Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 Hi When this happens to me I do the following. I see a chirppratpr as he can assess that. I get a massage if I need to. I also take a peroxide bath as that helps with injury or overdoing. Great for muscles. Hope this helps..when not on nsaid, I take advil as well or if you are extra strength tylenol helps too. Love Marge > Hello, > I did some extra work Friday, which required some reaching and bending, now my back is worse then it was. Do you think I may have injured it somewhat or could this be a Flare or Herx?Hope someone will comment on this. > Hope everyone is getting better. > Ann > maryannbell@s... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hello, Sal. Nice to see you posting again. Sorry that you are flaring. What medications for your RA are you currently taking? The chat feature works, but there usually isn't anyone in the room! If you want to schedule a time for people to meet you to chat, please feel free to do so. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] HELLO ALL! > I just wanted to say 'hello'......I've written before but only > for a short time. And so I'm just wondering how you all are > doing?....Kathy, kringlemom, and .....I've had RA for a while and > now it's flaring up again. I don't need this , but have been very > lucky and used to being in remission. However, a times like these, > the pain is disabling me from regular work duties. I'm just glad to be > living and working. I'll be fine after a while. My wrist cannot move > and I have a brace on. Im just on here sharing thoughts and checking > out new medications you've tried. I'm trying to lose some weight which > would help my RA..........but its the exercise that will get it off. > And yes, I know sometimes even that is impossible. > You all have a nice sunday evening..........by the way, have you > ever tried the Chat site?..........I couldnt get it to work.......just > wondering. > But with my flare up , I cannot type too much anyways........You > have a good day....!! Sal from West Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Good morning to all! Just wondering if anybody else was having trouble reading with this bold font? thanks, corinne wrote: > Hello, Sal. Nice to see you posting again. > > Sorry that you are flaring. What medications for your RA are you > currently > taking? > > The chat feature works, but there usually isn't anyone in the room! If > you > want to schedule a time for people to meet you to chat, please feel > free to > do so. > > > > Not an MD > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] HELLO ALL! > > > > I just wanted to say 'hello'......I've written before but only > > for a short time. And so I'm just wondering how you all are > > doing?....Kathy, kringlemom, and .....I've had RA for a while and > > now it's flaring up again. I don't need this , but have been very > > lucky and used to being in remission. However, a times like these, > > the pain is disabling me from regular work duties. I'm just glad to be > > living and working. I'll be fine after a while. My wrist cannot move > > and I have a brace on. Im just on here sharing thoughts and checking > > out new medications you've tried. I'm trying to lose some weight which > > would help my RA..........but its the exercise that will get it off. > > And yes, I know sometimes even that is impossible. > > You all have a nice sunday evening..........by the way, have you > > ever tried the Chat site?..........I couldnt get it to work.......just > > wondering. > > But with my flare up , I cannot type too much anyways........You > > have a good day....!! Sal from West Virginia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hello, Corinne. The font with which you view your E-mail is under your control through your E-mail program. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] HELLO ALL! >> >> >> > I just wanted to say 'hello'......I've written before but only >> > for a short time. And so I'm just wondering how you all are >> > doing?....Kathy, kringlemom, and .....I've had RA for a while and >> > now it's flaring up again. I don't need this , but have been very >> > lucky and used to being in remission. However, a times like these, >> > the pain is disabling me from regular work duties. I'm just glad to be >> > living and working. I'll be fine after a while. My wrist cannot move >> > and I have a brace on. Im just on here sharing thoughts and checking >> > out new medications you've tried. I'm trying to lose some weight which >> > would help my RA..........but its the exercise that will get it off. >> > And yes, I know sometimes even that is impossible. >> > You all have a nice sunday evening..........by the way, have you >> > ever tried the Chat site?..........I couldnt get it to work.......just >> > wondering. >> > But with my flare up , I cannot type too much anyways........You >> > have a good day....!! Sal from West Virginia >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I have been diagnosed with RA over three years ago. I am at this present moment in no pain at all. I cross my fingers that it stays like this for a long time. Here is what I find confusing....reading lots of emails on this list I see that it is very hard for people in the U S to get strong painkillers. I am on Oxycocet and Oxycotin. My rheumatologist who I see once a week, every week, told me that she don't think anyone should suffer when there are drugs available to stop pain. Why is it so hard for you guys/gals to get pain meds. My heart goes out to all who suffer. I know at least when I get a flare that my painkillers will make the pain go away. gentle hugs, Corinne Corinne Drover wrote: > Good morning to all! > Just wondering if anybody else was having trouble reading with this bold > font? > > thanks, > > corinne > > wrote: > > > Hello, Sal. Nice to see you posting again. > > > > Sorry that you are flaring. What medications for your RA are you > > currently > > taking? > > > > The chat feature works, but there usually isn't anyone in the room! If > > you > > want to schedule a time for people to meet you to chat, please feel > > free to > > do so. > > > > > > > > Not an MD > > > > I'll tell you where to go! > > > > Mayo Clinic in Rochester > > http://www.mayoclinic.org/rochester > > > > s Hopkins Medicine > > http://www.hopkinsmedicine.org > > > > > > [ ] HELLO ALL! > > > > > > > I just wanted to say 'hello'......I've written before but only > > > for a short time. And so I'm just wondering how you all are > > > doing?....Kathy, kringlemom, and .....I've had RA for a while and > > > now it's flaring up again. I don't need this , but have been very > > > lucky and used to being in remission. However, a times like these, > > > the pain is disabling me from regular work duties. I'm just glad > to be > > > living and working. I'll be fine after a while. My wrist cannot move > > > and I have a brace on. Im just on here sharing thoughts and checking > > > out new medications you've tried. I'm trying to lose some weight > which > > > would help my RA..........but its the exercise that will get it off. > > > And yes, I know sometimes even that is impossible. > > > You all have a nice sunday evening..........by the way, have you > > > ever tried the Chat site?..........I couldnt get it to work.......just > > > wondering. > > > But with my flare up , I cannot type too much anyways........You > > > have a good day....!! Sal from West Virginia > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 How verbal is she? Has anyone observe her to determine what the antecedents surround the situation when she is doing these behaviors? Is it mean spirited? I would recommend an OT evaluation to look at any sensory processing issues as well as behavioralist to observe her and collect some data for you. You really need someone to look at this for you, IMO. Information about what an FBA is http://www.polyxo.com/fba/ Using Social Stories can be very helpful to teach her about situations and other's perspectives. Here are some examples: http://www.frsd.k12.nj.us/autistic/Social Stories/social_stories.htm (you might have to cut and paste the link) Carol Gray's website is very helpful too. http://www.thegraycenter.org/ HTH, Jackie--- I'm a father of autistic 5 year old girl. We discovered that she has autism about a year back (we suspected that when she was 3). Anyway, she is a high functioning kid who can solve puzzles etc. Her main issues are Social skills, behavior and impulsivity. She has a habit of grabbing other kids or pulling them by thier hands or even hitting them. We have not yet been able to determine if it is a sensory issue or what. Anyone else have a kid with similar tendencies? Have you found some method to reduce this? Appreciate any response. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Thank you very much Jackie. My daughter is very verbal. Her grabbing others or hitting others does not seem to be mean spirited. She just cannot seem to resist it. She knows it is wrong. But cannot seem to help herself. We are trying to get help from Regional Service center for DTT. We have mentioned this behavior(this of course is her major concern). The link that you have given me are great! Thanks! > > How verbal is she? Has anyone observe her to determine what the antecedents surround the situation when she is doing these behaviors? Is it mean spirited? I would recommend an OT evaluation to look at any sensory processing issues as well as behavioralist to observe her and collect some data for you. You really need someone to look at this for you, IMO. > Information about what an FBA is http://www.polyxo.com/fba/ > > Using Social Stories can be very helpful to teach her about situations and other's perspectives. Here are some examples: > http://www.frsd.k12.nj.us/autistic/Social Stories/social_stories.htm (you might have to cut and paste the link) > Carol Gray's website is very helpful too. http://www.thegraycenter.org/ > > HTH, > Jackie--- > > > I'm a father of autistic 5 year old girl. > We discovered that she has autism about a year back (we suspected that > when she was 3). > Anyway, she is a high functioning kid who can solve puzzles etc. > Her main issues are Social skills, behavior and impulsivity. > She has a habit of grabbing other kids or pulling them by thier hands > or even hitting them. > We have not yet been able to determine if it is a sensory issue or what. > Anyone else have a kid with similar tendencies? > Have you found some method to reduce this? > > Appreciate any response. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 My 5 yo son tends to loose his self control and lacks empathy when he takes a supplement he does not tolerate. He ends up being very bossy with everybody especially his peers and reacts strongly when they don't agree with him (grab, push, throw, say really mean things...). To give you an idea he is like that if I give him supplements such as CLO, CoQ10, too much vit E, lauricidin, fatty acids... > > > > How verbal is she? Has anyone observe her to determine what the > antecedents surround the situation when she is doing these behaviors? > Is it mean spirited? I would recommend an OT evaluation to look at > any sensory processing issues as well as behavioralist to observe her > and collect some data for you. You really need someone to look at > this for you, IMO. > > Information about what an FBA is http://www.polyxo.com/fba/ > > > > Using Social Stories can be very helpful to teach her about > situations and other's perspectives. Here are some examples: > > http://www.frsd.k12.nj.us/autistic/Social Stories/social_stories.htm > (you might have to cut and paste the link) > > Carol Gray's website is very helpful too. http://www.thegraycenter.org/ > > > > HTH, > > Jackie--- > > > > > > I'm a father of autistic 5 year old girl. > > We discovered that she has autism about a year back (we suspected that > > when she was 3). > > Anyway, she is a high functioning kid who can solve puzzles etc. > > Her main issues are Social skills, behavior and impulsivity. > > She has a habit of grabbing other kids or pulling them by thier hands > > or even hitting them. > > We have not yet been able to determine if it is a sensory issue or what. > > Anyone else have a kid with similar tendencies? > > Have you found some method to reduce this? > > > > Appreciate any response. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 My kids both do versions of this. Mainly my kids' sensory issues are due to yeast. My daughter in particular - also 5 - has most of the tactile sensory problems as well as aggression and impulsivity, when she has yeast. For yeast, she takes Nystatin, No Fenol, biotin, zinc, Houston enzymes with her meals, and when I can get her to take it, Three Lac. She also refuses to go to bed at night, whines incessantly and finds as many things as possible to complain about when she has yeast. Particularly the hitting gets on my nerves though, because it's usually me that she hits, very hard. Behavioral interventions, rewards, as well as changing her environment, etc. - which is what I tried for the first few years on the advice of, well, everyone - they all were useless for her because for her, sensory and behavior issues are due to underlying biomedical issues. With my kids when those are resolved, even temporarily, the negative behaviors disappear without my even needing to redirect them in any way. Amy > > Hello all, > > I'm a father of autistic 5 year old girl. > We discovered that she has autism about a year back (we suspected that > when she was 3). > Anyway, she is a high functioning kid who can solve puzzles etc. > Her main issues are Social skills, behavior and impulsivity. > She has a habit of grabbing other kids or pulling them by thier hands > or even hitting them. > We have not yet been able to determine if it is a sensory issue or what. > Anyone else have a kid with similar tendencies? > Have you found some method to reduce this? > > Appreciate any response. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 hello my son was diagnosed with apraxia around age 2 1/ 2 to 3 of age around there he was learning sign language for a while and he stop useing sign language he had some words and lost them and came back and lost them again and the words stayed gone and the apraxica doctor that we took my son too she said if he dont start talking by age 5 that he wont talk at all now he 4 years old and he talking alot better he started talking 2 months or so after his 4th birthday on august 7th he now in his 2nd year of preschool and we have him on multi vitamin we have giveing him vitamin now for like all most 2 years and right now we been giveing him 2 a day since he cant drink milk if u like to chat heres my messenger id name that i use alot april_scoggins2006 april/ mark jr ssstinagail <ssstinagail@...> wrote: I am a new mother to Apraxia. My 22 mo old son was just diagnosed with Apraxia. He is starting therapy this week. He has never said Mama or Dada, or any words at all. He only says di or ti and uses his own sign language to communicate. He tends to get very frustrated that he cannot " tell " us what he wants. My question is...how long did it take before most people start to see results from therapy? I know every child is different, I am just looking for hope. I know it seems silly, but I long to hear him say a word, I don't care what, just something other than ti or di. The therapists say it may take as long as 2 years before other people will be able to understand him. Their goal is to have this happen by the time he starts preschool or Kindergarten. It almost seems like a prison sentence in the sense that even by that time he won't be talking great. Speech is just something I have taken for granted with myself and other children...it really breaks my heart to see my beautiful son have such a problem expressing himself. Thank you, img scr=*http://i2.photobucket.com --------------------------------- Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2007 Report Share Posted February 13, 2007 Hi Cristina, Most of us here can relate to your feelings, the good thing is that you caught upo early. Have you read the book The Late Talker? If not it is a must, it will help you understand Apraxia. Speech Therapy for Apraxic Children takes longer than if the child is just a late talker, but there are supplements (like Pro Efa - omega 3, 6 and 9, vitamin E and other ones that will very likely expedite the treatment). Do you know if your Speech Therapist is " knowledgeble " about Apraxia? If not, ask her, this is extremely important as conventional methods will not work. Ask her if she is certified for PROMPT, or if she will use the Praxis Kit (I heard PROMPT is best, but I could not find a Therapist in my area, however my son is still making progress) - Again this is EXTREMELLY important - as we waisted two precious years of my son's treatment with a therapist that did not know how to treat Apraxia. There is a lot of hope, as long as you get the right treatment. You may want to get your child tested for Occupational and Physical Therapies as well. Feel free to email me if you have more questions. Deborah > > I am a new mother to Apraxia. My 22 mo old son was just diagnosed > with Apraxia. He is starting therapy this week. He has never said > Mama or Dada, or any words at all. He only says di or ti and uses > his own sign language to communicate. He tends to get very > frustrated that he cannot " tell " us what he wants. > > My question is...how long did it take before most people start to > see results from therapy? I know every child is different, I am > just looking for hope. I know it seems silly, but I long to hear > him say a word, I don't care what, just something other than ti or > di. The therapists say it may take as long as 2 years before other > people will be able to understand him. Their goal is to have this > happen by the time he starts preschool or Kindergarten. It almost > seems like a prison sentence in the sense that even by that time he > won't be talking great. Speech is just something I have taken for > granted with myself and other children...it really breaks my heart > to see my beautiful son have such a problem expressing himself. > > Thank you, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2007 Report Share Posted February 14, 2007 Hi . Our little guy was diagnosed with severe apraxia at 25 months. I know I don't need to tell you how absolutely devastated we were. You know exactly what we were feeling. You just expect that a child will open his mouth and talk. You never dream that there could be a problem with that, that your child would not be able to talk. It is a nightmare. He immediately began sessions with an excellent SLP. We, too, were told that the goal was for him to be speaking normally by the time he entered Kinderegarten. Well, surely, then, there is hope, but oh, my, that is so far down the road, and what if this speech therapy doesn't work? Well, after finding this site and reading about the fish oils, holding our breath at the possibility that this miracle might possibly happen for our child as well, we began ProEFA, one capsule, about a month after his diagnosis. A couple of weeks after that we started giving him Vitamin E. Not long after we began the fish oils, and of course with a lot of work, I remember well that he learned to blow bubbles. Yes, that is a big deal. As we went along, at about a months' interval each time, we doubled the ProEFA to two capsules a day, and then about a month later, added one ProEPA per day to that. In the meantime, we were also increasing the Vitamin E and had him up to 1200 IU d alpha tocopherol Vit E per day and 400 mg Gamma E per day. Then we doubled the entire fish oil dose to a total of 6 capsules per day. We have given him no other supplements. It is different for everyone, as I am sure you can tell from reading all the posts here. A lot of people keep a record of supplements given, improvements seen, etc., as they go along. He made good, steady progress on these supplements, with regular sessions with the SLP, and a lot of work at home, or wherever we were, constantly cueing him with his speech (and still do now). We never had any surges like so many have seen. But we have been amazed. He just kept learning more and more words--a couple of weeks ago when I warned him that the ice was slippery, yes, he repeated " ice is slippery. " " Slippery " --what a joy to hear all those syllables, and we had never practiced on that word. This has happened time and again throughout the past few months. Now at almost 32 months, he says a lot of sentences, many of them several words long. He isn't into paragraphs yet. Yes, we always want more and more and more. His SLP says that he is now age-appropriate in his articulation. (In October she had said that he was at 9 to 12 months.) I don't know how intelligible he is to other people. I think that an awful lot of what he says is easily understood. There is still a lot of work to be done, and we are contantly working with words, and more with sentences at this point, getting him to express his own ideas, you know, expressive speech, and he is improving all the time. I didn't mean for this to be so long. But I know how you long to know that your son will be speaking and saying words. I just wanted you to know that this has worked out so very well for us. Yes, if I let myself think about it, I still feel so bad that our little guy is apraxic. I can't even imagine all that he would be saying and telling us without the apraxia. But he has come so far, it is absolutley unbelievable. We, too, have been so fortunate to have been blessed by this 'miracle' of the fish oils and Vitamin E. God bless everyone who takes the time to contribute here and gives us all so much hope and the courage to try these wonderful, safe supplements. Especially to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2007 Report Share Posted February 14, 2007 Hi again , Here is just a very short post from --please search them all out. She has so much that is so helpful and inspiring to say. NOthing like living through this to know exactly how exciting every sound was - before the words came. Even now, when I feel like we have left the " world of apraxia " - despite small residual motor planning issues. Really - they are minor. I didn't think a story like ours was possible - and even more unlikely - that it would be my child who resolved. I still remember reading " the late talker " ...and thinking, yeah right...fish oil...wouldn't it be nice if he JUST STARTED TALKING with a little fish oil. And so he did. Vitamin E has brought it to a whole new level. Hope this helps. Suzanne Re: [ ] Hello all! hello my son was diagnosed with apraxia around age 2 1/ 2 to 3 of age around there he was learning sign language for a while and he stop useing sign language he had some words and lost them and came back and lost them again and the words stayed gone and the apraxica doctor that we took my son too she said if he dont start talking by age 5 that he wont talk at all now he 4 years old and he talking alot better he started talking 2 months or so after his 4th birthday on august 7th he now in his 2nd year of preschool and we have him on multi vitamin we have giveing him vitamin now for like all most 2 years and right now we been giveing him 2 a day since he cant drink milk if u like to chat heres my messenger id name that i use alot april_scoggins2006 april/ mark jr ssstinagail <ssstinagail> wrote: I am a new mother to Apraxia. My 22 mo old son was just diagnosed with Apraxia. He is starting therapy this week. He has never said Mama or Dada, or any words at all. He only says di or ti and uses his own sign language to communicate. He tends to get very frustrated that he cannot " tell " us what he wants. My question is...how long did it take before most people start to see results from therapy? I know every child is different, I am just looking for hope. I know it seems silly, but I long to hear him say a word, I don't care what, just something other than ti or di. The therapists say it may take as long as 2 years before other people will be able to understand him. Their goal is to have this happen by the time he starts preschool or Kindergarten. It almost seems like a prison sentence in the sense that even by that time he won't be talking great. Speech is just something I have taken for granted with myself and other children...it really breaks my heart to see my beautiful son have such a problem expressing himself. Thank you, img scr=*http://i2.photobuck et.com ------------ --------- --------- --- Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Travel to find your fit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2007 Report Share Posted February 14, 2007 I know exactly how you feel. My daughter is now 29 months old and was diagnosed with apraxia at about 16 months. When we went to the developmental pediatrician at that age all she could say was " uh oh " and they evaluated her and placed her at the 3-6 month age range for speech. We were completely devastated and felt very much how you sound like you feel. After about six months of intense speech and other therapies (five days per week) she had about 30 words. Now it has been almost a year and I can't even count how many words she has but it is somewhere in the 100 to 125 range is my guess -- could even be more-- (not all intelligible but pretty good attempts). When we are around other kids her age the difference between them is still very very noticeable and she continues to have huge delays compared to them, however, her progress is amazing. I have no idea where she will end up but don't give up hope, it really works. We do lots of therapies (speech, OT and special instruction, each 30 minutes 5 days a week), we did and continue to do sign language and we also do the fish oils but I must tell you i haven't seen the results from those the way that others describe but we still do it b/c it can't hurt. Hang in there, it does get better. I cried the first time I heard a four year old with apraxia actually speak. I was so happy that he could actually speak and that there was hope. I promise that there is but keep pushing. I suspect we have a long road ahead of us with learning disabilities and struggles but at least I am fairly confident that she will be able to communicate. hope this helps... karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2007 Report Share Posted February 15, 2007 Just think. You have a diag at 22 months that is GREAT! We didn't get an official apraxia diag. until my ds was 3 yrs 7 mo. My ds was completely non verbal at 2yr 11 mo, when I was so very very frustrated that I was being flippant in ECFE and my MOPS group and another mom told me to have a private eval done, and not tell the school district. (my ds had been in ei since 2yrs 2 mo) that I was having an private eval done. I could have cried when the SLP came back from the eval and said I know what is wrong with him and I can fix it. We had verbal words and short sentences with in 6 months of starting therapy and at 10 months past starting therapy he is eating carrots and apples with the skin on! He still isn't talking fluently and not all of it is understandable but it is such a huge improvement from where he was. We haven't started any supplements as I am very nervous about internal organ damage from the supplements. One really weird thing the SLP said a lot was that he acted as if he had had a stroke and she was treating him like she does her stroke patients. My biggest recommendation is to video your child at random points doing something that would be easily repeated. For example, we videoed our son eating pizza because he routinely fell asleep while doing so. 6 mo later I videoed him again eating pizza, then I complied the video together so that you can watch it side by side. IT is amazing to see the difference!!! Same thing for words, ask the same questions. It has been very affirming to see the progress he has made and it is a tangible way to show extended family who aren't necessarily supportive of all of the therapy the progress he has made. We do both the school dist early intervention and private therapy. _____ From: [mailto: ] On Behalf Of ssstinagail Sent: Monday, February 12, 2007 10:02 PM Subject: [ ] Hello all! I am a new mother to Apraxia. My 22 mo old son was just diagnosed with Apraxia. He is starting therapy this week. He has never said Mama or Dada, or any words at all. He only says di or ti and uses his own sign language to communicate. He tends to get very frustrated that he cannot " tell " us what he wants. My question is...how long did it take before most people start to see results from therapy? I know every child is different, I am just looking for hope. I know it seems silly, but I long to hear him say a word, I don't care what, just something other than ti or di. The therapists say it may take as long as 2 years before other people will be able to understand him. Their goal is to have this happen by the time he starts preschool or Kindergarten. It almost seems like a prison sentence in the sense that even by that time he won't be talking great. Speech is just something I have taken for granted with myself and other children...it really breaks my heart to see my beautiful son have such a problem expressing himself. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Hi Pris! My hell is not my health oddly enough it is having to rehome my babies. That may sound odd but they have been my heart for so many years. Hope and Grace came from a very evil breeder who's barn burned down and they almost with it and the fact they are alive and healthy is nothing but a miracle. They showed me what love really is! I can't do the Humira , my immune system really kicked back from it and they tried Remicade but my veins are shot and the only place to get an IV in is in my feet. I have been on 20 mg of predinose for several years and yes it has helped in many ways but does affect my mood and weight! It also gives me energy I would not have to even dress myself without it! So yes, the good and the bad of prednisone! I am dealing with the RA and Oa but losing my spine has been a nightmare and a shock! > > > I > > > > he most important thing about me is I am a very proud pigmom. My > > precious pot bellied pigs have kept me on my feet for more than a year > > when my dr's said they were amazed>>>>>>>> > > > > WELCOME TO THE LIST! > Yes, animals are great healers. > They give me a reason to wake up in the morning. > Wow, you have been through hell, and are still going through it..... > any chance you could get on Humira? > It has worked wonders for me.....but prednisone is my savior, for better or > for worse. > Pris (another mini pig lover)! > > > > > > > ************************************** > See what's free at http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Hello Sue! Sorry about the name, my birth name is Ellen but you can call me PetuniaPigsMOM, that's the name I love and who I really am! I am so sorry for everyone on this list for the reasons they are. The support is phenomenal and I hope in some way I can help as well. Thank you so very much Pris for leading me here! > > > > I am new to the group! I have RA, OA and an immune disease under > the RA > > umbrella. That simply means they don't know how or why or what is > the > > cause of my immune system attacking my own body! I fell off a > ladder 2 > > years ago trying to save a turkey (long story) snd shattered my > wrist, > > broke 5 ribs and 3 vertebrae in my neck, Sounds horrible but that > was a > > blessing in disquise as that is when they found out my spine was > > crumbling in on itself. I also need 2 knee replacements. I have > gone > > from codiene to vicodin to oxycontin and now methadone for pain. I > > have been fighting for time, the next step of a morphine pump with > a > > catheter into my spinal canal with a continous drip of morphine. > I > > am scared! I am on methotrexate, prednisone, soma,synthroid, > xanax, > > welbutrin and now methadone for pain. > > I was on Enbrel and had to be taken off. I have the spinal ESI's > every > > 6 months. Facet joint injections, biel blocks, 20 minutes of > cervical > > traction twice a day and inversion therapy 4 times a day. I have > also > > had my thyroid removed from Graves disease which they now relate to > my > > RA. I have had pnuemonia twice in the last year from my immune > system > > being so low because of the methotrexate. 2 knee surgeries, 2 > carpal > > tunnel surgeries and shoulder surgery. Has anyone gone through such > an > > intensive decline of the body? It is so hard to talk about my > disease > > with many people when the disease is on the inside and you look > > somewhat normal no one really understands the pain or what daily > life > > is like when it is 24 hour pain. > > The most important thing about me is I am a very proud pigmom. My > > precious pot bellied pigs have kept me on my feet for more than a > year > > when my dr's said they were amazed. I am now at the point where I > am > > having to move them to another sanctuary for their safety and > welfare. > > I am having a very diificult time dealing with this! I love them > like > > my children and I am angry and broken. Thanks for allowing me to > vent > > and thanks for listening! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Hi Angel! I was first diagnosed with the RA in 1996 at the age of at the age of 44 but I had suffered for at least 5 years before anyone figured it out. Some of my first symptoms were exhaustion, my hands were stiff and hurt, my joints were getting sore and huge and when I first got up in the morning my feet would not go flat on the floor. That was the one symptom that led my Dr to test for RA.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 I can suggest that when in church it is OK to stay sitting when singing! You are there to worship the LORD and HE does not care if you are sitting, just that you are there. And if anyone judges you for that, how incredulous that would and saddly does happen in church! BUT GOD blesses and HE will bless you for being there and worshipping HIM and forget about what other people say or think you have only one to answer to and that is GOD> And HE does listen! With an inside disease it is hard for people who do not know or go through the pain to understand. That is the sad part about immune system disease. Ignorance can sometimes be the worst disease of all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Hi Terry! I was also resistant to any drugs for a long time. But the longer you wait the more joint destruction happens. The drugs are not just for the pain but to control the joint destruction you never get back without joint replacements. Just something to think about Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 No you are not stupid! We all have probably tried to do without our drugs from time to time just to see, I know I have and paid the price. Something I have tried that does help with my RA and OA is Hyaluronic acid. Also called INJUV, same thing only pricier! You can get it at Walmart and all health food stores carry it. I also noticed a huge difference in my skin about a month after I started taking it. Ask you Rheumatologist! I try holistic and natural whenever I can! Really stupid, i > know. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 How very nice of you! I can always use a hug and I can give them as well. So nice to have this kind of support! Thank you so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Marsha I am so sorry for what you have endured, Always beauty in the ashes if we look and now you have that dad you always needed and he has you and that is what counts! Not yesterday or what we can not change but today and what we can. I am not brave but appreciate you thinking I am! I am a mom and though they are not human they are my children and I owe them! We all are the keepers of the animals and we owe them! Aniamls are not disposable and they think and feel and hurt and cry like we do. It is simply my utmost resposibility to make certain they are well taken care of and loved forever and I have been blessed to be allowed this time to place them while still able and GOD did open a door to a fabulous sanctuary for them! Next time you see your dad, give him a hug for me! I pray that in time I may be able to help all of you who are helping me right now with your support! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 I can suggest that when in church it is OK to stay sitting when singing! You are there to worship the LORD and HE does not care if you are sitting, just that you are there........ I remember once as a kid, when times were pretty rough for my family, the usher came up to my Step-dad in church and told him and said " Sir, youforgot to pay for your seat. " In our Catholic Church you dropped money into the stand-thing at the entrance. Well, he was out of work at the time. He stood up (he was a big guy), looked the guy right in the face, and said; " I don't think God meant for us to either " pay " to sit in HIS House or not to come in, and I think he is glad that I'm hear with all of my children " . The guy just turned around and left. I wanted to kick the guy for embarassing my dad that way! But my Dad wasn't embarassed for himself, he was embarassed for the guy! Patsy El Mirage, AZ DX 2005 Stage 1 PBC AIH/SLE/RA/COPD Just a woman of letters.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 There were so many people in church I had to stand as well as all my family in the back of church. We even got there 20 minutes early. My feet and ankles were crying for mercy...lol It was a nice service but with so many people crammed in it was very warm. My poor dad got so dizzy at his church that they had to take him out in a wheel chair at their services. He has a pacemaker and is on a lot of heart meds so we were all worried about him but I think he just got a little over heated. Joy Pat Murray <patsy56er@...> wrote: I can suggest that when in church it is OK to stay sitting when singing! You are there to worship the LORD and HE does not care if you are sitting, just that you are there........ I remember once as a kid, when times were pretty rough for my family, the usher came up to my Step-dad in church and told him and said " Sir, youforgot to pay for your seat. " In our Catholic Church you dropped money into the stand-thing at the entrance. Well, he was out of work at the time. He stood up (he was a big guy), looked the guy right in the face, and said; " I don't think God meant for us to either " pay " to sit in HIS House or not to come in, and I think he is glad that I'm hear with all of my children " . The guy just turned around and left. I wanted to kick the guy for embarassing my dad that way! But my Dad wasn't embarassed for himself, he was embarassed for the guy! Patsy El Mirage, AZ DX 2005 Stage 1 PBC AIH/SLE/RA/COPD Just a woman of letters.... Quote Link to comment Share on other sites More sharing options...
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