Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Ruth, That is wonderful news!!!! I've seen too much to ever doubt the power of prayer! God bless all of you! Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Ruth, That is wonderful news!!!! I've seen too much to ever doubt the power of prayer! God bless all of you! Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Ruth Rest assured prayers will keep coming your way. Its so great to here is doing better. When will he be able to get back on the computer? I miss our chats from instant messages. Hillbillybob psc dx 96 > Hello, > > Just wanted you all to know that the nation wide > prayers have done more than I even asked for at this > point. We now are not going to have any surgery on the > lung since the fluid is finally decreasing on it's > own. Still an occasional fever so they might need to > check the liver again, they know there are still some > lesions or infection still there, but overall, a much > better report than last week. Now, if he can just get > some energy and get back to walking and eating. > > Thanks, > ruth > > _____________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Ruth Rest assured prayers will keep coming your way. Its so great to here is doing better. When will he be able to get back on the computer? I miss our chats from instant messages. Hillbillybob psc dx 96 > Hello, > > Just wanted you all to know that the nation wide > prayers have done more than I even asked for at this > point. We now are not going to have any surgery on the > lung since the fluid is finally decreasing on it's > own. Still an occasional fever so they might need to > check the liver again, they know there are still some > lesions or infection still there, but overall, a much > better report than last week. Now, if he can just get > some energy and get back to walking and eating. > > Thanks, > ruth > > _____________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Ruth Rest assured prayers will keep coming your way. Its so great to here is doing better. When will he be able to get back on the computer? I miss our chats from instant messages. Hillbillybob psc dx 96 > Hello, > > Just wanted you all to know that the nation wide > prayers have done more than I even asked for at this > point. We now are not going to have any surgery on the > lung since the fluid is finally decreasing on it's > own. Still an occasional fever so they might need to > check the liver again, they know there are still some > lesions or infection still there, but overall, a much > better report than last week. Now, if he can just get > some energy and get back to walking and eating. > > Thanks, > ruth > > _____________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 -Ruth, I am so happy things are going much better for . I bet he will make a speedier recovery at home. Cause there is no place like home and being in his own bed will do wonders for him. Please keep us posted. God Bless! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 -Ruth, I am so happy things are going much better for . I bet he will make a speedier recovery at home. Cause there is no place like home and being in his own bed will do wonders for him. Please keep us posted. God Bless! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Did I mention that we brought Mr. home yesterday??????? That is wonderful news! Does he have an appetite? If he does it shouldn't be hard to get some weight back on him and build up his strength. After my ileostomy surgery when I was 18, I came home very weak after having lost lots of weight. I craved orange sherbet and milk shakes. It didn't take long to get a few pounds back. Ruth, make sure you take care of yourself also - get more sleep and take some time for yourself please. Blessings, Barby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Thats good news!! Bon Appetite . Our choir is still praying especially for him. Peg __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 WHOO HOO! Go ! Home must feel like heaven for both of you. Drink lots of water and wash all those toxins out, eat your veggies, etc.etc. OK I won't preach. I am just so darn happy for both of you! What an awesome thing to read first thing on the national day of PRAYER. It gives me chills :-) Love, Faith ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2002 Report Share Posted May 15, 2002 Ruth, I see that the rollercoaster ride is still in motion. I have to say I admire you and how you get through all of this. Watching a sick child is one of the worst things a mother can go through. I can attest to what the nurses are saying about . When I was very ill in '97 I went to work (with TPN and my nutrition running from my backpack) despite the docs telling me repeatedly to quit working. I felt like it was the last thing I had control over, besides I wasn't going out without a fight. Sorry to admit but I was 34 at the time. My mother, like you, was beside herself. Eventually though I gave in and accepted disability. , I believe, will come to terms with it eventually and will probably even appologize to his DEAR, SWEET mom! Take care and know that many people are still praying for you and ! Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2002 Report Share Posted May 15, 2002 Thanks for the update,I've been thinking about you & .I can't imagine what all you & your family has been through,but I do know you are some very brave & tough going people.I hope that I can be as brave & together as you when it's my daughter's turn.Anyhow I've been thinking about you & hope things keep stepping forward. ('s Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2002 Report Share Posted May 15, 2002 Thanks for the update,I've been thinking about you & .I can't imagine what all you & your family has been through,but I do know you are some very brave & tough going people.I hope that I can be as brave & together as you when it's my daughter's turn.Anyhow I've been thinking about you & hope things keep stepping forward. ('s Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2002 Report Share Posted May 15, 2002 Thanks for the update,I've been thinking about you & .I can't imagine what all you & your family has been through,but I do know you are some very brave & tough going people.I hope that I can be as brave & together as you when it's my daughter's turn.Anyhow I've been thinking about you & hope things keep stepping forward. ('s Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Ruth, Thank you so much for keeping us all updated on . I check the posts continuously to see how he is doing. We will keep praying for and that a new liver becomes available and he keeps his strength until then. I am sorry that he is lashing out at you. But for some reason sons seem to take it all out on " good ole mom " . I have been in the same situation with Todd. I guess they need to take their frustrations out on someone and mom seems to be the who is always there. A mom's love is so unconditional and although we don't like it, we can handle it. So hang in there. We are all praying for your strength through this rough time. God Bless, Joanne (Todd's mom, 16, dx psc 12/01, crohn's 1/02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Ruth, Thank you so much for keeping us all updated on . I check the posts continuously to see how he is doing. We will keep praying for and that a new liver becomes available and he keeps his strength until then. I am sorry that he is lashing out at you. But for some reason sons seem to take it all out on " good ole mom " . I have been in the same situation with Todd. I guess they need to take their frustrations out on someone and mom seems to be the who is always there. A mom's love is so unconditional and although we don't like it, we can handle it. So hang in there. We are all praying for your strength through this rough time. God Bless, Joanne (Todd's mom, 16, dx psc 12/01, crohn's 1/02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Ruth, Hang on to your sense of humor! I often think that's it's the determining factor on whether or not we remain sane. So, rub away - it will help sedate you both. Keep smiling and know that God has a hand on you, and your lives! God bless, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Ruth, Hang on to your sense of humor! I often think that's it's the determining factor on whether or not we remain sane. So, rub away - it will help sedate you both. Keep smiling and know that God has a hand on you, and your lives! God bless, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Well Ruth, they say that the person you love the most is the one you usually lash out at...so if that is comfort, he must REALLY REALLY love you! Humor is a good thing, and if it works, sick humor or not, let it work for you. whatever it takes to get you through. You should start keeping a diary of these things and read them all back to him when he is able to understand it all. ===== in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms 2000) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Well Ruth, they say that the person you love the most is the one you usually lash out at...so if that is comfort, he must REALLY REALLY love you! Humor is a good thing, and if it works, sick humor or not, let it work for you. whatever it takes to get you through. You should start keeping a diary of these things and read them all back to him when he is able to understand it all. ===== in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms 2000) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Well Ruth, they say that the person you love the most is the one you usually lash out at...so if that is comfort, he must REALLY REALLY love you! Humor is a good thing, and if it works, sick humor or not, let it work for you. whatever it takes to get you through. You should start keeping a diary of these things and read them all back to him when he is able to understand it all. ===== in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms 2000) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 Ruth, We will continue to pray that s relentless ability to keep on jugging....keeps on jugging. Most certainly God has had his hand on Him and will continue to do so. Hugs and strength to you and your family! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 Ruth, We will continue to pray that s relentless ability to keep on jugging....keeps on jugging. Most certainly God has had his hand on Him and will continue to do so. Hugs and strength to you and your family! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2002 Report Share Posted June 26, 2002 Ruth called last night. She sounded as good as could be expected. The problem with their insurance is that had to be on the policy for 2 years before it would of paid out. He wasn’t. One thing she said that really hit home. PSC is a fatal disease. Because had his transplant they had him in their lives for 8 more months then they would have. She was also very thankful for the 3 weeks they were able to have him at home. There, they all could be with him 24/7, wait on him and love him. They are very thankful for that time alone with him. She said the service was the most beautiful she had ever seen. 300+ people came. They were really proud and thankful for all the love and support they received. She said would have loved it. Barb Quote Link to comment Share on other sites More sharing options...
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