Re: About Myself/Specific Question

[Guest guest]

,

I had similar challenges when first diagnosed with Ulcerative Colitis

and the medications I was on but was able to overcome the issues that

time. Hopefully I will have the same success this time. You

confidence in the end result was reassuring. Thanks.

> ,

>

> Since I'm not clear on the specifics of your case, I can only tell

you a

> little of my experience trying to get a pilot's license. My

problem

> centered around a drug I was taking for Crohns's disease at the

time. With

> a letter from my GI doctor that I was being taken off lomotil the

issue was

> resolved with the Office of the Surgeon General for the FAA. It

took about

> 5 months to get my pilot medical approved.

>

> Another story. On visiting my liver doctor at Mayo in March he

indicated

> that Mayo had the first liver transplant of a pilot. The

transplant was

> about six years ago and the guy is still flying.

>

> Hang in there and you'll get your medical!

>

>

>

>

[Guest guest]

,

I'm sorry to say that I do not have any answers, or suggestions, to your

questions. However, I did want to say thanks for coming out of hiding, and

onto the screen, and to let you know that our hearts go out to anyone with

this stinking disease!!! I, personally, appreciate getting the history of

how this disease presented itself and the route it has taken. Three

generations in our family have liver problems and I have an 18 y.o. that has

had elevated LFT's, so it's helpful to know the various ways it creeps into

people's lives.

I certainly hope you find the answers you are looking for and that the end

results are positive! Just hate when PSC has too much control over people's

lives. Keep your chin up and fight the battle and know that all of us here

are your allies and will help in any way possible.

[Guest guest]

,

I'm sorry to say that I do not have any answers, or suggestions, to your

questions. However, I did want to say thanks for coming out of hiding, and

onto the screen, and to let you know that our hearts go out to anyone with

this stinking disease!!! I, personally, appreciate getting the history of

how this disease presented itself and the route it has taken. Three

generations in our family have liver problems and I have an 18 y.o. that has

had elevated LFT's, so it's helpful to know the various ways it creeps into

people's lives.

I certainly hope you find the answers you are looking for and that the end

results are positive! Just hate when PSC has too much control over people's

lives. Keep your chin up and fight the battle and know that all of us here

are your allies and will help in any way possible.

[Guest guest]

Hi ,

No, Dr. Lindor is at Mayo in Rochester. Sorry about the confusion.

ny

About Myself/Specific Question

> >Date: Fri, 24 May 2002 05:17:08 -0000

> >

> >Hello All,

> >

> >My name is . I have been a member of the group for 4-5 months

> >now. I am one of your typical male " lurkers " but have posted once or

> >twice. I have a specific question that most likely no one will have

> >the answer to but before I get to that let me give you a little

> >background on my story.

> >

> >I am 31 and live in the Seattle area. I am married and have a 5

> >month old daughter. I work for a communications company as the office

> >manager and am also a Pilot and Flight Instructor. I was initially

> >diagnosed with UC about 10 years ago and have been very fortunate

> >compared to most. After my first flare up, I have gone 10 years

> >until I has another flare up about 6 months ago. I know most people

> >have much shorter intervals between flare ups. This time I was able

> >to get it back under control with Asacol only, no prednisone, which

> >was a choice I made based on my past speedy recovery

> >

> >Until last June I had never been in a hospital my entire life. Then

> >in June, I had my appendix out, and for the rest of the summer things

> >got worse and worse. As I said my UC flared back up, I was diagnosed

> >with type II Diabetes, and of course I was diagnosed with PSC

> >discovered initially through a life insurance test due to the pending

> >birth of my daughter. A colonoscopy, liver biopsy, and ERCP later

> >the diagnosis was final. Since then I have had two more ERCP's to

> >place an initial stent then upsize it 3 weeks later. I will have

> >another ERCP in 2-3 months. The ERCP and biopsy has shown that I

> >have probably had PSC for some time with the biopsy already showing

> >signs of cirrhosis. My only symptoms have been fatigue and of course

> >elevated LFT's. I am now at the University of Washington being

> >followed by the Hepatologist.

> >

> >So that is my story, now my question:

> >

> >Is there anyone here that is also a pilot? What experience or

> >success have you had in getting a flight medical certificate? I am

> >currently in the middle of battling with the FAA in an attempt to get

> >my medical re-issued. My case has been refferred to the FAA Main

> >Office and the review is expected to take 3-6 months. Any advice on

> >how you were able to get your medical issued if you were indeed

> >successful. What hoops did you have to jump though to make it happen?

> >

> >I realize there may be no one in the same situation but this group

> >seems to be the best place to ask and it is a good opportunity to not

> > " lurk " and properly introduce myself. You postings have been very

> >helpful in understanding this disease. Thanks for the support.

> >

> >

> >

>

>

>

>

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