Re: Site reactions to Enbrel

[Guest guest]

I still use the twice weekly Enbrel that I have to mix myself. It seems

to last better for me than the once weekly, and the once weekly needles

seemed to be awfully dull.

I think that I've figured out why I was occasionally having a site

reaction. I think that when the needle just goes in shallowly, it

causes the site reaction for me. I figured this out when I tried a new

injection technique, and the needle went in very shallowly. I had the

worst site reaction that I had ever had.

So now I usually try to put the needle pretty much straight in, with

not much of a slant. So far since I've been doing this, I've had no

site reactions.

Sue

On Wednesday, November 14, 2007, at 10:22 AM, aclavern33@... wrote:

>

> Personally if you are having difficulties with the pre-mix self

> injector I

> would go back to the kind you mix and take twice a week. I had no

> problems

> with that. No burning or pain. It just stopped working and I started

> getting

> site reactions. So I stopped taking it.

[Guest guest]

I am following with interest the recent comments about problems with Enbrel

injections. I have been injecting myself with Enbrel for 3 1/2 years (I have

R.A. with mostly hand and wrist swelling and deformity). I used the self-mix

injection for about one year and then went on to the prefilled (so much more

convenient, esp. when travelling).

As a retired, long-time R.N., I understand the stinging you feel when

injecting the medication. Many meds have an initial sting sensation when

injected, but the pain should pass quickly. I used to tell my patients to take

a deep breath and focus on a good thought while undergoing a " shot " .

The info sheet that comes with Enbrel instructs you exactly how to inject

Enbrel. From my own experience, I can say that the benefits of this medication

far outweigh any temporary injection discomfort. My hand function is by no

means perfect, but today I was able to go clothes shopping and actually managed

to deal with buttons and zippers! Cheers, Lilian

Sue <marysue@...> wrote:

I still use the twice weekly Enbrel that I have to mix myself. It

seems

to last better for me than the once weekly, and the once weekly needles

seemed to be awfully dull.

I think that I've figured out why I was occasionally having a site

reaction. I think that when the needle just goes in shallowly, it

causes the site reaction for me. I figured this out when I tried a new

injection technique, and the needle went in very shallowly. I had the

worst site reaction that I had ever had.

So now I usually try to put the needle pretty much straight in, with

not much of a slant. So far since I've been doing this, I've had no

site reactions.

Sue

On Wednesday, November 14, 2007, at 10:22 AM, aclavern33@... wrote:

>

> Personally if you are having difficulties with the pre-mix self

> injector I

> would go back to the kind you mix and take twice a week. I had no

> problems

> with that. No burning or pain. It just stopped working and I started

> getting

> site reactions. So I stopped taking it.

---------------------------------

Be a better pen pal. Text or chat with friends inside . See how.

[Guest guest]

--- Hi Lilian,

I'm so glad you are doing better by taking these meds. I am so new at

this. I have a high threshold for pain, and although I wasn't

thrilled with the sting from the injection, it is by no means

something I feel I can't handle. It's not that big a deal. I just

wasn't expecting it. I just can't figure out why it is so hard to get

the sure shot mre mixed injectible to work.

LEs

>

> I am following with interest the recent comments about problems with

Enbrel injections. I have been injecting myself with Enbrel for 3 1/2

years (I have R.A. with mostly hand and wrist swelling and deformity).

I used the self-mix injection for about one year and then went on to

the prefilled (so much more convenient, esp. when travelling).

>

> As a retired, long-time R.N., I understand the stinging you feel

when injecting the medication. Many meds have an initial sting

sensation when injected, but the pain should pass quickly. I used to

tell my patients to take a deep breath and focus on a good thought

while undergoing a " shot " .

>

> The info sheet that comes with Enbrel instructs you exactly how to

inject Enbrel. From my own experience, I can say that the benefits of

this medication far outweigh any temporary injection discomfort. My

hand function is by no means perfect, but today I was able to go

clothes shopping and actually managed to deal with buttons and

zippers! Cheers, Lilian

>

> Sue <marysue@...> wrote:

> I still use the twice weekly Enbrel that I have to mix

myself. It seems

> to last better for me than the once weekly, and the once weekly needles

> seemed to be awfully dull.

>

> I think that I've figured out why I was occasionally having a site

> reaction. I think that when the needle just goes in shallowly, it

> causes the site reaction for me. I figured this out when I tried a new

> injection technique, and the needle went in very shallowly. I had the

> worst site reaction that I had ever had.

>

> So now I usually try to put the needle pretty much straight in, with

> not much of a slant. So far since I've been doing this, I've had no

> site reactions.

>

> Sue

>

> On Wednesday, November 14, 2007, at 10:22 AM, aclavern33@... wrote:

> >

> > Personally if you are having difficulties with the pre-mix self

> > injector I

> > would go back to the kind you mix and take twice a week. I had no

> > problems

> > with that. No burning or pain. It just stopped working and I started

> > getting

> > site reactions. So I stopped taking it.

>

>

>

>

>

>

> ---------------------------------

> Be a better pen pal. Text or chat with friends inside .

See how.

>

>

[Guest guest]

- I'm not quite sure what the sure shot mre mixed injectible is. Please

explain - are you talking about the mechanics of the syringe - or about feeling

better??? Take heart, when you are new at this, it seems intimidating - even

for medical people, like me. Cheers - Lilian

<leslielick777@...> wrote: --- Hi Lilian,

I'm so glad you are doing better by taking these meds. I am so new at

this. I have a high threshold for pain, and although I wasn't

thrilled with the sting from the injection, it is by no means

something I feel I can't handle. It's not that big a deal. I just

wasn't expecting it. I just can't figure out why it is so hard to get

the sure shot mre mixed injectible to work.

LEs

>

> I am following with interest the recent comments about problems with

Enbrel injections. I have been injecting myself with Enbrel for 3 1/2

years (I have R.A. with mostly hand and wrist swelling and deformity).

I used the self-mix injection for about one year and then went on to

the prefilled (so much more convenient, esp. when travelling).

>

> As a retired, long-time R.N., I understand the stinging you feel

when injecting the medication. Many meds have an initial sting

sensation when injected, but the pain should pass quickly. I used to

tell my patients to take a deep breath and focus on a good thought

while undergoing a " shot " .

>

> The info sheet that comes with Enbrel instructs you exactly how to

inject Enbrel. From my own experience, I can say that the benefits of

this medication far outweigh any temporary injection discomfort. My

hand function is by no means perfect, but today I was able to go

clothes shopping and actually managed to deal with buttons and

zippers! Cheers, Lilian

>

> Sue <marysue@...> wrote:

> I still use the twice weekly Enbrel that I have to mix

myself. It seems

> to last better for me than the once weekly, and the once weekly needles

> seemed to be awfully dull.

>

> I think that I've figured out why I was occasionally having a site

> reaction. I think that when the needle just goes in shallowly, it

> causes the site reaction for me. I figured this out when I tried a new

> injection technique, and the needle went in very shallowly. I had the

> worst site reaction that I had ever had.

>

> So now I usually try to put the needle pretty much straight in, with

> not much of a slant. So far since I've been doing this, I've had no

> site reactions.

>

> Sue

>

> On Wednesday, November 14, 2007, at 10:22 AM, aclavern33@... wrote:

> >

> > Personally if you are having difficulties with the pre-mix self

> > injector I

> > would go back to the kind you mix and take twice a week. I had no

> > problems

> > with that. No burning or pain. It just stopped working and I started

> > getting

> > site reactions. So I stopped taking it.

>

>

>

>

>

>

> ---------------------------------

> Be a better pen pal. Text or chat with friends inside .

See how.

>

>

[Guest guest]

The sure shot is Enbrels auto injector for the drug. It comes in pre-mixed

in a device somewhat like an Epipen. Its suppose to be easy to use for those

with dexterity issues.

You basically set it up. Press against the skin and push the trigger. It

does the rest. Of course you can not control the rate at which the medication

is injected and the device is difficult to use. More complicated to me than

just doing a regular injection.

I personally would not use it...as I have had bad experiences with pre-mixed

biologics...they burn like acid!!! I have already told my doctor absolutely

NO on humira or any of the pre-mixes. If he wants me to try Enbrel again I

will....the first site reaction or issue...I AM stopping it!

I don't want to loose a chunk of flesh out of my leg behind these drugs that

for me really do not make much of a difference.

Toni

_Re: Site reactions to Enbrel _

( /message/106404;_ylc=X3oDMTJyYjV1NXJ0BF\

9TAzk3MzU5NzE1BGdycElkAzEwMTQ3OARncnBzcElkAz

E3MDUwNjE0OTgEbXNnSWQDMTA2NDA0BHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExOTUxMjM2Nzc-

)

Posted by: " Lilian Macauley " _lilmacauley@... _

(mailto:lilmacauley@...?Subject= Re:%20Site%20reactions%20to%20Enbrel)

_lilmacauley _

(lilmacauley)

Wed Nov 14, 2007 5:02 pm (PST)

- I'm not quite sure what the sure shot mre mixed injectible is.

Please explain - are you talking about the mechanics of the syringe - or about

feeling better??? Take heart, when you are new at this, it seems intimidating -

even for medical people, like me. Cheers - Lilian

************************************** See what's new at http://www.aol.com

[Guest guest]

--- Hi Lilian,

I mis typed. Its the sure shot pre mixed injector. It's like an epi

pen that is used for people who have a severe allergic reaction to

something like a bee sting.

I'll try to explain what the issue is. At the top of the device is a

button that you push down until it clicks once and then you hold it

until it clicks again. The first click sends the needle into the skin

and begins sending the medicine thru the needle into the body. Once

you hear the 2nd click you can remove the needle.

My husband had to use both hands to press the button down far enough

to engage the needle. We don't know if we are doing something wrong

or if this is the way it works. All I know is that he said that with

this being so hard to work, I'd never be able to give myself a shot

with this device and suggested that I ask my doctor to prescribe the

syringe method instead.

Les

[Guest guest]

I agree with you there. I am lucky so far that I have problems with my

thumbs...but otherwise I can do ok. I don't think its really helps. I think it

is

a gimmick myself. Humira came out with there auto-injector which I was given

a practice set up...and it was horrible to understand and use. LOL I broke

it within minutes. Never got it to actually simulate an injection.

I think the old fashioned syringes and injection works much better at least

for me. At current I am not on any injectables...actually not on meds at

all....I am fighting with my doc to get him to fill out paperwork for co-pay

assistance and for me to get back on LTD.

Its amazing how docs want you to take all these high dollar meds but refuse

to fill out any paperwork.

I got dumped off LTD when a quack doc wrote whatever the insurance company

wanted to hear...so the ins co says you are well enough to find work doing

something...go find it!! No more money for you!! UGH!!! so now I sit with

ZERO

income!! I have been doing job searches and interviews...but I am never

what they are looking for.

I had been working from home part-time...so I am researching and hoping to

get on with a better company that pays well. In my town really good pay is

anything more than $7 hr....so if I can work from home making $10 hr...I am

doing well by employment standards!

Toni

************************************** See what's new at http://www.aol.com

[Guest guest]

--- Hi Toni,

You described it exactly as I have been trying to and failed

miserably. The sure shot is very hard to use and I can't figure out

how it is better for people with dexterity issues.

Les

> The sure shot is Enbrels auto injector for the drug. It comes in

pre-mixed

> in a device somewhat like an Epipen. Its suppose to be easy to use

for those

> with dexterity issues.

>

> You basically set it up. Press against the skin and push the

trigger. It

> does the rest. Of course you can not control the rate at which the

medication

> is injected and the device is difficult to use. More complicated

to me than

> just doing a regular injection.

>

> I personally would not use it...as I have had bad experiences with

pre-mixed

> biologics...they burn like acid!!! I have already told my doctor

absolutely

> NO on humira or any of the pre-mixes. If he wants me to try Enbrel

again I

> will....the first site reaction or issue...I AM stopping it!

>

> I don't want to loose a chunk of flesh out of my leg behind these

drugs that

> for me really do not make much of a difference.

>

> Toni

>

>

>

> _Re: Site reactions to Enbrel _

>

( /message/106404;_ylc=X3oDMTJyYjV1NXJ0BF\

9TAzk3MzU5NzE1BGdycElkAzEwMTQ3OARncnBzcElkAz

>

E3MDUwNjE0OTgEbXNnSWQDMTA2NDA0BHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExOTUxMjM2Nzc-

> )

> Posted by: " Lilian Macauley " _lilmacauley@... _

> (mailto:lilmacauley@...?Subject=

Re:%20Site%20reactions%20to%20Enbrel) _lilmacauley _

> (lilmacauley)

> Wed Nov 14, 2007 5:02 pm (PST)

> - I'm not quite sure what the sure shot mre mixed injectible

is.

> Please explain - are you talking about the mechanics of the syringe

- or about

> feeling better??? Take heart, when you are new at this, it seems

intimidating -

> even for medical people, like me. Cheers - Lilian

>

>

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

>

>