some more info. on what he is doing and we'll go from there,ok. I will try and get this website done tomorrow. CAROLG > Hey Carol I was wondering if you had Dom's website going yet? I was > wanting to check it out cause I saw in one of your posts that you were > working on one for him. > Question- I think I remember you saying he was a little behind on some > motor skill.....please correct me if I'm wrong, I think this was when > I was new to the board and I was on a chat, so this could have been > someone else I'm thinking of. Anyways, Waydon is almost 9 months and > he isn't crawling or trying to crawl yet at all. If he's on his > belly, he immediatly rolls to his back, or just fusses about being on > his belly then rolls. He's been sitting up by himself since 5 months, > but does not try to scoot on his butt either. My neice is 2 weeks > younger than Wayd and she is scooting all over the place. She starts > on her butt, then gets on hands/knees, then gets on belly, then back > to sitting. I mean she's a wild woman compared to Waydon who just > sits there playing with his toys! Am I being too concerned, I'm sure > he'll do it on his own time, but I just hate that he's not making the > effort. Just wondered if Dom had anything similar going on that you > could give me some advice about?! > > Lacy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Ok, no big deal, I just wondered if you had it done. That stinks about the connection and it not being saved. I've done that before! Well Wayd is mostly just sitting on his butt. He'll lean forward to grab toys, but he doesn't rest on his arms and rock or anything. When he's on his belly he will either roll to his back right away, then roll around back to belly, belly to back and he'll play with toys on his belly for just a little bit, but he just rolls to his back again. I can tell he doesn't like to be on his belly much at all. I have noticed that if he's on his belly and I try to push his toys out of reach he'll try to get there and then just gets frustrated and rolls to his back again....lol!! He's pretty funny! He's not pulling up on anything cause he can't get to anything. If he's playing on the floor its just on a blanket where there's nothing around to pull up on. He tries to pull up on me a little sometimes, but it seems like his arms aren't strong enough to pull him up. His legs are really strong, I guess he just hasn't figured out how to use them both at the same time. Lacy > > Hey Carol I was wondering if you had Dom's website going yet? I was > > wanting to check it out cause I saw in one of your posts that you > were > > working on one for him. > > Question- I think I remember you saying he was a little behind on > some > > motor skill.....please correct me if I'm wrong, I think this was > when > > I was new to the board and I was on a chat, so this could have been > > someone else I'm thinking of. Anyways, Waydon is almost 9 months > and > > he isn't crawling or trying to crawl yet at all. If he's on his > > belly, he immediatly rolls to his back, or just fusses about being > on > > his belly then rolls. He's been sitting up by himself since 5 > months, > > but does not try to scoot on his butt either. My neice is 2 weeks > > younger than Wayd and she is scooting all over the place. She > starts > > on her butt, then gets on hands/knees, then gets on belly, then back > > to sitting. I mean she's a wild woman compared to Waydon who just > > sits there playing with his toys! Am I being too concerned, I'm > sure > > he'll do it on his own time, but I just hate that he's not making > the > > effort. Just wondered if Dom had anything similar going on that you > > could give me some advice about?! > > > > Lacy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Lacy, Look into getting a corral for him. They sell them all over, we have had one for every baby I've had. It gives tons of room, keeps them safe and gives them something to pull up on and room to walk around while holding on. It is big enough to get in with him and play even. I absolutely could not live with out it. Wefound that it because it is a sfae enviroment to play with lots of room it encourages them to move around more than a regular playpen. Ok, we do lovingly refer to it as the cage, but we are talking abot Dominick,lol. I'm orking on the webpage now, hoping to get it done by tonight barring any unplanned interuptions.....wait a minute that's just crazy talk,lol. I'll do my best. CAROLG > > > Hey Carol I was wondering if you had Dom's website going yet? I was > > > wanting to check it out cause I saw in one of your posts that you > > were > > > working on one for him. > > > Question- I think I remember you saying he was a little behind on > > some > > > motor skill.....please correct me if I'm wrong, I think this was > > when > > > I was new to the board and I was on a chat, so this could have been > > > someone else I'm thinking of. Anyways, Waydon is almost 9 months > > and > > > he isn't crawling or trying to crawl yet at all. If he's on his > > > belly, he immediatly rolls to his back, or just fusses about being > > on > > > his belly then rolls. He's been sitting up by himself since 5 > > months, > > > but does not try to scoot on his butt either. My neice is 2 weeks > > > younger than Wayd and she is scooting all over the place. She > > starts > > > on her butt, then gets on hands/knees, then gets on belly, then back > > > to sitting. I mean she's a wild woman compared to Waydon who just > > > sits there playing with his toys! Am I being too concerned, I'm > > sure > > > he'll do it on his own time, but I just hate that he's not making > > the > > > effort. Just wondered if Dom had anything similar going on that you > > > could give me some advice about?! > > > > > > Lacy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Lacy, Look into getting a corral for him. They sell them all over, we have had one for every baby I've had. It gives tons of room, keeps them safe and gives them something to pull up on and room to walk around while holding on. It is big enough to get in with him and play even. I absolutely could not live with out it. Wefound that it because it is a sfae enviroment to play with lots of room it encourages them to move around more than a regular playpen. Ok, we do lovingly refer to it as the cage, but we are talking abot Dominick,lol. I'm orking on the webpage now, hoping to get it done by tonight barring any unplanned interuptions.....wait a minute that's just crazy talk,lol. I'll do my best. CAROLG > > > Hey Carol I was wondering if you had Dom's website going yet? I was > > > wanting to check it out cause I saw in one of your posts that you > > were > > > working on one for him. > > > Question- I think I remember you saying he was a little behind on > > some > > > motor skill.....please correct me if I'm wrong, I think this was > > when > > > I was new to the board and I was on a chat, so this could have been > > > someone else I'm thinking of. Anyways, Waydon is almost 9 months > > and > > > he isn't crawling or trying to crawl yet at all. If he's on his > > > belly, he immediatly rolls to his back, or just fusses about being > > on > > > his belly then rolls. He's been sitting up by himself since 5 > > months, > > > but does not try to scoot on his butt either. My neice is 2 weeks > > > younger than Wayd and she is scooting all over the place. She > > starts > > > on her butt, then gets on hands/knees, then gets on belly, then back > > > to sitting. I mean she's a wild woman compared to Waydon who just > > > sits there playing with his toys! Am I being too concerned, I'm > > sure > > > he'll do it on his own time, but I just hate that he's not making > > the > > > effort. Just wondered if Dom had anything similar going on that you > > > could give me some advice about?! > > > > > > Lacy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hailey isnt the only one i am concerned with our ped wants our son who has gs they always said his flatness was from the tort and it would straighten its self out eventually ...guess what it didnt now they are saying he will probalby have to have some kindof surg to fix the plates in his skull....guss what medicaid wont pay for that so now i dont know if we are even gonna do this because he is 5 and already has enough pain and suffering to go through im just really confused right now and dont know which way to turn. aka sassy Cameron and Hailey North Carolina sassy2680@... -- Re: Intro Welcome Sassy,Wow you have your hands full,lol. If you are concerned you can take advantage of Cranial Technologies free evaluation if there is a clinic near you. www.cranialtech.com Thier website will also help explain all the plagio info. and there are assessment charts to help you make a guess at severity. You have caught this at such an early age, have you been doing repostioning with her? There are many files here that can help you with that and we have lots of repo moms to help also. Read some of the info and the files and ask all the questions you can and it will help you figure out what way you want to go with this. I know this can be frustrating but there are many things you can do. Please keep us posted on your thoughts during this decision process. CAROLG>> Hi everyone ...my name is amanda, i am a 26 year old mother to 5 .3> boys 2 girls ages 9 5 3 1 amd 4 months old...my 5 year old has> GS...goldenhar syndrome and has alot of facial deformities. he like so> many other children with this has a severly mishappen head. but my 4> month old daughter on the other hand she is a normal child and she got> her flat head from back sleeping.the dr says that this is normal for> her and it will fix its self but what i want to know is this... how> can it be "normal" cause its not going away and gets flatter and> flatter with every passing day... but anyways just wanted to introduce> myself to everyone.> sassy> Font Used: If You Would Like To Receive My Stats And Tags Please Feel Free To Join My Group ~StatsAndTagsByMartha~ You Can Either Click On One Of The Tags Or Go To StatsAndTagsByMartha/ To Join Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 Hailey isnt the only one i am concerned with our ped wants our son who has gs they always said his flatness was from the tort and it would straighten its self out eventually ...guess what it didnt now they are saying he will probalby have to have some kindof surg to fix the plates in his skull....guss what medicaid wont pay for that so now i dont know if we are even gonna do this because he is 5 and already has enough pain and suffering to go through im just really confused right now and dont know which way to turn. aka sassy Cameron and Hailey North Carolina sassy2680@... -- Re: Intro Welcome Sassy,Wow you have your hands full,lol. If you are concerned you can take advantage of Cranial Technologies free evaluation if there is a clinic near you. www.cranialtech.com Thier website will also help explain all the plagio info. and there are assessment charts to help you make a guess at severity. You have caught this at such an early age, have you been doing repostioning with her? There are many files here that can help you with that and we have lots of repo moms to help also. Read some of the info and the files and ask all the questions you can and it will help you figure out what way you want to go with this. I know this can be frustrating but there are many things you can do. Please keep us posted on your thoughts during this decision process. CAROLG>> Hi everyone ...my name is amanda, i am a 26 year old mother to 5 .3> boys 2 girls ages 9 5 3 1 amd 4 months old...my 5 year old has> GS...goldenhar syndrome and has alot of facial deformities. he like so> many other children with this has a severly mishappen head. but my 4> month old daughter on the other hand she is a normal child and she got> her flat head from back sleeping.the dr says that this is normal for> her and it will fix its self but what i want to know is this... how> can it be "normal" cause its not going away and gets flatter and> flatter with every passing day... but anyways just wanted to introduce> myself to everyone.> sassy> Font Used: If You Would Like To Receive My Stats And Tags Please Feel Free To Join My Group ~StatsAndTagsByMartha~ You Can Either Click On One Of The Tags Or Go To StatsAndTagsByMartha/ To Join Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 , I'm going to email you some info. CAROLG > > > > Hi everyone ...my name is amanda, i am a 26 year old mother to 5 .3 > > boys 2 girls ages 9 5 3 1 amd 4 months old...my 5 year old has > > GS...goldenhar syndrome and has alot of facial deformities. he like so > > many other children with this has a severly mishappen head. but my 4 > > month old daughter on the other hand she is a normal child and she got > > her flat head from back sleeping.the dr says that this is normal for > > her and it will fix its self but what i want to know is this... how > > can it be " normal " cause its not going away and gets flatter and > > flatter with every passing day... but anyways just wanted to introduce > > myself to everyone. > > sassy > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2006 Report Share Posted March 17, 2006 , I'm going to email you some info. CAROLG > > > > Hi everyone ...my name is amanda, i am a 26 year old mother to 5 .3 > > boys 2 girls ages 9 5 3 1 amd 4 months old...my 5 year old has > > GS...goldenhar syndrome and has alot of facial deformities. he like so > > many other children with this has a severly mishappen head. but my 4 > > month old daughter on the other hand she is a normal child and she got > > her flat head from back sleeping.the dr says that this is normal for > > her and it will fix its self but what i want to know is this... how > > can it be " normal " cause its not going away and gets flatter and > > flatter with every passing day... but anyways just wanted to introduce > > myself to everyone. > > sassy > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 Sorry if we scared you off the last time you posted about hair loss. That was not the intention of anyone in this group. That's great that you were able to come off the MTX. I also have terrible hip pain. It had origionally started in my right hip (when I first developed the RA) but now both hips are affected though the right is worse than the left. As far as managing it, well, I try not to baby it. With RA, I have found that the less I do the worse I feel. But, I also don't want to over do it. If it is acting up, then I just have to take it easy and I walk with a fore-arm crutch. If I have to go to the grocery store, then I get one of those electric carts and try not to run over the ankles of the people who won't move when I ask. Ok, I try not to run over their ankles more than once!!LOL I also take narcotics for pain because I am no longer able to take the RA meds. Like you, my docs are not sure if it is just RA or if something else is going on too. I hope the pain eases up for you. Take care. Hugs, marina > > I just want to let you all know you have made me feel alot better. > My Rheumy did tell me about the possiblity but when I first posted > on here about hair loss I had alot of scary responses. So you have > definately eased my mind. I was able to stop the methotrexate now > that i have started the Enbrel. My only problem is I have this > uncontrolable hip pain to where I have to take strong pain meds to > help have you had this. My rheumy is thinking it may be something > else going on and plus I have had 3 pelvic prolapse surgeries and > have a pelvis full of mess so maybe I am rejecting it. I go for an > mri so we will see but if any of you have alot of hip and leg pain I > would love to hear how you are dealing with it thank you all. Take > care all of you and god bless you all. > > Carol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 lea, If you have masses they have to be removed, by dr. kolb or the other doctors that know what they are doing... I got luckly because of my infectious disease doctor and primary care doctor... I believe in Dr. blais... he said there were only 3 doctors in this country that can handle this... carol 813-645-2920 I hope this helps.. I had 2 ultasounds, 1 MRI that showed one mass, 1 Mammogram that showed "ommoiness lesion". who are your docotors? also when did you have your implants taken out? I hope the picture helps, that is why I posted it... I want to get this out to everyone... when I get better, I will created a website... with pictures of my face (which was perfect in 1996 no scars), and the scars that I now have, from aspegillis. carol Carol Wow Carol! Is this the first time you've posted with this group? If so, welcome!It sounds like you have been through A LOT, and I am so sorry to hear of your struggles. I wish you would have found this group years ago! This is a wonderful group of women who can give a lot of great advice and support. Did you have your capsules removed when you had your implants removed?~Krista> > > > >> > > > > Has anybody heard from our ? She was scheduled > from > > > explant > > > > last > > > > > Friday with Dr. Feng. She is probably recovering and > > > maybe not > > > > near a > > > > > computer with the traveling issue.> > > > > > > > > > Remember to keep her in your prayers.> > > > > > > > > > Love you all~> > > > > a> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> ---> > -> > > -------> > > > It's Tax Time! Get tips, forms and advice on AOL Money > > > Finance.> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> ---> > -> > > -----------> > > > It's Tax Time! Get tips, forms and advice on AOL Money > Finance.> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2011 Report Share Posted March 13, 2011 Hope you feeling better soon, Eva > > > Carol hi! > > > > OMG I was so sorry to read your note this morning. You > have been > > thru so > > much and now to have this happen. I hope they are at > least giving > > you some > > good pain medsJ > > > > I can't believe they are making you stay in that awful > hospital. You > > would > > be so much better off at home. I have noticed hospital > staff has > > become like > > they were in the 40's and 50's...very snippy and not > at all helpful. > > Seems > > the more machines (as in computers) the worse they get > personally. I'm > > getting Clindy IV's in a local hospital and I would > never treat a > > patient > > like I am treated. > > > > I hope you are feeling better soon. Use my email > address if you want > > to > > talk. How is your daughter? > > > > Hugs and blessings. > > > > cooky > > > > From: rheumatic > [mailto:rheumatic ] > > > On Behalf > > Of Carol Esposito > > > > I am in the hospital with what looks schematic colitis > of the > > descending > > colon. That I got from the cat scan. Have to have a > colonscopy on > > monday > > I just want to get out of the hospital by tues! Been > here since last > > tues > > where the horrible ER drs and staff almost killed me. > I was in > > secondary > > adrenal crisis and it wasn't until my blood pressure > was super low > > and I was > > passing out that they realized I needed to be > admitted. Severe gi > > obstruction and 12 bloody diarrhea attacks, hx of > other autoimmune > > problems, > > didn't convince. One aide told me that it was improper > to have > > diarrhea on > > an ER bed! Once I was admitted on the 2nd floor of the > hospital, the > > care > > from most of the nurses and staff has helped a lot. > Doctors though are > > passive and not good at communicating. > > > > Dolores, I too have been under a lot of stress. My mom > died in Aug > > 2010 and > > was sick on a feeding tube for three years. My father > and mother > > lived with > > me and now just my dad does Mom died at 88. My dad > will be 88 in > > March. He > > has slowed down a lot. And I was working part-time. > Now I have to > > take time > > off and focus on myself! > > I hardly post. I got involved in this group back in > approximate > > 1997. I > > improved on doxy but stopped in around 2008, > particular bec my good > > friend > > treppel cantor from this group got sick with > lung cancer so I > > had no > > one to share the stress of driving to Nj with. Also I > was busying > > returning > > to work on a part time basis. And was stressed and > overdoing too > > much. My > > local drs wouldn't prescribe antibiotics and instead I > ended up on > > too much > > prednisone. > > > > I had just started to see two alternative drs when I > ended up I'm the > > hospital. > > > > I think of the strength that this people have in this > group. I may > > not write > > much but I read a lot and thank you for all your > kindness and > > information. > > Carol e from ny > > > > ,___ > > > > Quote Link to comment Share on other sites More sharing options...
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