Re: Re: Question re knee contractions

[Guest guest]

So glad to hear that Bob made it through - I feel so badly for him. Hoping

that he recuperates quickly and again, sending you both much strength.

Courage

Re: Question re knee contractions

>> >>

>> >>

>> >> Pat M,

>> >> Joint contractures are a known problem for some with neurodegenerative

>> >> diseases. (They are mentioned in " The 36-Hour Day, " for example, as

>> >> occurring in AD and other dementias.) Perhaps the stiffened tendons

>> (that

>> >> are not relaxing such that they aren't allowing the joint to open) can

>> be

>> >> seen on an MRI. I'm unclear how a scan will a scan help clarify

>> treatment.

>> >> Treatment is through botox injections, ROM exercises, massage, muscle

>> >> relaxers, and pain meds. After a few weeks, we abandoned the goal of

>> >> Dad

>> >> ever walking again and focused on pain relief. At that point, I

>> >> brought

>> in

>> >> hospice because they knew more about pain relief than the staff at the

>> >> skilled nursing facility. I'm sorry if your husband is headed down the

>> same

>> >> path.

>> >> Robin

>> >>

>> >>

>> >> >

>> >> > Robin,

>> >> > Thank you for the information and sharing your father's story. We

>> >> > have

>> >> an appointment tomorrow at 1:00PM with the orthopedic surgeon who did

>> Bob's

>> >> hip replacement surgery in January 2012. I want to ask him to get an

>> MRI of

>> >> the entire right leg to see if there is any torn muscles or tendons

>> >> that

>> >> could be causing him so much pain that he will not straighten that leg

>> or

>> >> put any weight on it. I will let you know what happens. I am so sorry

>> about

>> >> the way this horrible disease affected your father. I am beginning to

>> pray

>> >> for my husband that God will be merciful to him and release him from

>> >> the

>> >> clutches of Lewy. It is heartbreaking to visit him and see him so far

>> >> declined.

>> >> > Best Regards,

>> >> > Pat M.

>> >> > Wife/caregiver of Bob 75, dx PD 2003, LBD 2009

>> >> >

>> >>

>> >>

[Guest guest]

Dear Pat,

I'm so glad to hear that Bob made it through the surgery ok.  Now try to take

care of yourself!

Helene in NY

 

" Maturity is the capacity to endure uncertainty. "

                                        \

               - Finley

" When you feel like giving up, remember why you held on for so long in the first

place. "    - Unknown

>________________________________

>

>To: LBDcaregivers

>Sent: Wednesday, April 11, 2012 10:48 PM

>Subject: Re: Re: Question re knee contractions

>

>Update.  Bob made it through hip replacement surgery okay today.  He

>has a drain in.  So far so good.

>I am so tired am going to bed.

>Pat M.

>

>

>> Dear Pat:  I hope that all goes well for you and Bob! I am sorry that he

>> has to go through all this pain.  Thank you for sharing! WE are our LO

>> advocates.  WE have to be persistent and sometimes tough to get things

>> done.  My mother in law broke her hip at 90 and the nursing home dr was not

>> going to order any surgery.  I called in her orthopedic dr and he did

>> surgery on her.  She lived another 2 years.

>>

>> Vivian (husband with LBD 2010, PD dx first, on 3rd neurologist)

>>

>>

>>

>>

>>> **

>>>

>>>

>>> Dear Pat,

>>> This was so horrible to read - I can't even begin to imagine Bob's pain -

>>> and yours too!

>>>

>>> Calling that rehab center 'stupid' was an understatement!

>>>

>>> I hope that Bob was comfortable last night, and that today's surgery will

>>> go well.

>>>

>>> Somebody made a big mistake reading the x-ray last week....

>>>

>>> Sending you strength and prayers from NY,

>>> Helene

>>> (Mom 78, 12 years with LBD; late stage but still at home)

>>>

>>>

>>>

>>> " Maturity is the capacity to endure uncertainty. "

>>>                                                  

     - Finley

>>>

>>> " When you feel like giving up, remember why you held on for so long in the

>>> first place. "   - Unknown

>>>

>>> >________________________________

>>> >

>>> >To: LBDcaregivers

>>> >Sent: Tuesday, April 10, 2012 9:23 PM

>>> >Subject: Re: Re: Question re knee contractions

>>>

>>> >

>>> >Well, now we know why my husband Bob has been in so much pain and unable

>>> to

>>> >straighten his right leg or bear weight on it after going to his

>>> orthopedic

>>> >surgeon today.  His right hip is dislocated and the doctor admitted Bob to

>>> >the hospital right away.  Bob will have to have his hip replacement

>>> surgery

>>> >done all over again.  He is scheduled for surgery at 4:00 PM tomorrow.

>>> >That stupid Rehab Center let my poor husband go for 10 days in

>>> >excruciating pain and told me there was nothing wrong with the leg on the

>>> x

>>> >ray they took last week.  I think he is almost too weak and debilitated to

>>> >survive another hip surgery.  This is so awful!

>>> >Pat M.

>>> >Wife/caregiver of Bob, 75, dx PD 2003, LBD 2009

>>> >

>>> >

>>> >

>>> >> **

>>> >>

>>> >>

>>> >> I wanted to add that my mom had many rounds of botox for various

>>> >> contractures and there was no positive effect at all. I thought it was

>>> >> needlessly painful and wouldn’t recommend it.

>>> >> Courage

>>> >>

>>> >> From: rriddle_travel

>>> >> Sent: Monday, April 09, 2012 9:31 PM

>>> >> To: LBDcaregivers

>>> >> Subject: Re: Question re knee contractions

>>> >>

>>> >>

>>> >> Pat M,

>>> >> Joint contractures are a known problem for some with neurodegenerative

>>> >> diseases. (They are mentioned in " The 36-Hour Day, " for example, as

>>> >> occurring in AD and other dementias.) Perhaps the stiffened tendons

>>> (that

>>> >> are not relaxing such that they aren't allowing the joint to open) can

>>> be

>>> >> seen on an MRI. I'm unclear how a scan will a scan help clarify

>>> treatment.

>>> >> Treatment is through botox injections, ROM exercises, massage, muscle

>>> >> relaxers, and pain meds. After a few weeks, we abandoned the goal of Dad

>>> >> ever walking again and focused on pain relief. At that point, I brought

>>> in

>>> >> hospice because they knew more about pain relief than the staff at the

>>> >> skilled nursing facility. I'm sorry if your husband is headed down the

>>> same

>>> >> path.

>>> >> Robin

>>> >>

>>> >>

>>> >> >

>>> >> > Robin,

>>> >> > Thank you for the information and sharing your father's story. We have

>>> >> an appointment tomorrow at 1:00PM with the orthopedic surgeon who did

>>> Bob's

>>> >> hip replacement surgery in January 2012. I want to ask him to get an

>>> MRI of

>>> >> the entire right leg to see if there is any torn muscles or tendons that

>>> >> could be causing him so much pain that he will not straighten that leg

>>> or

>>> >> put any weight on it. I will let you know what happens. I am so sorry

>>> about

>>> >> the way this horrible disease affected your father. I am beginning to

>>> pray

>>> >> for my husband that God will be merciful to him and release him from the

>>> >> clutches of Lewy. It is heartbreaking to visit him and see him so far

>>> >> declined.

>>> >> > Best Regards,

>>> >> > Pat M.

>>> >> > Wife/caregiver of Bob 75, dx PD 2003, LBD 2009

>>> >> >

>>> >>

>>> >>

[Guest guest]

Dear Pat,

I'm so glad to hear that Bob made it through the surgery ok.  Now try to take

care of yourself!

Helene in NY

 

" Maturity is the capacity to endure uncertainty. "

                                        \

               - Finley

" When you feel like giving up, remember why you held on for so long in the first

place. "    - Unknown

>________________________________

>

>To: LBDcaregivers

>Sent: Wednesday, April 11, 2012 10:48 PM

>Subject: Re: Re: Question re knee contractions

>

>Update.  Bob made it through hip replacement surgery okay today.  He

>has a drain in.  So far so good.

>I am so tired am going to bed.

>Pat M.

>

>

>> Dear Pat:  I hope that all goes well for you and Bob! I am sorry that he

>> has to go through all this pain.  Thank you for sharing! WE are our LO

>> advocates.  WE have to be persistent and sometimes tough to get things

>> done.  My mother in law broke her hip at 90 and the nursing home dr was not

>> going to order any surgery.  I called in her orthopedic dr and he did

>> surgery on her.  She lived another 2 years.

>>

>> Vivian (husband with LBD 2010, PD dx first, on 3rd neurologist)

>>

>>

>>

>>

>>> **

>>>

>>>

>>> Dear Pat,

>>> This was so horrible to read - I can't even begin to imagine Bob's pain -

>>> and yours too!

>>>

>>> Calling that rehab center 'stupid' was an understatement!

>>>

>>> I hope that Bob was comfortable last night, and that today's surgery will

>>> go well.

>>>

>>> Somebody made a big mistake reading the x-ray last week....

>>>

>>> Sending you strength and prayers from NY,

>>> Helene

>>> (Mom 78, 12 years with LBD; late stage but still at home)

>>>

>>>

>>>

>>> " Maturity is the capacity to endure uncertainty. "

>>>                                                  

     - Finley

>>>

>>> " When you feel like giving up, remember why you held on for so long in the

>>> first place. "   - Unknown

>>>

>>> >________________________________

>>> >

>>> >To: LBDcaregivers

>>> >Sent: Tuesday, April 10, 2012 9:23 PM

>>> >Subject: Re: Re: Question re knee contractions

>>>

>>> >

>>> >Well, now we know why my husband Bob has been in so much pain and unable

>>> to

>>> >straighten his right leg or bear weight on it after going to his

>>> orthopedic

>>> >surgeon today.  His right hip is dislocated and the doctor admitted Bob to

>>> >the hospital right away.  Bob will have to have his hip replacement

>>> surgery

>>> >done all over again.  He is scheduled for surgery at 4:00 PM tomorrow.

>>> >That stupid Rehab Center let my poor husband go for 10 days in

>>> >excruciating pain and told me there was nothing wrong with the leg on the

>>> x

>>> >ray they took last week.  I think he is almost too weak and debilitated to

>>> >survive another hip surgery.  This is so awful!

>>> >Pat M.

>>> >Wife/caregiver of Bob, 75, dx PD 2003, LBD 2009

>>> >

>>> >

>>> >

>>> >> **

>>> >>

>>> >>

>>> >> I wanted to add that my mom had many rounds of botox for various

>>> >> contractures and there was no positive effect at all. I thought it was

>>> >> needlessly painful and wouldn’t recommend it.

>>> >> Courage

>>> >>

>>> >> From: rriddle_travel

>>> >> Sent: Monday, April 09, 2012 9:31 PM

>>> >> To: LBDcaregivers

>>> >> Subject: Re: Question re knee contractions

>>> >>

>>> >>

>>> >> Pat M,

>>> >> Joint contractures are a known problem for some with neurodegenerative

>>> >> diseases. (They are mentioned in " The 36-Hour Day, " for example, as

>>> >> occurring in AD and other dementias.) Perhaps the stiffened tendons

>>> (that

>>> >> are not relaxing such that they aren't allowing the joint to open) can

>>> be

>>> >> seen on an MRI. I'm unclear how a scan will a scan help clarify

>>> treatment.

>>> >> Treatment is through botox injections, ROM exercises, massage, muscle

>>> >> relaxers, and pain meds. After a few weeks, we abandoned the goal of Dad

>>> >> ever walking again and focused on pain relief. At that point, I brought

>>> in

>>> >> hospice because they knew more about pain relief than the staff at the

>>> >> skilled nursing facility. I'm sorry if your husband is headed down the

>>> same

>>> >> path.

>>> >> Robin

>>> >>

>>> >>

>>> >> >

>>> >> > Robin,

>>> >> > Thank you for the information and sharing your father's story. We have

>>> >> an appointment tomorrow at 1:00PM with the orthopedic surgeon who did

>>> Bob's

>>> >> hip replacement surgery in January 2012. I want to ask him to get an

>>> MRI of

>>> >> the entire right leg to see if there is any torn muscles or tendons that

>>> >> could be causing him so much pain that he will not straighten that leg

>>> or

>>> >> put any weight on it. I will let you know what happens. I am so sorry

>>> about

>>> >> the way this horrible disease affected your father. I am beginning to

>>> pray

>>> >> for my husband that God will be merciful to him and release him from the

>>> >> clutches of Lewy. It is heartbreaking to visit him and see him so far

>>> >> declined.

>>> >> > Best Regards,

>>> >> > Pat M.

>>> >> > Wife/caregiver of Bob 75, dx PD 2003, LBD 2009

>>> >> >

>>> >>

>>> >>