Intro -

March 26, 2006

Thank you!

(Addie, 16 months, pauci)

>

> Hi and welcome to the group. I am sorry Addie has this

disease and

> feel free to ask any questions.

> (Poly 35)

>

> Intro

>

> Hi everyone, just wanted to send a note and intro myself. My name

is

> , and I live in Georgia. My daughter, Addie (16 months) has

pauci

> JRA. She first started showing signs of inflamation in Sept. '05

with

> a swollen toe. Then around Christmas her right knee became swollen

and

> then in Jan. '06 her middle finger. Right now she is on Naproxen

and

> has been for about 5 weeks. Already we have seen great improvement!

> She crawls now (she was a butt-scooter before), and can climb the

> stairs by herself, etc. Anyways, she went for a f/u w/ her Ped.

> Rheumatologist yesterday and she will be starting physical therapy

>

> Anyways, this is all so very new to me, so forgive me if in the

future

> I don't quite know what I'm saying. I'm so glad I found this

> group. I'm sure that I'll gain lots of useful info! Thanks in

advance!

>

> Addie, 16 months

>

July 22, 2006

In a message dated 7/22/2006 9:19:24 PM Pacific Standard Time, aussielue@... writes:

And water...I have a jug that holds 9 glasses of water at work and one at home and they are both usually gone by the end of my day. I drink water constantly and love the taste of it. And we have a water dispenser at work so it's always crisp, cool and yummy.

I need to get a bigger jug at work LOL... I have a cup that holds about "3 glasses" worth of water and we have an ice machine, so that is nice.... but if I got something bigger... 6-9 glasses worth... that would be nice!!

July 22, 2006

Hi , my plan is to eat small each day...I eat at 5:00am (only a whey protein shake made with 8 oz skim milk and a piece of string cheese.) Then I try to eat a small amount at three hourly intervals ending at 5:00 pm. Basically the protein shakes give me energy for the gym...and helps me feel full plus I add half a teaspoon of splenda to it to make it sweet so I just think of it as a milkshake. I always have some form of healthy carb with it though...fruit or nuts or a slice of low carb bread. I have my main meal at three pm...a small piece of either fish, chicken or lean red meat grilled or broiled and vegetables. My exercise plan for the whole of June and the start of July was one mile on the treadmill at the gym at about six am after I've gotten hubby off to work and let my breakfast settle. Then at lunch I'd go and

do another mile because my job involves sitting all day. After work I'd put it an hour to ninety minutes doing my list of weight machines. I started off with five now I'm up to eleven. I haven't done this in about two weeks...have just been so distracted...hubby's dad passed away and some other stuff happening...but I realize that was an instance of grabbing at any excuse because he would have been the first one to tell me to keep going. So I know I have to get back to it and I'm starting this Monday. And water...I have a jug that holds 9 glasses of water at work and one at home and they are both usually gone by the end of my day. I drink water constantly and love the taste of it. And we have a water dispenser at work so it's always crisp, cool and yummy. I also asked at work (since my membership at the gym will be up in twelve months) about the

company paying for us to go to a gym in the area. My supervisor liked the idea...the boss okayed it and now it's just a matter of working out how much it will cost and presenting it to the company. So I'm looking forward to that. When is weigh in here? Just wanted to know. thanks for the encouragement. Lu <bryefield@...> wrote: Glad

you came out of lurking What kind of plan did you settle on? do you journal? are you tracking your food? do you drink your water? How's exercise? I've never been much of a dieter - once about 15 years ago I lost 50 because my mom started RS and I thought what the heck - I lost more than she did and actually kept it off for a few years. Then I stopped watching and hit an all time high of 330. I got down to 265 in 2003 and by the beginnig of this year was back up to 328ish just under the 330. I'm down to 302.4 today. My water is never a problem, my food is about 70% and I get a greatr big zero in the exercise department. So that's what I need to work on. Welcome! Live, Love, Laugh Intro I've been reading this list for a few weeks now and so here I go jumping in with both feet...finally! I'm about to turn 40, am 317 lb and am at that point in this struggle where I know it's lose weight or lose my life....or at least the quality of life that still has me doing things for myself. I've been dieting since the age of fifteen...and that first one I have to say was successful but now I've yo-yoed up to this and it's time to take action. I'm glad to be a part of this group. thanks Lu . __________________________________________________

July 22, 2006

Well the fact that I talk all day...answering the phones and dispatching to my crew in the field makes me thirsty, and becuase they keep the office so cool....that makes me thirsty...don't know why but it does....and also it doesn't matter what I eat I have to drink water. But mostly I just like the taste. I can't think where I got them from...I think Walmart...not very expensive....almost got RSI by lifting it up all day when it was full so I just take a dixie cup from the kitchen and use that. I'm also lucky because my office allows me to snack at the times I've specified on my plan. Its a very easy going place. LuABrite@... wrote: In a message dated 7/22/2006 9:19:24 PM Pacific Standard Time, aussielue@... writes: And water...I have a jug that holds 9 glasses of water at work and one at home and they are both usually gone by the end of my day. I drink water constantly and love the taste of it. And we have a water dispenser at work so it's always crisp, cool and yummy. I need to get a bigger jug at work LOL... I have a cup that holds about "3 glasses" worth of water and we have an ice machine, so that is

nice.... but if I got something bigger... 6-9 glasses worth... that would be nice!!

Groups are talking. We´re listening. Check out the handy changes to .

July 23, 2006

wow - great plans I love my water jugs, it makes it easy. Live, Love, Laugh

Re: Intro -

Hi ,

my plan is to eat small each day...I eat at 5:00am (only a whey protein shake made with 8 oz skim milk and a piece of string cheese.) Then I try to eat a small amount at three hourly intervals ending at 5:00 pm. Basically the protein shakes give me energy for the gym...and helps me feel full plus I add half a teaspoon of splenda to it to make it sweet so I just think of it as a milkshake. I always have some form of healthy carb with it though...fruit or nuts or a slice of low carb bread. I have my main meal at three pm...a small piece of either fish, chicken or lean red meat grilled or broiled and vegetables. My exercise plan for the whole of June and the start of July was one mile on the treadmill at the gym at about six am after I've gotten hubby off to work and let my breakfast settle. Then at lunch I'd go and do another mile because my job involves sitting all day. After work I'd put it an hour to

ninety minutes doing my list of weight machines. I started off with five now I'm up to eleven. I haven't done this in about two weeks...have just been so distracted...hubby's dad passed away and some other stuff happening...but I realize that was an instance of grabbing at any excuse because he would have been the first one to tell me to keep going. So I know I have to get back to it and I'm starting this Monday. And water...I have a jug that holds 9 glasses of water at work and one at home and they are both usually gone by the end of my day. I drink water constantly and love the taste of it. And we have a water dispenser at work so it's always crisp, cool and yummy. I also asked at work (since my membership at the gym will be up in twelve months) about the company paying for us to go to a gym in the area. My supervisor liked the idea...the boss okayed it and now it's just a matter of working out how much it will cost and

presenting it to the company. So I'm looking forward to that. When is weigh in here? Just wanted to know.

thanks for the encouragement.

Lu

<bryefield@...> wrote:

Glad you came out of lurking What kind of plan did you settle on? do you journal? are you tracking your food? do you drink your water? How's exercise?

..

July 23, 2006

I picked up jugs that hold 4 and 8 glasses - both at Walgreens - I tried 'crushing ice to put in there - wasn't worth the effort to me LOL so in these hot summer months I have my 4 glass jug at the office - were 4-6 of us can whip through a 5 gallon jug in a day! Live, Love, Laugh

Re: Intro -

In a message dated 7/22/2006 9:19:24 PM Pacific Standard Time, aussielue@... writes:

And water...I have a jug that holds 9 glasses of water at work and one at home and they are both usually gone by the end of my day. I drink water constantly and love the taste of it. And we have a water dispenser at work so it's always crisp, cool and yummy.

I need to get a bigger jug at work LOL... I have a cup that holds about "3 glasses" worth of water and we have an ice machine, so that is nice.... but if I got something bigger... 6-9 glasses worth... that would be nice!!

July 23, 2006

In a message dated 7/22/2006 10:28:15 PM Pacific Standard Time, aussielue@... writes:

Well the fact that I talk all day...answering the phones and dispatching to my crew in the field makes me thirsty, and becuase they keep the office so cool....that makes me thirsty...don't know why but it does....and also it doesn't matter what I eat I have to drink water.

I agree about that Lu - the talking on the phones thing. I am on the phone the majority of my day too and keep the water handy (and the chap stick too).... I love water - sometimes more than others and need "flavor" in it, but still water for the most part...

November 15, 2007

Hi-

Thought I'd introduce myself; my name is and I was just

diagnosed with Undifferentiated Connective Tissue Disease. My

rheumatologist thought I had Systemic Lupus, but she has backed off to

the UCTD diagnosis, as my only positive test results were the ANA

titer (1:640 speckled) and the centromere B autoantibody. I guess I

am in the nebulous, gray area between Lupus and whatever (CREST?

Scleroderma?)

My GI symptoms are pronounced (GERD, possible stomach ulcer, severe

abdominal pain) and so I am going to see a gastroenterologist on Monday.

The rheumy has prescribed Plaquenil, but told me to hold off filling

the prescription until after seeing the GE, as he might prescribe

something else that will supersede the Plaquenil.

Does anyone else have a scenario similar to mine and have any advice

or thoughts to offer?

November 16, 2007

Welcome, !

Aside from your GI involvement, what are your other symptoms? Do you

have Raynaud's? Anything else?

A positive ANA is not specific to lupus and, although centromere

antibodies have a strong association with certain subsets of

scleroderma, they can occur in other situations.

I would keep the appointment with the gastroenterologist and then,

possibly, seek a second opinion from another rheumatologist.

Please let us know what your GI doc says.

Not an MD

On Nov 15, 2007 3:53 PM, rabbi_benjamin <rabbi_benjamin@...> wrote:

> Hi-

>

> Thought I'd introduce myself; my name is and I was just

> diagnosed with Undifferentiated Connective Tissue Disease. My

> rheumatologist thought I had Systemic Lupus, but she has backed off to

> the UCTD diagnosis, as my only positive test results were the ANA

> titer (1:640 speckled) and the centromere B autoantibody. I guess I

> am in the nebulous, gray area between Lupus and whatever (CREST?

> Scleroderma?)

>

> My GI symptoms are pronounced (GERD, possible stomach ulcer, severe

> abdominal pain) and so I am going to see a gastroenterologist on Monday.

>

> The rheumy has prescribed Plaquenil, but told me to hold off filling

> the prescription until after seeing the GE, as he might prescribe

> something else that will supersede the Plaquenil.

>

> Does anyone else have a scenario similar to mine and have any advice

> or thoughts to offer?

>

November 16, 2007

,

Welcome to the group.I can't say that I have had the problems as you

but I know that I have learned so much bing in this gruop. I am sure someone

here can relate to what you are going thru.

Heidi M

On 11/16/07, <Rheumatoid.Arthritis.Support@...> wrote:

>

> Welcome, !

>

> Aside from your GI involvement, what are your other symptoms? Do you

> have Raynaud's? Anything else?

>

> A positive ANA is not specific to lupus and, although centromere

> antibodies have a strong association with certain subsets of

> scleroderma, they can occur in other situations.

>

> I would keep the appointment with the gastroenterologist and then,

> possibly, seek a second opinion from another rheumatologist.

>

> Please let us know what your GI doc says.

>

> Not an MD

>

> On Nov 15, 2007 3:53 PM, rabbi_benjamin

<rabbi_benjamin@...<rabbi_benjamin%40>>

> wrote:

> > Hi-

> >

> > Thought I'd introduce myself; my name is and I was just

> > diagnosed with Undifferentiated Connective Tissue Disease. My

> > rheumatologist thought I had Systemic Lupus, but she has backed off to

> > the UCTD diagnosis, as my only positive test results were the ANA

> > titer (1:640 speckled) and the centromere B autoantibody. I guess I

> > am in the nebulous, gray area between Lupus and whatever (CREST?

> > Scleroderma?)

> >

> > My GI symptoms are pronounced (GERD, possible stomach ulcer, severe

> > abdominal pain) and so I am going to see a gastroenterologist on Monday.

> >

> > The rheumy has prescribed Plaquenil, but told me to hold off filling

> > the prescription until after seeing the GE, as he might prescribe

> > something else that will supersede the Plaquenil.

> >

> > Does anyone else have a scenario similar to mine and have any advice

> > or thoughts to offer?

> >

>

November 16, 2007

Hi -

Other than the terrible GI symptoms, I have fatigue, low-grade fever, malaise,

body aches and pains, mild joint pain (especially in my fingers, wrists) and

tendonitis (elbows), memory trouble, depression, cognitive dysfuntion, some mild

pheripheral neuropathy. Oh, I also have " trigger fingers " , bad enough that one

stuck permanently and had to be surgically released.

<Rheumatoid.Arthritis.Support@...> wrote:

Welcome, !

Aside from your GI involvement, what are your other symptoms? Do you

have Raynaud's? Anything else?

A positive ANA is not specific to lupus and, although centromere

antibodies have a strong association with certain subsets of

scleroderma, they can occur in other situations.

I would keep the appointment with the gastroenterologist and then,

possibly, seek a second opinion from another rheumatologist.

Please let us know what your GI doc says.

Not an MD

On Nov 15, 2007 3:53 PM, rabbi_benjamin <rabbi_benjamin@...> wrote:

> Hi-

>

> Thought I'd introduce myself; my name is and I was just

> diagnosed with Undifferentiated Connective Tissue Disease. My

> rheumatologist thought I had Systemic Lupus, but she has backed off to

> the UCTD diagnosis, as my only positive test results were the ANA

> titer (1:640 speckled) and the centromere B autoantibody. I guess I

> am in the nebulous, gray area between Lupus and whatever (CREST?

> Scleroderma?)

>

> My GI symptoms are pronounced (GERD, possible stomach ulcer, severe

> abdominal pain) and so I am going to see a gastroenterologist on Monday.

>

> The rheumy has prescribed Plaquenil, but told me to hold off filling

> the prescription until after seeing the GE, as he might prescribe

> something else that will supersede the Plaquenil.

>

> Does anyone else have a scenario similar to mine and have any advice

> or thoughts to offer?

>

---------------------------------

Get easy, one-click access to your favorites. Make your homepage.

November 16, 2007

Hi Heidi, thanks for the support. I look forward to getting to know you.

Heidi Mendelsohn <hmendelsohn@...> wrote:

,

Welcome to the group.I can't say that I have had the problems as you

but I know that I have learned so much bing in this gruop. I am sure someone

here can relate to what you are going thru.

Heidi M

Recent Activity

30

New Members

Visit Your Group

Health

Looking for Love?

Find relationship

advice and answers.

Healthy Eating

A resource

for families on

how to eat healthy

Drive Traffic

Sign In

Intro -

Recommended Posts

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Join the conversation

Activity