Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 I have been on it for 1o months, the only reaction I have is weight gain, and my hair is falling out more... Kerry [ ] hello I'm scared... I just found out that I have RA. I'm in pain most of the time. I have it in my feet, ankles, knees, elbows, shoulders, wrists & hands. The thing I'm scared of is the meds the Doctors want to put me on. the first one is Prednizone. I have to take 4 pills the first 3 days, then 3 the next 3 days, then 2 then so on. The next med they want me on is Methotrexate. this stuff scares me. The Prednizone scares me because My son had a really bad reaction to it when he was little. I guess I have a question: does everyone who takes prednizone have a bad reaction to it? I know everyone doesn`t have a bad reaction to it I'm just scared. thank for being here Marie Homan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Hi , I understand how scary it is to start taking all the drugs that they give you in the begining of treatment. Prednisone is what a lot of people take. I am sure that some people will get a reaction but that is not the norm. It will make you crabby and if you can keep that under controll you should be ok. Methotrexate mostly causes problems with nausea and hair loss. Make sure that you are taking Folic Acid your doc should give you a script for it. I think the meds are the only thing that makes it so I can walk or use my arms. Do not go on hear say or someone elses word, just trust in your doc. You will know if it is the wrong drug for you. The only drug that I have had trouble with is Orencia and I could tell that something was wrong the first time I took it. I did take it one more time to see if I still felt as bad. I did and I called the doc and he changed it right away. You should talk to your doc about the biological drugs just in case the others don't take away all of your pain. Make sure that you get some pain meds as you will (even with all the drugs) still have some pain on a daily basis. Sorry for the long note. Hope things go well for you. Have a less pain day. Betty Marie Homan <marieannett2269@...> wrote: I just found out that I have RA. I'm in pain most of the time. I have it in my feet, ankles, knees, elbows, shoulders, wrists & hands. The thing I'm scared of is the meds the Doctors want to put me on. the first one is Prednizone. I have to take 4 pills the first 3 days, then 3 the next 3 days, then 2 then so on. The next med they want me on is Methotrexate. this stuff scares me. The Prednizone scares me because My son had a really bad reaction to it when he was little. I guess I have a question: does everyone who takes prednizone have a bad reaction to it? I know everyone doesn`t have a bad reaction to it I'm just scared. thank for being here Marie Homan --------------------------------- Check out the hottest 2008 models today at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 ----- Original Message ----- From: " Marie Homan " <marieannett2269@...> >I guess I > have a question: does everyone who takes prednizone have a bad > reaction to it? I know everyone doesn`t have a bad reaction to it I don't have a " bad " reaction to it, don't get cranky or anything like that. It does make my anxiety a little worse, but I've definitely noticed the longer I'm on it (I'm currently on over 3 months for my asthma), the more that side effect is lessening. I also have more problems sleeping, but again, the longer I'm on it, the less issues I have with that. The only other thing it does to me as make my feet feel like they are burning, but again, that side effect is lessening too. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Hello all, I have had rheumatoid since I was 13 and am now 55. I've been on prednizone and all it does is make me munchie and mean. Or so my db says. When I told the Rheumy that my hubby said I could live with the Doc when he puts me on the stuff now they just inject the site. Prednizone really doesn't do me a lot of good. The methotrexate isn't too bad. Just make sure you do get your blood tests. I am also on enbrel. As with most autoimmune diseases we all have flares, diamond days and coal days. Just keep on keeping on... It is ok to be scared. This is a scarey time. My biggest battle was asking for help from family and friends. MJ - In , " Marie Homan " <marieannett2269@...> wrote: > > I just found out that I have RA. I'm in pain most of the time. I have > it in my feet, ankles, knees, elbows, shoulders, wrists & hands. The > thing I'm scared of is the meds the Doctors want to put me on. the > first one is Prednizone. I have to take 4 pills the first 3 days, then > 3 the next 3 days, then 2 then so on. The next med they want me on is > Methotrexate. this stuff scares me. The Prednizone scares me because > My son had a really bad reaction to it when he was little. I guess I > have a question: does everyone who takes prednizone have a bad > reaction to it? I know everyone doesn`t have a bad reaction to it I'm > just scared. > thank for being here > Marie Homan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Marie, I know what you mean. I have a woman Rheumatologist. She has helped me so much. She only gave me one shot and then put me on Plaquenil (not sure how to spell it) and Celebrex. In one month the pain had ceased. Hopefully it will stay in remission for now as my husband is on Hospice for COPD and I have to care for him. Lydia [ ] hello I'm scared... I just found out that I have RA. I'm in pain most of the time. I have it in my feet, ankles, knees, elbows, shoulders, wrists & hands. The thing I'm scared of is the meds the Doctors want to put me on. the first one is Prednizone. I have to take 4 pills the first 3 days, then 3 the next 3 days, then 2 then so on. The next med they want me on is Methotrexate. this stuff scares me. The Prednizone scares me because My son had a really bad reaction to it when he was little. I guess I have a question: does everyone who takes prednizone have a bad reaction to it? I know everyone doesn`t have a bad reaction to it I'm just scared. thank for being here Marie Homan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 -thank you, I hope everything turns out ok for you & your husband-- In , <lydiaford@...> wrote: > > Marie, > > I know what you mean. I have a woman Rheumatologist. She has helped me so much. She only gave me one shot and then put me on Plaquenil (not sure how to spell it) and Celebrex. In one month the pain had ceased. Hopefully it will stay in remission for now as my husband is on Hospice for COPD and I have to care for him. > > Lydia > [ ] hello I'm scared... > > > I just found out that I have RA. I'm in pain most of the time. I have > it in my feet, ankles, knees, elbows, shoulders, wrists & hands. The > thing I'm scared of is the meds the Doctors want to put me on. the > first one is Prednizone. I have to take 4 pills the first 3 days, then > 3 the next 3 days, then 2 then so on. The next med they want me on is > Methotrexate. this stuff scares me. The Prednizone scares me because > My son had a really bad reaction to it when he was little. I guess I > have a question: does everyone who takes prednizone have a bad > reaction to it? I know everyone doesn`t have a bad reaction to it I'm > just scared. > thank for being here > Marie Homan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Marie, I know I was a wreak when I found out I had RA. I was 24 and it took months before I got a final diagnosis. Just remember, stress can make you flare up...I know it does for me. Your husband will be in my prayers. > > Marie, > > I know what you mean. I have a woman Rheumatologist. She has helped me so much. She only gave me one shot and then put me on Plaquenil (not sure how to spell it) and Celebrex. In one month the pain had ceased. Hopefully it will stay in remission for now as my husband is on Hospice for COPD and I have to care for him. > > Lydia > [ ] hello I'm scared... > > > I just found out that I have RA. I'm in pain most of the time. I have > it in my feet, ankles, knees, elbows, shoulders, wrists & hands. The > thing I'm scared of is the meds the Doctors want to put me on. the > first one is Prednizone. I have to take 4 pills the first 3 days, then > 3 the next 3 days, then 2 then so on. The next med they want me on is > Methotrexate. this stuff scares me. The Prednizone scares me because > My son had a really bad reaction to it when he was little. I guess I > have a question: does everyone who takes prednizone have a bad > reaction to it? I know everyone doesn`t have a bad reaction to it I'm > just scared. > thank for being here > Marie Homan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Marie, I've been taking 10mg of Prednisone every day for more than 15 years. I did have to adjust my eating 'habits' and a couple of other adjustments, but that's all. I've also been on MTX for the same time, with it rising from 3 pills a week to 1.2cc injections every week. I do my own injections and have had no problems with this med, either. Blood tests are an important part of your life now, so don't go more than 2 months without a test, problems can sneak up on you if you don't. It's not that bad, you just have to get used to it. We all have to... Dennis in eastexas [ ] hello I'm scared... >I just found out that I have RA. I'm in pain most of the time. I have > it in my feet, ankles, knees, elbows, shoulders, wrists & hands. The > thing I'm scared of is the meds the Doctors want to put me on. the > first one is Prednizone. I have to take 4 pills the first 3 days, then > 3 the next 3 days, then 2 then so on. The next med they want me on is > Methotrexate. this stuff scares me. The Prednizone scares me because > My son had a really bad reaction to it when he was little. I guess I > have a question: does everyone who takes prednizone have a bad > reaction to it? I know everyone doesn`t have a bad reaction to it I'm > just scared. > thank for being here > Marie Homan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Welcome, Marie. It's normal to feel anxious, but try not to worry. Not everyone will experience serious side effects from prednisone, especially short-term, but its use long-term for the treatment of RA is controversial. It is an excellent agent to bring down inflammation levels quickly, but, due to the risk of serious side effects when used every day for years, many physicians will advise using prednisone only for short periods of time - e.g., while you wait for disease-modifying antirheumatic drugs (DMARDs) like methotrexate (MTX) to kick in. Prednisone is also very useful for controlling disease flares. Complicating the issue is that prednisone may be very difficult to discontinue after it is used daily for an extended period. MTX is one of the most effective DMARDs available. Statistically speaking, untreated or undertreated RA is much more of a risk to your well-being than MTX. Not an MD [ ] hello I'm scared... >I just found out that I have RA. I'm in pain most of the time. I have > it in my feet, ankles, knees, elbows, shoulders, wrists & hands. The > thing I'm scared of is the meds the Doctors want to put me on. the > first one is Prednizone. I have to take 4 pills the first 3 days, then > 3 the next 3 days, then 2 then so on. The next med they want me on is > Methotrexate. this stuff scares me. The Prednizone scares me because > My son had a really bad reaction to it when he was little. I guess I > have a question: does everyone who takes prednizone have a bad > reaction to it? I know everyone doesn`t have a bad reaction to it I'm > just scared. > thank for being here > Marie Homan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Hi Marie! Welcome and big hugs. The first few months after diagnosis are really tough. It will get better, I promise. It sounds like your doc wants to put you on a dose pack of prednisone which is a short-term intervention until he/she gets you up and running on mtx. Sure, side effects can be scary, but remember that if you have side effects, you and your doc will work together to adjust your medication. I've taken both dose packs of steriods and daily steriods. I've been on low-dose prednisone since last Nov, only because I'm trying to get pregnant and I can't take mtx. Once I'm able to have a baby, I expect I'll take my antiTNF along with mtx and be able to say goodbye to steriods. Hang in there. It's a whole new world in the treatment of RA. You have options and you will feel better. Kate F [ ] hello I'm scared... >I just found out that I have RA. I'm in pain most of the time. I have > it in my feet, ankles, knees, elbows, shoulders, wrists & hands. The > thing I'm scared of is the meds the Doctors want to put me on. the > first one is Prednizone. I have to take 4 pills the first 3 days, then > 3 the next 3 days, then 2 then so on. The next med they want me on is > Methotrexate. this stuff scares me. The Prednizone scares me because > My son had a really bad reaction to it when he was little. I guess I > have a question: does everyone who takes prednizone have a bad > reaction to it? I know everyone doesn`t have a bad reaction to it I'm > just scared. > thank for being here > Marie Homan ________________________________________________________________________________\ ____ Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. http://tv./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2007 Report Share Posted October 16, 2007 Hi Marie, When I take prednisone I get very depressed. It also makes me eat like a hog...LOL. Right now I am not taking anything but I have to say, when I do go on it, it puts my Ra into remission. Corinne catstamp wrote: > > > ----- Original Message ----- > From: " Marie Homan " <marieannett2269@... > <mailto:marieannett2269%40>> > >I guess I > > have a question: does everyone who takes prednizone have a bad > > reaction to it? I know everyone doesn`t have a bad reaction to it > > I don't have a " bad " reaction to it, don't get cranky or anything like > that. > It does make my anxiety a little worse, but I've definitely noticed the > longer I'm on it (I'm currently on over 3 months for my asthma), the more > that side effect is lessening. I also have more problems sleeping, but > again, the longer I'm on it, the less issues I have with that. The only > other thing it does to me as make my feet feel like they are burning, but > again, that side effect is lessening too. > Darcy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Hi all My Mom has FM, Osteoarthritis & Polymyalgia Rheumatica. She's been on prednisone for about 5 years for the FM. She was on 5mg a day and with the doctor monitoring her she has now gone to 2mg a day. She will have to stay on it as she can't take an anti-inflammatories because of the aspirin base. Her doctor attended a conference and spoke about the benefits of low dose prednisone for those that can't use aspirin and other medications. She tried weaning off but she was in too much pain, couldn't lift her arms and quality of life was poor. She is now 72 and has had a bone density exam for checking for bone loss due to the prednisone, it is very minimal. She also takes a calcium replacement supplement (can't think of name) that goes along with her pred, prescribed. She gardens (smaller yard & mostly flower beds), takes her doggies out in back yard a few times for their nature calls, a few steps, for exercise. She does her housework & cooks. I live in a basement suite with my parents, I have Lupus. It may sound weird, but for all women out there, my mom stopped wearing a bra years ago! She was a secretary & her rib cage would be in pain & she'd have to undo her bra at work. Think of tight clothing as pressure on tender points, that includes, nylons, socks, underwear and bras. If I have elastic waist bands in my pants or shorts I cut them and wear a shirt over top, so does my mom. Another thought, why is there so much breast cancer these days? Many factors I'm sure, but the bra does close us off from proper circulation. I only wear one when exercising or for special occasions. There are lots of nice sports bras or camisoles that can be worn without pain. Who decided women needed to wear a bra? We managed without them years ago, now it's a society thing, like pointy highheels! a Canada --------------------------------- Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2007 Report Share Posted October 18, 2007 It was , the aircraft designer and eccentric millionaire who designed/engineered the modern women's bra, so that their breasts, like their shoes, would be all pointy and stick straight out way up high. Supporting the weight of the breasts in such an unnatural position with a truss (another description of a bra) by transferring the weight to the rib cage restricts/cuts off the flow of lymph which often contributes to or causes cancer. Beauty has its price. Personally, I have always felt women looked better without them. S A <scooter4smile@...> wrote: Hi all My Mom has FM, Osteoarthritis & Polymyalgia Rheumatica. She's been on prednisone for about 5 years for the FM. She was on 5mg a day and with the doctor monitoring her she has now gone to 2mg a day. She will have to stay on it as she can't take an anti-inflammatories because of the aspirin base. Her doctor attended a conference and spoke about the benefits of low dose prednisone for those that can't use aspirin and other medications. She tried weaning off but she was in too much pain, couldn't lift her arms and quality of life was poor. She is now 72 and has had a bone density exam for checking for bone loss due to the prednisone, it is very minimal. She also takes a calcium replacement supplement (can't think of name) that goes along with her pred, prescribed. She gardens (smaller yard & mostly flower beds), takes her doggies out in back yard a few times for their nature calls, a few steps, for exercise. She does her housework & cooks. I live in a basement suite with my parents, I have Lupus. It may sound weird, but for all women out there, my mom stopped wearing a bra years ago! She was a secretary & her rib cage would be in pain & she'd have to undo her bra at work. Think of tight clothing as pressure on tender points, that includes, nylons, socks, underwear and bras. If I have elastic waist bands in my pants or shorts I cut them and wear a shirt over top, so does my mom. Another thought, why is there so much breast cancer these days? Many factors I'm sure, but the bra does close us off from proper circulation. I only wear one when exercising or for special occasions. There are lots of nice sports bras or camisoles that can be worn without pain. Who decided women needed to wear a bra? We managed without them years ago, now it's a society thing, like pointy highheels! a Canada --------------------------------- Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
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