Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Dear Gillian and everyone else Sorry but I have been away from my pc for a time and have missed out on the news but yes I am off the MTX and feel 100% better. I have moved to France and saw a specialist that had treated me earlier and immed she took me off mtx and prescribed soriatane, and in conjunction with creams and sorting out one's stress and problems in life I am even walking around in shorts!!!!!!!!!!! I will hopefully have my pc soon...... take care ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 I don't know if it will help you, but my doctor put me on Colchicine for the swelling. My knees would swell to the point I didn't have any slack in my jeans, and normal was about 2 " of room. It's primarily a gout medicine, as I understand it. Maybe it can help you. Dennis [ ] UG stopping mtx > Yikes, due to so much going on around here I forgot to take my mtx. I cannot believe I forgot, but- I did, and I did not want to switch what day I took it so I skipped it once I relaized I forgot to take it. YIKES It took awhile for it to help, but gosh it stoppped helping FAST. I had forgotten just how miserable I had been before. (I do not believe I could have forgotten that, either) > I did notice, however that while I have LOTS more pain and swelling, I also have LOTS more awake time and less fatigue- at least for the moment--- > Now I am wondering gosh- do I live with the pain and swelling or go with the less awake time and more energy? > Hubby and kids voted for less pain, I guess they remember betetr than me just how awful it was for me before. Hubby thinks maybe it is like childbirth pain, I quickly forgot just HOW awful it was. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 After complaining of intolerable side effects POSSIBLY caused by MTX, my 79-yr-old Mother's Dr. has decided to stop MTX for 3 wks to see if she feels any better. The MTX was previously lowered to the lowest possible dose of 7.5 mg. taken by injection. She takes folic acid, but the only other drug she is taking for her RA is Medrol. Both Enbrel and Humira were discontinued due to side effects. I am curious as to what the plan is? Can one be treated for RA w/corticosteroids alone? My major concern is that if she stops the MTX and has a flare, then what? If it takes 6 wks for MTX to affect one's RA symptoms, short of high does of Medrol, what can be done for her during that period? Has anyone else here had a treatment plan like this imposed by their Rheumatologist? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 nynypa <nynypa@...> wrote: After complaining of intolerable side effects POSSIBLY caused by MTX, my 79-yr-old Mother's Dr. has decided to stop MTX for 3 wks to see if she feels any better. The MTX was previously lowered to the lowest possible dose of 7.5 mg. taken by injection. She takes folic acid, but the only other drug she is taking for her RA is Medrol. Both Enbrel and Humira were discontinued due to side effects. I am curious as to what the plan is? Can one be treated for RA w/corticosteroids alone? My major concern is that if she stops the MTX and has a flare, then what? If it takes 6 wks for MTX to affect one's RA symptoms, short of high does of Medrol, what can be done for her during that period? Has anyone else here had a treatment plan like this imposed by their Rheumatologist? Joy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit Joy's Homepage and Reading Room! http://jhoormann-ivil.tripod.com Come see My Dog Salsa! http://www.geocities.com/jhoorm01/Salsa.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Treating RA with steroids alone is not recommended. Some sort of DMARD should be used. Steroids have very limited disease-modifying potential and, when used chronically, can produce very serious side effects. Getting a second opinion from another rheumatologist might be the way to go. Not an MD [ ] Stopping MTX > After complaining of intolerable side effects POSSIBLY caused by MTX, > my 79-yr-old Mother's Dr. has decided to stop MTX for 3 wks to see if > she feels any better. The MTX was previously lowered to the lowest > possible dose of 7.5 mg. taken by injection. She takes folic acid, but > the only other drug she is taking for her RA is Medrol. Both Enbrel > and Humira were discontinued due to side effects. I am curious > as to what the plan is? Can one be treated for RA w/corticosteroids > alone? My major concern is that if she stops the MTX and has a flare, > then what? If it takes 6 wks for MTX to affect one's RA symptoms, > short of high does of Medrol, what can be done for her during that > period? > > Has anyone else here had a treatment plan like this imposed by their > Rheumatologist? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Hi, Within the past 2-3 months, I too, have developed side effects from the injectible methotrexate, and am thinking of stopping it. But I am also on Remicade, and I believe the Remicade supposedly works better along with the mtx. So, I was wondering if anyone out there is on Remicade without the mtx, and if so, how are you doing? Are there any other things I can do to relieve the nausea if I continue mtx? I've already reduced the dosage of mtx and increased the folic acid (with my rheumy's approval), and that didn't help. I have another call into her to talk to her again, but I know you guys always have great suggestions, too! Thanks. Patty No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.6/1061 - Release Date: 10/10/2007 8:43 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 I was told by my rheumy that you have to take methotrexate when you're on Remicade. That's why he said Remicade was not an option for me, since my body doesn't like methotrexate. So he put me on Enbrel, and it's doing a super job for me. Sue On Wednesday, October 10, 2007, at 07:37 PM, Patty Lightner wrote: > > Within the past 2-3 months, I too, have developed side effects from the > injectible methotrexate, and am thinking of stopping it. But I am > also on > Remicade, and I believe the Remicade supposedly works better along > with the > mtx. So, I was wondering if anyone out there is on Remicade without > the > mtx, and if so, how are you doing? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Patty, You can use Remicade without MTX, but it's not recommended. If you can't tolerate MTX, your rheumatologist may suggest another DMARD, possibly Arava (leflunomide). Without MTX or another DMARD, the risk of Remicade infusion reactions increases. It's also possible that, without a DMARD like MTX, Remicade will begin to lose its effectiveness. One of the theories about why this is so is that MTX suppresses the formation of anti-Remicade antibodies. Not an MD [ ] Re: Stopping MTX > Hi, > Within the past 2-3 months, I too, have developed side effects from the > injectible methotrexate, and am thinking of stopping it. But I am also on > Remicade, and I believe the Remicade supposedly works better along with > the > mtx. So, I was wondering if anyone out there is on Remicade without the > mtx, and if so, how are you doing? > Are there any other things I can do to relieve the nausea if I continue > mtx? > I've already reduced the dosage of mtx and increased the folic acid (with > my > rheumy's approval), and that didn't help. I have another call into her to > talk to her again, but I know you guys always have great suggestions, too! > Thanks. > Patty Quote Link to comment Share on other sites More sharing options...
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