Hello All!

[Guest guest]

I don't usually go to Mass at the really busy Christmas or Easter times, try

to pick an early or late one those days. I can stand ok, it's a little hard

getting up, but there is no way I can kneel. Most people are very kind, not

one person at either of the churches I attend (Minnesota and California) has

ever said anything, other than to offer help. I have seen the ushers many

times either ask people to squeeze in to allow an elderly or disabled person

to sit. If they can't find room,an announcement will be made, asking

someone to give up a seat. It rarely gets to that, there are usually plenty

of volunteers. Oh, and at our parish - we send our contribution in once a

month, so do a lot of people - so many of the regulars don't put anything in

the basket when it goes by!

On 4/9/07, Pat Murray <patsy56er@...> wrote:

>

> I can suggest that when in church it is OK to stay sitting when singing!

> You are there to worship the LORD and HE does not care if you are sitting,

> just that you are there........

>

> I remember once as a kid, when times were pretty rough for my family, the

> usher came up to my Step-dad in church and told him and said " Sir, youforgot

> to pay for your seat. " In our Catholic Church you dropped money into the

> stand-thing at the entrance. Well, he was out of work at the time. He stood

> up (he was a big guy), looked the guy right in the face, and said; " I don't

> think God meant for us to either " pay " to sit in HIS House or not to come

> in, and I think he is glad that I'm hear with all of my children " . The guy

> just turned around and left. I wanted to kick the guy for embarassing my dad

> that way! But my Dad wasn't embarassed for himself, he was embarassed for

> the guy!

>

> Patsy

> El Mirage, AZ

> DX 2005 Stage 1 PBC

> AIH/SLE/RA/COPD

> Just a woman of letters....

>

> _,_._,___

>

--

Shoreview, MN, until April! brrrr!

South Pasadena, CA

You can see my galleries at http://www.pbase.com/arenared986

[Guest guest]

Well Yeeehah!!! and Congrats!!

Here's to continued improvment. Can't wait for you to see your Doc's

expression when you share your improvement with her! Could open up

some doors for her other patients and patients of some of her

collegues.

I had read in a Dear Dr. Whitaker article that a friend shared with

me that mood and/or sleep disturbances could occur for the first few

days. Perhaps your insomnia will pass.

Enjoy,

Viver

>

> Hello all,

>

> I have been monitoring this group for a few weeks and wanted to

finally say hi. My name is Russ Werner and I live in Tucson, AZ. The

neurologist I see in Phoenix is positive that I have PPMS. I saw her

July 2nd and mentioned LDN, which she said it wouldn't work but she

would write me a script because she had nothing else to offer. I

started July 5th on 3mg and within a few days I could tell some

difference. I had gotten to where I was walking with a cane very

slowly, even in the house, and have a scooter for when I go anywhere

that required walking. Last week I was walking laps up and down the

hall without the cane (tho' still wobbly) and now able to get up out

of a chair without using my arms to help. I am hoping this

continues. I have only noticed some insomnia problems, but I have

that ocassionally anyway.

>

> I want to thank all of you for all your input and knowledge of LDN

as I will pass the word around the community here.

>

> Thank you,

>

> Russ

>

[Guest guest]

Russ, Welcome to the wonderful world of LDN!!! I'm so happy for you. May your health continue to improve. Keep us all updated :)JanetRuss Werner <russwerner@...> wrote: Hello all, I have been monitoring this group for a few weeks and wanted to finally say hi. My name is Russ Werner and I live in Tucson, AZ. The neurologist I see in

Phoenix is positive that I have PPMS. I saw her July 2nd and mentioned LDN, which she said it wouldn't work but she would write me a script because she had nothing else to offer. I started July 5th on 3mg and within a few days I could tell some difference. I had gotten to where I was walking with a cane very slowly, even in the house, and have a scooter for when I go anywhere that required walking. Last week I was walking laps up and down the hall without the cane (tho' still wobbly) and now able to get up out of a chair without using my arms to help. I am hoping this continues. I have only noticed some insomnia problems, but I have that ocassionally anyway. I want to thank all of you for all your input and knowledge of LDN as I will pass the word around the community here. Thank you, Russ

Looking for a deal? Find great prices on flights and hotels with FareChase.

[Guest guest]

Hi Russ! I'm , and another lurker turned poster in the last week

or so. Welcome to the group and congratulations on your LDN progress so

far. I live in Show Low, AZ -- but was a Tucsonan before moving. I have

MS too -- on it's way to becoming SPMS -- which I'm working hard to

prevent. I saw Dr. Wendt when I was in the Old Pueblo. Who's your neuro?

I recently went to the Integrative Medicine clinic run through the

University Physicians group/UofA. Though my neuro wrote my LDN

prescription up here, it was the wrong dose, so when I was down there,

I had my Integrative med doc write the script properly. I've been on it

since July 10th, and have noticed subtle improvements in my balance,

and major improvements in my energy in this short time.

Keep in touch, and feel free to e-mail me off the chat group --

fireraven@... -- if you'd like!

Blue skies,

-

Russ Werner wrote:

Hello all,

I have been monitoring this group

for a few weeks and wanted to finally say hi. My name is Russ Werner

and I live in Tucson, AZ. The neurologist I see in Phoenix is positive

that I have PPMS. I saw her July 2nd and mentioned LDN, which she said

it wouldn't work but she would write me a script because she had

nothing else to offer. I started July 5th on 3mg and within a few days

I could tell some difference. I had gotten to where I was walking with

a cane very slowly, even in the house, and have a scooter for when I go

anywhere that required walking. Last week I was walking laps up and

down the hall without the cane (tho' still wobbly) and now able to get

up out of a chair without using my arms to help. I am hoping this

continues. I have only noticed some insomnia problems, but I have that

ocassionally anyway.

I want to thank all of you for all

your input and knowledge of LDN as I will pass the word around the

community here.

Thank you,

Russ

[Guest guest]

SALLY FORTH RUSS!! Vivianne Israel <sheji@...> wrote: Well Yeeehah!!! and Congrats!!Here's to continued improvment. Can't wait for you to see your Doc's expression when you share your improvement with her! Could open up some doors for her other patients and patients of some of her collegues.I had read in a Dear Dr. Whitaker article that a friend shared with me that mood and/or sleep disturbances could occur for the first few days.

Perhaps your insomnia will pass.Enjoy,Viver>> Hello all,> > I have been monitoring this group for a few weeks and wanted to finally say hi. My name is Russ Werner and I live in Tucson, AZ. The neurologist I see in Phoenix is positive that I have PPMS. I saw her July 2nd and mentioned LDN, which she said it wouldn't work but she would write me a script because she had nothing else to offer. I started July 5th on 3mg and within a few days I could tell some difference. I had gotten to where I was walking with a cane very slowly, even in the house, and have a scooter for when I go anywhere that required walking. Last week I was walking laps up and down the hall without the cane (tho' still wobbly) and now able to get up out of a

chair without using my arms to help. I am hoping this continues. I have only noticed some insomnia problems, but I have that ocassionally anyway. > > I want to thank all of you for all your input and knowledge of LDN as I will pass the word around the community here.> > Thank you,> > Russ>

Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when.

[Guest guest]

Hi and welcome to the group. I think the flat part you are

referring to is brachycephaly, or brachy for short. My daughter had

brachy, but not much plagio (4.5 mm of asymmetry). She wore a starband

at had very good results. She started her band at 5 mo and ended at 10

mo. You can see before and after pics in the photos section of this

group under Our Plagio Babies S/Sydney M. I think this link will take

you to the right page:

http://health.ph./group/Plagiocephaly/photos/browse/e3ac?b=37 & m=\

t & o=0

I would say 5 mo is longer than normal to wear a band, but it depends

on the babies growth and severity. Some babies wear multiple bands and

some treatment last longer. Average is probably closer to 3-4 months.

take care. -christine

sydney 19 mo starband grad

>

> My name is and my Husband Will and I have 2 boys ,2

and Zachary almost 6

> months. Zack just got his helmet yesterday and seems to be adjusting

wonderfully. He has 2

> knds of plagiocephaly on the back of his head, flat and diagnal. The

Dr. Says that his is more

> concerned with the flat because it is the most difficult to work

out. I just wanted to see how

> long on average it takes and what kind of results there were.

>

[Guest guest]

My name is Deneen. I am a 25 year old single mother who has a severe

case of rheumatoid arthritis. I have had this disease for 3 years

now, and I still am learning about it. I am constantly reading about

this illness and trying to understand it. It is really hard because

I am a single parent and my son is so young and he doesn't

understand. All he knows is that " mommy has pains a lot " !

This disease IS as some of you already know, a chronic, debilitating

disease. In these three years alone so much has changed for me.

There used to be a time when I could make plans to do things, where

I could run and crawl on the ground with my son. Now my days are

planned according to how I feel in the mornings. I don't really hang

out with anyone anymore because I know the consequence I will face

from going out and partying all night. I have made changes in my

lifestyle and it has been hard.

I am on here to make new friends, learn more about this disease, and

get support from people who know what I'm going through. I have been

feeling so down lately that I had to get a psychologist and I even

go to a local support group 3 times a week. I know that being here

will also help me not only understand this, but make me feel better.

I look forward to chatting with all of you. Please don't hesitate to

email or IM me. It might just make my day

~Deneen Wyman

[Guest guest]

Hi Deneen

Sorry you are suffering when you have such a little one at home.

It has to be hard. My kids are teens now but I remember how it used to be when

they

were younger. We are all hear if you need to vent or ask questions.

Do they have you on meds that seem to help at all?

Joy

Deneen <dwyman4@...> wrote:

My name is Deneen. I am a 25 year old single mother who has a severe

case of rheumatoid arthritis. I have had this disease for 3 years

now, and I still am learning about it. I am constantly reading about

this illness and trying to understand it. It is really hard because

I am a single parent and my son is so young and he doesn't

understand. All he knows is that " mommy has pains a lot " !

This disease IS as some of you already know, a chronic, debilitating

disease. In these three years alone so much has changed for me.

There used to be a time when I could make plans to do things, where

I could run and crawl on the ground with my son. Now my days are

planned according to how I feel in the mornings. I don't really hang

out with anyone anymore because I know the consequence I will face

from going out and partying all night. I have made changes in my

lifestyle and it has been hard.

I am on here to make new friends, learn more about this disease, and

get support from people who know what I'm going through. I have been

feeling so down lately that I had to get a psychologist and I even

go to a local support group 3 times a week. I know that being here

will also help me not only understand this, but make me feel better.

I look forward to chatting with all of you. Please don't hesitate to

email or IM me. It might just make my day

~Deneen Wyman

[Guest guest]

Thanks for writing! To answer your question, yes, they have me on

Methotrexate. I take 7 pills at one time, one a week. Sometimes I

think that isn't enough, though. The pain is just unbearable! I am

having a lot of trouble with my wrists now. I am going today to have

an X-ray done because I think that there is something major going on

with my wrists. Do you know if there is another medication that I

can take with Methotrexate that might help once taken together?

~Deneen

> My name is Deneen. I am a 25 year old single mother who

has a severe

> case of rheumatoid arthritis. I have had this disease for 3 years

> now, and I still am learning about it. I am constantly reading

about

> this illness and trying to understand it. It is really hard

because

> I am a single parent and my son is so young and he doesn't

> understand. All he knows is that " mommy has pains a lot " !

>

> This disease IS as some of you already know, a chronic,

debilitating

> disease. In these three years alone so much has changed for me.

> There used to be a time when I could make plans to do things,

where

> I could run and crawl on the ground with my son. Now my days are

> planned according to how I feel in the mornings. I don't really

hang

> out with anyone anymore because I know the consequence I will face

> from going out and partying all night. I have made changes in my

> lifestyle and it has been hard.

>

> I am on here to make new friends, learn more about this disease,

and

> get support from people who know what I'm going through. I have

been

> feeling so down lately that I had to get a psychologist and I even

> go to a local support group 3 times a week. I know that being here

> will also help me not only understand this, but make me feel

better.

>

> I look forward to chatting with all of you. Please don't hesitate

to

> email or IM me. It might just make my day

>

> ~Deneen Wyman

>

>

>

>

>

>

>

[Guest guest]

Hello Deneen, You are pretty young, unfortunitly RA can show up at any time.

Stay active. and just because you seem like you move slower , or take longer to

get going, just plan it in your day. Myself, I know the morning is the worst,

and it takes me two-three hours to get out the door. I am 47 years old, been

battling this disease for a long time now. I take 8 MTX pills a week, along with

Mobic 15mg once a day, 3mg prednisone a day ( which I am getting off from )

prednisone will pack on the weight. I also take Enbrel injections twice a week,

the Enbrel has really helped out, The Prednisone has slowed the disease and the

terrible aching. But I went from 145 lbs to 205 in a matter of a few years, so I

opted to go of the prednisone, and my RA Doc said no problem as long as my ESR

does not change. I myself think that the extra weight is causing more problems,

and I stay active. I exercise three times a week, and I swim and use the hot

tub. I also use the OC rubs like BIO

freeze, and mineral ice, and I take Vicodin twice a day, one tin the morning to

get me going and one in the evening to take away the end of the day pain. It is

no fun to be in pain all the time. It will cause fatigue, and if it does , do

not hestitate to discuss it with your Doctor. Sounds like you made need your

Meds adjusted to take care of the break through pain. And stress is not good

either. RA is a battle, there is no cure for it just treatment, and there is

some very good treatments. This support group has helped me out greatly, and

is awesome in finding out information, she is a great moderator. I can say

this is the best group yet that I belong to on . Sincere people just like

yourself. If you need to talk more you can e-mail me or IM me. Jean

Deneen <dwyman4@...> wrote: Thanks for writing! To answer

your question, yes, they have me on

Methotrexate. I take 7 pills at one time, one a week. Sometimes I

think that isn't enough, though. The pain is just unbearable! I am

having a lot of trouble with my wrists now. I am going today to have

an X-ray done because I think that there is something major going on

with my wrists. Do you know if there is another medication that I

can take with Methotrexate that might help once taken together?

~Deneen

> My name is Deneen. I am a 25 year old single mother who

has a severe

> case of rheumatoid arthritis. I have had this disease for 3 years

> now, and I still am learning about it. I am constantly reading

about

> this illness and trying to understand it. It is really hard

because

> I am a single parent and my son is so young and he doesn't

> understand. All he knows is that " mommy has pains a lot " !

>

> This disease IS as some of you already know, a chronic,

debilitating

> disease. In these three years alone so much has changed for me.

> There used to be a time when I could make plans to do things,

where

> I could run and crawl on the ground with my son. Now my days are

> planned according to how I feel in the mornings. I don't really

hang

> out with anyone anymore because I know the consequence I will face

> from going out and partying all night. I have made changes in my

> lifestyle and it has been hard.

>

> I am on here to make new friends, learn more about this disease,

and

> get support from people who know what I'm going through. I have

been

> feeling so down lately that I had to get a psychologist and I even

> go to a local support group 3 times a week. I know that being here

> will also help me not only understand this, but make me feel

better.

>

> I look forward to chatting with all of you. Please don't hesitate

to

> email or IM me. It might just make my day

>

> ~Deneen Wyman

>

>

>

>

>

>

>

[Guest guest]

I feel for you with the wrist pain. I have been diagnosed with R.A. for 3

years. I inject Enbrel 50 mg./wk and take Darvocet for pain (only with flares,

which happen rarely) I did have badly swollen wrists last week - went to my

Rheumy - she said I had tendonitis in my wrists along with the R.A. She

injected cortisone into my wrists - I have some relief of the pain, but the

swelling is still there. Also my rheumy has me use wrists splints - they let

you rest your wrists - I know, you're a busy lady and can't sit aound with your

hands immobilized. But, with good treatment, I believe these episodes will

subside. - Lilian

Deneen <dwyman4@...> wrote:

Thanks for writing! To answer your question, yes, they have me on

Methotrexate. I take 7 pills at one time, one a week. Sometimes I

think that isn't enough, though. The pain is just unbearable! I am

having a lot of trouble with my wrists now. I am going today to have

an X-ray done because I think that there is something major going on

with my wrists. Do you know if there is another medication that I

can take with Methotrexate that might help once taken together?

~Deneen

> My name is Deneen. I am a 25 year old single mother who

has a severe

> case of rheumatoid arthritis. I have had this disease for 3 years

> now, and I still am learning about it. I am constantly reading

about

> this illness and trying to understand it. It is really hard

because

> I am a single parent and my son is so young and he doesn't

> understand. All he knows is that " mommy has pains a lot " !

>

> This disease IS as some of you already know, a chronic,

debilitating

> disease. In these three years alone so much has changed for me.

> There used to be a time when I could make plans to do things,

where

> I could run and crawl on the ground with my son. Now my days are

> planned according to how I feel in the mornings. I don't really

hang

> out with anyone anymore because I know the consequence I will face

> from going out and partying all night. I have made changes in my

> lifestyle and it has been hard.

>

> I am on here to make new friends, learn more about this disease,

and

> get support from people who know what I'm going through. I have

been

> feeling so down lately that I had to get a psychologist and I even

> go to a local support group 3 times a week. I know that being here

> will also help me not only understand this, but make me feel

better.

>

> I look forward to chatting with all of you. Please don't hesitate

to

> email or IM me. It might just make my day

>

> ~Deneen Wyman

>

>

>

>

>

>

>

[Guest guest]

Deneen, ask your doctor if he would let you try arava with the methotrexate I

had good luck with it for a good while

Deneen <dwyman4@...> wrote: Thanks for writing! To answer

your question, yes, they have me on

Methotrexate. I take 7 pills at one time, one a week. Sometimes I

think that isn't enough, though. The pain is just unbearable! I am

having a lot of trouble with my wrists now. I am going today to have

an X-ray done because I think that there is something major going on

with my wrists. Do you know if there is another medication that I

can take with Methotrexate that might help once taken together?

~Deneen

> My name is Deneen. I am a 25 year old single mother who

has a severe

> case of rheumatoid arthritis. I have had this disease for 3 years

> now, and I still am learning about it. I am constantly reading

about

> this illness and trying to understand it. It is really hard

because

> I am a single parent and my son is so young and he doesn't

> understand. All he knows is that " mommy has pains a lot " !

>

> This disease IS as some of you already know, a chronic,

debilitating

> disease. In these three years alone so much has changed for me.

> There used to be a time when I could make plans to do things,

where

> I could run and crawl on the ground with my son. Now my days are

> planned according to how I feel in the mornings. I don't really

hang

> out with anyone anymore because I know the consequence I will face

> from going out and partying all night. I have made changes in my

> lifestyle and it has been hard.

>

> I am on here to make new friends, learn more about this disease,

and

> get support from people who know what I'm going through. I have

been

> feeling so down lately that I had to get a psychologist and I even

> go to a local support group 3 times a week. I know that being here

> will also help me not only understand this, but make me feel

better.

>

> I look forward to chatting with all of you. Please don't hesitate

to

> email or IM me. It might just make my day

>

> ~Deneen Wyman

>

>

>

>

>

>

>

[Guest guest]

Thank you so much! I will definitely look into the Enbrel! Did the

injections hurt? I had injections before in my knee when it had

swollen last year. Boy, was that painful!!

> > My name is Deneen. I am a 25 year old single mother who

> has a severe

> > case of rheumatoid arthritis. I have had this disease for 3

years

> > now, and I still am learning about it. I am constantly reading

> about

> > this illness and trying to understand it. It is really hard

> because

> > I am a single parent and my son is so young and he doesn't

> > understand. All he knows is that " mommy has pains a lot " !

> >

> > This disease IS as some of you already know, a chronic,

> debilitating

> > disease. In these three years alone so much has changed for me.

> > There used to be a time when I could make plans to do things,

> where

> > I could run and crawl on the ground with my son. Now my days are

> > planned according to how I feel in the mornings. I don't really

> hang

> > out with anyone anymore because I know the consequence I will

face

> > from going out and partying all night. I have made changes in my

> > lifestyle and it has been hard.

> >

> > I am on here to make new friends, learn more about this disease,

> and

> > get support from people who know what I'm going through. I have

> been

> > feeling so down lately that I had to get a psychologist and I

even

> > go to a local support group 3 times a week. I know that being

here

> > will also help me not only understand this, but make me feel

> better.

> >

> > I look forward to chatting with all of you. Please don't

hesitate

> to

> > email or IM me. It might just make my day

> >

> > ~Deneen Wyman

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I use splints as well on both wrists. As you know, the joint pain

hits both joints and now my wrists are the victims. It used to be my

knees and ankles REAL bad. I have it so bad that I cannot open up

those white tops on a carton of juice or orange juice! Sometimes I

can't even hold a can. I just want to get this RA controlled so I

can do basicx things. I will look into the Enbral though! Thanks!

> > My name is Deneen. I am a 25 year old single mother who

> has a severe

> > case of rheumatoid arthritis. I have had this disease for 3

years

> > now, and I still am learning about it. I am constantly reading

> about

> > this illness and trying to understand it. It is really hard

> because

> > I am a single parent and my son is so young and he doesn't

> > understand. All he knows is that " mommy has pains a lot " !

> >

> > This disease IS as some of you already know, a chronic,

> debilitating

> > disease. In these three years alone so much has changed for me.

> > There used to be a time when I could make plans to do things,

> where

> > I could run and crawl on the ground with my son. Now my days are

> > planned according to how I feel in the mornings. I don't really

> hang

> > out with anyone anymore because I know the consequence I will

face

> > from going out and partying all night. I have made changes in my

> > lifestyle and it has been hard.

> >

> > I am on here to make new friends, learn more about this disease,

> and

> > get support from people who know what I'm going through. I have

> been

> > feeling so down lately that I had to get a psychologist and I

even

> > go to a local support group 3 times a week. I know that being

here

> > will also help me not only understand this, but make me feel

> better.

> >

> > I look forward to chatting with all of you. Please don't

hesitate

> to

> > email or IM me. It might just make my day

> >

> > ~Deneen Wyman

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thank you so much for your help! I take Methotrexate as well. I used

to take Predisone, however, those side effects are awful! I quit

that quickly. I just refuse to take a steroid on a regular basis. I

got a few good comments about Enbral and I will check that out. I do

try to stay active and get around. But as you know, that morning

stiffness is a you know what! I have it for about 4-5 hours and then

by mid-day I can do some things. It's hard for me to wash dishes

even! I am in the process of moving soon to my own place which will

definitely be hard, being that I would have to do everything on my

own. I hope to find a place with a dishwasher and if it's an

apartment hopefully there are no stairs! I am going to look tomorrow

into swimming a few times a week. Did you have to get your

Rheumatologist to give you PT for swimming?

> > My name is Deneen. I am a 25 year old single mother who

> has a severe

> > case of rheumatoid arthritis. I have had this disease for 3

years

> > now, and I still am learning about it. I am constantly reading

> about

> > this illness and trying to understand it. It is really hard

> because

> > I am a single parent and my son is so young and he doesn't

> > understand. All he knows is that " mommy has pains a lot " !

> >

> > This disease IS as some of you already know, a chronic,

> debilitating

> > disease. In these three years alone so much has changed for me.

> > There used to be a time when I could make plans to do things,

> where

> > I could run and crawl on the ground with my son. Now my days are

> > planned according to how I feel in the mornings. I don't really

> hang

> > out with anyone anymore because I know the consequence I will

face

> > from going out and partying all night. I have made changes in my

> > lifestyle and it has been hard.

> >

> > I am on here to make new friends, learn more about this disease,

> and

> > get support from people who know what I'm going through. I have

> been

> > feeling so down lately that I had to get a psychologist and I

even

> > go to a local support group 3 times a week. I know that being

here

> > will also help me not only understand this, but make me feel

> better.

> >

> > I look forward to chatting with all of you. Please don't

hesitate

> to

> > email or IM me. It might just make my day

> >

> > ~Deneen Wyman

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thank you so much for replying! I did hear about Enbrel and I am

going to look into it! I asked my doctor about Humira and he didn't

really recommend it because he said it is fairly new and they like

to prescibe meds that have been out for awhile, 10 years or more I

guess. It's just so hard to try to avoid using your wrists when they

are swollen!! I never knew how important they were! lol

> > My name is Deneen. I am a 25 year old single mother who

> has a severe

> > case of rheumatoid arthritis. I have had this disease for 3

years

> > now, and I still am learning about it. I am constantly reading

> about

> > this illness and trying to understand it. It is really hard

> because

> > I am a single parent and my son is so young and he doesn't

> > understand. All he knows is that " mommy has pains a lot " !

> >

> > This disease IS as some of you already know, a chronic,

> debilitating

> > disease. In these three years alone so much has changed for me.

> > There used to be a time when I could make plans to do things,

> where

> > I could run and crawl on the ground with my son. Now my days are

> > planned according to how I feel in the mornings. I don't really

> hang

> > out with anyone anymore because I know the consequence I will

face

> > from going out and partying all night. I have made changes in my

> > lifestyle and it has been hard.

> >

> > I am on here to make new friends, learn more about this disease,

> and

> > get support from people who know what I'm going through. I have

> been

> > feeling so down lately that I had to get a psychologist and I

even

> > go to a local support group 3 times a week. I know that being

here

> > will also help me not only understand this, but make me feel

> better.

> >

> > I look forward to chatting with all of you. Please don't

hesitate

> to

> > email or IM me. It might just make my day

> >

> > ~Deneen Wyman

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks! I will ask about that too!

> > My name is Deneen. I am a 25 year old single mother who

> has a severe

> > case of rheumatoid arthritis. I have had this disease for 3

years

> > now, and I still am learning about it. I am constantly reading

> about

> > this illness and trying to understand it. It is really hard

> because

> > I am a single parent and my son is so young and he doesn't

> > understand. All he knows is that " mommy has pains a lot " !

> >

> > This disease IS as some of you already know, a chronic,

> debilitating

> > disease. In these three years alone so much has changed for me.

> > There used to be a time when I could make plans to do things,

> where

> > I could run and crawl on the ground with my son. Now my days are

> > planned according to how I feel in the mornings. I don't really

> hang

> > out with anyone anymore because I know the consequence I will

face

> > from going out and partying all night. I have made changes in my

> > lifestyle and it has been hard.

> >

> > I am on here to make new friends, learn more about this disease,

> and

> > get support from people who know what I'm going through. I have

> been

> > feeling so down lately that I had to get a psychologist and I

even

> > go to a local support group 3 times a week. I know that being

here

> > will also help me not only understand this, but make me feel

> better.

> >

> > I look forward to chatting with all of you. Please don't

hesitate

> to

> > email or IM me. It might just make my day

> >

> > ~Deneen Wyman

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

No I did not have PT swimming, but I am staying at a place that has a pool and

hot tub which is great.I have been through a lot of PT for my legs and back, I

have had the stimulation therapy also. I have had nerve blocks, radio frequency

blocks on my back I have spondylitis and RA in the sacrum joint ( pelvic area )

I have problems with my hips , knees ankles, feet, back, and the RA has finally

hit the hands this past year.Spondylitis is where the spine is fusing together.

I walk frequently also. And if you can get in a one level place to live that is

good, the stairs will kill you after awhile. My son is 21 years old, so I have

no little ones to take care of. I still cut grass, do yard work. And one good

day of work really drains me. RA effects you in so many ways. Stay positive, and

stay away from the steriods if possible. Jean

Deneen <dwyman4@...> wrote:

Thank you so much for your help! I take Methotrexate as well. I used

to take Predisone, however, those side effects are awful! I quit

that quickly. I just refuse to take a steroid on a regular basis. I

got a few good comments about Enbral and I will check that out. I do

try to stay active and get around. But as you know, that morning

stiffness is a you know what! I have it for about 4-5 hours and then

by mid-day I can do some things. It's hard for me to wash dishes

even! I am in the process of moving soon to my own place which will

definitely be hard, being that I would have to do everything on my

own. I hope to find a place with a dishwasher and if it's an

apartment hopefully there are no stairs! I am going to look tomorrow

into swimming a few times a week. Did you have to get your

Rheumatologist to give you PT for swimming?

> > My name is Deneen. I am a 25 year old single mother who

> has a severe

> > case of rheumatoid arthritis. I have had this disease for 3

years

> > now, and I still am learning about it. I am constantly reading

> about

> > this illness and trying to understand it. It is really hard

> because

> > I am a single parent and my son is so young and he doesn't

> > understand. All he knows is that " mommy has pains a lot " !

> >

> > This disease IS as some of you already know, a chronic,

> debilitating

> > disease. In these three years alone so much has changed for me.

> > There used to be a time when I could make plans to do things,

> where

> > I could run and crawl on the ground with my son. Now my days are

> > planned according to how I feel in the mornings. I don't really

> hang

> > out with anyone anymore because I know the consequence I will

face

> > from going out and partying all night. I have made changes in my

> > lifestyle and it has been hard.

> >

> > I am on here to make new friends, learn more about this disease,

> and

> > get support from people who know what I'm going through. I have

> been

> > feeling so down lately that I had to get a psychologist and I

even

> > go to a local support group 3 times a week. I know that being

here

> > will also help me not only understand this, but make me feel

> better.

> >

> > I look forward to chatting with all of you. Please don't

hesitate

> to

> > email or IM me. It might just make my day

> >

> > ~Deneen Wyman

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I'm Lilian, who wrote about the wrist cortisone injection, done by my

rheumatologist. It was very bearable - medication included a numbing med.

(lidocaine, I think). I did have to look away, though!

Deneen <dwyman4@...> wrote: Thank you so much! I will

definitely look into the Enbrel! Did the

injections hurt? I had injections before in my knee when it had

swollen last year. Boy, was that painful!!

> > My name is Deneen. I am a 25 year old single mother who

> has a severe

> > case of rheumatoid arthritis. I have had this disease for 3

years

> > now, and I still am learning about it. I am constantly reading

> about

> > this illness and trying to understand it. It is really hard

> because

> > I am a single parent and my son is so young and he doesn't

> > understand. All he knows is that " mommy has pains a lot " !

> >

> > This disease IS as some of you already know, a chronic,

> debilitating

> > disease. In these three years alone so much has changed for me.

> > There used to be a time when I could make plans to do things,

> where

> > I could run and crawl on the ground with my son. Now my days are

> > planned according to how I feel in the mornings. I don't really

> hang

> > out with anyone anymore because I know the consequence I will

face

> > from going out and partying all night. I have made changes in my

> > lifestyle and it has been hard.

> >

> > I am on here to make new friends, learn more about this disease,

> and

> > get support from people who know what I'm going through. I have

> been

> > feeling so down lately that I had to get a psychologist and I

even

> > go to a local support group 3 times a week. I know that being

here

> > will also help me not only understand this, but make me feel

> better.

> >

> > I look forward to chatting with all of you. Please don't

hesitate

> to

> > email or IM me. It might just make my day

> >

> > ~Deneen Wyman

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I am brand new to this support group. I have had RA for five years

but it has just flared up bad this past year.

Since many of you are mothers( and wives,etc), how do you handle the

flare ups with little children and husband. My husband hates that i

am always in pain! i usually try to not say anything but my attitude

ususally gives it away.

My boys, 5 and 2, hate it when i have to : " rest'. I am on

methotrexate but it does not seem to help much.

Any suggestions?

Power to the RA survivors! Thank you for this support group!

Priscilla

2

> > > My name is Deneen. I am a 25 year old single mother who

> > has a severe

> > > case of rheumatoid arthritis. I have had this disease for 3

> years

> > > now, and I still am learning about it. I am constantly reading

> > about

> > > this illness and trying to understand it. It is really hard

> > because

> > > I am a single parent and my son is so young and he doesn't

> > > understand. All he knows is that " mommy has pains a lot " !

> > >

> > > This disease IS as some of you already know, a chronic,

> > debilitating

> > > disease. In these three years alone so much has changed for me.

> > > There used to be a time when I could make plans to do things,

> > where

> > > I could run and crawl on the ground with my son. Now my days

are

> > > planned according to how I feel in the mornings. I don't really

> > hang

> > > out with anyone anymore because I know the consequence I will

> face

> > > from going out and partying all night. I have made changes in

my

> > > lifestyle and it has been hard.

> > >

> > > I am on here to make new friends, learn more about this

disease,

> > and

> > > get support from people who know what I'm going through. I have

> > been

> > > feeling so down lately that I had to get a psychologist and I

> even

> > > go to a local support group 3 times a week. I know that being

> here

> > > will also help me not only understand this, but make me feel

> > better.

> > >

> > > I look forward to chatting with all of you. Please don't

> hesitate

> > to

> > > email or IM me. It might just make my day

> > >

> > > ~Deneen Wyman

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

try zoloft, we put my son on it when he was 8 and it really helped. Sycamore Art StudiosSycamore Art SchoolDeborah GustlinGraphic & Web DesignArt classes for K-12www.sycamoreartstudios.comwww.sycamoreartschool.comHome: 408-710-0892 Business: 408-710-6070From: faithalicious <mom2iris2002@...> Sent: Wed, March 2, 2011 9:35:40 AMSubject:

( ) Hello All!

I am new to this forum and have a few questions. I have an 8 year old daughter that was born with spina bifida occulta. She was just recently diagnosed with and Anxiety Disorder and high risk for Aspergers. I am very frustrated with the diagnosis as I feel that the psychiatrist/psychologist only want to treat this as an anxiety disorder and medicate her to the max. My daughter has terrible seperation anxiety and school refusal. They started her on lorazipam which she had a paradoxical reaction too and went into a suicidal rage. Next they tried her on buspirone and after three weeks there was no change in her school anxiety, now they want to put her on celexa as well as keep her on the buspirone. can anyoone give me any advice on these medications?

[Guest guest]

I agree with Deborah on the Zoloft. My son was put on it at age 10 and it has helped a great deal! ne

From: Deborah Gustlin <sycamorestudios@...>Subject: Re: ( ) Hello All! Date: Wednesday, March 2, 2011, 2:37 PM

try zoloft, we put my son on it when he was 8 and it really helped.

Sycamore Art StudiosSycamore Art SchoolDeborah GustlinGraphic & Web DesignArt classes for K-12www.sycamoreartstudios.comwww.sycamoreartschool.comHome: 408-710-0892 Business:

408-710-6070

From: faithalicious <mom2iris2002@...> Sent: Wed, March 2, 2011 9:35:40 AMSubject: ( ) Hello All!

I am new to this forum and have a few questions. I have an 8 year old daughter that was born with spina bifida occulta. She was just recently diagnosed with and Anxiety Disorder and high risk for Aspergers. I am very frustrated with the diagnosis as I feel that the psychiatrist/psychologist only want to treat this as an anxiety disorder and medicate her to the max. My daughter has terrible seperation anxiety and school refusal. They started her on lorazipam which she had a paradoxical reaction too and went into a suicidal rage. Next they tried her on buspirone and after three weeks there was no change in her school anxiety, now they want to put her on celexa as well as keep her on the buspirone. can anyoone give me any advice on these medications?

[Guest guest]

Yes, Zoloft.  We just upped my son's dose after an unpleasant episode at school and we are seeing quite an improvement.  I've been on it for years for my anxiety disorder -- couldn't live without it.  No side effects at all.

E.V. DowneyOn Wed, Mar 2, 2011 at 10:39 PM, susanne hansen <s_hansen34@...> wrote:

 

I agree with Deborah on the Zoloft. My son was put on it at age 10 and it has helped a great deal!

ne

From: Deborah Gustlin <sycamorestudios@...>Subject: Re: ( ) Hello All!

Date: Wednesday, March 2, 2011, 2:37 PM

 

try zoloft, we put my son on it when he was 8 and it really helped.

 Sycamore Art StudiosSycamore Art School

Deborah GustlinGraphic & Web DesignArt classes for K-12

www.sycamoreartstudios.comwww.sycamoreartschool.com

Home:  408-710-0892 Business: 

408-710-6070

From: faithalicious <mom2iris2002@...>

Sent: Wed, March 2, 2011 9:35:40 AMSubject: ( ) Hello All! 

I am new to this forum and have a few questions. I have an 8 year old daughter that was born with spina bifida occulta. She was just recently diagnosed with and Anxiety Disorder and high risk for Aspergers. I am very frustrated with the diagnosis as I feel that the psychiatrist/psychologist only want to treat this as an anxiety disorder and medicate her to the max. My daughter has terrible seperation anxiety and school refusal. They started her on lorazipam which she had a paradoxical reaction too and went into a suicidal rage. Next they tried her on buspirone and after three weeks there was no change in her school anxiety, now they want to put her on celexa as well as keep her on the buspirone. can anyoone give me any advice on these medications?

[Guest guest]

i think we should pour it in the water supply like flouride and then the world might be peaceful! Sycamore Art StudiosSycamore Art SchoolDeborah GustlinGraphic & Web DesignArt classes for K-12www.sycamoreartstudios.comwww.sycamoreartschool.comHome: 408-710-0892 Business: 408-710-6070From: EV Downey <dcmusicteacher@...> Sent: Wed, March 2, 2011 7:43:31 PMSubject:

Re: ( ) Hello All!

Yes, Zoloft. We just upped my son's dose after an unpleasant episode at school and we are seeing quite an improvement. I've been on it for years for my anxiety disorder -- couldn't live without it. No side effects at all.

E.V. DowneyOn Wed, Mar 2, 2011 at 10:39 PM, susanne hansen <s_hansen34@...> wrote:

I agree with Deborah on the Zoloft. My son was put on it at age 10 and it has helped a great deal!

ne

From: Deborah Gustlin <sycamorestudios@...>Subject: Re: ( ) Hello All!

Date: Wednesday, March 2, 2011, 2:37 PM

try zoloft, we put my son on it when he was 8 and it really helped.

Sycamore Art StudiosSycamore Art School

Deborah GustlinGraphic & Web DesignArt classes for K-12

www.sycamoreartstudios.comwww.sycamoreartschool.com

Home: 408-710-0892 Business:

408-710-6070

From: faithalicious <mom2iris2002@...>

Sent: Wed, March 2, 2011 9:35:40 AMSubject: ( ) Hello All!

I am new to this forum and have a few questions. I have an 8 year old daughter that was born with spina bifida occulta. She was just recently diagnosed with and Anxiety Disorder and high risk for Aspergers. I am very frustrated with the diagnosis as I feel that the psychiatrist/psychologist only want to treat this as an anxiety disorder and medicate her to the max. My daughter has terrible seperation anxiety and school refusal. They started her on lorazipam which she had a paradoxical reaction too and went into a suicidal rage. Next they tried her on buspirone and after three weeks there was no change in her school anxiety, now they want to put her on celexa as well as keep her on the buspirone. can anyoone give me any advice on these medications?

[Guest guest]

I agree Deborah! Your statement reminded me of an old song...you might know it

but I could just be aging myself. Sorry. LOL!

" I'd like to teach the world to sing in perfect harmony.. "

ne

>

>

>

> From: Deborah Gustlin <sycamorestudios@...>

> Subject: Re: ( ) Hello All!

>

>

> Date: Wednesday, March 2, 2011, 2:37 PM

>

>

>  

>

>

> try zoloft, we put my son on it

> when he was 8 and it really helped.

>

>  Sycamore Art

> Studios

> Sycamore Art School

>

> Deborah

> Gustlin

> Graphic & Web

> Design

> Art classes for

> K-12

>

> www.sycamoreartstudios.com

> www.sycamoreartschool.com

>

> Home:  408-710-0892

> Business: 

> 408-710-6070

>

>

>

>

>

>

>

> From:

> faithalicious <mom2iris2002@...>

>

>

> Sent: Wed,

> March 2, 2011 9:35:40 AM

> Subject:

> ( ) Hello All!

>

>  

>

> I am new to this forum and have a few questions. I

> have an 8 year old daughter that was born with spina bifida

> occulta. She was just recently diagnosed with and Anxiety

> Disorder and high risk for Aspergers. I am very frustrated

> with the diagnosis as I feel that the

> psychiatrist/psychologist only want to treat this as an

> anxiety disorder and medicate her to the max. My daughter

> has terrible seperation anxiety and school refusal. They

> started her on lorazipam which she had a paradoxical

> reaction too and went into a suicidal rage. Next they tried

> her on buspirone and after three weeks there was no change

> in her school anxiety, now they want to put her on celexa as

> well as keep her on the buspirone. can anyoone give me any

> advice on these medications?

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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