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Reality Check

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Dana...

The exact same thing happened to me...I just started this WOE November 1st

and have lost 25 pounds and am down 2 jean sizes already....I can hardly

believe it!

272/247/165

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In a message dated 12/5/00 12:52:30 PM Eastern Standard Time,

whirlwindpatrol@... writes:

<< Anyway, the other strange thing is I'm not hungry at all.

I don't want carbs. I like eating the foods I'm eating, it's

just easy to forget to eat, and I'm not eating as much

as I thought I would.

Did anyone else have the same experience when starting

out?

Dana >>

YES!!!! I still feel like I have to force myself to eat 6 times a day. I've

never hungry and I like that but wish I didn't have to snack to keep the

metabolism going. I'm too scared to try not eating cuz I might stop losing!

K in MI

275/245/160

since 11/9/00

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Dana,

I'm just finishing my second month on this WOL, and I completely understand

what you've written.

The first two weeks I lost ten pounds (must have been water). Then the

weight loss seemed to stall, but the inches kept going down. I stayed within

two pounds of my initial loss (usually up 2) for a month! I had a very bad

day a week ago where I went back to 0 ketones, and it took me three days to

reverse that. Since then though, my weight loss seems to have resumed to 1

pound a week.

I'm learning patience, and I'm slowly gaining some finesse in my menus.

I've realised that this is a 'slow and steady wins the race' type of

lifestyle that I've adopted, and I'm very satisfied with it. I know I won't

be at my ideal by Christmas, but I do feel better every day, and that is a

victory I can't measure.

Jodi.

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  • 8 years later...
Guest guest

-Tom: Not sure I understand what's going on here. Were you having problems

before being diagnosed with the prostate cancer? How old are you? I don't know

that TUMP is used for this cancer. Your relatively low grade cancer scores

would allow you several options for effective treatments with low level side

effects I'd think.

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Guest guest

Lots of years of BPH, but no PCa diagnosis until last few

months. I'm 64, 65 in Dec. I hope you're right re: options, and everything I've

read indicates you are. I'd just like to regain control of my bodily functions,

and the Cypro doesn't seem to be making this happen. The TUMP was intended to

make sure I don't go into urinary retention after the next step, which at the

time I thought would be brachytherapy. Now I want to avoid another catheter at

all possible costs.

Tom Lauterback

From:

ProstateCancerSupport

[mailto:ProstateCancerSupport ] On Behalf Of mccartney_7

Sent: Saturday, August 08, 2009 9:48 AM

To: ProstateCancerSupport

Subject: Re: Reality Check

-Tom: Not sure I understand what's going on

here. Were you having problems before being diagnosed with the prostate cancer?

How old are you? I don't know that TUMP is used for this cancer. Your

relatively low grade cancer scores would allow you several options for

effective treatments with low level side effects I'd think.

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Guest guest

> I've also changed my thinking re: the next step to external

> beam from brachytherapy to avoid future catheterization. May or

> may not make sense; I hate to make such a vital decision based

> on what should be such a trivial concern.

Tom,

I don't know the answer to your questions, but I have a few

thoughts about them.

First off, from what I have read, the outcomes for external beam

radiation and brachytherapy are about the same. As far as I know

(and you need to consult a real radiation oncologist to get a

more knowledgeable opinion), you won't hurt your chances of

cancer control by switching to EBRT if that's what you wish to

do.

I've had both. They both have side effects. However the EBRT is

particularly easy to take. Normally there would be no incisions,

no catheter, no anesthetics, no hospital stay. If something

goes wrong, for example if the radiation causes the prostate to

swell and block the urethra, a catheter could be required. But I

think that happens rarely. I was almost at that point after one

of my HDR brachytherapies, but not after any of the external beam

treatments.

As for your incontinence, that may be due to a botched TUMP

rather than a botched catheter. It might be time for you to

consult a different urologist than the one you've been seeing.

I hate it when doctors refused to admit that they may have done

something wrong and just gloss over the problem and push you out

the door - probably fearing that you'll sue them if they admit to

having messed anything up. When you see a new doctor he'll

probably take the same attitude as a professional courtesy to his

colleague ( " No, I don't think he screwed up. It was just bad

luck. " )

I do think it's important to find out what's really causing your

incontinence. Infection seems less likely than damage from the

TUMP to me. People get urinary tract infections all the time

without becoming incontinent. It bothers me that the doctor gave

you antibiotics in this case, but what do I know? In any case, I

think it would be very valuable to find out what has gone wrong

with your sphincter before subjecting it to possible further

damage from radiation.

Best of luck for the future.

Alan

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Guest guest

Tom --

>

> I need to ask your help with a reality check. I've been diagnosed for about

> 2 months, T1c, PSA 5.7, Gleason 6, neg. bone scan, 87% Partin, undecided re:

> next step.

>

>

>

> I had the microwave thermotherapy as well as a Lupron shot to prep me for

> the next step. I hate the Lupron effects but I REALLY hate what I assume is

> the result of the microwave and/or catheterization.

What is " microwave thermotherapy " ? That's new to me.

> I'm quite incontinent several weeks after having the catheter removed. My

> uro cavalierly stated I have an infection and put me back on Cypro. That was

> over a week ago, and there's been no change. The blood that I was seeing in

> the urine has gotten a bit better, but there are still traces. For those of

> you who have been catheterized and/or microwaved, is this typical 5-6 weeks

> later? I'm getting scared. I know there's a healing process involved, but

> this has dragged on for a long time.

It's not typical for surgery patients. After the catheter is removed (one week

to three weeks after surgery, depending on the doctor) most patients don't bleed

much, if at all. [i didn't bleed at all, but did get a urinary stricture -- a

whole different problem.]

And most surgery patients (not all!) recover reasonable continence within a

month.

If your bladder sphincter has been destroyed, removed, or damaged, that might

account for the incontinence.

> I've also changed my thinking re: the next step to external beam from

> brachytherapy to avoid future catheterization. May or may not make sense; I

> hate to make such a vital decision based on what should be such a trivial

> concern.

I _think_ that external beam patients sometimes have urinary problems that

require catheterization. Check with your doctor, and online.

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