Donna

[Guest guest]

> Hi Donna & welcome! My husband, was dx with PSC Dec '01. He

has UC & also had a JPouch created in 97. Why is yours not

successful? has to be on Flagyll or Cipro or he LIVES in the

bathroom. I love Jr high age too. I was a gr 8 Sped teacher for 22

years. Now I am a Sped chairperson. I do miss the kids.

> Nice to meet you. Kath from Mass.

Kath,

Yeah, I go too many times so that is the reason I have a failure.

Does take these antibiotics every day? Has he tried metamucil

or lomotil? I am going to give it one more shot and see this GI at

Stanford and see if she has a solution. It would be nice to reduce

this problem by half. And may I say you are a very special person to

have been a sp ed teacher for 22 years. You folks have a heart of

gold.

[Guest guest]

> Hi Donna & welcome! My husband, was dx with PSC Dec '01. He

has UC & also had a JPouch created in 97. Why is yours not

successful? has to be on Flagyll or Cipro or he LIVES in the

bathroom. I love Jr high age too. I was a gr 8 Sped teacher for 22

years. Now I am a Sped chairperson. I do miss the kids.

> Nice to meet you. Kath from Mass.

Kath,

Yeah, I go too many times so that is the reason I have a failure.

Does take these antibiotics every day? Has he tried metamucil

or lomotil? I am going to give it one more shot and see this GI at

Stanford and see if she has a solution. It would be nice to reduce

this problem by half. And may I say you are a very special person to

have been a sp ed teacher for 22 years. You folks have a heart of

gold.

[Guest guest]

Donna~

Hi! Well I am SUPPOSED to be doing some studying right now but

just dont have the motivation! That means tomorrow comes I will be

freaking out that I dont have everything done. Oh well, maybe I

will learn sometime. Things are ok though. Midterms are next week. I

took this weekend off of work so I could study for them. My friend

from Rapid wants to come and visit me. However, I think I will have

to tell her another time since I was planning on studying this

weekend for my tests. She should understand, she went to school with

me. Yes, I am back with my old rheumy. My gyno put me on birth

control to help with how the Depo shot messed me all up. I guess its

supposed to help regulate the bleeding and such. My rheumy doesnt

know yet I dont think. But my gyno had asked 3 other docs about my

situation and they all thought it was ok to do this. I think I am

only staying on this for a year until everything gets ok. I can

relate to the reading so many posts that its hard to keep track. I

have that problem as well. hehe

Work is going ok...Im still in the control room. I have been told I

have been doing a good job so far so thats good. However I am

getting a little frustrated of still being in there. I want to get on

the floor so bad.

My mom is getting temp custody of my one year old niece. So now she

is living here. Shes so cute but I dont like it when she wakes me up

on the weekends at 6 in the morning!! *grumbles*

I miss talking to you though...How are things at your end? I dont

have time to read every single post...then the days that I have SOME

time I cant go back to see some of your posts. I hope everything

is ok at your end. When do you see your rheumy again? Hows your

daughter and college? She still stressing a little?? These stupid

teachers...(no offense to any teachers here...) but it just seems

they must think that we dont have lives..or a job..Sometimes its 2 or

3 weeks before I go and see ANY of my friends cuz I am so busy.

And..not seeing any kind of friend or anything...it really gets

depressing...I see my family everyday but I miss my friends. And then

when I actually get some time to see my friends, I am too tired and

fatigued to go out. Haha, if its not one thing--its another....

Well I am going to bed now...I hope all is well at your end and that

you are pain-free...Take care! I will write again hopefully soon!!

Love,

****

[Guest guest]

Donna~

Hi! Well I am SUPPOSED to be doing some studying right now but

just dont have the motivation! That means tomorrow comes I will be

freaking out that I dont have everything done. Oh well, maybe I

will learn sometime. Things are ok though. Midterms are next week. I

took this weekend off of work so I could study for them. My friend

from Rapid wants to come and visit me. However, I think I will have

to tell her another time since I was planning on studying this

weekend for my tests. She should understand, she went to school with

me. Yes, I am back with my old rheumy. My gyno put me on birth

control to help with how the Depo shot messed me all up. I guess its

supposed to help regulate the bleeding and such. My rheumy doesnt

know yet I dont think. But my gyno had asked 3 other docs about my

situation and they all thought it was ok to do this. I think I am

only staying on this for a year until everything gets ok. I can

relate to the reading so many posts that its hard to keep track. I

have that problem as well. hehe

Work is going ok...Im still in the control room. I have been told I

have been doing a good job so far so thats good. However I am

getting a little frustrated of still being in there. I want to get on

the floor so bad.

My mom is getting temp custody of my one year old niece. So now she

is living here. Shes so cute but I dont like it when she wakes me up

on the weekends at 6 in the morning!! *grumbles*

I miss talking to you though...How are things at your end? I dont

have time to read every single post...then the days that I have SOME

time I cant go back to see some of your posts. I hope everything

is ok at your end. When do you see your rheumy again? Hows your

daughter and college? She still stressing a little?? These stupid

teachers...(no offense to any teachers here...) but it just seems

they must think that we dont have lives..or a job..Sometimes its 2 or

3 weeks before I go and see ANY of my friends cuz I am so busy.

And..not seeing any kind of friend or anything...it really gets

depressing...I see my family everyday but I miss my friends. And then

when I actually get some time to see my friends, I am too tired and

fatigued to go out. Haha, if its not one thing--its another....

Well I am going to bed now...I hope all is well at your end and that

you are pain-free...Take care! I will write again hopefully soon!!

Love,

****

[Guest guest]

OK, Romie, now I know what Broadband is. I guess I just had Disney pirates on my mind for some strange reason!!!!!!

We have Roadrunner and I love it, but we do have troubles from time to time. And we also need a new puter, but no money for that right now, so it will have to wait.

I am glad I did not have Lupus or whatever I have while I was bringing my kids into the world. I have read how all of you had very difficult pregs with Lupus.

I did have a couple of premature births and a difficult preg with my last child, so maybe there is something about that with me also.

I can definitely understand having the tubes tied. I don't know how you managed having your little ones and being so sick. I am sure you made the right decision.

Hope you are getting some rest tonight. Normi and I will be good girls from now on. Maybe!!!!!!!! Love, Donna

DONNA

DONNA BRAODBAND IS A CABLE CONNECTION ... IF I FIGURE EVERYTHING OUT WE SHOULD HAVE IT BY FEBUARY ... ITS LIKE RAODRUNNER I CANT EVEN THINK OF WHAT THE OTHERS ARE CALLED .. I FOUND OUT LAST WEEK THAT IF I HAVE IT EVERYONE CAN BE ON LINE AT THE SAME TIME ... WE ARE SUPPOSE TO GET A NEW PUTER NEXT YEAR ... HAVENT REALLY FIGURED THAT ONE OUT ... DIL IS GETTING A USED PUTER FOR THE KIDS AND IF WE GET A NEW ONE ANDY AND I WILL HAVE OUR OWN PUTER SO I WONT HAVE TO WAIT TILL HE AND THE KIDS GET DONE TO HAVE THE PUTER .. WELL I ACTUALLY HAVE IT 75% OF THE TIME WE ALWAYS TRIED TO GIVE THE KIDS THE OPTION OF MAKING THIER OWN DECISIONS .. LIKE WHAT THEY WANT TO WEAR WHAT SHOULD BE FOR DINNER .. STUFF LIKE THAT .... WE ALWAYS TOLD THEM THAT NO MATTER WHAT THEY CAN TALK TO US ... ANDRIA (9) DOES THAT ALREADY .... I GUESS AFTER SHE WAS BORN IT WAS JUST ME AND HER CUZ ANDY WAS ALWAYS IN THE FIELD .. AND I ENJOYED MY PREGNACY WITH HER ... WHEN I GOT PREGNANT WITH PATTY I WAS ALWAYS SICK .. I HAD MASSIVE MIGRAINS .. I SLEEPED MOST OF THE TIME .. ONLY GETTING UP TO MAKE BREAKFAST AND LUNCH FOR ANDY ...... I NURSED ANDRIA TIL I WAS 3 MONTHS PRGNANT WITH PATTY ..... THEN I WOULD ONLY FEED HER WHEN SHE WAS AWAKE .. SHE SLEPT WHEN I DID .. I DIDNT FIND OUT I HAD LUPUS TILL PATTY WAS 6 MONTHS OLD ... IN A WAY I THINK I HOLD SOME RESENTMENT TOWARD HER FOR THAT ... I AM LEARNING IT WASNT HER FAULT .. IT JUST HAPENED ALL AT THE SAME TIME ... AND IT ALWAYS SEEMED LIKE SHE DIDNT WANT ME ... WE DIDNT BOND ..RIGHT AWAY ... I WOULD NURSE HER AND SHE WOULD WAIT TILL I PUT HER IN THE CRIB BEFORE SHE FEEL ASLEEP ...... MORE THEN ANYTHING I FELT REJECTED BY HER .. NOW ANDY BONDED WITH HER .. PAID MORE ATTENTION TO HER THEN HE DID TO ANDRIA ... WHEN PATTY WAS BORN SHE WAS NOT A GOOD LOOKING BABY .. SO I THOUGHT .. JUST BEING HONEST ..... BUT ANDY HELD HER AND SAID HE WOULD HAVE TO FIGHT BOYS OFF TO KEEP HER SAFE ..LOL.. I THINK ITS BECAUSE SHE HAD BROWN HAIR AND BROWN EYES .... AND THAT IS WHAT HE LIKED OR LIKES .. THEN THREE YEARS LATER I GOT PREGNANT WITH ALDIN ..... I WAS A SCHOOL BUS DRIVER AT THAT TIME .... AND I THOUGHT I WAS GOING THROUGH A FLARE CUZ I WAS THROWING UP ALL THE TIME .. WELL ONE NIGHT I WAS TALKING WITH ANDY AND I FOLDED MY ARMS ACROSS MY CHEST ... WOULD YOU BELIEVE I HAD WET SPOTS ON MY NIGHT GOWN .. I WENT AND GOT SOME CLOTHES ON NAD TOLD ANDY I WOULD BE BACK .. I RAN DOWN THE STREET TO WALMART AND GOT A PREGNACY TEST ... HERE IT WAS THE MIDDLE OF THE NIGHT AND I AM BUYING A PREGNACY TEST ...... GOT HOME TOOK THE TEST AND WELL I WAS PREGNANT ....... ANDY KNEW BEFORE I DID WITH THE GIRLS BUT HE JUST COULDNT BELIEVE IT THIS TIME ... I KNEW IT WAS A BOY ... SO WHEN I SAW THE DR I GAVE HER MY HISTORY .. I WAS LISTED AS A HIGH RISK PREGNACY ........ I WAS NEVER SICK GROWING UP .. AND ALL THIS HIT ME BAD .. BY THE 3RD MONTH I SIGNED PAPERS TO HAVE MY TUBES TIED .. THE GIRLS DIDNT HAVE A MOM AROOUND .. I WAS ALWAYS ASLEEP .. IN BETWEEN RUNS ... BUT HERE WAS MY BOY GROWING IN ME .. EVERYTIME I WENT TO MY DR.APPT THEY WOULD ASK ME IF THIER BROTHER WAS COMING HOME AND JUST WHY DIDNT THE DR TAKE HIM OUT .. HE CANT BREATH OR EAT IF HE IS INSIDE ME ... THEY WERE 4 AND 3 AT THE TIME ... OK I AM JUST GOING ON AND ON .... I DONT WANT TO SCROLL BACK TO SEE WHAT I HAVE WRITTEN ... I JUST WISH MY MEDS WOULD KNOCK ME OUT AND NOT JUST MAKE MY BRAIN WANDER ... ROMIE

Hi Romie, How do I do it with 7 kids? Well, they are really spaced. Not our doing really, would you believe I took fertility drugs with #2 and #4. I really have a difficult time getting pregnant. My kids are 4, 11, 13, 16, 20, 22, and 26. They came one at a time and I was not sick like I am now. It's weird...I have been a mom for so long, I dread the day my last one leaves home. I have never worked outside our home since #1 came along. Being a mom was all I really ever wanted to be and though I have harder times now with my body, I don't regret having so many. I regret not having more. Must be crazy...I am sure that is what anyone reading this email would say. And maybe I am. My daughters and I figured up how many years I had nursed babies and it was about 18 or so years and I was pregnant about 5 years total. I am not supermom, don't ever think I am saying that. And I hate to say this, but it gets harder when they get older, so hang on to your hat!!! While they are little, you can contol their friends and their choices to a large degree. And though you can influence your kids as they get older and you hope they take to heart what they have been taught, it just doesn't always work that way. I am speaking with the voice of experience. Didn't mean to write a book on kids, I am still learning myself!! And really, let me know how you are doing tomorrow. 679-6865. What is Broadband? Take care and hope you are feeling much better at sunrise. Love, Donna "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

[Guest guest]

Donna,

Our husbands are such a pair! It's funny when you look back, but I

don't know how many times I have been mad at my husband for his

snoring.

Nothing like having to deal with everything while they sleep (and

snore) cluelessly.

How am I feeling today? Well, a little better, but not much. The

Vicodin seemed to work pretty well, but it makes me throw up so I

have backed off on it. I have 80mg of prednisone in me so far and

another 40mg to go yet today. Hopefully, that will kick in good and

I will be feeling better. Geez!

I loved 's advice, I took it to heart, and made each change

exactly as she had it. I really value her opinion. I have the new

letter all ready to go out in the mail. We'll see what happens. He

is such an arrogant jerk, though, that I'm sure he will feel I am

just an overly emotional basket case and of course he has done

nothing wrong.

I loved that site shared with us. I think I am going to

contact the rheumy that's on the board of the LFA-MO chapter. If I

don't like him either, then I will keep changing rheumies until I

find one that is best suited for me.

Thanks for all of your concern. Hope you are doing well, sweetie!

Love,

Laurie

[Guest guest]

Are you still awake Donna???

Becky

Donna Norred wrote:

Hi Mike, Well,

it's almost 3 am here in good ol' San , Texas and I am probably

the only one in the whole city awake!!!!! Insomnia, gotta love it! NOT!!!!!!!!!!! I

was reading some earlier emails and saw that you had to have van repairs.

I am glad it is fixed but so sorry about the money it cost. >From the sound

of things, you and the boys had your meeting and decided to scrimp at little

at Christmas to be able to make the trip. Good

decision, I say!! It seems you all look so forward to this, I am happy

you will get to go. I was out trying to do a little Christmas shopping

today myself and I was thinking about you and the boys. I so wish I had

the money to send you for the van repairs. If I had it, it would be yours.

Nothing brings me more pleasure than giving. We

have a good friend who is a widow with 5 children. Several Christmases

ago our family pooled our money together and sent it to her family in a

Christmas card. It really blessed our family much more than it did theirs,

and we have just continued to do that every Christmas. Our kids look so

forward to that and they really come up with quite a bit of money from

their own earnings. Well, I hope you find

your van in good working order when you go back to the shop. Have

a peaceful weekend. Love, Donna

"The LUPIES Store" Come check out our store...

http://www.cafepress.com/thelupies

"The LUPIES Web Page"

http://www.itzarion.com/lupusgroup.html

"The LUPIES online photo albums!"

Check out what your fellow Lupies look like...

http://www.picturetrail.com/gallery/view?username=lupies

[Guest guest]

Are you still awake Donna???

Becky

Donna Norred wrote:

Hi Mike, Well,

it's almost 3 am here in good ol' San , Texas and I am probably

the only one in the whole city awake!!!!! Insomnia, gotta love it! NOT!!!!!!!!!!! I

was reading some earlier emails and saw that you had to have van repairs.

I am glad it is fixed but so sorry about the money it cost. >From the sound

of things, you and the boys had your meeting and decided to scrimp at little

at Christmas to be able to make the trip. Good

decision, I say!! It seems you all look so forward to this, I am happy

you will get to go. I was out trying to do a little Christmas shopping

today myself and I was thinking about you and the boys. I so wish I had

the money to send you for the van repairs. If I had it, it would be yours.

Nothing brings me more pleasure than giving. We

have a good friend who is a widow with 5 children. Several Christmases

ago our family pooled our money together and sent it to her family in a

Christmas card. It really blessed our family much more than it did theirs,

and we have just continued to do that every Christmas. Our kids look so

forward to that and they really come up with quite a bit of money from

their own earnings. Well, I hope you find

your van in good working order when you go back to the shop. Have

a peaceful weekend. Love, Donna

"The LUPIES Store" Come check out our store...

http://www.cafepress.com/thelupies

"The LUPIES Web Page"

http://www.itzarion.com/lupusgroup.html

"The LUPIES online photo albums!"

Check out what your fellow Lupies look like...

http://www.picturetrail.com/gallery/view?username=lupies