Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Mandi, That's awesome. had his first injection yesterday. I'll let you know how it's going in a few weeks. I don't know what to expect because he is more Aspie or PDD_NOS. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 The shots were started then additional supplements were added all separately. lrfschr <elfischer@...> wrote: For those of you who have or are currently using b12 shots with your children, did you introduce those shots by themselves at first and then add in other supplements later? Was there more/less improvement after adding TMG/DMG, folinic acid (J protocal). Just curious about anyone's comments... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 We first did all the testing, amino acid, immune panels, thyroid studies, vitamin levels and polymorphisms that are VERY commmon among neurologically delayed children, not just autistic children.Then we did the diet for a month, to evaluate the changes just from that which were huge, we were waiting for the test results as the supplements are based on the childs individual needs. Second month we did the folinic/tmg, multivitamin, zinc calcium/vit d. Third month we added the mb12, the way we did it we saw nothing but major gains in all areas that seemed to compound week by week. Skills were instinctively gained w/o any outside interventions, we had done all that, with insurance exhausted on that front we decided to try the above and haven't looked back.My son was in the follow up Jill study, so we did her protocol, so he " seemed " to be primed nutritionally first to have no negatives what so ever when we added the mb12. > > > For those of you who have or are currently using b12 shots with your > children, did you introduce those shots by themselves at first and > then add in other supplements later? Was there more/less improvement > after adding TMG/DMG, folinic acid (J protocal). Just curious > about anyone's comments... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 We were doing the diet and ProEFA for a few months before starting our shots. We did the shots for a month and then I read that folinic acid was recommended so we had our doc call in a prescription for the pre-filled syringes with folinic acid added to them. That turned out to be a bad idea for us. My son did terribly (very, very hyper) when we added the folinic. I don't know how he'd do on oral folinic - we haven't dared try it. Also, I think Dr. Neubrander doesn't recommend adding the folinic to the MB-12 in one shot because it changes the viscosity of the MB-12 and it is very important that the viscosity not be interfered with. Not sure the science behind that . Kim > > For those of you who have or are currently using b12 shots with your > children, did you introduce those shots by themselves at first and > then add in other supplements later? Was there more/less improvement > after adding TMG/DMG, folinic acid (J protocal). Just curious > about anyone's comments... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Check out the video's on Dr N's site - start with Caitlin - that should get you running for the syringe LOL _www.drneubrander.com_ (http://www.drneubrander.com) HTH Mandi in UK DAN dr prescribed injectable B12 for my son. (age 3 yrs 10 mo) Has this worked for anyone? She said it has done wonders for some children. She said that test results can show fine B12 in the blood but the body may not be breaking it down properly to use it. I think she said the shots are methanol (?) B12 so it is already broken down for the body to use. I would like to know what to expect. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Hi , We've recently (2/8/05) started MB12 shots with our son (along with TMG and folacal) and feel that we are seeing results. He's more alert and aware of his environment. More social, conversational and the only " bad " thing we can report is that in his verbosity, what goes though his mind comes out his mouth. (ie: at his martial arts class the other night he was heard to say " this is stupid " ) We're working on that...and he does seem to be getting much better. He is 14 so we know the progress is apt to be slow. We've got time. Good luck to you and your child~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2005 Report Share Posted March 26, 2005 > > Hello, > DAN dr prescribed injectable B12 for my son. (age 3 yrs 10 mo) Has this worked for anyone? I use oral B12 for my kids. They require it with folic acid and TMG, otherwise it causes problems. However, those three things together cause nice improvements. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2005 Report Share Posted March 27, 2005 , My 2.4 yr old son has been getting B12 injections for about a three months now. I have seen some nice improvements, especially in verbal and receptive language. He said his first two word after being on B12 for two weeks. We started with B12 and this month moved to B12 with folinic acid. Good luck, Dayna (WI) Proud mom to Ben 2.4 yr PDD-NOS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Hi all, Recently, I remember an information about the doctor in Quebec who is following dr. Neubrander in researching the effects of methyl B12 shots. There was a link to his web site and an article about his view. I desperately need this information right now. Any hints would be appreciated! Tatiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Yes, I have heard of children gaining speech suddenly after methyl B12 shots or sublingual methyl B12 or even nasal spray; and also after going on casein-free, gluten-free diets. But fish oils contain essential fatty acids that are mainly missing in our usual diets, let alone the often very self-restricted diets that our children eat. The B12 is often deficient too, but toxicity from heavy metals including mercury makes the biochemical pathway to make methyl B12 very vulnerable. Peace, Kathy E. > > I know fish oils is used widely to help kids with their speech, but > has anyone tried anything else such as B12 shots? Or even B12 > capsules. Anything besides fish oils? > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 , I currently give my daughter sublingual MB-12/B-6/folic acid/biotin, 3 pro-EFA, 1 pro-EPA, lipoceutical glutathione, lots of vitamin C, and a multivitamin. We've also tried Carn-Aware and GABA, as well as the GFCF diet. There are lots of options out there - if you have an idea about a cause for your child's speech delay it's easier to pick treatments. Kerri > > I know fish oils is used widely to help kids with their speech, but > has anyone tried anything else such as B12 shots? Or even B12 > capsules. Anything besides fish oils? > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Kerri, What is the brand name of the sublingual MB-12/B-6/Folic acid/biotin supplement you give your daughter? Is it something I can purchase without a prescription? If so, where? We've been doing the pro-EFA, but would like to try the MB-12. Thanks, Pam O'Connor [ ] Re: B12 shots , I currently give my daughter sublingual MB-12/B-6/folic acid/biotin, 3 pro-EFA, 1 pro-EPA, lipoceutical glutathione, lots of vitamin C, and a multivitamin. We've also tried Carn-Aware and GABA, as well as the GFCF diet. There are lots of options out there - if you have an idea about a cause for your child's speech delay it's easier to pick treatments. Kerri > > I know fish oils is used widely to help kids with their speech, but > has anyone tried anything else such as B12 shots? Or even B12 > capsules. Anything besides fish oils? > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 hi, I use meth b12 and folic acid pills. he has shown some improvement with speech. its in baby steps some of his words he is saying better and he iniates more to communicate. he is also more apt to communicate emotion. hope this helps chris nancyreid73 <nancyreid73@...> wrote: I know fish oils is used widely to help kids with their speech, but has anyone tried anything else such as B12 shots? Or even B12 capsules. Anything besides fish oils? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Yes, the methyl B12 shots definitely helped both my kids' language, much more than fish oil did. I would follow the Neubrander protocol and not add in folinic or NAC (give folinic orally at the same time though). These were/are a great thing for us. Some can get the same benefit from methyl B12 nasal spray but not all - my son still needs the shots. > > I know fish oils is used widely to help kids with their speech, but > has anyone tried anything else such as B12 shots? Or even B12 > capsules. Anything besides fish oils? > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Pam, It's made by Wonder Labs. You can purchase it online without a prescription, and it's not all that expensive. I don't think the sublingual is as effective as the shots, and my daughter usually ends up chewing hers after a few minutes, decreasing the effectiveness even more. We didn't notice any big increase in speech, but my daughter is talking pretty well and it's hard to tell. I think that the B-complex is good for her, so I'll continue to use it at least until my supply runs out. Kerri > > > > I know fish oils is used widely to help kids with their speech, > but > > has anyone tried anything else such as B12 shots? Or even B12 > > capsules. Anything besides fish oils? > > Thanks, > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Unfortunately, I didn't notice a difference in either of my kids with the shots. Just like everything else, it's just trial and error. Every child is different. maryebe <eberlein@...> wrote: Yes, the methyl B12 shots definitely helped both my kids' language, much more than fish oil did. I would follow the Neubrander protocol and not add in folinic or NAC (give folinic orally at the same time though). These were/are a great thing for us. Some can get the same benefit from methyl B12 nasal spray but not all - my son still needs the shots. > > I know fish oils is used widely to help kids with their speech, but > has anyone tried anything else such as B12 shots? Or even B12 > capsules. Anything besides fish oils? > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 If fish oils work, which with the right formula they do for almost all in this group, you may not need to do anything else. Many here have tried carn-aware and/or carnosine (not carnotine even though a few have used that too) at some point and that's not as consistent but works well for some too. Most don't continue to use it as they do with fish oils. Things like Epsom Salt baths and other benign things such as that many in this group have tried too even though that's not a supplement of course. But diet is. Not that it 'has' to be a special diet but try to limit the " bad " fats like fried foods while exploring fish oils at first. Too many " kids meals " everywhere include things like deep fried chicken fingers, fries etc. Tonight my son Tanner ate tuna and clams. I know fresh seafood isn't the best either due to toxins in the water -but my boys love seafood (and Tanner especially loves all veggies) Many also explore alternative therapies in addition to traditional speech and occupational therapy. The brain responds to multiple stimuli and multisensory approaches to therapy and education are the best. If fish oils alone do not " work " you can try other biomedical approaches and there are many here who can explain more. In this group are those who have explored the B12 shots. My elderly Aunt loves them but I myself never read enough positive results with the children here to feel compelled to try it with either of my boys. I asked them if they wanted to try it and both said no. As I always say however, if my boys were not doing as well as they were doing I would certainly not hesitate to explore more than fish oil and Flintstones complete! Tanner's page (3rd grade mainstream doing amazing!!) http://www.cherab.org/information/familiesrelate/letter.html Dakota page (6th grade mainstream doing amazing!!) http://www.cherab.org/information/familiesrelate/workandfamily.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Shots are given because the yeast takes all the B12. It is needed for many functions in the body including utilizing fat. Try Dr. Neubrander's site. He is the one who developed this protocol. http://www.drneubrander.com/page2.html M [ ] B12 shots In less than 3 weeks my son has his DAN appointment to begin B12 shots. His main problem is being non-verbal and that is why our DAN is recommending the shots. I'm just wondering what is it about the B12 vitamin that kick starts someone's speech? I have heard about children that were non-verbal and then after 3 shots or so, they begin to talk. Also, if anyone has any good sites or stories about the B12 shots I would appreciate it if you could pass them on to me. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Hi, I don't post here often, but just go to Dr. Neubrander's web site, www.drneubrander.com He has videos of kids, papers describing why it works, etc. Judy > > In less than 3 weeks my son has his DAN appointment to begin B12 > shots. His main problem is being non-verbal and that is why our DAN is > recommending the shots. I'm just wondering what is it about the B12 > vitamin that kick starts someone's speech? I have heard about children > that were non-verbal and then after 3 shots or so, they begin to talk. > Also, if anyone has any good sites or stories about the B12 shots I > would appreciate it if you could pass them on to me. > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 > I'm supposed to take them weekly, did for the first month and was > always so sore the next day from cleaning that I slacked off some. I wondered about that, if you paid for it the next day. Does you rh give them to you? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 Hi I took B12 injectable's for several years- still do when severe fatigue hits .... We combined w/ thiamine. 1 cc of each 1x a week. Dr gave rx for med and needles. It's reasonably cheap, ya give to yourself or someone else can. Have link for instructions on how to if ya need them. Most of the time I find sublingual B-12 works well also. K in FL -- [ ] b12 shots > I'm supposed to take them weekly, did for the first month and was > always so sore the next day from cleaning that I slacked off some. I wondered about that, if you paid for it the next day. Does you rh give them to you? Quote Link to comment Share on other sites More sharing options...
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