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if its a no brainer have the surgery, if you have a brain do the research, make sure you are ok with the side effects of any treatment you choose. All treatments have side problems , but the cure rate or sucess rate seems to be the same.

Subject: Very Confused Information OverloadTo: ProstateCancerSupport Date: Wednesday, October 29, 2008, 3:48 PM

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to

have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

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if its a no brainer have the surgery, if you have a brain do the research, make sure you are ok with the side effects of any treatment you choose. All treatments have side problems , but the cure rate or sucess rate seems to be the same.

Subject: Very Confused Information OverloadTo: ProstateCancerSupport Date: Wednesday, October 29, 2008, 3:48 PM

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to

have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

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if its a no brainer have the surgery, if you have a brain do the research, make sure you are ok with the side effects of any treatment you choose. All treatments have side problems , but the cure rate or sucess rate seems to be the same.

Subject: Very Confused Information OverloadTo: ProstateCancerSupport Date: Wednesday, October 29, 2008, 3:48 PM

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to

have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

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, that's what all the doctors say. I was diagnosed at 41 in 05. Have had 3 biopsies since then, My 2nd biopsy was negative - menaing the cancer is not gone, but hadn't changed for 2 years. My latest biopsy in July this year showed the same result as 05. Yes they hurt!! I am finally making a decison though...I have been aggresively watching it over the last 3 years - I am still alive and my numbers the same as some one diognosed today!

My point being? No rush. Consider your options carefully. read my last few postings...

The other angle to the age question is this: Was I willing to spend the next several years (I was only 41) of my life incontinent or impotent? I wasn't ready for that hence my relucutance with surgery. I am leaning proton therapy or cyberknife..

We all can die of other courses too! When your time is up, it's up!!

Subject: [ProstateCancerSupp ort] Very Confused Information OverloadTo: ProstateCancerSuppo rtyahoogroups (DOT) comDate: Wednesday, October 29, 2008, 3:48 PM

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to

have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

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, that's what all the doctors say. I was diagnosed at 41 in 05. Have had 3 biopsies since then, My 2nd biopsy was negative - menaing the cancer is not gone, but hadn't changed for 2 years. My latest biopsy in July this year showed the same result as 05. Yes they hurt!! I am finally making a decison though...I have been aggresively watching it over the last 3 years - I am still alive and my numbers the same as some one diognosed today!

My point being? No rush. Consider your options carefully. read my last few postings...

The other angle to the age question is this: Was I willing to spend the next several years (I was only 41) of my life incontinent or impotent? I wasn't ready for that hence my relucutance with surgery. I am leaning proton therapy or cyberknife..

We all can die of other courses too! When your time is up, it's up!!

Subject: [ProstateCancerSupp ort] Very Confused Information OverloadTo: ProstateCancerSuppo rtyahoogroups (DOT) comDate: Wednesday, October 29, 2008, 3:48 PM

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to

have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

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> Received my Biopsy results last Tuesday and I am now also a reluctant

> member of this group. 45 Year old Male, healthy, no symptons other than

> a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT

> HURT,

I consider it an outrage that men are subjected to such pain when it is

easy to prevent or reduce it. If the uro cares -- or the patient demands it.

reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM.

> Not that I hae a clue what any of that means. Gleason 3 +3 =6

>

> Now Have not even been back to my urologist yet which is tomorrow

> morning got the results from my primary who I happen to be in his

> office when they were faxed. Obviously step 1 is to discuss with

> urologist tomorrow and go from there. I've got info overload at this

> point.

Overload is normal.

It would not be prudent to select any treatment (tx) until the dust

settles and the patient has studied and learned.

One should not permit anyone, not even a medic, to rush him into tx.

> By reading and absorbing everything thankfully everyone has provided I

> am even more confused as ever.

It will all become clearer with time. It's only been a week since

diagnosis (dx).

I recommend:

(1) Refer to the encyclopedic and authoritative website of the Prostate

Cancer Research Institute (PCRI), starting with this for the

newly-diagnosed:

http://prostate-cancer.org/education/education.html#newly_diagnosed

(2) Study _A Primer on Prostate Cancer_ 2nd ed., subtitled " The

Empowered Patient's Guide " by medical oncologist and PCa specialist

B. Strum, MD and PCa warrior Donna Pogliano. It is available

from the PCRI website and the like, as well as Amazon (30+ five-star

reviews), & Noble, and bookstores. A lifesaver, as I very well know.

(3) Look into meeting with others who are coping with PCa at a chapter

of the international education and support group Us Too. Much useful

information and local chapters can be located on the website at

http://www.ustoo.com/

Let us know how it goes.

Regards,

Steve J

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> Received my Biopsy results last Tuesday and I am now also a reluctant

> member of this group. 45 Year old Male, healthy, no symptons other than

> a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT

> HURT,

I consider it an outrage that men are subjected to such pain when it is

easy to prevent or reduce it. If the uro cares -- or the patient demands it.

reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM.

> Not that I hae a clue what any of that means. Gleason 3 +3 =6

>

> Now Have not even been back to my urologist yet which is tomorrow

> morning got the results from my primary who I happen to be in his

> office when they were faxed. Obviously step 1 is to discuss with

> urologist tomorrow and go from there. I've got info overload at this

> point.

Overload is normal.

It would not be prudent to select any treatment (tx) until the dust

settles and the patient has studied and learned.

One should not permit anyone, not even a medic, to rush him into tx.

> By reading and absorbing everything thankfully everyone has provided I

> am even more confused as ever.

It will all become clearer with time. It's only been a week since

diagnosis (dx).

I recommend:

(1) Refer to the encyclopedic and authoritative website of the Prostate

Cancer Research Institute (PCRI), starting with this for the

newly-diagnosed:

http://prostate-cancer.org/education/education.html#newly_diagnosed

(2) Study _A Primer on Prostate Cancer_ 2nd ed., subtitled " The

Empowered Patient's Guide " by medical oncologist and PCa specialist

B. Strum, MD and PCa warrior Donna Pogliano. It is available

from the PCRI website and the like, as well as Amazon (30+ five-star

reviews), & Noble, and bookstores. A lifesaver, as I very well know.

(3) Look into meeting with others who are coping with PCa at a chapter

of the international education and support group Us Too. Much useful

information and local chapters can be located on the website at

http://www.ustoo.com/

Let us know how it goes.

Regards,

Steve J

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Hi,

Just like to concur with your observation re age. I was 48 at diagnosis (see last post for details) with a 1cm tumour (so 2.5mm sounds very small to me). The younger we are the more concerned about the wisdom of watchful waiting even with 'low risk' results.

Spain

Very Confused Information Overload

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

Internal Virus Database is out of date.Checked by AVG. Version: 8.0.100 / Virus Database: 270.8.2/1738 - Release Date: 10/21/2008 2:10 PM

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Hi,

Just like to concur with your observation re age. I was 48 at diagnosis (see last post for details) with a 1cm tumour (so 2.5mm sounds very small to me). The younger we are the more concerned about the wisdom of watchful waiting even with 'low risk' results.

Spain

Very Confused Information Overload

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

Internal Virus Database is out of date.Checked by AVG. Version: 8.0.100 / Virus Database: 270.8.2/1738 - Release Date: 10/21/2008 2:10 PM

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Hi Chris:

Thanks for sharing. That's very encouraging... You stated:

>I have not found any information yet as to why Cyberknife procedures are over 5 days while all other IGRT/IMRT procedures seem to be over 40 or 42 sessions.<

I suspect the difference is in the equipment, perhaps they are able to deliver more in 5 days. The serminar will certainly teach me some more about it. I will make sure to broadcast my findings to the forum.

Thansk again!

regards

isaac

Subject: Re: Very Confused Information OverloadTo: ProstateCancerSupport Date: Wednesday, October 29, 2008, 5:56 PM

Hi,

Just like to concur with your observation re age. I was 48 at diagnosis (see last post for details) with a 1cm tumour (so 2.5mm sounds very small to me). The younger we are the more concerned about the wisdom of watchful waiting even with 'low risk' results.

Spain

[ProstateCancerSupp ort] Very Confused Information Overload

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to

have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

Internal Virus Database is out of date.Checked by AVG. Version: 8.0.100 / Virus Database: 270.8.2/1738 - Release Date: 10/21/2008 2:10 PM

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Posted

Hi Chris:

Thanks for sharing. That's very encouraging... You stated:

>I have not found any information yet as to why Cyberknife procedures are over 5 days while all other IGRT/IMRT procedures seem to be over 40 or 42 sessions.<

I suspect the difference is in the equipment, perhaps they are able to deliver more in 5 days. The serminar will certainly teach me some more about it. I will make sure to broadcast my findings to the forum.

Thansk again!

regards

isaac

Subject: Re: Very Confused Information OverloadTo: ProstateCancerSupport Date: Wednesday, October 29, 2008, 5:56 PM

Hi,

Just like to concur with your observation re age. I was 48 at diagnosis (see last post for details) with a 1cm tumour (so 2.5mm sounds very small to me). The younger we are the more concerned about the wisdom of watchful waiting even with 'low risk' results.

Spain

[ProstateCancerSupp ort] Very Confused Information Overload

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to

have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

Internal Virus Database is out of date.Checked by AVG. Version: 8.0.100 / Virus Database: 270.8.2/1738 - Release Date: 10/21/2008 2:10 PM

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Posted
Posted

Hi Chris:

Thanks for sharing. That's very encouraging... You stated:

>I have not found any information yet as to why Cyberknife procedures are over 5 days while all other IGRT/IMRT procedures seem to be over 40 or 42 sessions.<

I suspect the difference is in the equipment, perhaps they are able to deliver more in 5 days. The serminar will certainly teach me some more about it. I will make sure to broadcast my findings to the forum.

Thansk again!

regards

isaac

Subject: Re: Very Confused Information OverloadTo: ProstateCancerSupport Date: Wednesday, October 29, 2008, 5:56 PM

Hi,

Just like to concur with your observation re age. I was 48 at diagnosis (see last post for details) with a 1cm tumour (so 2.5mm sounds very small to me). The younger we are the more concerned about the wisdom of watchful waiting even with 'low risk' results.

Spain

[ProstateCancerSupp ort] Very Confused Information Overload

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to

have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

Internal Virus Database is out of date.Checked by AVG. Version: 8.0.100 / Virus Database: 270.8.2/1738 - Release Date: 10/21/2008 2:10 PM

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Hi

Most of this group have been exactly where you are today, we empathise with you, we know how it feels

My decision time was 1996!

What I did was write down the advantages and disadvantages of each treatment - really it comes down then about which of the cons we can live with and which advantages we want most.

One theory is that surgery is a cure - if there are no cancer cells left in the body and other treatments can leave dormant stem cells that may reactivate at a later date. However long term (30 year) stats are hard to come by and you have to be very very sure that it the cancer is all in the capsule.

At the end of the day surgery, brachy external beam seem to have about the same no progression rate, which again depends on the agressiveness of the cells.

Very Confused Information Overload

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

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Hi

Most of this group have been exactly where you are today, we empathise with you, we know how it feels

My decision time was 1996!

What I did was write down the advantages and disadvantages of each treatment - really it comes down then about which of the cons we can live with and which advantages we want most.

One theory is that surgery is a cure - if there are no cancer cells left in the body and other treatments can leave dormant stem cells that may reactivate at a later date. However long term (30 year) stats are hard to come by and you have to be very very sure that it the cancer is all in the capsule.

At the end of the day surgery, brachy external beam seem to have about the same no progression rate, which again depends on the agressiveness of the cells.

Very Confused Information Overload

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

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Hi

Most of this group have been exactly where you are today, we empathise with you, we know how it feels

My decision time was 1996!

What I did was write down the advantages and disadvantages of each treatment - really it comes down then about which of the cons we can live with and which advantages we want most.

One theory is that surgery is a cure - if there are no cancer cells left in the body and other treatments can leave dormant stem cells that may reactivate at a later date. However long term (30 year) stats are hard to come by and you have to be very very sure that it the cancer is all in the capsule.

At the end of the day surgery, brachy external beam seem to have about the same no progression rate, which again depends on the agressiveness of the cells.

Very Confused Information Overload

Received my Biopsy results last Tuesday and I am now also a reluctant member of this group. 45 Year old Male, healthy, no symptons other than a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM. Not that I hae a clue what any of that means. Gleason 3 +3 =6Now Have not even been back to my urologist yet which is tomorrow morning got the results from my primary who I happen to be in his office when they were faxed. Obviously step 1 is to discuss with urologist tomorrow and go from there. I've got info overload at this point.By reading and absorbing everything thankfully everyone has provided I am even more confused as ever. Happen to play golf with Doctors at every corner of the course and bar and they are all friends just not urologist. Everyone of them said because of my age, its a no brainer, to have the Davinci and be done with it. Again I'm ahead of myself without even seeing my urologist, but Just looking for some feedback as I think I am one of the younger persons diagnosed on this site.Thank you.

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(snip)

> >I have not found any information yet as to why Cyberknife procedures

> are over 5 days while all other IGRT/IMRT procedures seem to be over 40

> or 42 sessions.

More like 35, depending upon the variables of the individual case.

Fewer sessions at higher dosages is " hypofractionation, " which involves

delivery of a certain amount of radiation (say 60 Grays) in

higher-than-usual doses in fewer sessions.

Frex, where the 60 Grays might usually be delivered in, say, 15 sessions

of 4 Grays each, hypofractionation delivers the 60 Grays in 5 sessions

of 12 Grays each. A simplified example, not to be considered clinically

correct.

Regards,

Steve J

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(snip)

> >I have not found any information yet as to why Cyberknife procedures

> are over 5 days while all other IGRT/IMRT procedures seem to be over 40

> or 42 sessions.

More like 35, depending upon the variables of the individual case.

Fewer sessions at higher dosages is " hypofractionation, " which involves

delivery of a certain amount of radiation (say 60 Grays) in

higher-than-usual doses in fewer sessions.

Frex, where the 60 Grays might usually be delivered in, say, 15 sessions

of 4 Grays each, hypofractionation delivers the 60 Grays in 5 sessions

of 12 Grays each. A simplified example, not to be considered clinically

correct.

Regards,

Steve J

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Sorry to hear about your diagnosis and

your understandable confusion – some of us are still confused many years

down the track :- )

I know that many medical men say that the

da Vinci procedure is a no brainer, as they used to say that surgery was the ‘gold

standard’ (or was that the ‘golden standard”) when I was

diagnosed as what was termed a ‘young man’ twelve years ago.

A “no-brainer’ for me is the

argument for immediate dramatic life altering treatment for what seems to fall

within the scope of what is now defined by a leading institute as an insignificant

tumour being:

1. Nonpalpable

2. Stage T1c

3. Percent free PSA 15 or

greater

4. Gleason less than 7

5. Less than three needle

cores with none greater than 50% tumour.

I made my decision not to

have conventional treatment at a time when there was no support for Active

Surveillance, based on my view of the world and its risks. Since then I have

learned a fair bit and am glad I chose my path. It is not the path for everyone

and I am not suggesting that you should take it – merely that you should

educate yourself on all possibilities.

As to the youth argument,

it is important to know that more than 50% of all prostate cancer deaths occur in

men over the age of 80 – about 90% occurring in men over the age of 70. this

being the case every young man should ask the question “Am I likely to

fall in the 10% who die at a younger age than 70”. Of course there is no

definitive answer to that, but what we do know is that the men who die

tragically young have a diagnosis that doesn’t resemble yours in any way –

they are high Gleason Grade, multiple sites often with metastasis by the time

they are diagnosed.

So think hard, and apply

the blowtorch of questioning to any suggestions made to you (and read this :- )

http://tinyurl.com/223wgh

Good

luck on whatever path you choose.

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of gamlingman

Sent: Thursday, 30 October 2008

7:48 AM

To: ProstateCancerSupport

Subject:

Very Confused Information Overload

Received my Biopsy results last Tuesday and I am now

also a reluctant

member of this group. 45 Year old Male, healthy, no symptons other than

a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT

HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM.

Not that I hae a clue what any of that means. Gleason 3 +3 =6

Now Have not even been back to my urologist yet which is tomorrow

morning got the results from my primary who I happen to be in his

office when they were faxed. Obviously step 1 is to discuss with

urologist tomorrow and go from there. I've got info overload at this

point.

By reading and absorbing everything thankfully everyone has provided I

am even more confused as ever. Happen to play golf with Doctors at

every corner of the course and bar and they are all friends just not

urologist. Everyone of them said because of my age, its a no brainer,

to have the Davinci and be done with it. Again I'm ahead of myself

without even seeing my urologist, but Just looking for some feedback as

I think I am one of the younger persons diagnosed on this site.

Thank you.

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Sorry to hear about your diagnosis and

your understandable confusion – some of us are still confused many years

down the track :- )

I know that many medical men say that the

da Vinci procedure is a no brainer, as they used to say that surgery was the ‘gold

standard’ (or was that the ‘golden standard”) when I was

diagnosed as what was termed a ‘young man’ twelve years ago.

A “no-brainer’ for me is the

argument for immediate dramatic life altering treatment for what seems to fall

within the scope of what is now defined by a leading institute as an insignificant

tumour being:

1. Nonpalpable

2. Stage T1c

3. Percent free PSA 15 or

greater

4. Gleason less than 7

5. Less than three needle

cores with none greater than 50% tumour.

I made my decision not to

have conventional treatment at a time when there was no support for Active

Surveillance, based on my view of the world and its risks. Since then I have

learned a fair bit and am glad I chose my path. It is not the path for everyone

and I am not suggesting that you should take it – merely that you should

educate yourself on all possibilities.

As to the youth argument,

it is important to know that more than 50% of all prostate cancer deaths occur in

men over the age of 80 – about 90% occurring in men over the age of 70. this

being the case every young man should ask the question “Am I likely to

fall in the 10% who die at a younger age than 70”. Of course there is no

definitive answer to that, but what we do know is that the men who die

tragically young have a diagnosis that doesn’t resemble yours in any way –

they are high Gleason Grade, multiple sites often with metastasis by the time

they are diagnosed.

So think hard, and apply

the blowtorch of questioning to any suggestions made to you (and read this :- )

http://tinyurl.com/223wgh

Good

luck on whatever path you choose.

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of gamlingman

Sent: Thursday, 30 October 2008

7:48 AM

To: ProstateCancerSupport

Subject:

Very Confused Information Overload

Received my Biopsy results last Tuesday and I am now

also a reluctant

member of this group. 45 Year old Male, healthy, no symptons other than

a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID THAT

HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of 2.5MM.

Not that I hae a clue what any of that means. Gleason 3 +3 =6

Now Have not even been back to my urologist yet which is tomorrow

morning got the results from my primary who I happen to be in his

office when they were faxed. Obviously step 1 is to discuss with

urologist tomorrow and go from there. I've got info overload at this

point.

By reading and absorbing everything thankfully everyone has provided I

am even more confused as ever. Happen to play golf with Doctors at

every corner of the course and bar and they are all friends just not

urologist. Everyone of them said because of my age, its a no brainer,

to have the Davinci and be done with it. Again I'm ahead of myself

without even seeing my urologist, but Just looking for some feedback as

I think I am one of the younger persons diagnosed on this site.

Thank you.

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Thanks to all who have replied thus far, Its good to know I am not

alone as non of us are. Perhpas I am getting ahead of myself,

probably would have been better off getting the results from the

urologist than a regular MD, as I'm sure he has as much knowlege as I

do at this point as with regards to treatment on such a small tumor.

Will update after my meeting tomorrow to see what Dr. #1 says.

>

> Sorry to hear about your diagnosis and your understandable

confusion - some

> of us are still confused many years down the track :- )

>

>

>

> I know that many medical men say that the da Vinci procedure is a no

> brainer, as they used to say that surgery was the 'gold standard'

(or was

> that the 'golden standard " ) when I was diagnosed as what was termed

a 'young

> man' twelve years ago.

>

>

>

> A " no-brainer' for me is the argument for immediate dramatic life

altering

> treatment for what seems to fall within the scope of what is now

defined by

> a leading institute as an insignificant tumour being:

>

>

>

> 1. Nonpalpable

>

> 2. Stage T1c

>

> 3. Percent free PSA 15 or greater

>

> 4. Gleason less than 7

>

> 5. Less than three needle cores with none greater than 50% tumour.

>

>

>

> I made my decision not to have conventional treatment at a time

when there

> was no support for Active Surveillance, based on my view of the

world and

> its risks. Since then I have learned a fair bit and am glad I chose

my path.

> It is not the path for everyone and I am not suggesting that you

should take

> it - merely that you should educate yourself on all possibilities.

>

>

>

> As to the youth argument, it is important to know that more than

50% of all

> prostate cancer deaths occur in men over the age of 80 - about 90%

occurring

> in men over the age of 70. this being the case every young man

should ask

> the question " Am I likely to fall in the 10% who die at a younger

age than

> 70 " . Of course there is no definitive answer to that, but what we

do know is

> that the men who die tragically young have a diagnosis that doesn't

resemble

> yours in any way - they are high Gleason Grade, multiple sites

often with

> metastasis by the time they are diagnosed.

>

>

>

> So think hard, and apply the blowtorch of questioning to any

suggestions

> made to you (and read this :- ) http://tinyurl.com/223wgh

>

>

>

> Good luck on whatever path you choose.

>

>

>

>

>

> All the best

>

>

>

> Terry Herbert

>

> I have no medical qualifications but I was diagnosed in '96: and

have

> learned a bit since then.

>

> My sites are at www.yananow.net <http://www.yananow.net/> and

> <http://www.prostatecancerwatchfulwaiting.co.za/>

> www.prostatecancerwatchfulwaiting.co.za

>

> Dr " Snuffy " Myers : " As a physician, I am painfully aware

that most

> of the decisions we make with regard to prostate cancer are made

with

> inadequate data "

>

>

>

> _____

>

> From: ProstateCancerSupport

> [mailto:ProstateCancerSupport ] On Behalf Of

gamlingman

> Sent: Thursday, 30 October 2008 7:48 AM

> To: ProstateCancerSupport

> Subject: Very Confused Information Overload

>

>

>

> Received my Biopsy results last Tuesday and I am now also a

reluctant

> member of this group. 45 Year old Male, healthy, no symptons other

than

> a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID

THAT

> HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of

2.5MM.

> Not that I hae a clue what any of that means. Gleason 3 +3 =6

>

> Now Have not even been back to my urologist yet which is tomorrow

> morning got the results from my primary who I happen to be in his

> office when they were faxed. Obviously step 1 is to discuss with

> urologist tomorrow and go from there. I've got info overload at

this

> point.

>

> By reading and absorbing everything thankfully everyone has

provided I

> am even more confused as ever. Happen to play golf with Doctors at

> every corner of the course and bar and they are all friends just

not

> urologist. Everyone of them said because of my age, its a no

brainer,

> to have the Davinci and be done with it. Again I'm ahead of myself

> without even seeing my urologist, but Just looking for some

feedback as

> I think I am one of the younger persons diagnosed on this site.

> Thank you.

>

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Thanks to all who have replied thus far, Its good to know I am not

alone as non of us are. Perhpas I am getting ahead of myself,

probably would have been better off getting the results from the

urologist than a regular MD, as I'm sure he has as much knowlege as I

do at this point as with regards to treatment on such a small tumor.

Will update after my meeting tomorrow to see what Dr. #1 says.

>

> Sorry to hear about your diagnosis and your understandable

confusion - some

> of us are still confused many years down the track :- )

>

>

>

> I know that many medical men say that the da Vinci procedure is a no

> brainer, as they used to say that surgery was the 'gold standard'

(or was

> that the 'golden standard " ) when I was diagnosed as what was termed

a 'young

> man' twelve years ago.

>

>

>

> A " no-brainer' for me is the argument for immediate dramatic life

altering

> treatment for what seems to fall within the scope of what is now

defined by

> a leading institute as an insignificant tumour being:

>

>

>

> 1. Nonpalpable

>

> 2. Stage T1c

>

> 3. Percent free PSA 15 or greater

>

> 4. Gleason less than 7

>

> 5. Less than three needle cores with none greater than 50% tumour.

>

>

>

> I made my decision not to have conventional treatment at a time

when there

> was no support for Active Surveillance, based on my view of the

world and

> its risks. Since then I have learned a fair bit and am glad I chose

my path.

> It is not the path for everyone and I am not suggesting that you

should take

> it - merely that you should educate yourself on all possibilities.

>

>

>

> As to the youth argument, it is important to know that more than

50% of all

> prostate cancer deaths occur in men over the age of 80 - about 90%

occurring

> in men over the age of 70. this being the case every young man

should ask

> the question " Am I likely to fall in the 10% who die at a younger

age than

> 70 " . Of course there is no definitive answer to that, but what we

do know is

> that the men who die tragically young have a diagnosis that doesn't

resemble

> yours in any way - they are high Gleason Grade, multiple sites

often with

> metastasis by the time they are diagnosed.

>

>

>

> So think hard, and apply the blowtorch of questioning to any

suggestions

> made to you (and read this :- ) http://tinyurl.com/223wgh

>

>

>

> Good luck on whatever path you choose.

>

>

>

>

>

> All the best

>

>

>

> Terry Herbert

>

> I have no medical qualifications but I was diagnosed in '96: and

have

> learned a bit since then.

>

> My sites are at www.yananow.net <http://www.yananow.net/> and

> <http://www.prostatecancerwatchfulwaiting.co.za/>

> www.prostatecancerwatchfulwaiting.co.za

>

> Dr " Snuffy " Myers : " As a physician, I am painfully aware

that most

> of the decisions we make with regard to prostate cancer are made

with

> inadequate data "

>

>

>

> _____

>

> From: ProstateCancerSupport

> [mailto:ProstateCancerSupport ] On Behalf Of

gamlingman

> Sent: Thursday, 30 October 2008 7:48 AM

> To: ProstateCancerSupport

> Subject: Very Confused Information Overload

>

>

>

> Received my Biopsy results last Tuesday and I am now also a

reluctant

> member of this group. 45 Year old Male, healthy, no symptons other

than

> a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID

THAT

> HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of

2.5MM.

> Not that I hae a clue what any of that means. Gleason 3 +3 =6

>

> Now Have not even been back to my urologist yet which is tomorrow

> morning got the results from my primary who I happen to be in his

> office when they were faxed. Obviously step 1 is to discuss with

> urologist tomorrow and go from there. I've got info overload at

this

> point.

>

> By reading and absorbing everything thankfully everyone has

provided I

> am even more confused as ever. Happen to play golf with Doctors at

> every corner of the course and bar and they are all friends just

not

> urologist. Everyone of them said because of my age, its a no

brainer,

> to have the Davinci and be done with it. Again I'm ahead of myself

> without even seeing my urologist, but Just looking for some

feedback as

> I think I am one of the younger persons diagnosed on this site.

> Thank you.

>

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Get the best doctor. I cannot stress it enough. I had nerve sparing

open Prostate Surgery in March 08. I am now only fully continent but

also have full erections. Here is my story below.

I had my open RPP in March of '08. I got my first starting erections

5 days later with the catheter still in. In the first three months

they improved but only slowly.

I was going to be " the man " and get erections back without meds. Well

finally my wife Kim said, " you have got to get something from the

doctor " . She was frustrated too. Well he gave me Cialis and with just

a 10mg dose I got full firm erections with ease. I was amazed. I am

to the point I get 80% erections with no meds. I now take 10mg on

Monday night and again on Friday night. My wife and I can now can

be " intimate " in the bedroom at any time !! My orgasms are strong and

every bit as pleasurable as pre op. Incontinence stopped in June and

I now need no pads. No leakage even during sex and orgasm. I am a

very blessed and fortunate man. I have included my record of my

journey below:

1/08 Age 59, psa 4.7,

1/08 Biopsy, 13 cores taken. Cancer in 1% of one core.

Gleason Score 6

3/5/08 Radical Prostatectomy-Open Surgery, NE Georgia Medical Center,

Gainesville Ga. Path report: Nerves spared.

3/7/08 Post Op Biopsy : No malignant cells in lymph node. Gleason

3=4=7. Tumor on both lobes. Urethral margins/apex free of neoplasia.

Right and left seminal vesicles free of neoplasia. No invasion of

prostatic capsule of the resection margins are noted by the tumor.

Tumor occupies 10 to15% of the prostate gland. Path staging T2c, NO,

MX- Group staging II. Focal areas of perineural invasion by tumor are

noted.

3/17/08 Catheter out, Continence good.

6/10/08 PSA < 0.1

6/17/08 No pads needed

9/17/08 PSA < 0.1

First erection five days post op and have been improving well since

then. 80% natural med free erections. Full erection now possible

(less than four months post op) with the assistance of 10mg of

Cialis.

9/22/08 Took 10mg Cialis, full very useable erections 1 hour, 10

hours and 60 hours later !! Now taking 10mg on Monday nights and

again on Friday nights. We are both " good to go " in the bedroom

whenever we want. Can med free full erections be coming soon ??!!

We are pleased with the progress so far.

As I said EXPERIENCE is the key no matter what method the surgery is

performed. A experienced surgeon in open RPP is better than an

inexperienced Davincy Surgeon.

Good luck and feel free to email me if you have any questions

Bob

>

> Received my Biopsy results last Tuesday and I am now also a

reluctant

> member of this group. 45 Year old Male, healthy, no symptons other

than

> a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID

THAT

> HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of

2.5MM.

> Not that I hae a clue what any of that means. Gleason 3 +3 =6

>

> Now Have not even been back to my urologist yet which is tomorrow

> morning got the results from my primary who I happen to be in his

> office when they were faxed. Obviously step 1 is to discuss with

> urologist tomorrow and go from there. I've got info overload at

this

> point.

>

> By reading and absorbing everything thankfully everyone has

provided I

> am even more confused as ever. Happen to play golf with Doctors at

> every corner of the course and bar and they are all friends just

not

> urologist. Everyone of them said because of my age, its a no

brainer,

> to have the Davinci and be done with it. Again I'm ahead of myself

> without even seeing my urologist, but Just looking for some

feedback as

> I think I am one of the younger persons diagnosed on this site.

> Thank you.

>

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Get the best doctor. I cannot stress it enough. I had nerve sparing

open Prostate Surgery in March 08. I am now only fully continent but

also have full erections. Here is my story below.

I had my open RPP in March of '08. I got my first starting erections

5 days later with the catheter still in. In the first three months

they improved but only slowly.

I was going to be " the man " and get erections back without meds. Well

finally my wife Kim said, " you have got to get something from the

doctor " . She was frustrated too. Well he gave me Cialis and with just

a 10mg dose I got full firm erections with ease. I was amazed. I am

to the point I get 80% erections with no meds. I now take 10mg on

Monday night and again on Friday night. My wife and I can now can

be " intimate " in the bedroom at any time !! My orgasms are strong and

every bit as pleasurable as pre op. Incontinence stopped in June and

I now need no pads. No leakage even during sex and orgasm. I am a

very blessed and fortunate man. I have included my record of my

journey below:

1/08 Age 59, psa 4.7,

1/08 Biopsy, 13 cores taken. Cancer in 1% of one core.

Gleason Score 6

3/5/08 Radical Prostatectomy-Open Surgery, NE Georgia Medical Center,

Gainesville Ga. Path report: Nerves spared.

3/7/08 Post Op Biopsy : No malignant cells in lymph node. Gleason

3=4=7. Tumor on both lobes. Urethral margins/apex free of neoplasia.

Right and left seminal vesicles free of neoplasia. No invasion of

prostatic capsule of the resection margins are noted by the tumor.

Tumor occupies 10 to15% of the prostate gland. Path staging T2c, NO,

MX- Group staging II. Focal areas of perineural invasion by tumor are

noted.

3/17/08 Catheter out, Continence good.

6/10/08 PSA < 0.1

6/17/08 No pads needed

9/17/08 PSA < 0.1

First erection five days post op and have been improving well since

then. 80% natural med free erections. Full erection now possible

(less than four months post op) with the assistance of 10mg of

Cialis.

9/22/08 Took 10mg Cialis, full very useable erections 1 hour, 10

hours and 60 hours later !! Now taking 10mg on Monday nights and

again on Friday nights. We are both " good to go " in the bedroom

whenever we want. Can med free full erections be coming soon ??!!

We are pleased with the progress so far.

As I said EXPERIENCE is the key no matter what method the surgery is

performed. A experienced surgeon in open RPP is better than an

inexperienced Davincy Surgeon.

Good luck and feel free to email me if you have any questions

Bob

>

> Received my Biopsy results last Tuesday and I am now also a

reluctant

> member of this group. 45 Year old Male, healthy, no symptons other

than

> a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID

THAT

> HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of

2.5MM.

> Not that I hae a clue what any of that means. Gleason 3 +3 =6

>

> Now Have not even been back to my urologist yet which is tomorrow

> morning got the results from my primary who I happen to be in his

> office when they were faxed. Obviously step 1 is to discuss with

> urologist tomorrow and go from there. I've got info overload at

this

> point.

>

> By reading and absorbing everything thankfully everyone has

provided I

> am even more confused as ever. Happen to play golf with Doctors at

> every corner of the course and bar and they are all friends just

not

> urologist. Everyone of them said because of my age, its a no

brainer,

> to have the Davinci and be done with it. Again I'm ahead of myself

> without even seeing my urologist, but Just looking for some

feedback as

> I think I am one of the younger persons diagnosed on this site.

> Thank you.

>

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Get the best doctor. I cannot stress it enough. I had nerve sparing

open Prostate Surgery in March 08. I am now only fully continent but

also have full erections. Here is my story below.

I had my open RPP in March of '08. I got my first starting erections

5 days later with the catheter still in. In the first three months

they improved but only slowly.

I was going to be " the man " and get erections back without meds. Well

finally my wife Kim said, " you have got to get something from the

doctor " . She was frustrated too. Well he gave me Cialis and with just

a 10mg dose I got full firm erections with ease. I was amazed. I am

to the point I get 80% erections with no meds. I now take 10mg on

Monday night and again on Friday night. My wife and I can now can

be " intimate " in the bedroom at any time !! My orgasms are strong and

every bit as pleasurable as pre op. Incontinence stopped in June and

I now need no pads. No leakage even during sex and orgasm. I am a

very blessed and fortunate man. I have included my record of my

journey below:

1/08 Age 59, psa 4.7,

1/08 Biopsy, 13 cores taken. Cancer in 1% of one core.

Gleason Score 6

3/5/08 Radical Prostatectomy-Open Surgery, NE Georgia Medical Center,

Gainesville Ga. Path report: Nerves spared.

3/7/08 Post Op Biopsy : No malignant cells in lymph node. Gleason

3=4=7. Tumor on both lobes. Urethral margins/apex free of neoplasia.

Right and left seminal vesicles free of neoplasia. No invasion of

prostatic capsule of the resection margins are noted by the tumor.

Tumor occupies 10 to15% of the prostate gland. Path staging T2c, NO,

MX- Group staging II. Focal areas of perineural invasion by tumor are

noted.

3/17/08 Catheter out, Continence good.

6/10/08 PSA < 0.1

6/17/08 No pads needed

9/17/08 PSA < 0.1

First erection five days post op and have been improving well since

then. 80% natural med free erections. Full erection now possible

(less than four months post op) with the assistance of 10mg of

Cialis.

9/22/08 Took 10mg Cialis, full very useable erections 1 hour, 10

hours and 60 hours later !! Now taking 10mg on Monday nights and

again on Friday nights. We are both " good to go " in the bedroom

whenever we want. Can med free full erections be coming soon ??!!

We are pleased with the progress so far.

As I said EXPERIENCE is the key no matter what method the surgery is

performed. A experienced surgeon in open RPP is better than an

inexperienced Davincy Surgeon.

Good luck and feel free to email me if you have any questions

Bob

>

> Received my Biopsy results last Tuesday and I am now also a

reluctant

> member of this group. 45 Year old Male, healthy, no symptons other

than

> a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID

THAT

> HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of

2.5MM.

> Not that I hae a clue what any of that means. Gleason 3 +3 =6

>

> Now Have not even been back to my urologist yet which is tomorrow

> morning got the results from my primary who I happen to be in his

> office when they were faxed. Obviously step 1 is to discuss with

> urologist tomorrow and go from there. I've got info overload at

this

> point.

>

> By reading and absorbing everything thankfully everyone has

provided I

> am even more confused as ever. Happen to play golf with Doctors at

> every corner of the course and bar and they are all friends just

not

> urologist. Everyone of them said because of my age, its a no

brainer,

> to have the Davinci and be done with it. Again I'm ahead of myself

> without even seeing my urologist, but Just looking for some

feedback as

> I think I am one of the younger persons diagnosed on this site.

> Thank you.

>

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Well; Met with my Urologist today to go over me results and I'm now

even more confused than before if that is possible...

After he gives me the bad news, he calmly starts going over all my

treatment options. He indicated rule of thumb was in your 70's do

nothing, 60's Radiation, 50's or younger Surgery. I do not know where

he got the scale but that is what he said. So in my case he said

surgery would be my best option but there are many other factors to

consider. First off there are 4 types of surgery, original, Radical

perineal, laproscopic, Davinci (Robot). Here in Miami he said the

best surgeon has only 100 to 150 procedures on the Davinci and he

stated that with both Laproscopic and Davinci it is harder to do

potent sparing surgery.

In my situations young, stage 1 non agreesive, small area he would

reccomend Radical perineal prostatectomy as he can see evrything and

make sure not to hit the nerves etc.

He said no matter which surgery is done the chances of Ejaculation

are non existent, but with perineal he states that chances of

recovering erection back to what a person had before are excellent.

Talked about other types of treatment invited me to get a 2nd and 3rd

opinion and even offered to copy the case file.

HERE IS THE SHOCKER! He told me that chances are me having surgery 6

months to a year from now would not change my outlook not one iota to

take my time, we will do a bone scan now and in 6 months to make sure

nothing has chnge. He also stated With " LITTLE DOWNSIDE of change of

rapid growth, spreading etc, I could wait longer maybe up to 5 years "

You think I was confused before...

> >

> > Sorry to hear about your diagnosis and your understandable

> confusion - some

> > of us are still confused many years down the track :- )

> >

> >

> >

> > I know that many medical men say that the da Vinci procedure is a

no

> > brainer, as they used to say that surgery was the 'gold standard'

> (or was

> > that the 'golden standard " ) when I was diagnosed as what was

termed

> a 'young

> > man' twelve years ago.

> >

> >

> >

> > A " no-brainer' for me is the argument for immediate dramatic life

> altering

> > treatment for what seems to fall within the scope of what is now

> defined by

> > a leading institute as an insignificant tumour being:

> >

> >

> >

> > 1. Nonpalpable

> >

> > 2. Stage T1c

> >

> > 3. Percent free PSA 15 or greater

> >

> > 4. Gleason less than 7

> >

> > 5. Less than three needle cores with none greater than 50% tumour.

> >

> >

> >

> > I made my decision not to have conventional treatment at a time

> when there

> > was no support for Active Surveillance, based on my view of the

> world and

> > its risks. Since then I have learned a fair bit and am glad I

chose

> my path.

> > It is not the path for everyone and I am not suggesting that you

> should take

> > it - merely that you should educate yourself on all possibilities.

> >

> >

> >

> > As to the youth argument, it is important to know that more than

> 50% of all

> > prostate cancer deaths occur in men over the age of 80 - about

90%

> occurring

> > in men over the age of 70. this being the case every young man

> should ask

> > the question " Am I likely to fall in the 10% who die at a younger

> age than

> > 70 " . Of course there is no definitive answer to that, but what we

> do know is

> > that the men who die tragically young have a diagnosis that

doesn't

> resemble

> > yours in any way - they are high Gleason Grade, multiple sites

> often with

> > metastasis by the time they are diagnosed.

> >

> >

> >

> > So think hard, and apply the blowtorch of questioning to any

> suggestions

> > made to you (and read this :- ) http://tinyurl.com/223wgh

> >

> >

> >

> > Good luck on whatever path you choose.

> >

> >

> >

> >

> >

> > All the best

> >

> >

> >

> > Terry Herbert

> >

> > I have no medical qualifications but I was diagnosed in '96: and

> have

> > learned a bit since then.

> >

> > My sites are at www.yananow.net <http://www.yananow.net/> and

> > <http://www.prostatecancerwatchfulwaiting.co.za/>

> > www.prostatecancerwatchfulwaiting.co.za

> >

> > Dr " Snuffy " Myers : " As a physician, I am painfully aware

> that most

> > of the decisions we make with regard to prostate cancer are made

> with

> > inadequate data "

> >

> >

> >

> > _____

> >

> > From: ProstateCancerSupport

> > [mailto:ProstateCancerSupport ] On Behalf Of

> gamlingman

> > Sent: Thursday, 30 October 2008 7:48 AM

> > To: ProstateCancerSupport

> > Subject: Very Confused Information

Overload

> >

> >

> >

> > Received my Biopsy results last Tuesday and I am now also a

> reluctant

> > member of this group. 45 Year old Male, healthy, no symptons

other

> than

> > a PSA of 5.4 up from .5 the year before. Biopsy performed MAN DID

> THAT

> > HURT, reults 1 of 12 samples show 25% tumor Total Linear MM of

> 2.5MM.

> > Not that I hae a clue what any of that means. Gleason 3 +3 =6

> >

> > Now Have not even been back to my urologist yet which is tomorrow

> > morning got the results from my primary who I happen to be in his

> > office when they were faxed. Obviously step 1 is to discuss with

> > urologist tomorrow and go from there. I've got info overload at

> this

> > point.

> >

> > By reading and absorbing everything thankfully everyone has

> provided I

> > am even more confused as ever. Happen to play golf with Doctors

at

> > every corner of the course and bar and they are all friends just

> not

> > urologist. Everyone of them said because of my age, its a no

> brainer,

> > to have the Davinci and be done with it. Again I'm ahead of

myself

> > without even seeing my urologist, but Just looking for some

> feedback as

> > I think I am one of the younger persons diagnosed on this site.

> > Thank you.

> >

>

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