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Dear Courage,

Please accept my deepest condolences.You were a true fighter for your dear

mom and you should never feel bad for anything.Your mom is in so much better of

a place now.Im not sure why so many wonderful people have to suffer through this

disease but I know for a fact you did all you could possibly do over the years

to ease your moms suffering all that you could.Im hugging you in my heart dear

friend.Ron

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support †" it means so much to

me.

> Courage

>

>

>

>

>

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Dear Courage,

Please accept my deepest condolences.You were a true fighter for your dear

mom and you should never feel bad for anything.Your mom is in so much better of

a place now.Im not sure why so many wonderful people have to suffer through this

disease but I know for a fact you did all you could possibly do over the years

to ease your moms suffering all that you could.Im hugging you in my heart dear

friend.Ron

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support †" it means so much to

me.

> Courage

>

>

>

>

>

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Courage,

My deepest condolences to you and your family on your sad loss. I am grateful

that her passing was peaceful and that your daughter could be with your mom.

Robin

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support †" it means so much to

me.

> Courage

>

>

>

>

>

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Courage,  very sorry to hear you have lost your mother. she is at peace now,

free from the horrible LBD. you will need to mourn and get some needed rest

also.  my mom passed in 2008 and i still think of her often, usually all the

happiness she brought my way. she is not gone, she is happier now with my dad in

heaven.     (wife Kay, 59-possible LBD)

Subject: Re: My mom, Olivia, passed away

To: LBDcaregivers

Date: Saturday, February 11, 2012, 10:48 AM

 

Dear Courage,

Please accept my deepest condolences.You were a true fighter for your dear mom

and you should never feel bad for anything.Your mom is in so much better of a

place now.Im not sure why so many wonderful people have to suffer through this

disease but I know for a fact you did all you could possibly do over the years

to ease your moms suffering all that you could.Im hugging you in my heart dear

friend.Ron

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my

poor mother had to suffer from this disease and for so long. LBD may have gotten

my mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t

have her anymore.

>

> I want to thank you all so very much for your support †" it means so much

to me.

> Courage

>

>

>

>

>

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Share on other sites

I am so sorry for your loss, Courage...

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support – it means so much to

me.

> Courage

--

His,

Sherry

daughter/guardian of , dx 4/09 with LBD, living in a nearby NH

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Oh Courage -- I'm so sorry to hear about your mom. Please accept my deepest

condolences.

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support †" it means so much to

me.

> Courage

>

>

>

>

>

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Share on other sites

Dear Courage,

My deep and sincere condolences on your Mom's passing. My Mom has been fighting

this for about 12 years now, and I feel the same way - she is making LBD wait.

She is a fighter, just like your Mom. I'm glad that your Mom wasn't alone, and

had the comfort of her granddaughter nearby.

Sending you love and strength in this very difficult time,

Helene

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support †" it means so much to

me.

> Courage

>

>

>

>

>

Link to comment
Share on other sites

Dear Courage,

My deep and sincere condolences on your Mom's passing. My Mom has been fighting

this for about 12 years now, and I feel the same way - she is making LBD wait.

She is a fighter, just like your Mom. I'm glad that your Mom wasn't alone, and

had the comfort of her granddaughter nearby.

Sending you love and strength in this very difficult time,

Helene

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support †" it means so much to

me.

> Courage

>

>

>

>

>

Link to comment
Share on other sites

Dear Courage,

My deep and sincere condolences on your Mom's passing. My Mom has been fighting

this for about 12 years now, and I feel the same way - she is making LBD wait.

She is a fighter, just like your Mom. I'm glad that your Mom wasn't alone, and

had the comfort of her granddaughter nearby.

Sending you love and strength in this very difficult time,

Helene

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support †" it means so much to

me.

> Courage

>

>

>

>

>

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Share on other sites

You have my sincere sympathy on the loss of your dear Mother.  I can truly

understand the deep sadness you are feeling as I lost my dear Mother to this

awful Disease just 3 wks ago.  May God Bless you and bring peace to you

and your grandchildren and family during this difficult time.  

 

Patti N, dtr of Pat passed away with LBD, Jan 24, 2012. 

________________________________

Sent: Saturday, February 11, 2012 7:47 PM

Subject: Re: My mom, Olivia, passed away

 

I am so sorry for your loss, Courage...

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support – it means so much to

me.

> Courage

--

His,

Sherry

daughter/guardian of , dx 4/09 with LBD, living in a nearby NH

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You have my sincere sympathy on the loss of your dear Mother.  I can truly

understand the deep sadness you are feeling as I lost my dear Mother to this

awful Disease just 3 wks ago.  May God Bless you and bring peace to you

and your grandchildren and family during this difficult time.  

 

Patti N, dtr of Pat passed away with LBD, Jan 24, 2012. 

________________________________

Sent: Saturday, February 11, 2012 7:47 PM

Subject: Re: My mom, Olivia, passed away

 

I am so sorry for your loss, Courage...

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support – it means so much to

me.

> Courage

--

His,

Sherry

daughter/guardian of , dx 4/09 with LBD, living in a nearby NH

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I am so sorry for your loss. I lost my husband on Memorial Day and my mother on

Thanksgiving Day both last year. The loss of a mother is a terribly hard loss

to manage. You were a good daughter. Take comfort in that and comfort in

knowing that she does not have to suffer from this terrible disease any longer.

She is free. Take care, Nan

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support †" it means so much to

me.

> Courage

>

>

>

>

>

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Share on other sites

Dear Courage,

So sorry to hear of your mom's passing. God bless her for all the years

she battled this horrible disease and God bless you for all you've done.

May the days ahead bring you peace.

Marcie

_____

From: LBDcaregivers [mailto:LBDcaregivers ]

On Behalf Of gaat

Sent: Saturday, February 11, 2012 12:48 PM

To: LBDcaregivers

Subject: My mom, Olivia, passed away

My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was

with her and mom loved her grand-daughter best of all. I'm so very proud of

my daughter for being there for her beloved grand-mother.

We are all heartbroken, of course, and I'm left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten

my mom but she made LBD wait. Mom was one tough cookie and put up a good

fight. I'm so grateful that her passing was peaceful and that LBD can't have

her anymore.

I want to thank you all so very much for your support - it means so much to

me.

Courage

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Dear Courage,

So sorry to hear of your mom's passing. God bless her for all the years

she battled this horrible disease and God bless you for all you've done.

May the days ahead bring you peace.

Marcie

_____

From: LBDcaregivers [mailto:LBDcaregivers ]

On Behalf Of gaat

Sent: Saturday, February 11, 2012 12:48 PM

To: LBDcaregivers

Subject: My mom, Olivia, passed away

My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was

with her and mom loved her grand-daughter best of all. I'm so very proud of

my daughter for being there for her beloved grand-mother.

We are all heartbroken, of course, and I'm left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten

my mom but she made LBD wait. Mom was one tough cookie and put up a good

fight. I'm so grateful that her passing was peaceful and that LBD can't have

her anymore.

I want to thank you all so very much for your support - it means so much to

me.

Courage

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Dear Courage,

My condolances on the passing of your dear Mother. She is free of LBD at

last.

God bless you and your family in this time of sorrow.

Pat M.

Wife/caregiver of Bob 75, dx PD 2003, LBD 2009, now in rehab post hip

replacement surgery 01/09/12

> **

>

>

> Dear Courage,

>

> So sorry to hear of your mom's passing. God bless her for all the years

> she battled this horrible disease and God bless you for all you've done.

>

> May the days ahead bring you peace.

>

> Marcie

>

> _____

>

> From: LBDcaregivers [mailto:LBDcaregivers ]

> On Behalf Of gaat

> Sent: Saturday, February 11, 2012 12:48 PM

> To: LBDcaregivers

> Subject: My mom, Olivia, passed away

>

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

> months shy of her 76th birthday. I missed her passing by a few minutes and

> I

> feel badly about that. Thankfully my daughter (her first grand-child) was

> with her and mom loved her grand-daughter best of all. I'm so very proud of

> my daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I'm left here wondering why my poor

> mother had to suffer from this disease and for so long. LBD may have gotten

> my mom but she made LBD wait. Mom was one tough cookie and put up a good

> fight. I'm so grateful that her passing was peaceful and that LBD can't

> have

> her anymore.

>

> I want to thank you all so very much for your support - it means so much to

> me.

> Courage

>

>

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Courage-

We have traveled this journey with you for a few years and our hearts are

feeling your loss. Please accept our condolences on your mom's passing. So

very pleased was with her grandmother. I believe it was meant to be

that way.

May you find peace and comfort in the days ahead.

Big hugs-

Sandie and

----- My mom, Olivia, passed away

Date: Sat, 11 Feb 2012 12:47:31 -0500

My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I & rsquo;m so very proud of my

daughter for being there for her beloved grand-mother.

We are all heartbroken, of course, and I & rsquo;m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I & rsquo;m so grateful that her passing was peaceful and that LBD can & rsquo;t

have her anymore.

I want to thank you all so very much for your support & ndash; it means so much

to me.

Courage

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Courage-

We have traveled this journey with you for a few years and our hearts are

feeling your loss. Please accept our condolences on your mom's passing. So

very pleased was with her grandmother. I believe it was meant to be

that way.

May you find peace and comfort in the days ahead.

Big hugs-

Sandie and

----- My mom, Olivia, passed away

Date: Sat, 11 Feb 2012 12:47:31 -0500

My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I & rsquo;m so very proud of my

daughter for being there for her beloved grand-mother.

We are all heartbroken, of course, and I & rsquo;m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I & rsquo;m so grateful that her passing was peaceful and that LBD can & rsquo;t

have her anymore.

I want to thank you all so very much for your support & ndash; it means so much

to me.

Courage

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Courage,

I am so sorry to hear of your Mother's passing. Thankfully she cast off the

spectre of Lewy forever.  I am sure she is so very thankful for all the support

and care you provided for so long a period. There is no doubt, she passed along

her " tough cookie " gene to you.

I wish you and your family peace.

God Bless.

 

Jeff 

When you feel like giving up, remember why you held on for so long in the first

place. " ~ Unknown

>________________________________

>

>To: LBDcaregivers

>Sent: Saturday, February 11, 2012 12:47 PM

>Subject: My mom, Olivia, passed away

>

>

> 

>My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

>We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

>I want to thank you all so very much for your support – it means so much to

me.

>Courage

>

>

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Share on other sites

Courage,

I am so sorry to hear of your Mother's passing. Thankfully she cast off the

spectre of Lewy forever.  I am sure she is so very thankful for all the support

and care you provided for so long a period. There is no doubt, she passed along

her " tough cookie " gene to you.

I wish you and your family peace.

God Bless.

 

Jeff 

When you feel like giving up, remember why you held on for so long in the first

place. " ~ Unknown

>________________________________

>

>To: LBDcaregivers

>Sent: Saturday, February 11, 2012 12:47 PM

>Subject: My mom, Olivia, passed away

>

>

> 

>My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

>We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

>I want to thank you all so very much for your support – it means so much to

me.

>Courage

>

>

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Share on other sites

Dear Courage,

Contrary to the length of time your mother had to fend off LBD her passing

thankfully seemed to come fairly quickly and peacefully. You have been an

anchor here. I do hope you will be able to continue and get support through

remaining with us. Now it is time to throw off the weight of caregiver and

discover who else you can be. It takes time of course and I wish you well as

you enter the emotional ride of life after Lewy.

(((hugs))

>

> My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

>

> We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

>

> I want to thank you all so very much for your support †" it means so much to

me.

> Courage

>

>

>

>

>

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Dear Courage,

My condolences to you and yours.  Your Mom did put up a real fight. I remember

all the rides you took her on in her wheelchair. I am sure you are going to

miss her.  I am glad your daughter could be with her at the end.  

Hugs,

Donna R   

My mom, Olivia, passed away

 

My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday. I missed her passing by a few minutes and I

feel badly about that. Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all. I’m so very proud of my

daughter for being there for her beloved grand-mother.

We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long. LBD may have gotten my

mom but she made LBD wait. Mom was one tough cookie and put up a good fight.

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore.

I want to thank you all so very much for your support – it means so much to

me.

Courage

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Courage: You have been such a great support for so many of us through the

years, and we thank you for that. Now is your time to grieve and look back

at all you have been through. You certainly should have no regrets as you

have always been there for your mother in her battle with LBD. But as with

most of us, you may think that there is more you should have been able to

do. Please do not kick yourself. You did the best you could and probably

more. Why, goodness, you even raised your daughter to be the kind of

granddaughter who steps up when needed!! You did it. So try to be grateful

for the years you had your mother with you and that the struggle for quality

of life with LBD was waged by you together. She is at peace now and you

will be able to recall the happier times soon and feel the warmth of her

love always.

My daughter went to a Psychic. He said you have regrets about your father's

passing? She said yes. " you weren't there? You weren't supposed to be. He

didn't want you there. He wouldn't have passed if you had been there,

knowing what it would do to you. The others could take it, you wouldn't have

been able to. " So it is with you perhaps. It is the way your mother wanted

it. Please accept my thoughts and prayers for you and your family. I hope

the time ahead that you will find peace as well. Leona

Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

2009. I am handling it OK.

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Courage: You have been such a great support for so many of us through the

years, and we thank you for that. Now is your time to grieve and look back

at all you have been through. You certainly should have no regrets as you

have always been there for your mother in her battle with LBD. But as with

most of us, you may think that there is more you should have been able to

do. Please do not kick yourself. You did the best you could and probably

more. Why, goodness, you even raised your daughter to be the kind of

granddaughter who steps up when needed!! You did it. So try to be grateful

for the years you had your mother with you and that the struggle for quality

of life with LBD was waged by you together. She is at peace now and you

will be able to recall the happier times soon and feel the warmth of her

love always.

My daughter went to a Psychic. He said you have regrets about your father's

passing? She said yes. " you weren't there? You weren't supposed to be. He

didn't want you there. He wouldn't have passed if you had been there,

knowing what it would do to you. The others could take it, you wouldn't have

been able to. " So it is with you perhaps. It is the way your mother wanted

it. Please accept my thoughts and prayers for you and your family. I hope

the time ahead that you will find peace as well. Leona

Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

2009. I am handling it OK.

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Courage,

My thoughts and prayers are with you and your family during this difficult

time.

I rejoice that your mother no longer has to struggle with LBD, but understand

the pain of losing a loved one.

Courage, you were on this site when I first appeared in 2003 with my woes of

coping with LBD and my husband's behaviors. Your suggestions and advice helped

me through the hard times and helped me make decisions on what path to take for

Jim's and my well-being. Thank you for being here!

Your mother was truly fortunate in having you for a daughter to help her with

the struggles of this dreaded disease. I am glad that your daughter could be

with her grandmother at the end.

My condolences to all of you. Peace be with you.

It is time for you now Courage.

Take Care,

Jan Colello

 

________________________________

To: LBDcaregivers

Sent: Saturday, February 11, 2012 9:47 AM

Subject: My mom, Olivia, passed away

My mom passed away peacefully a little before 6:30 this morning, exactly 2

months shy of her 76th birthday.  I missed her passing by a few minutes and I

feel badly about that.  Thankfully my daughter (her first grand-child) was with

her and mom loved her grand-daughter best of all.  I’m so very proud of my

daughter for being there for her beloved grand-mother.

We are all heartbroken, of course, and I’m left here wondering why my poor

mother had to suffer from this disease and for so long.  LBD may have gotten my

mom but she made LBD wait.  Mom was one tough cookie and put up a good fight. 

I’m so grateful that her passing was peaceful and that LBD can’t have her

anymore. 

I want to thank you all so very much for your support – it means so much to

me.

Courage

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Dear Courage

I feel so sad for you that your mother has died and that you were not able

to be with her at that time. That must be very hard for you to come to terms

with but I pray that you will ultimately have peace about that. I am so glad

that she did not die alone. How wonderful that your daughter could be with

her. I'm sure will be a great source of comfort to you as you grieve

your dear mum's death.

Take care and be gentle with yourself and be comforted by the fact that you

did so much for your mum.

As awful as LBD is, I think we can thank LBD for giving us the opportunity

to discover the inner strength and resilience that we would probably not

have discovered otherwise.

Elaine from Sydney Australia

Carer for four years for husband Jim who died peacefully in hospital on 12th

February 2011.

Brain analysis, as a result of brain donation, has now confirmed the

diagnosis of Diffuse Lewy Body Disease

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